Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 20, 2018 18:46:35 GMT
I feel like a bride that tried to arrange a wedding, but it fell apart at the last moment!
My 2nd eye surgery was set for this morning, 9 am. We're scheduling around my husband's cancer treatments, so it's a tough thing to do..... He's in remission right now, even though he begins monthly BCG treatments in a few weeks, and then his cysto to check on the tumors.
Today's surgery was cancelled because my PCP somehow couldn't handle faxing over the proper authorization form with the RIGHT code on it!!!!! They sent the wrong one 3x. I've been in touch with my surgeon's office for days. By the 10th call to my PCP's office, BEGGING them to send the right info out, they assumed that I was the surgeon! LOL! No, I just know what needs to be done!!!!!!!! Wondering why they couldn't do it, or didn't want to do it...........
They called me at 4:40 pm to boastfully tell me, "It's all done and faxed over to the surgeon's office". I was SO mad. I said, "That's nice but it's too late. The surgery was cancelled a few hours ago!" Yeesh! Sure, faxing it in so late while the surgery was set for early this morning should be cool, right?? Live & learn--I should have been at my PCP's office, watching them fax it over!
I'm rescheduled for 4/24 for the surgery. Praying that DH's cancer will remain stable. He's my main worry.... Timing would have been perfect to get this done this week! I'm so disappointed. (I'll be fine and not whine like a baby!)
One more thing: This month seemed much more complicated to get Rx pain meds (in preparation for my surgery). Has anyone noticed that??? I had to jump through more hoops to get the meds that I had the proper scripts for. Ugh!
|
|
michellegb
Pearl Clutcher
Posts: 3,918
Location: New England and loving it!
Jun 26, 2014 0:04:59 GMT
|
Post by michellegb on Mar 20, 2018 18:48:29 GMT
Ugh. I'm so sorry that incompetence is making your life difficult. That sucks. I hope that things go very smoothly for the rescheduled date and that your DH is ok as well.
|
|
The Birdhouse Lady
Drama Llama
![*](//storage.proboards.com/forum/images/stars/star_green.png)
Moose. It's what's for dinner.
Posts: 7,308
Location: Alaska -The Last Frontier
Member is Online
Jun 30, 2014 17:15:19 GMT
|
Post by The Birdhouse Lady on Mar 20, 2018 18:49:13 GMT
Dang girl, sorry they couldn't get their sh*t together to get the right paperwork faxed over. That kind of stuff really gets my goat. Hang in there!
|
|
River
Pearl Clutcher
Posts: 3,558
Location: Alabama
Jun 26, 2014 15:26:04 GMT
|
Post by River on Mar 20, 2018 18:53:30 GMT
I'm so sorry your surgery was cancelled! I'd be pissed off too, that's just inexcusable.
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 20, 2018 19:07:03 GMT
Well, that certainly is the pits!! So sorry for your inconvenience. As for the pain meds being hard to get--that is because doctors are being checked up on because of the drug crisis in the country. Doctors apparently are being advised to cut down on giving perscription pain medication. A friend of ours has been told he has to cut down on his pain meds--so they are sending him to physical therapy. He's been on these meds for several years--and ya just can't "quit" when it's been so long!! I feel for him for sure. He DOES look better (to me) but it's going to be a long process I think!! Good luck with the new date!
|
|
|
Post by donna on Mar 20, 2018 19:12:30 GMT
I am sorry your surgery was canceled due to a paperwork error. I know you are so frustrated.
I didn't have problems a couple of weeks ago getting my pain meds. I really hope it doesn't become a problem for me. My tumor presses on a nerve which causes pain in my abdomen and my back. It can get pretty bad if I don't take the meds regularly.
|
|
|
Post by Zee on Mar 20, 2018 19:32:20 GMT
I am sorry your surgery was canceled due to a paperwork error. I know you are so frustrated. I didn't have problems a couple of weeks ago getting my pain meds. I really hope it doesn't become a problem for me. My tumor presses on a nerve which causes pain in my abdomen and my back. It can get pretty bad if I don't take the meds regularly. Donna, I hope no one gives you a hard time. Cancer pain is considered a different category when prescribing pain meds, so there SHOULD be no issues, but I know how that goes sometimes when dealing with pharmacies and insurance companies.
|
|
|
Post by scrapmaven on Mar 20, 2018 19:41:43 GMT
I am sorry your surgery was canceled due to a paperwork error. I know you are so frustrated. I didn't have problems a couple of weeks ago getting my pain meds. I really hope it doesn't become a problem for me. My tumor presses on a nerve which causes pain in my abdomen and my back. It can get pretty bad if I don't take the meds regularly. donna, have you discussed having an intrathecal pain pump implainted w/your doctor? The pump would be in your abdomen and the medication goes straight to the nerves in your abdomen rather than into your bloodstream. You would have constant relief w/o the side effects of narcotics. They're using the pump more and more for pancreatic cancer patients. Just food for thought. @bergdorfeblonde, what a huge letdown. You prepare both body and mind for surgery and to have it cancelled is a shock and very frustrating. Are you on a waiting list for a sooner surgery date? You have a right to be very annoyed. You're dealing w/so much right now.
|
|
|
Post by Basket1lady on Mar 20, 2018 19:56:32 GMT
Oh my gosh! I’m so sorry! I would be so angry with the doctor’s office! That really is a horrible thing to do to someone.
|
|
|
Post by donna on Mar 20, 2018 20:00:51 GMT
scrapmaven I didn’t even know that was an option! I will look into it. I have been looking at a nerve block but it doesn’t always work. I will have to ask my oncologist about the pump. I feel like he doesn’t volunteer information to me. I have to ask him about things I have read about online. It can be frustrating.
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 20, 2018 20:01:39 GMT
Gosh, I'm angry for you! That's awful that your surgery has to be delayed due to their incompetence.
|
|
|
Post by mikklynn on Mar 20, 2018 20:06:25 GMT
Oh boy, I'd be PEA livid. That is ridiculous.
|
|
|
Post by JoP on Mar 20, 2018 20:06:59 GMT
@bergdorfblonde I’m so very sorry that your surgery was cancelled and very 😡🤬😡 on your behalf at the incompetence.
|
|
|
Post by Zee on Mar 20, 2018 20:24:35 GMT
@bergdorfblonde that is so frustrating and annoying. Why didn't the surgeon's office clear that up a long time ago? I guess you'll have to physically no into the office next time. I'd be furious! What incompetence!
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 20, 2018 20:36:42 GMT
Thanks, all! I'm Pea-livid that *I* could find the correct authorization paper and correct code # for THIS particular surgery and they couldn't (or wouldn't or were lazy!!). So many things are riding on this. Now I pray that DH will be okay on 4/24 (my next surgery date),but it also means that I'll be patched for a minimum of NINE months until this is over. I shouldn't complain. In comparison to what other people are dealing with, it's just an annoyance. I'm blessed already, but this is just a stupid reason for the delay in finishing me up! Thanks for your support!!!!
About the pain meds: I got the gyst of it while I have been listening to the news. It's hard enough to get the proper pain meds for the Pain Peas. We have to go through a lot to get them (see a Pain Mgmt doctor, give your urine/blood every 3 months, sign a contract, wait every 30 days--or 28 if you're persistent like I am!...). Now the pharmacy is asking questions like, "Have you been on this before? Do you need THAT many pills? Have you tried Tylenol"? LOLOL!!!!!!!!!!!! No! I haven't. I'm just a dolt who immediately goes to opioids and takes the maximum amount! Geezzzzzzzzzzz! But from 28 days to 29 days (the refill time), I see a slight change. I'll keep pushing, even though I don't think I'll even need my pills in a few months. For now I keep them b/c the surgery left me with odd pain, and I have no idea what shape I'll be in after this next surgery.... But down the line, I should be finished! And, no more rescue opioids--but I do keep refilling as a backup.... Screw them!
donna : Oh my gosh! That is just unreal!!!! Pain in general is bad enough, but once they hear "cancer", they should give you a pass to get whatever meds you need, as often as you need it!!!!! I'm not sure if it's that they don't UNDERSTAND the kind of pain you're in, or that they're encouraged not to make it as available (and they get kudos for it from the company). Seriously!!!! Once they see what doctors you're going to, and that it's legit, you shouldn't have to fight for it. I wish you had someone to fight for you when you didn't feel up to it. (That's what this all is making me feel like creating-------a company to help pain people in need!). I hope that you get whatever you need to block that pain. I've even heard of using botox from my pain mgmt. doctor.... Check around and see what sounds good for you! (I know it's not easy when you don't feel well or you feel tired!). My prayers and good thoughts are with you!!!
|
|
scrappinmama
Pearl Clutcher
Posts: 4,986
Jun 26, 2014 12:54:09 GMT
|
Post by scrappinmama on Mar 20, 2018 20:41:57 GMT
How frustrated for you! It's nerve-wracking as it is to face surgery, then to have it postponed like that. Praying for both you and your dh!
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 20, 2018 20:53:46 GMT
@bergdorfblonde that is so frustrating and annoying. Why didn't the surgeon's office clear that up a long time ago? I guess you'll have to physically no into the office next time. I'd be furious! What incompetence! My surgeon gives me her care coordinator's direct line (to make appts, go over surgery dates....... forms...). This time we went over EVERYTHING and the last piece was receiving the approval from my PCP. They got one 2 weeks ago, but it had the incorrect code on it (same code as my last surgery in January). Who knows--maybe they figure, "It's another surgery for her eye, so we could use the same code", but I TOLD THEM exactly what was being done in this surgery (building up the lid, esp the lower lid, and using parts of a pig to support the lid)... Yeesh! But my PCP's office kept faxing the SAME document with the incorrect code # on it. It was like a nightmare. I'd get a call daily from the surgeon's coordinator telling me, "They did it again". She couldn't even get through to my PCP's own care coordinator--she didn't answer the phone!!!!!! That's when I kept calling and got the same line, "We'll get to it today...." Once I had the correct Auth form and correct Code # for THIS surgery, I thought they'd understand it, but they didn't. My mistake was in trusting them. They're super busy with all of the new patients they've gotten recently...... I should have thought 10 steps ahead, and gone there with the correct info (I usually walk in with a briefcase and a clipboard!!!), and made sure they faxed it in front of me. I'll make sure that happens if I don't hear that my surgeon's office receives it within a week this time!!!!!! DH thinks I give off the "bitch mode" to all of my doctors, but I'm sorry! I know what's needed and all I could see is gross incompetence. I ran a large law office and I know what it's like to balance all of it. It's nuts, but you should see what a priority is, and my surgery was within 24 hours and they still blew it! Ughhhhhhhhh!
|
|
purplebee
Drama Llama
![*](//storage.proboards.com/forum/images/stars/star_green.png)
Posts: 6,788
Jun 27, 2014 20:37:34 GMT
|
Post by purplebee on Mar 20, 2018 20:55:52 GMT
How infuriating! Hope the new date works for you and your Dh and that he continues his remission.
|
|
RedSquirrelUK
Drama Llama
![*](//storage.proboards.com/forum/images/stars/star_green.png)
Posts: 6,874
Location: The UK's beautiful West Country
Member is Online
Aug 2, 2014 13:03:45 GMT
|
Post by RedSquirrelUK on Mar 20, 2018 21:43:44 GMT
How infuriating! What a crappy day - I'm sorry. ![:(](//storage.proboards.com/5645536/images/mYSUyHtG9Jrcmm_ydVcK.jpg)
|
|
eastcoastpea
Prolific Pea
![*](//storage.proboards.com/forum/images/stars/star_green.png) ![*](//storage.proboards.com/forum/images/stars/star_green.png)
Posts: 9,252
Jun 27, 2014 13:05:28 GMT
|
Post by eastcoastpea on Mar 20, 2018 22:14:09 GMT
That sucks, big time. I hope the next attempt goes off without a hitch.
|
|
|
Post by cadoodlebug on Mar 20, 2018 22:20:43 GMT
I'm beyond pissed for you. What buffoons. How could they possibly be proud of sending it hours after the surgery was scheduled.
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 21, 2018 7:51:48 GMT
Thank you all. I took today off to decompress from the medical insanity! Tomorrow I'll get back into it and MAKE SURE that my PCP's care coordinator actually did fax over the correct authorization form with the correct code # to my surgeon's office so that we could firm this all up. Makes me mad that I wasted time on texts and online forms with the hospital, confirming everything, when it wasn't really ready to be confirmed! Now I know!!!!!!! I'll confirm it ALL with my surgeon's office FIRST and then finish everything up.
DH has to go to our PCP for routine bloodwork (for his Coumadin check). I'll call my surgeon first and go in there and make sure this is done! Hate that I have to be pushy about it, but, geezzzzzzzzzzzz, no one gets their jobs done if I don't!
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 21, 2018 8:01:26 GMT
Well, that certainly is the pits!! So sorry for your inconvenience. As for the pain meds being hard to get--that is because doctors are being checked up on because of the drug crisis in the country. Doctors apparently are being advised to cut down on giving perscription pain medication. A friend of ours has been told he has to cut down on his pain meds--so they are sending him to physical therapy. He's been on these meds for several years--and ya just can't "quit" when it's been so long!! I feel for him for sure. He DOES look better (to me) but it's going to be a long process I think!! Good luck with the new date! I meant to address this yesterday but I was too wired. I WISHED that Medicare/Humana could have tried other options to help my chronic pain like physical therapy. Funny thing is that whenever I got my hair cut, the massage they give you when they wash it temporarily put me in the ZERO-pain level! I'd say, "I wish I could come to you and get it washed every day!" The pain-free feeling lasted for about an hour. It was a relief. If that helped, maybe other things like physical therapy would help!!! I know, for sure, that botox worked for me! I had it only once and then I found out that Medicare does not see it as a real medical option!! They wanted to put it through part B of Medicare, and I had to pay over $200. Forget it! I'm on disability! It's such a shame that it worked! Instead, I go to my pain dr, pay $40 each time (I only go every 3 months now since they trust me!!), and then about $3.95 for each Rx. But even that amount (+ the gas to get there) adds up when you're disabled. Ughhhhhhhh! And you CAN'T just get off of those meds! I got off of the rescue opioids, and I'm only on 1 daily opioid left. I'm hoping to wean off of that when I'm completely healed from the last surgery........ For now I'm getting rebound pain and breakthrough pain and I just rely on that Rx (others are more dangerous for me!). I hope that your friend does find a middleground. I'm ready to finish all of this and get on a healthier path--limited stress, try yoga, eat cleaner, etc........... We can all always do better, right? I'm 57 and still trying to perfect things!
|
|
|
Post by peasapie on Mar 21, 2018 9:00:56 GMT
The incompetence is incredible! I hope you will be able to let the surgeon know. (Not sure if you would have direct contact.) I sometimes feel the only things done right are those I do myself - how frustrated you must have felt!
|
|
|
Post by nlwilkins on Mar 21, 2018 9:54:20 GMT
That sucks! being all psyched up and having all your ducks in a row for surgery and then the PCP's office messes up. It takes a lot of planning and arranging of a person's life to have surgery and you would think they would get it right. So sorry this happened to you.
About those pain meds - they are having trouble in some hospitals getting them for patients who really need them. Daughter works on a trauma ward and there are times when they don't have the pain meds theirs patients need and have to deal with the results. This is so wrong it makes my heart hurt. Those poor patients and the nurses too who have to deal with it all. I imagine many patients think their nurses are just with holding the meds for lazy reasons and are angry with them.
|
|
AmandaA
Pearl Clutcher
Posts: 3,502
Aug 28, 2015 22:31:17 GMT
|
Post by AmandaA on Mar 21, 2018 12:52:21 GMT
I know it won't help with the frustration of what happened regarding the surgery... but you look fantastic! Love your new avatar ![:)](//storage.proboards.com/5645536/images/MNrJDkDuSwqIMVw33MdD.jpg)
|
|
|
Post by jenjie on Mar 21, 2018 13:21:29 GMT
This is huge. The anticipation, the expectation, the scheduling around your husband’s care. And then the PCP drops the ball. I’m so sorry and I would be angry too.
I think your idea of forming a business as liaison for pain management is something worth considering.
|
|
zella
Pearl Clutcher
Posts: 3,884
Jul 7, 2014 19:36:30 GMT
|
Post by zella on Mar 21, 2018 21:22:28 GMT
I'm so sorry to hear this; I'm disappointed for you! I know how much you're juggling right now, and you didn't need this.
All I can say is hang in there; you're good at that, right?
|
|
Deleted
Posts: 0
Sept 6, 2024 19:44:56 GMT
|
Post by Deleted on Mar 21, 2018 21:38:23 GMT
Well, that certainly is the pits!! So sorry for your inconvenience. As for the pain meds being hard to get--that is because doctors are being checked up on because of the drug crisis in the country. Doctors apparently are being advised to cut down on giving perscription pain medication. A friend of ours has been told he has to cut down on his pain meds--so they are sending him to physical therapy. He's been on these meds for several years--and ya just can't "quit" when it's been so long!! I feel for him for sure. He DOES look better (to me) but it's going to be a long process I think!! Good luck with the new date! I meant to address this yesterday but I was too wired. I WISHED that Medicare/Humana could have tried other options to help my chronic pain like physical therapy. Funny thing is that whenever I got my hair cut, the massage they give you when they wash it temporarily put me in the ZERO-pain level! I'd say, "I wish I could come to you and get it washed every day!" The pain-free feeling lasted for about an hour. It was a relief. If that helped, maybe other things like physical therapy would help!!! I know, for sure, that botox worked for me! I had it only once and then I found out that Medicare does not see it as a real medical option!! They wanted to put it through part B of Medicare, and I had to pay over $200. Forget it! I'm on disability! It's such a shame that it worked! Instead, I go to my pain dr, pay $40 each time (I only go every 3 months now since they trust me!!), and then about $3.95 for each Rx. But even that amount (+ the gas to get there) adds up when you're disabled. Ughhhhhhhh! And you CAN'T just get off of those meds! I got off of the rescue opioids, and I'm only on 1 daily opioid left. I'm hoping to wean off of that when I'm completely healed from the last surgery........ For now I'm getting rebound pain and breakthrough pain and I just rely on that Rx (others are more dangerous for me!). I hope that your friend does find a middleground. I'm ready to finish all of this and get on a healthier path--limited stress, try yoga, eat cleaner, etc........... We can all always do better, right? I'm 57 and still trying to perfect things! Good luck to you my dear!! I hear you!! Doctors want to help people with their pain, and unfortunately, it doesn't get take long to get "hooked" on the pain pills. My sister is on several different meds (pain pills and anti-depressants) that the doctor is trying hard to get her off of!! She has several health probems, and to treat one, takes two or three different medications. She went off cold turkey and almost died, so that isn't the answer either. ((HUGS)) eta. I forgot to say that she went to a pain clinic, and THEY put her on yet ANOTHER pill!! When her primary care doctor found out HE was livid and took her off that!! So she was trying hard to cut down by going to the clinic where she THOUGHT they would suggest massage, yoga, or other things!! She feels totally defeated.
|
|
moodyblue
Drama Llama
![*](//storage.proboards.com/forum/images/stars/star_green.png)
Posts: 6,235
Location: Western Illinois
Site Supporter
Jun 26, 2014 21:07:23 GMT
|
Post by moodyblue on Mar 21, 2018 21:50:48 GMT
What a huge bummer. I can imagine what it's like, because my husband has had PET scans cancelled three times because the facility didn't have the right paperwork from the insurance company. To have a major surgery cancelled because of stupid screw-ups is so frustrating.
|
|