iluvpink
Pearl Clutcher
Posts: 4,302
Location: Michigan
Jul 13, 2014 12:40:31 GMT
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Post by iluvpink on Jan 19, 2019 13:36:05 GMT
Thank you all for the suggestions. We've been trying to reduce dairy to see if it helps. Sadly, it's among his (all of our) favorite foods so it's hard to go cold turkey. He won't touch any of the milk alternatives we've tried so far but he did take a few bites of almond milk yogurt this morning. He was whimpering for a glass of milk. He was so excited when I handed him a cup that had half regular milk, half lactose-free milk. He took a big sip and then looked so disappointed ![:(](//storage.proboards.com/5645536/images/mYSUyHtG9Jrcmm_ydVcK.jpg) Have you tried Lactaid milk? It is supposed to be "real" milk with the lactose removed. I think there's a milk issue for some people that has to do with the proteins, rather than lactose. I'm sorry I don't know more, it's just kind of a vague recollection of something I read. Your doctor may know more. But I think, if that's the issue, you can also buy milk that has the problem protein removed. My dd much prefers Lactaid milk to Fairlife. She finds the Fairlife too sweet. I just buy Lactaid for all of us and we can't tell the difference between it and regular milk. But dd is the only one who drinks milk regularly anyway. Otherwise it's mostly for cooking. I do hope you can figure it out soon, poor little guy!
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Post by bearmom on Jan 19, 2019 14:20:41 GMT
one more thing- I don't know if it can happen this way with kids, but my dad's reflux is the kind called 'silent reflux' in that the obvious symptoms (hearburn / acid, etc.) aren't there. He had a cough that they could NOT get to go away, and finally got to a doctor who said 'do you / did you have problems with reflux?' and switched up his reflux medication. Voila!! cough gone. This happened to my DH. The reflux was triggering his asthma. He would feel tightness in his chest, take the inhaler and it would go away. The doctors had been puzzled as to why the preventive asthma meds never worked for him, just the inhalers. It was finally discovered a few years ago when he was hospitalized for chest pains and they scoped him and found a lifetime of upper GI damage. He's cut out many foods and takes an rx and his inhaler usage has dropped to about 25% of what it once was. Same thing with me. I rarely use my rescue inhaler anymore and I was on the highest dose of Advair previously. To the op, this would happen to our oldest dd. About once a year she would wake up in the middle of the night vomiting. Then she would be fine. Never found the reason.....
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Post by pastlifepea on Jan 19, 2019 18:36:57 GMT
Hypertrophic pyloric stenosis? Pretty uncommon in older children but not unheard of. Doesn't explain the night time specific episodes but just throwing it out there.
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Post by librarylady on Jan 25, 2019 23:39:16 GMT
What did the dr. diagnose?
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Deleted
Posts: 0
Jun 18, 2024 14:09:17 GMT
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Post by Deleted on Jan 25, 2019 23:59:50 GMT
What did the dr. diagnose? We’re not sure yet. He has a borderline milk allergy but she says it doesn’t explain things sufficiently. We see her Monday. Everything else has been by phone since the initial appointment while we waited on labs.
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Post by scrapmaven on Jan 26, 2019 0:00:45 GMT
Poor little guy. Unfortunately, the only way to diagnose celiacs is to biopsy via endoscopy. The Pedi Gi will take biopsies from 3-5 sites. YOur ds will be snoozing in twilight sleep and won't feel a thing. It's a fast procedure and is done in a matter of minutes.
I wish you thorough answers and a successful answer.
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Deleted
Posts: 0
Jun 18, 2024 14:09:17 GMT
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Post by Deleted on Jan 26, 2019 2:51:28 GMT
My daughter had the reflux test done, be aware it is not easy on them.
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Post by stacmac on Jan 26, 2019 2:53:45 GMT
My son has many similar problems. He has a dairy protein allergy. Growing out of it now thank goodness.
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Post by callmenutz on Jan 26, 2019 6:00:10 GMT
My guess is reflux as it sounds just like my husband. We elevated the head of the bed by four inches. That way gravity keeps the contents of the stomach down where it belongs. He has never taken any kind of medicine as this totally solved the problem...for him anyway. I kept sliding out of bed down to my knees and would then wake with dead legs. He kindly offered to tie a noose around my neck and to the headboard so I’d choke and wake up. He’s nice like that! 🤣
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Post by hookedonpeas on Jan 26, 2019 6:20:31 GMT
My guess is reflux as it sounds just like my husband. We elevated the head of the bed by four inches. That way gravity keeps the contents of the stomach down where it belongs. He has never taken any kind of medicine as this totally solved the problem...for him anyway. I kept sliding out of bed down to my knees and would then wake with dead legs. He kindly offered to tie a noose around my neck and to the headboard so I’d choke and wake up. He’s nice like that! 🤣 😂😂😂 how kind
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Post by roberta on Jan 26, 2019 6:31:51 GMT
I strongly recommend a pediatric gastroenterologist ( kids GI Doc). There are a lot of things it could be and testing is needed. When the test results come back that the pediatrician ordered discuss it with her. GI allergies and intolerance can manifest in funny ways and are not always present at birth. (I used to work in Pediatric GI nutrition but am not up to date currently). A strong teaching hospital like Hopkins, Mayo, Massachusetts will have a good program. You want ped GI not adult GI.
ETA: There is a LOT of misinformation out there! Please be sure to pay attention to the qualifications of any author or so called expert. Just because someone is a PhD in one science does not mean they are qualified in nutrition especially Ped nutrition or healthcare. I am 100% for homeopathy when appropriate but I believe in science.
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Post by fridaycat on Jan 26, 2019 11:34:24 GMT
Check into Celiac disease.
I haven't read all the replies but this sounds similar to my DD when she was 4 (now 13). After multiple trips to the pediatrician who gave her acid reflux and enema meds (and while we waited for our appt with the pediatric gastroenterologist) I came on 2ps to ask for help. They nailed the diagnosis (that eventually came from the gastro Dr) in 5 minutes.
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Deleted
Posts: 0
Jun 18, 2024 14:09:17 GMT
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Post by Deleted on Jan 26, 2019 12:11:07 GMT
I know this is probably not the issue with your little one but when my daughter had unexplained vomiting at bedtime it was not reflux or allergies, it was hydrocephalus. She was diagnosed with and treated for everything from vertigo to sinus problems for a couple months.
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Post by Really Red on Jan 26, 2019 13:55:08 GMT
I strongly recommend a pediatric gastroenterologist ( kids GI Doc). There are a lot of things it could be and testing is needed. When the test results come back that the pediatrician ordered discuss it with her. GI allergies and intolerance can manifest in funny ways and are not always present at birth. (I used to work in Pediatric GI nutrition but am not up to date currently). A strong teaching hospital like Hopkins, Mayo, Massachusetts will have a good program. You want ped GI not adult GI. ETA: There is a LOT of misinformation out there! Please be sure to pay attention to the qualifications of any author or so called expert. Just because someone is a PhD in one science does not mean they are qualified in nutrition especially Ped nutrition or healthcare. I am 100% for homeopathy when appropriate but I believe in science. I absolutely agree. I have two kids with IBS and my oldest showed signs from early on (definitely by 2yo), but doctor after doctor told me she was just playing it. Really. She didn't throw up regularly, but enough. Finally around 5yo she was moaning in her sleep and I called her doctor in the morning and said ENOUGH and the doctor got me to a pediatric gastroenterologist who diagnosed IBS. She had no other signs. As soon as we knew, we literally cut her food to nothing and kept a diary and found out what caused her extreme pain. There were a LOT of things. But we had to do the milk test (massive quantities of drinking milk over a period of a few days). I didn't know there was another way to test! That was 15 years ago though, so maybe things have changed. I hope you have your answers soon. Once we knew what it was, we were able to help my DD out. FWIW, she also had anxiety, also not diagnosed early, and I personally think that affected everything as well.
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