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Post by christine58 on Aug 16, 2019 21:00:35 GMT
A very good friend of many years is having surgery for this today. Has anyone here had it done?? A bunch of us would like to do something for her when she gets home. Surgery was earlier today on Long Island.
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kiwipea
Shy Member
Posts: 33 
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Post by kiwipea on Aug 16, 2019 22:41:24 GMT
I have trigeminal neuralgia but haven't had an mvd. On various fb groups for TN I know that the pain doesn't always disappear straight away, and unfortunately the success rate is quite low. Your friend may have headaches for a while (different from TN pain) and may not be up to company for a couple of days. Thank you for being a good friend for her, TN is a beast of a disorder and it often scares people away.
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Post by christine58 on Aug 16, 2019 22:43:18 GMT
She's been in such pain that this is hopefully going to help. She's had a few consultations and this surgeon came highly recommended. I pray it helps her
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Post by gar on Aug 17, 2019 8:09:23 GMT
My Dh suffers with TN. I hadn't heard of this surgery. I hope it goes well for your friend OP.
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Post by notjstamom on Aug 20, 2019 5:59:29 GMT
My sister suffers from TN..Im not sure if shes heard of this surgery, def will let her know.
Speedy recovery for your friend!
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Post by gritzi on Aug 20, 2019 13:49:01 GMT
My dad suffered for years, until he found a surgeon in Ohio whose procedure & result were miraculous! Prior to his surgery he could no longer chew food, shave, receive a hair cut, be outside on a windy day. The pain was too fierce. His procedure was 20 years ago. We are so thankful for that procedure because it saved my dad's life and gave him a reason to live again.
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Aug 20, 2019 15:50:18 GMT
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Post by christine58 on Aug 20, 2019 17:10:00 GMT
My friend is headed home today. She already notices a HUGE difference
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Post by dewryce on Aug 20, 2019 17:51:32 GMT
Great news!
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Post by mellyw on Aug 20, 2019 17:57:39 GMT
Thank you for being there for your friend. I’m “lucky” in that my TN is controlled thru medication. I’ve known people who medication didn’t work/stopped working and chose the surgery route to varying degrees of success.
I’m so hoping this works for your friend. Wonderful news that she’s already feeling relief.
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Post by christine58 on Sept 14, 2019 10:42:28 GMT
Update: She has had NO PAIN since a few days after surgery. This has totally changed her life for the better. She and I were born on the same day--our moms are life long friends--and I am so happy for her
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