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Post by refugeepea on Aug 30, 2017 17:27:02 GMT
I try to keep his nails short, but you know, he hates anything that has to do with grooming period. Showers are a fight, hair cuts are a fight, nail clipping, tooth brushing..you get the pictures. Yep.
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Post by refugeepea on Aug 30, 2017 17:30:48 GMT
My son is not 100% potty trained either. He goes pee on the potty just fine, but not poop at ALL. I can't imagine that would go over well in public school. My son wears diapers to school. They take him to the bathroom throughout the day. Apparently they can't think of the last time he did poop at school, which is fine with me! I hate for them to have to deal with that. He's in a functional skills classroom. He's not the only student with that issue.
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RosieKat
Drama Llama
PeaJect #12
Posts: 5,398
Jun 25, 2014 19:28:04 GMT
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Post by RosieKat on Aug 30, 2017 17:43:07 GMT
I don't have RA and am completely healthy and I couldn't handle what you are doing. My hat's off to you! Your son has to have a lunch break. It sounds like his schedule is so full that he's doing more than if he were in public school. Something has to give. Stress can worsen RA as well so there's that. Look at doing less. I would agree with less school but also look at his therapies and see what you can give up. Back off to half if possible, you will feel better and so will he. I agree with this! You have so much on your plate. Whether any ideas here help, I hope you can find some way to at least find a little breathing room. You mention that his speech may even be getting worse - I wonder if part of that is tied into him just feeling overwhelmed and stressed? In a situation like that, it might actually help him to cut back on some therapy or something. Honestly, it sounds like trying to follow the public system at home is overly stressful in your particular circumstances right now. In all your free time (hahahahaha!) it really might be worth investigating some of the homeschooling programs. I'm thinking of the ones where they have a definite program, not where you have to do hours of prep yourself. Just finding something where you could do it on the schedule that worked for you could be a huge stress reliever, and I have to think that would only benefit all of you. And if you've already thought all this through, and just want to vent, we totally get that, too. Hugs to you, and I hope no matter what, things ease up somehow soon.
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RosieKat
Drama Llama
PeaJect #12
Posts: 5,398
Jun 25, 2014 19:28:04 GMT
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Post by RosieKat on Aug 30, 2017 17:45:58 GMT
He actually thrived this summer, he loved sleeping in, watching his youtube videos, going to the pool and not a whole lot of "real" schedule. But when he has a ton happening, he thrives on the scheduling aspect of it, he doesn't realize it, but he does..LOL. Just thinking out loud, is there a possibility for more of a year-round schooling for him? Where you can spread out the same amount of information over a longer period? Like, even if the online classes still have to happen during the school year proper, maybe you could do the bulk of the music and art kind of stuff in summer? There would still be plenty of time to enjoy summer itself. I'm just trying to think of any way to take a bit of the stress off.
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Post by Tammiem2pnc1 on Aug 30, 2017 17:49:35 GMT
He actually thrived this summer, he loved sleeping in, watching his youtube videos, going to the pool and not a whole lot of "real" schedule. But when he has a ton happening, he thrives on the scheduling aspect of it, he doesn't realize it, but he does..LOL. Just thinking out loud, is there a possibility for more of a year-round schooling for him? Where you can spread out the same amount of information over a longer period? Like, even if the online classes still have to happen during the school year proper, maybe you could do the bulk of the music and art kind of stuff in summer? There would still be plenty of time to enjoy summer itself. I'm just trying to think of any way to take a bit of the stress off. I will have to check into this, because it's definitely good food for thought. He does qualify for extended school year, but that was nothing more than one day a week for an hour just to keep up his skills, nothing more. He received occupational therapy and social skills therapy for a good portion of the summer. They took 2 weeks off in June/July and then the last 3 weeks of summer there was no therapies or school.
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Post by Tammiem2pnc1 on Aug 30, 2017 17:53:29 GMT
My son is not 100% potty trained either. He goes pee on the potty just fine, but not poop at ALL. I can't imagine that would go over well in public school. My son wears diapers to school. They take him to the bathroom throughout the day. Apparently they can't think of the last time he did poop at school, which is fine with me! I hate for them to have to deal with that. He's in a functional skills classroom. He's not the only student with that issue. I often wonder if Colin was going to traditional public school if he would be mainstream there. I highly doubt it, virtual school is just so much different in certain aspects. Per is IEP, he is allowed to take breaks during long class sessions, just has to click the away button. I can't imagine he would just be able to "walk" out of a traditional class. Plus with the pooing issue, I don't think would work. At first I thought it was a medical issues because he won't asked to be changed and when I ask him why he does that he says he doesn't know he went. He says he doesn't know when he has to go. But we've had tests done and he's a-okay medically that way. I think it's just "him".
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Post by refugeepea on Aug 30, 2017 17:59:52 GMT
I often wonder if Colin was going to traditional public school if he would be mainstream there. I highly doubt it, virtual school is just so much different in certain aspects. Per is IEP, he is allowed to take breaks during long class sessions, just has to click the away button. I can't imagine he would just be able to "walk" out of a traditional class. Plus with the pooing issue, I don't think would work. At first I thought it was a medical issues because he won't asked to be changed and when I ask him why he does that he says he doesn't know he went. He says he doesn't know when he has to go. But we've had tests done and he's a-okay medically that way. I think it's just "him". It is not uncommon at all (his toileting issue)! My daughter is now at a public charter school because she can concentrate on 1 or 2 classes at a time and move on to the next. It is online but there is a teacher in the classroom. I honestly don't think I could handle homeschooling her. She is VERY verbal and VERY ADHD. Lots of sites on the internet are blocked at her school, so she stays on campus. She could work from home. There was too much bullying at the larger public school and they would never give her an IEP and she desperately needed a transition plan.
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Post by sawwhet on Aug 30, 2017 18:08:48 GMT
My son was scratching himself until he bled, biting himself until he bruised, pulling his hair out. He's now medicated and those problems have gone away. There's always something going on though. For a while, he was exposing himself on the school bus! oy. My son is not toilet trained and has decided to start stripping at home. I now stay in his room or he sleeps in the family room. I warned his teacher. So far so good the first 3 days of school. Overalls backwards no longer works, now I'm going to buy onesie pajamas and put them on him backwards and use a safety pin. It probably won't last long. We have coveralls that we use on the bus. We call it his bus suit so it doesn't have a negative connotation. If he starts to take it off, I'll flip it around and he can wear it backwards. He's strapped in a wheelchair so the long zipper would be tough for him to unzip.
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Post by snowsilver on Aug 30, 2017 18:13:25 GMT
I can't help you having never had to walk in your shoes. I won't even pretend that I understand what you are going through. What I can tell you is that reading your post make me wish I could reach across the Internet and give you a real hug. I'm so sorry. You really have been given a hard road. Hugs and more hugs.
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Aug 30, 2017 18:38:27 GMT
Big sincere hugs to each tired mama on this thread, fighting battles most of us cannot imagine. You have my admiration and my prayers.
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Post by anniefb on Aug 30, 2017 18:40:03 GMT
Is there another school option that would have a better schedule? I agree with another poster, decreasing the number of therapy sessions may be necessary while school is in session. You can only spread yourself so thin and if you're already on the verge of breakdown before school starts, it likely won't get any better anytime soon. That's what I was thinking. Both for you and for DS. SaveSave
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Deleted
Posts: 0
May 19, 2024 16:59:35 GMT
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Post by Deleted on Aug 30, 2017 19:34:31 GMT
Are you interested a starting a small group? Kids and parent having some sort of session.
Small music groups work well. Time with other parents like you helps a lot.
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purplebee
Drama Llama
Posts: 6,734
Jun 27, 2014 20:37:34 GMT
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Post by purplebee on Aug 30, 2017 19:57:12 GMT
Big sincere hugs to each tired mama on this thread, fighting battles most of us cannot imagine. You have my admiration and my prayers. This.....
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Post by peasapie on Aug 30, 2017 21:24:58 GMT
If there is a private special ed school within a reasonable distance from your house, did you know you can petition the court to pay for the tuition based on the fact that his needs can't be met within your school district? That might allow all those special things to be done during the regular school day. This is a very common practice by parents IN THE KNOW in my area.
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Deleted
Posts: 0
May 19, 2024 16:59:35 GMT
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Post by Deleted on Aug 30, 2017 21:32:55 GMT
Your son's schedule does sound overwhelmingly busy to me. It's got to tough on you trying to adhere to that with everything going on in your life. Your boy needs his lunch break and you need a rest. Big hugs to you for taking such good care of your family. I hope you can scale back a little and reclaim some of the time for yourself.
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