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Post by ~summer~ on Aug 9, 2020 6:23:27 GMT
Thinking of Ava tonight let us know an update when you have it
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ModChick
Drama Llama
True North Strong and Free
Posts: 5,060
Jun 26, 2014 23:57:06 GMT
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Post by ModChick on Aug 9, 2020 7:10:34 GMT
Praying for Ava and family. Hugs grandma, she’s a fighter with a lot of peas praying.
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Post by gillyp on Aug 10, 2020 7:46:04 GMT
Very tentatively asking how little Ava is doing when you have time to update
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River
Pearl Clutcher
Posts: 3,500
Location: Alabama
Jun 26, 2014 15:26:04 GMT
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Post by River on Aug 10, 2020 12:34:26 GMT
Also checking in for an update. Prayers!!! 🙏 🙏 🙏
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Post by Skellinton on Aug 10, 2020 15:19:21 GMT
I am continuing my prayers for you all.
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Post by Basket1lady on Aug 10, 2020 16:26:38 GMT
Poor little thing. Fight, baby, fight.
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Post by katyscrap on Aug 10, 2020 16:28:20 GMT
I just updated on the first post.
Nothing much to report but she is alive so that is wonderful news in itself! It was a quiet weekend. She is still sedated and on the ventilator. Her color is less blue and her numbers look better so that is a good thing. As long as she stays stable, that is all that matters.
Thank you all for the prayers. They mean so much. I feel so sorry for the kids. They brought in a bunch of books and read to her so she can hear their voices and they just hold her hand. My DIL is keeping busy pumping and doing her part. I can't imagine not being able to hold my child, the fear they have, dealing with post-partum. We facetime everyday so we can see her and she always has a giant bow on her head. Saturday she had a big red bow one and she looked like Minnie Mouse.
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Post by tommygirl on Aug 10, 2020 16:29:27 GMT
Praying for your sweet granddaughter and her family!
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Post by quinlove on Aug 10, 2020 17:18:12 GMT
Saying big prayers for little fighter Ava. 🙏🙏🙏
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ddly
Pearl Clutcher
Posts: 3,946
Jul 10, 2014 19:36:28 GMT
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Post by ddly on Aug 10, 2020 17:21:52 GMT
I'm continuing to send up prayers for that sweet baby girl!
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oh yvonne
Prolific Pea
Posts: 7,990
Jun 26, 2014 0:45:23 GMT
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Post by oh yvonne on Aug 10, 2020 17:22:35 GMT
thank you for the update, continued prayers baby girl keeps fighting this <hugs>.
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Post by deekaye on Aug 10, 2020 17:26:39 GMT
Little Ava and her parents have been added to our prayer chain. Fight hard, Ava!!
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scrappert
Prolific Pea
RefuPea #2956
Posts: 7,737
Location: Milwaukee, WI area
Jul 11, 2014 21:20:09 GMT
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Post by scrappert on Aug 10, 2020 17:49:39 GMT
Continued prayers for your sweet granddaughter.
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Post by PEAcan pie on Aug 10, 2020 18:37:30 GMT
Praying for Ava and your entire family!!!
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Post by fruitysuet on Aug 10, 2020 19:01:42 GMT
I've just seen these updates. Poor little thing. I hope she continues to fight and become strong enough for any procedures that will help her conditions.
I'm really sorry, I wish there was more I could say or do that would help.
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Post by gillyp on Aug 10, 2020 21:11:30 GMT
Thank you for the update at an anxious time for you all. It’s amazing what these tiny babies can weather and pull through and the medical staff can works such wonders. Still much positivity coming across the ocean.
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Post by katyscrap on Aug 10, 2020 23:13:37 GMT
She was diagnosed with CHARGE syndrome. They are meeting tomorrow morning with the genetics team, specialists, etc. I’m terrified, the more I read, the scarier it gets. Life expectancy is 5 days - 46 years. She is perfect as she is and we will love her and will get through this. My heart just breaks for all that they have coming.
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Post by peasapie on Aug 10, 2020 23:15:54 GMT
Thinking of all of you and praying.
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Post by busy on Aug 10, 2020 23:19:09 GMT
You and your family are in my thoughts. 💕
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Post by 5peanutsnana on Aug 10, 2020 23:23:57 GMT
Adding prayers for your precious little Ava.
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cakediva
Drama Llama
Making the world a sweeter place one cake at a time!
Posts: 7,393
Location: Fergus, Ontario
Jun 26, 2014 11:53:40 GMT
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Post by cakediva on Aug 10, 2020 23:25:42 GMT
Hugs to all of you.....
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edie3
Drama Llama
Posts: 5,456
Jun 26, 2014 1:03:18 GMT
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Post by edie3 on Aug 10, 2020 23:28:28 GMT
Hugs and prayers to all. Especially for baby Ava.
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Post by magenta on Aug 10, 2020 23:31:04 GMT
Praying for the precious baby and family.
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Post by summer on Aug 10, 2020 23:31:18 GMT
Prayers for baby Ava.
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Post by Merge on Aug 10, 2020 23:34:17 GMT
Good thoughts and virtual hugs headed to all of you.
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Post by christine58 on Aug 10, 2020 23:35:50 GMT
She was diagnosed with CHARGE syndrome. They are meeting tomorrow morning with the genetics team, specialists, etc. I’m terrified, the more I read, the scarier it gets. Life expectancy is 5 days - 46 years. She is perfect as she is and we will love her and will get through this. My heart just breaks for all that they have coming. I am so sorry... It is a scary diagnosis Are they at a really good Children's Hospital???
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peabay
Prolific Pea
Posts: 9,579
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Aug 10, 2020 23:36:20 GMT
Sending you lots of love. I just want to wrap all of you in a big hug.
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Post by destined2bmom on Aug 10, 2020 23:37:32 GMT
Sending prayers and healing thoughts to you and your family.
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Post by liya on Aug 10, 2020 23:38:57 GMT
I have been reading but have been quiet. Sending lots of love right now.
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Post by Jennifer C on Aug 10, 2020 23:50:13 GMT
Sending so much love and hugs to you all.
Jennifer
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