pancakes
Pearl Clutcher
Posts: 4,993
Feb 4, 2015 6:49:53 GMT
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Post by pancakes on Feb 23, 2021 1:23:29 GMT
I had missed the past couple of updates — just wanted to say I’m still keeping Ava and your son and DIL in my thoughts. So happy she was able to sit up recently!
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Post by Patter on Feb 23, 2021 9:36:57 GMT
Look at her gorgeous hair. Little precious, keep fighting! And I only had 3 babies in the NICU for 4-6 weeks (two came home at 4 weeks and one at 6 weeks) then heart surgery for Baby C at a year old (and several times after. I know the rollercoaster. I continue to pray and send each of you hugs!
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Post by ss on Feb 23, 2021 11:39:21 GMT
Baby Ava has been on my mind! Prayers continue!
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Post by silverlining on Feb 23, 2021 16:36:27 GMT
Still thinking of you and little Ava and your son and DIL. Thanks for posting the beautiful photos and updates!
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Post by christine58 on Mar 2, 2021 2:25:18 GMT
Any update?
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Post by katyscrap on Mar 2, 2021 21:16:37 GMT
Ava hasn’t been doing too well lately but she is hanging on. Not much else to say...just keep her in your prayers.
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RedSquirrelUK
Drama Llama
Posts: 6,744
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
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Post by RedSquirrelUK on Mar 2, 2021 21:32:05 GMT
Aw hugs to you and them all. I'm so sorry you're going through this.
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Post by Skellinton on Mar 2, 2021 21:33:00 GMT
I pray for Ava and her family every night. I am so sorry you don't have a happier update. Hugs to you.
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Post by Jili on Mar 2, 2021 21:38:25 GMT
Oh, sweet baby. Thinking positive thoughts for all of you.
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Post by mom on Mar 2, 2021 21:44:46 GMT
Thank you for the update. I think of her and your family daily. ❤️
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Post by canadianlinda on Mar 2, 2021 21:48:16 GMT
Sweet Ava, we are thinking of you every day.
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AllieC
Pearl Clutcher
Posts: 3,057
Jul 4, 2014 6:57:02 GMT
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Post by AllieC on Mar 2, 2021 21:59:27 GMT
Sending lots of love to you, baby Ava and her parents.
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Post by snoopy on Mar 2, 2021 22:04:53 GMT
Thanks for the update. She is always in my thoughts and prayers.
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Post by yodutchess on Mar 2, 2021 22:27:09 GMT
Sweet Ava, continued prayers for you.
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Post by hosschick on Mar 2, 2021 22:34:36 GMT
I'm still praying for dear Ava, you, her parents, and her caregivers. ❤️
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Post by compeateropeator on Mar 2, 2021 22:35:32 GMT
Sending positive thoughts and thinking of you all everyday. So strong, so beautiful...sweet Ava.
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mimima
Drama Llama
Stay Gold, Ponyboy
Posts: 5,020
Jun 25, 2014 19:25:50 GMT
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Post by mimima on Mar 3, 2021 1:33:21 GMT
Oh, oh, oh. Prayers and love.
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luckyexwife
Pearl Clutcher
Posts: 3,067
Jun 25, 2014 21:21:08 GMT
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Post by luckyexwife on Mar 3, 2021 1:37:12 GMT
Praying, praying, praying
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Post by FrozenPea on Mar 3, 2021 3:16:26 GMT
Sweet Ava still praying for you and your parents and grandparents.
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pancakes
Pearl Clutcher
Posts: 4,993
Feb 4, 2015 6:49:53 GMT
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Post by pancakes on Mar 3, 2021 3:26:24 GMT
C’mon baby girl. You got this. ❤️
Continuing to pray! I think about her frequently.
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Post by hookturnian on Mar 3, 2021 3:46:17 GMT
Continued prayers for dear sweet Ava and her loved ones.
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Post by gar on Mar 3, 2021 10:31:00 GMT
Hang in there sweetie.
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Post by Patter on Mar 3, 2021 11:20:58 GMT
Sweet precious, hang in there. So many are praying!
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peasquared
Drama Llama
Posts: 5,458
Jul 6, 2014 23:59:59 GMT
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Post by peasquared on Mar 3, 2021 17:35:34 GMT
My heart goes out to you. I'm saying prayers, prayers and more prayers for Sweet Ava. Thinking of all of you.
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Post by katyscrap on Mar 4, 2021 19:57:36 GMT
3/4 - I might be able to see Ava! They are trying to get permission to baptize her and see if they will allow one set of grandparents in. My DIL graciously said it could be us (my ex and I) since we are first time grandparents and live so far away.
She has not been doing well at all, especially the last two days. My son said she’s been very pale, bleeding from her nose and mouth.
The perinatal (?) dialysis that puts water into her belly then pulls out all the excess water doesn’t seem to be working anymore. They are going to try renal therapy, blood dialysis, that will filter out blood and replace her electrolytes but this has never been done on a baby with VAD (artificial heart thing).
She also has been fighting an infection. They believe the yeast infection isn’t responding to the meds she has been given so far, so they are going to give her a heavy duty antibiotic but that will be tough on her already delicate kidneys.
Also, part of her lung is dead. The tissue on the bottom portion of one of her lungs has died and they think it was from when the heart transplant was put in, the heart was too big for her and that is one of the complications.
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Post by gar on Mar 4, 2021 19:59:46 GMT
Ahh bless her, I’m sorry she’s not doing so well but the thought of being able to meet her must be wonderful! I hope the plan comes to fruition and you get to say a proper hello 😊
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Post by bc2ca on Mar 4, 2021 20:00:28 GMT
I hope you get a chance to see and hold her. Sending you all strength through such a difficult time.
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inkedup
Pearl Clutcher
Posts: 4,837
Jun 26, 2014 5:00:26 GMT
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Post by inkedup on Mar 4, 2021 20:02:41 GMT
3/4 - I might be able to see Ava! They are trying to get permission to baptize her and see if they will allow one set of grandparents in. My DIL graciously said it could be us (my ex and I) since we are first time grandparents and live so far away. She has not been doing well at all, especially the last two days. My son said she’s been very pale, bleeding from her nose and mouth. The perinatal (?) dialysis that puts water into her belly then pulls out all the excess water doesn’t seem to be working anymore. They are going to try renal therapy, blood dialysis, that will filter out blood and replace her electrolytes but this has never been done on a baby with VAD (artificial heart thing). She also has been fighting an infection. They believe the yeast infection isn’t responding to the meds she has been given so far, so they are going to give her a heavy duty antibiotic but that will be tough on her already delicate kidneys. Also, part of her lung is dead. The tissue on the bottom portion of one of her lungs has died and they think it was from when the heart transplant was put in, the heart was too big for her and that is one of the complications. I hope you are able to see your sweet girl (and her parents) soon. ❤
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Post by hosschick on Mar 4, 2021 20:06:44 GMT
Oh, I so hope you get to see her!
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Post by Baseballmom23 on Mar 4, 2021 20:13:33 GMT
I am so excited for you - that you may get a chance to go see your sweet Ava.
Continued prayers
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