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Jun 1, 2024 21:30:36 GMT
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Post by Deleted on Nov 9, 2022 17:53:07 GMT
Thanks for latest update - sounds like he is an amazing surgeon He is just the coolest doctor I have ever had the pleasure to know. If you were to pass him on the street, you would never know that he is this brilliant neurosurgeon. He is so down to earth and is just so cool with his staff. When asking around about him, people kept describing him as very humane. I was lucky enough to get an appointment with probably one of the top neurosurgeons in Morocco, and while he was nice enough, he was quite braggadocious. The character of a person is very important to me and I trust my gut feeling almost implicitly. My surgeon was very honest from the beginning and told as A-Z what the risks were. At the end, he wanted to make sure that I was comfortable with him as he said that was very important in us taking the journey together. Honestly, I think have a non-romantic crush on him! I am a TOTAL science nerd when it comes to the human body, especially the brain. When he was telling us all about the surgery and all the parts and stuff...I damn near swooned!
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Jun 1, 2024 21:30:36 GMT
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Post by Deleted on Nov 9, 2022 17:58:16 GMT
I’m so happy for you!!!! This reminds me of my husband! He was diagnosed 10 years ago with a brain tumor at the base of his cerebellum. He had been having problems with dizziness, headaches and getting lightheaded. His doctor was very flippant about what it could be. One day he was put with a training doctor at the office and luckily that doctor wasn’t as casual. He signed my husband up for an MRI and that is when they found the tumor. It was the size of a racquetball. This Doctor who was in training put a team together at a hospital in our city. This team was made up of an amazing surgeon who is actually very sought after! He was open and honest and told us from the very beginning he expected it to be a very aggressive cancer. We are blessed with the fact that it turned out to be benign. When pathology gave that initial report to him while he was in surgery he did everything he could to get all of the tumor. My husband just had his 10 year check up and the surgeon said his brain looks “big and robust”. He is considered cured. We are so very blessed by this. We were told had my husband waited even a week longer most likely the tumor would have killed him because of how it was pressing against the brain stem. I am so thankful for the doctor who was “in training”. My husband deals with some side effects, but over all he is back at life and so happy with how this turned out. I will keep sending you positive thoughts!!!! This is a terrific place to be after such a scare! I am SOOOOO happy that your husband had such a good outcome. Was it a meningioma? Thank God the right doctor came along and put it together. I don't have any side effects...so far. I hope that your husband continues to flourish in his health!!!!
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Jun 1, 2024 21:30:36 GMT
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Post by Deleted on Nov 9, 2022 18:12:52 GMT
Isn’t life funny how it brings us together? You a great surgeon and he an English teacher! Wishing you only the best allipeas!
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Jun 1, 2024 21:30:36 GMT
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Post by Deleted on Nov 9, 2022 18:31:33 GMT
The surgery sounds like it was terrifying. So happy you had an awesome surgeon! Good luck with getting the rest of the tumor removed! So happy that your headaches have been alleviated! Honestly, everything happened SO fast that I don't think I had much time to dwell on just how scary my situation was. I mean when the doctor told me the tumor could very well end my life...I don't think I heard or felt much after that. There was a night a couple days before surgery where I honestly felt the fear overwhelm me, but my BFF (the one that flew here to be with me) texted with me through the night and helped me come down off the ledge. The the morning of the surgery, I was sitting in the wheelchair (because I no longer could walk good on my own) when they came with "the bed" to wheel me down. I went to stand up and I sat back down and I was just like...I can't do this. But then I thought of my precious children and knew that I couldn't leave them and I got on the bed. After that, things happened so fast and they sedated me pretty quick. I think I mentioned before the surgery in a post, that I felt "outside of myself". I still feel that way actually. I have not had a whole lot of emotion about that whole thing. I think perhaps I might have a bit of disassociation going on. When I can drive, I plan on seeing my therapist and talking to her about it. Without doubt, this has been one of the scariest things I have ever gone through in my whole life. What a great update. I’m so glad that you are improving daily. I’m just in shock that you were walking around with a tumor that large and functioning in any way. I wish you continued recovery! I can't believe it myself! Even the surgeon was impressed at it's size! LOL The truth is that I had symptoms as far back as LAST SUMMER but I ignored them. The last two months before surgery, I was not functioning well. I was taking entirely too much pain meds (that didn't even make a difference). The last month, my mobility was really effected. If you look at a good pic of the brain that outlines parts of it, you will see somewhat of a space where the lower dura is at the base of the skull, close to the cerebral tonsils. The tumor just grew into that space, the doctor thinks it has been there for years slowly growing away. We will never know if the growth suddenly accelerated or what, but it's as if all at once all the "check engine lights" started flashing red and it just caused compression suddenly on my brain stem and was heading right for the part of my spine that attaches to the brain. YIKES! The compression was also pressing on the dura that was leaking spinal fluid into my brain. That was what was causing the blinding headaches. I am just a very fortunate person. I definitely cashed in all my good deed chips on this one!!!!
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Jun 1, 2024 21:30:36 GMT
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Post by Deleted on Nov 9, 2022 18:34:00 GMT
Isn’t life funny how it brings us together? You a great surgeon and he an English teacher! Wishing you only the best allipeas ! Yes...amazing how that happens. It has happened enough times in my life to feel like more than an accident. Thank you!
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Post by tommygirl on Nov 9, 2022 18:36:16 GMT
What a wonderful update!
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Post by Basket1lady on Nov 9, 2022 19:15:35 GMT
The surgery sounds like it was terrifying. So happy you had an awesome surgeon! Good luck with getting the rest of the tumor removed! So happy that your headaches have been alleviated! Honestly, everything happened SO fast that I don't think I had much time to dwell on just how scary my situation was. I mean when the doctor told me the tumor could very well end my life...I don't think I heard or felt much after that. There was a night a couple days before surgery where I honestly felt the fear overwhelm me, but my BFF (the one that flew here to be with me) texted with me through the night and helped me come down off the ledge. The the morning of the surgery, I was sitting in the wheelchair (because I no longer could walk good on my own) when they came with "the bed" to wheel me down. I went to stand up and I sat back down and I was just like...I can't do this. But then I thought of my precious children and knew that I couldn't leave them and I got on the bed. After that, things happened so fast and they sedated me pretty quick. This is what got me through my vestibular recovery. I had to do it for my kids and my husband. I have a mass of scar tissue in my right lobe, caused by a sinus infection. I was unreasonably angry and incredibly fatigued. It was the thought of them that caused me to seek help and then in my recovery. I love that you are going to tutor your surgeon in English. We had a similar relationship with our reproductive endocrinologist. After years of trying to get pregnant, he had me pregnant in less than 6 months. He had a daughter going through a service academy (military) and DH is an AF Academy grad. He was able to give a lot of valuable insight into the life of a cadet and how to support her as a parent. It’s good to know that we can give a little something back.
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Post by leslie132 on Nov 10, 2022 4:30:33 GMT
I’m so happy for you!!!! This reminds me of my husband! He was diagnosed 10 years ago with a brain tumor at the base of his cerebellum. He had been having problems with dizziness, headaches and getting lightheaded. His doctor was very flippant about what it could be. One day he was put with a training doctor at the office and luckily that doctor wasn’t as casual. He signed my husband up for an MRI and that is when they found the tumor. It was the size of a racquetball. This Doctor who was in training put a team together at a hospital in our city. This team was made up of an amazing surgeon who is actually very sought after! He was open and honest and told us from the very beginning he expected it to be a very aggressive cancer. We are blessed with the fact that it turned out to be benign. When pathology gave that initial report to him while he was in surgery he did everything he could to get all of the tumor. My husband just had his 10 year check up and the surgeon said his brain looks “big and robust”. He is considered cured. We are so very blessed by this. We were told had my husband waited even a week longer most likely the tumor would have killed him because of how it was pressing against the brain stem. I am so thankful for the doctor who was “in training”. My husband deals with some side effects, but over all he is back at life and so happy with how this turned out. I will keep sending you positive thoughts!!!! This is a terrific place to be after such a scare! I am SOOOOO happy that your husband had such a good outcome. Was it a meningioma? Thank God the right doctor came along and put it together. I don't have any side effects...so far. I hope that your husband continues to flourish in his health!!!! No, his tumor was a different name. A very long one . They believe he started developing it in his late teens……around 17. He was 40 when it was discovered. Our twins were 4 months old and he had just turned 40. I always try to look for the silver lining. At the time his career was very demanding. We never saw him……he was always at work. Because of his surgery he was home with us for 5 months. He got to see great “first” times for our little ones. I pray that you continue to heal and that all of your doctors care leads to a healthy and complete recovery.
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Post by marie on Nov 10, 2022 4:50:19 GMT
Wonderful update! You have been on my mind and I'm glad to hear your recovery is going well.
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Post by iamkristinl16 on Nov 10, 2022 12:39:46 GMT
I’m glad you are doing well!
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