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Post by LisaDV on Aug 29, 2017 23:28:41 GMT
Migraines are usually located on one or the other side of the head or both sides but can be in the neck as well. They can be acute or throbbing. Nausea is often associated with them. Darkness and quiet can help. DD just saw a neurologist at the Mayo who said that riboflavin (vitamin B) has been shown to be just as effective as several drugs given to reduce frequency of migraines. He put her on a 100mg dose 2x a day (your body excretes the unused in your pee and your pee color may change). He didn't take her off the other medicine she is on but I'm hoping her normal neurologist will start the decrease of it when we see him in October. So start taking vitamin B and make an appointment with a neurologist is my suggestion for you. Also pay attention to your triggers Lisadv, I was at Whole Foods yesterday looking for vitamin B so I could start taking this for my migraines and they had two different kinds-Vitamin B1 and Vitamin B2. There wasn't just a Vitamin B. Can you check with your DD and find out which one she is taking? Thanks so much in advance. Currently I'm taking Topamax as a preventive and also a Magnesium supplement from my Integrative Medicine doctor. We're still at the Mayo, I'll ask the Dr later this week
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Deleted
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May 19, 2024 10:35:20 GMT
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Post by Deleted on Aug 29, 2017 23:32:10 GMT
I have always had a lot of headaches but last night it was different. During dinner, I started having a headache and it progressed throughout the evening. It was throbbing and hurting all over, but more so in the front part of my head (usually my headaches are painful all over but seem to originate in my neck/back of head). There have been times where I felt mildly nauseous during a headache, but last night I thought I was seriously coming down with something. I thought for sure I was going to throw up but didn't. I took some ibuprofen and was able to fall asleep around midnight. I woke up again at 1:30 and it was much better. I have a mild headache right now but not too bad. Does this sound like a migraine? If so, what do you take for it? Have you noticed any triggers? (I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse!
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Post by birukitty on Aug 30, 2017 0:08:44 GMT
Lisadv, I was at Whole Foods yesterday looking for vitamin B so I could start taking this for my migraines and they had two different kinds-Vitamin B1 and Vitamin B2. There wasn't just a Vitamin B. Can you check with your DD and find out which one she is taking? Thanks so much in advance. Currently I'm taking Topamax as a preventive and also a Magnesium supplement from my Integrative Medicine doctor. We're still at the Mayo, I'll ask the Dr later this week Thank you so much. I really appreciate it.
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Deleted
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May 19, 2024 10:35:20 GMT
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Post by Deleted on Aug 30, 2017 0:15:20 GMT
P.S.: I've added magnesium, vitamin B complex and vitamin D (since I was lacking it, somehow!), but I haven't noticed a difference, and it's been months now. Look up the chronic pain Pea threads and you could read about certain meds and routines that people do. It might be helpful to you.
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Post by birukitty on Aug 30, 2017 0:22:35 GMT
I have always had a lot of headaches but last night it was different. During dinner, I started having a headache and it progressed throughout the evening. It was throbbing and hurting all over, but more so in the front part of my head (usually my headaches are painful all over but seem to originate in my neck/back of head). There have been times where I felt mildly nauseous during a headache, but last night I thought I was seriously coming down with something. I thought for sure I was going to throw up but didn't. I took some ibuprofen and was able to fall asleep around midnight. I woke up again at 1:30 and it was much better. I have a mild headache right now but not too bad. Does this sound like a migraine? If so, what do you take for it? Have you noticed any triggers? (I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse! Not every patient with migraines experiences nausea. I'm not sure it that's what you mean because you did say "they can.." I've had migraines for 37 years and I've only had nausea once. I got my first one at 20 and thought I had a brain tumor. I'm sure that's common when you have your first one and that immense pain that is so unlike a headache scares the heck out of you. It is very true that it's incredibly helpful to find out what your triggers are. Next time you get one (after the pain is over) think back and write down everything you've had to eat, drink and what conditions were like around you. What was the weather like? Did you skip meals? My triggers are food coloring (which is in almost everything so I have to be very careful), perfumes or anything with chemical scents like shampoo, hand lotion (products made with natural scents using essential oil I'm fine with), lack of sleep, used to be hormones but since I passed menopause I've gotten far fewer. Barometric pressure is a big problem for me too. Be careful with Excedrin Migraine because it can cause relapse migraines-one that feels like it's gone only to reappear a few hours later so you take some more and the whole cycle repeats itself. This can go on for days.
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paigepea
Drama Llama
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Post by paigepea on Aug 30, 2017 0:24:26 GMT
It doesn't sound like you had a migraine. Migraines are usually on one side or the other.
My triggers are not eating or sleeping regularly, chocolate, sugar, funny light.
I use prescription migraine medication.
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Deleted
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May 19, 2024 10:35:20 GMT
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Post by Deleted on Aug 30, 2017 1:15:08 GMT
(I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse! Not every patient with migraines experiences nausea. I'm not sure it that's what you mean because you did say "they can.." I've had migraines for 37 years and I've only had nausea once. I got my first one at 20 and thought I had a brain tumor. I'm sure that's common when you have your first one and that immense pain that is so unlike a headache scares the heck out of you. It is very true that it's incredibly helpful to find out what your triggers are. Next time you get one (after the pain is over) think back and write down everything you've had to eat, drink and what conditions were like around you. What was the weather like? Did you skip meals? My triggers are food coloring (which is in almost everything so I have to be very careful), perfumes or anything with chemical scents like shampoo, hand lotion (products made with natural scents using essential oil I'm fine with), lack of sleep, used to be hormones but since I passed menopause I've gotten far fewer. Barometric pressure is a big problem for me too. Be careful with Excedrin Migraine because it can cause relapse migraines-one that feels like it's gone only to reappear a few hours later so you take some more and the whole cycle repeats itself. This can go on for days. I refer to my pain as "migraines," but it's SO much more. I'm not sure if you've been on the chronic pain threads or the migraine threads, but my headpain is due to a tragic, severe accident when I was 13, and a result of same. It seems to be getting worse with time. I've been very nauseous with my headpain, most of the time, and I do know people with migraines who suffer similar consequences. I wasn't sure if you were referring to me or to the OP, but I AM very careful with perfume. I'm comfortable using the coconut oil line from The Body Shop (body wash, body butter, hand wash, etc...). I really don't wear perfume anymore. I really don't drink alcohol anymore. I really don't drink anything but water and seltzer and I stay very hydrated. No caffeine. No coffee. No soda.......... I haven't noticed any change since my hysterectomy, although I had to be put on HRT (I know... it's bad!). With Excedrin ("Migraine" formula or other---it's all really the same--read the labels!), it's great as a rescue medicine for those who have occasional migraines. It does work although it can hurt your stomach, throat, etc., and it DOES have a rebound effect (as most migraine meds do). I wish I didn't know a lot about this topic, but it's my life, sadly!! I live in severe pain every single day because of my eye/head. It's a horrible way to live, but life could be worse... Ooh, and I DO have a migraine journal. I have to, because I bring it to my pain mgmt doctor. I also get tested every 3 months (urine and blood), so that he could make sure I'm ONLY taking the Rx's he prescribed and nothing more, according to our contract!). He is always looking for ways to make my pain more bearable (without drugs), but unfortunately nothing works at this point. I wish the OP good luck, and I hope this doesn't happen again anytime soon!
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Post by LisaDV on Aug 30, 2017 1:49:22 GMT
We're still at the Mayo, I'll ask the Dr later this week Thank you so much. I really appreciate it. I just checked the Rx. It's riboflavin vitamin B2
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Post by iamkristinl16 on Aug 30, 2017 3:22:37 GMT
P.S.: I've added magnesium, vitamin B complex and vitamin D (since I was lacking it, somehow!), but I haven't noticed a difference, and it's been months now. Look up the chronic pain Pea threads and you could read about certain meds and routines that people do. It might be helpful to you. Thanks. I do take magnesium and vitamin D now. Sometimes I take Thrive which has a good amount of B vitamins. I'm on the low end of B12 and vitamin D and am anemic.
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milocat
Drama Llama
Posts: 5,437
Location: 55 degrees north in Alberta, Canada
Mar 18, 2015 4:10:31 GMT
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Post by milocat on Aug 30, 2017 3:55:09 GMT
Thank you so much. I really appreciate it. I just checked the Rx. It's riboflavin vitamin B2 Yup I was going to say B2. You will also see magnesium, feverfew, CoQ10. They no longer recommend butterbur. Supplements can take months to make a difference, if they do.
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milocat
Drama Llama
Posts: 5,437
Location: 55 degrees north in Alberta, Canada
Mar 18, 2015 4:10:31 GMT
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Post by milocat on Aug 30, 2017 4:08:42 GMT
I have always had a lot of headaches but last night it was different. During dinner, I started having a headache and it progressed throughout the evening. It was throbbing and hurting all over, but more so in the front part of my head (usually my headaches are painful all over but seem to originate in my neck/back of head). There have been times where I felt mildly nauseous during a headache, but last night I thought I was seriously coming down with something. I thought for sure I was going to throw up but didn't. I took some ibuprofen and was able to fall asleep around midnight. I woke up again at 1:30 and it was much better. I have a mild headache right now but not too bad. Does this sound like a migraine? If so, what do you take for it? Have you noticed any triggers? (I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse! They say there is no such thing as a sinus headache without a sinus infection. That what people think are sinus headaches are really migraines. I don't know, just what I've read and heard a few places. My dad gets sinus headaches only and they say migraines are heredity so that's perhaps where I get them from. My migraines aren't 1 sided. I don't think you can say migraines are usually...anything. What triggers one person can help another. What is a symptom for someone never bothers another. Light doesn't bother me, I don't usually get nauseous, never vomit, weather doesn't bother me. Sounds does, some smells do, my period does, my entire head can hurt, it can move from side to side or top to back, my neck, always my face (cheek, eye). I'm so sorry for you all in the US that your meds are so expensive and not covered much. I tried one triptan, Zolmig and it didn't work well. Now I'm on Frova and it's $100 for 7 pills and and get 70% of that back (I don't even have good coverage). I've seen on FB groups what some US people are paying and it's crazy and sad. Journaling is good to figure out your triggers but it's tough since it can take a day or two sometimes before it can make your head hurt. And if it's an ingredient in a food that must be impossible and frustrating to pinpoint.
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Post by birukitty on Aug 31, 2017 0:17:58 GMT
Thank you so much. I really appreciate it. I just checked the Rx. It's riboflavin vitamin B2 Thanks so much Lisaadv. I'll pick some up next time I'm at Whole Foods.
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Post by birukitty on Aug 31, 2017 0:36:58 GMT
(I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse! They say there is no such thing as a sinus headache without a sinus infection. That what people think are sinus headaches are really migraines. I don't know, just what I've read and heard a few places. My dad gets sinus headaches only and they say migraines are heredity so that's perhaps where I get them from. My migraines aren't 1 sided. I don't think you can say migraines are usually...anything. What triggers one person can help another. What is a symptom for someone never bothers another. Light doesn't bother me, I don't usually get nauseous, never vomit, weather doesn't bother me. Sounds does, some smells do, my period does, my entire head can hurt, it can move from side to side or top to back, my neck, always my face (cheek, eye). I'm so sorry for you all in the US that your meds are so expensive and not covered much. I tried one triptan, Zolmig and it didn't work well. Now I'm on Frova and it's $100 for 7 pills and and get 70% of that back (I don't even have good coverage). I've seen on FB groups what some US people are paying and it's crazy and sad. Journaling is good to figure out your triggers but it's tough since it can take a day or two sometimes before it can make your head hurt. And if it's an ingredient in a food that must be impossible and frustrating to pinpoint. I've got to agree with a lot of what is written above. It makes sense to me about the sinus headaches only occurring with a sinus infection. I'll ask my ENT doctor about that next time I see him. I do agree 100% with what she is saying about migraines presenting differently in different people. Mine aren't 1 sided either and never have been. They are always in the back of my neck and come up over the top of my head with most of it near my temples. I've never felt it in my face. I think too that everyone is different when it comes to migraines. There isn't a classic migraine except for maybe the amount of pain. I will tell you one thing though. If men got them at the same rate as women do (17% of women vs. 6% of men) we'd have a cure by now. Think about it. We've got pills for weak willys to make them stiff enough for sex, don't we? Prescription medication is more expensive in the USA, you are right about that. I take Zomig and it costs $600.00 for 6 doses in one pack. I take the kind that is in an inhaler and you squirt it up your nose instead of the tablets. With my insurance I pay $60.00 a pack after I pay my deductible for the year. $600.00 vs. $100.00 (like in Canada) is crazy! Because it's $600.00 my insurance company only allows me one pack (6 doses) per month. During the recent stormy weather I've had migraines almost every day for the past 2 weeks. I used 3 doses in a week and a half. Now I'm rationing the rest because I only have 3 to last me the rest of the 3 weeks of this month. That's adding stress and stress is a trigger. I could afford $100.00 out of pocket to buy it myself, but I can't afford $600.00. It's just so frustrating. I shouldn't complain. There are people a lot worse off than I am.
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Post by peasapie on Aug 31, 2017 2:00:21 GMT
Are your headaches on one side only? Is your neck still involved ?
Mine are always on one side (but not always the same side); sometimes also felt in my neck. My sinus gets stuffy, my eye hurts, and I get nauseous sometimes. I thought for years they were sinus headaches. They can last a short time or several days. I think headaches on just one side are a hallmark of migraines.
Motrin sometimes helps, otherwise I take Frova. These days I get botox shots every three months from my neurologist, which has decreased the frequency and severity quite a bit. I don't think triptan works on headaches that aren't migraines, so If your doctor gives you a triptan to try, might be able to figure out whether it's a migraine or not.
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hjg6578
New Member
Posts: 6
Aug 18, 2017 14:56:21 GMT
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Post by hjg6578 on Aug 31, 2017 16:17:31 GMT
Look into CoQ10, magnesium, and vitamin. If you take CoQ10, choose a water and fat-soluble form for better absorption.
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Deleted
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May 19, 2024 10:35:20 GMT
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Post by Deleted on Sept 1, 2017 4:00:37 GMT
(I didn't read any of the responses). TO ME, this sounds like a sinus headache. Migraines are usually one 1 side of the head, although not necessarily. They can and do make you feel naseous (I vomit quite regularly from them) and my triggers are sunlight, perfume, alcohol, tons of sugar/chocolate, noise........ and most of all extreme humidity and barometric pressure. Right before a bad storm is the WORST time for me. I often begin threads about migraines or chronic pain. They're really helpful to read other Peas' feedback. Sorry you might be in this "club". I hope you feel better. What used to work for me was Excedrin. Eventually that ruined my stomach and throat. I go to a pain mgmt team now and have been on opioids for a few years. Even with that, I'm still bedridden too often!! I tried Botox (once) and it REALLY worked, but the copay (Medicare) was too steep for me. What a shame that they charge you so much $$ for Botox, but they hand out opioids like candy! Hope you feel better. Remember to keep hydrated and avoid all triggers or sources that make your headpain worse! They say there is no such thing as a sinus headache without a sinus infection. That what people think are sinus headaches are really migraines. I don't know, just what I've read and heard a few places. My dad gets sinus headaches only and they say migraines are heredity so that's perhaps where I get them from. My migraines aren't 1 sided. I don't think you can say migraines are usually...anything. What triggers one person can help another. What is a symptom for someone never bothers another. Light doesn't bother me, I don't usually get nauseous, never vomit, weather doesn't bother me. Sounds does, some smells do, my period does, my entire head can hurt, it can move from side to side or top to back, my neck, always my face (cheek, eye). I'm so sorry for you all in the US that your meds are so expensive and not covered much. I tried one triptan, Zolmig and it didn't work well. Now I'm on Frova and it's $100 for 7 pills and and get 70% of that back (I don't even have good coverage). I've seen on FB groups what some US people are paying and it's crazy and sad. Journaling is good to figure out your triggers but it's tough since it can take a day or two sometimes before it can make your head hurt. And if it's an ingredient in a food that must be impossible and frustrating to pinpoint. I'm ALL too familiar with headaches, pain and migraines. I have had many sinus headaches without it getting to an infection. IMO, that's the beginning stages of an infection (just sinus pain). I take Sudafed for that, but if I develop a fever or if my face feels hot, then I know it's infected. As far as migraines go, I know that they're all different for people, but MOST of the ones I've ever heard of have those side effects (the aura, the sensitivities, etc...). I know it's frustrating to pinpoint, but after years of dealing with it, you figure some things out, unfortunately! Hope you figure yours out before it gets worse. As far as Rx's go, I'm on Medicare here in the States, and am covered for most meds (I pay anywhere from $2.20 to $8.95), but for the Botox they decided that it shouldn't be covered as a routine Rx (part D). It's weird. I guess it's not entirely acceptable in the mainstream healthcare system to add Botox as a pain drug. I wish it could be covered!
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