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Post by Baseballmom23 on Mar 6, 2021 4:51:26 GMT
Thank you! I actually do not have the BRCA gene. I have had genetic testing and I am BRCA negative. My cancer is based on environmental factors (think baby powder). I use that avatar to help with awareness. I am feeling okay. Had chemo today and I am battling some mild nausea. Thank you for thinking of others and trying to raise awareness! ❤️ I hope they have prescribed you some good anti-nausea drugs. They make you tired, but I’ll take tired over nauseated any day. Yes my doctor has hooked me up! |
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Post by shessoaverage on Mar 6, 2021 22:47:39 GMT
shessoaverage - how did your appointment go? I've been thinking of you and sending up prayers. Thank you so much for asking. I'm still trying to get my mind around the whole thing. I liked the clinic and the surgeon, who seems very competent. She said that the tumor is invasive ductal, but very small - appears to have been 3mm before the biopsy, which likely took a good bit of it. I'm having a lumpectomy on the 29th. She said that, statistically, there wasn't an advantage to a full mastectomy with this size of tumor. Of course, I guess that could change depending on what they find. They have to insert a wire (!  ) into the breast before the surgery to be sure to find the spot again, even though there's a clip in there from the biopsy. That sounds a little unpleasant. They are injecting a tracer into the breast to find sentinel node(s) to remove and test. If they're clear, I will do just radiation, if not, chemo and whatever else. Then, of course, the hormone-suppressing drug for however long. I was postmenopausal at 35 and still have multiple hot flashes a day, so not sure where all these hormones are coming from, but they're going to suppress them. And now for the stupid fear of the day - I've spent the past year sitting at home, afraid of COVID. Masking, washing, taking full precautions, partly because the nose swab test for it sounded so bad, and I've avoided it. Now I'm fully vaccinated, but I have to get the test two days before the surgery, darn it! Of all the things to worry about, haha. RedSquirrel, I see you're from the West Country. I spent three happy months at riding school in Porlock, Somerset, when I was 31. You live in a lovely region! I'm sending up daily prayers for you and for all of us! |
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udterp
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Post by udterp on Mar 6, 2021 23:17:45 GMT
Long time lurker with a story to share...don’t ignore lumps and bumps no matter where they show up.
I had a small lump on my shin, first noticed it in early 2019, not painful, didn’t grow any larger. Blew it off because skin things come and go at my age. Went for a physical, dr thought it wasn’t anything but made appropriate referrals to get removed. Moved through the process, ended up at surgical oncology who still thought it didn’t present as cancerous in any of the scans or during removal.
Pathology report comes back..myxofibrosarcoma. Surprised everyone, had a complicated radical resection with a failed muscle flap but hopefully was a curative surgery. Mine was low grade but it is a highly recurrent sarcoma that tends to metastasize to the lungs. The first 2 years are the highest risk for return, I have 6 more months to reach that milestone.
So lesson learned, any lump anywhere needs to get checked. Positive thoughts to everyone dealing with a cancer diagnosis, it changes everything.
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Post by Really Red on Mar 6, 2021 23:55:34 GMT
Sending hugs to all of you going through this. I cannot imagine your level of stress and in particular in these times.  |
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Post by mom on Mar 7, 2021 0:04:16 GMT
Long time lurker with a story to share...don’t ignore lumps and bumps no matter where they show up. I had a small lump on my shin, first noticed it in early 2019, not painful, didn’t grow any larger. Blew it off because skin things come and go at my age. Went for a physical, dr thought it wasn’t anything but made appropriate referrals to get removed. Moved through the process, ended up at surgical oncology who still thought it didn’t present as cancerous in any of the scans or during removal. Pathology report comes back..myxofibrosarcoma. Surprised everyone, had a complicated radical resection with a failed muscle flap but hopefully was a curative surgery. Mine was low grade but it is a highly recurrent sarcoma that tends to metastasize to the lungs. The first 2 years are the highest risk for return, I have 6 more months to reach that milestone. So lesson learned, any lump anywhere needs to get checked. Positive thoughts to everyone dealing with a cancer diagnosis, it changes everything. Oh wow! That is good you got it checked. I have a lump that has been on my shin for probably 3 years. I haven't thought to get it looked at (not growing, not painful, no color change) but maybe I should point it out next time I am in. Thanks for sharing your experience. I hope you are able to achieve your 2 year milestone! |
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udterp
New Member
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Post by udterp on Mar 7, 2021 0:44:19 GMT
mom please do have it looked at. Sarcoma is rare but often goes misdiagnosed because doctors are not familiar with them. I work in the healthcare field so was aware of this type of cancer but still waited to have it examined.
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) into the breast before the surgery to be sure to find the spot again, even though there's a clip in there from the biopsy. That sounds a little unpleasant. They are injecting a tracer into the breast to find sentinel node(s) to remove and test. If they're clear, I will do just radiation, if not, chemo and whatever else. Then, of course, the hormone-suppressing drug for however long. I was postmenopausal at 35 and still have multiple hot flashes a day, so not sure where all these hormones are coming from, but they're going to suppress them.
