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Post by ameslou on Jun 19, 2021 1:57:18 GMT
DH grew up in a family that valued travel, especially a “quick trip” for 2-3 days. He’s taking his brother (my BIL) on a trip. Flying into DC and taking Acela (Amtrack high speed rail) to Boston in a few weeks.
BIL has MS and has been steadfastly denying his symptoms/ limitations / prognosis to the fullest extent possible (for at least 12 years). For the last 3-4 years I’ve been encouraging DH to spend as much time as he likes with his brother saying “his mobility will never be as good as it is today”. MS is a progressive disease with a challenging outlook.
They took a different trip a few weeks ago, and BIL told DH that he thinks he needs to use a wheelchair for future travel (eg this trip to DC and Boston). This is a relief to DH because BIL has been using a rollater and .. well, it’s just not a good situation bc he doesn’t really have the strength or motor control needed.
Anyway - neither DH nor I have any experience with or knowledge about traveling with a disabled person. Other than knowing that airlines generally will let you board first and hotels generally offer handicap accessible rooms.
I’m hoping that there are some wise Peas who can direct me to resources on travel for disabled folks, or have first hand experience. I think that there are probably accommodations available, but we don’t know what to request or when to ask for it.
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Post by christine58 on Jun 19, 2021 1:58:44 GMT
Anyway - neither DH nor I have any experience with or knowledge about traveling with a disabled person. Other than knowing that airlines generally will let you board first and hotels generally offer handicap accessible rooms. Let the airline know he needs assistance when you book the flight. Someone will take him to the gate and to the luggage area (and your DH),
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Post by melodyesch on Jun 19, 2021 2:06:40 GMT
I would be concerned about that entry and exit to/from the train. Can your BIL makes the steps? I have no idea about resources, but definitely check out what Amtrak might be able to provide.
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Post by ameslou on Jun 19, 2021 2:15:03 GMT
I would be concerned about that entry and exit to/from the train. Can your BIL makes the steps? I have no idea about resources, but definitely check out what Amtrak might be able to provide. Yes, this is one of my concerns for them. DH is tall and strong - but BIL is tall but weak and has challenges with motor control. Def a challenging situation, and BIL understandably doesn’t want a scene.
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Post by tallgirl on Jun 19, 2021 2:44:58 GMT
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Post by Skellinton on Jun 19, 2021 2:45:52 GMT
Be sure to really check what ADA means for the hotel room. For some that means bars on the wall by the toilet and in the shower. It does not mean the shower will be a walk in one, it could still be a tub/shower situation. Your husband should ask for pictures of the room if that will be an issue.
Also find out what accommodations the train has. My aunt cannot navigate steps even though she is not wheelchair bound (she uses a walker) but when she takes the train to travel they do have a lift. She uses redcaps to help her get to the train and they are generally very accommodating, although they know her quite well.
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Post by freecharlie on Jun 19, 2021 2:59:30 GMT
Anyway - neither DH nor I have any experience with or knowledge about traveling with a disabled person. Other than knowing that airlines generally will let you board first and hotels generally offer handicap accessible rooms. Let the airline know he needs assistance when you book the flight. Someone will take him to the gate and to the luggage area (and your DH), yes! Don't just show up and assume they will let you board first. The boarding pass will reflect that if they know. Also leave extra time for security. I watch some poor guy in a wheelchair sit there at security while they found someone to roll him through or something.
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Post by myshelly on Jun 19, 2021 3:08:46 GMT
Make sure you note the disability and request assistance when you make the reservations, not when you show up.
I really like hotels.com for booking accessible hotel rooms. The room listings show exactly what accommodation each room has (for example, there are hearing/sight impaired rooms, wheelchair rooms, etc.). The listing will list and show a picture of every accommodation. It is SO much easier than calling each individual hotel and asking about accommodations.
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Anita
Drama Llama
Posts: 5,642
Location: Kansas City -ish
Jun 27, 2014 2:38:58 GMT
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Post by Anita on Jun 19, 2021 4:01:55 GMT
It's not just transportation. Make sure when booking restaurants that they know you need a table, not a booth. That sort of thing. My DH walks with a cane and cannot get into or out of booths. You'd likely need a table with a chair removed to accommodate a wheelchair. But definitely ask about the hotel room bathrooms. They really do vary on what accessible means.
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*Marjorie*
Full Member
Posts: 360
Location: Hawaii
Jun 26, 2014 16:43:45 GMT
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Post by *Marjorie* on Jun 19, 2021 4:30:02 GMT
When you make hotel reservations make sure to specify wheelchair bound. They have hotel rooms where a person can wheel into the shower. Also, before making reservations specify wheelchair bound when choosing a hotel.
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Belle
Pearl Clutcher
Posts: 4,309
Jun 28, 2014 4:39:12 GMT
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Post by Belle on Jun 19, 2021 4:41:17 GMT
My mom had MS and I traveled with her several times when she needed to use a wheelchair.
At the airport, your DH can request assistance from check in all the way to the gate and onto the plane. Sometimes that means someone escorts your BIL in a wheelchair or it can mean riding on an electric cart through the airport. With your DH along, he may not need that extra assistance but know that it is available. Will your BIL bring his own wheelchair or get one in DC? As you mentioned, DH and BIL should be able to board the flight earlier too which is helpful for getting situated.
Beware that heat is pretty tough on people with MS. Hopefully, your BIL and DH have a lot of plans for indoor/air conditioned activities.
At the hotel, consider what needs your BIL will have around showering. Can he stand in a shower, need a bench seat etc?
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Post by elaine on Jun 19, 2021 5:15:06 GMT
I guess that I would also add that, when there are significant mobility issues, “quick trips” of 2-3 days just aren’t feasible.
DC is doable with disabilities, but, as a resident, I would suggest a 4-5 days - minimum - to see the museums and monuments downtown.
Then, you’d need a day for travel to Boston and then 2-4 days there.
So, at least one week for those 2 cities, but better with more days planned, because there is only so much they will be able to reasonably do in a given day.
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wellway
Prolific Pea
Posts: 8,759
Jun 25, 2014 20:50:09 GMT
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Post by wellway on Jun 19, 2021 6:17:55 GMT
I've lost count of the number of stories I've read about the difficulties wheelchair users face travelling, trains, planes, taxis etc. Attaching a link to a recent story from a few weeks ago. www.huffingtonpost.co.uk/entry/wheelchair-delta-broke-hellish-truth-flying-disabled-inaccesibility_n_60c3c669e4b0583aec449aa1?ri18n=trueIncluded in the article is this nugget, "The country’s largest airlines have lost or damaged at least 15,425 wheelchairs or scooters — roughly 29 a day — since 2018, which is the year airlines were required to start reporting those numbers to the government, The Washington Post reported. The outlet notes that these numbers would be even higher if it weren’t for the coronavirus pandemic that put a halt on airline travel for most of 2020." I think you might have to break the trip into sections and do research to make it as smooth as possible. Getting to the destination, accommodation, travelling around destination, sites to be visited. Pre covid there was a travel show I watched which included a wheelchair user and his travels, it was an eyeopener to realise the issues faced if mobility is a concern. The presenter's name is Ade Adepitan if you want to google his experiences. He doesn't let a wheelchair stop him, a recent trip had him travelling across Africa.
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Deleted
Posts: 0
Apr 25, 2024 5:13:25 GMT
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Post by Deleted on Jun 19, 2021 9:25:27 GMT
Research as much as you can in advance. Specifically look for disability access statements if the place has them on their website, these vary in details . If they do not have them a phone call works . Different entrances may need to be used , often round the back of buildings. Notify transport and hotels in advance and double check that they can accommodate wheelchair requirements and what arrangements need to made. Taxi firms can offer vehicles with ramps in some areas.
Ask about steps internal and external, lifts /elevators. Often a lift reserved for staff / goods can be used instead . Height of door thresholds . Width of doorways. Gravel surfaces can be impossible for wheelchairs. Slope gradients . Power chairs (electric ) will need batteries charged before use . Power chairs can be outdoor or indoor depending on the model. Manual chairs can be folded up in transit, whereas power chairs can not , and they weigh a lot, and may need to be broken up into sections before loading . Others can not be dismantled.
Parking is important too. A disability parking badge can make things easier.
Kerbs can be like steps , so look out for ones that have areas of little slopes ( dropped kerbs ) for wheelchair access. If the chair is a manual one going down backwards is easier if assisted.
Factor in flexible plans . Disability through illness like MS can cause fatigue so rest time is important too.
Spontaneity does not work with disability , advance research and planning helps to avoid difficulty and disappointment.
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Post by mikklynn on Jun 19, 2021 11:50:42 GMT
DH is disabled. You can ask for wheelchair assistance when you check in for your flight online. It will ask if you need assistance to the gate and/or boarding the plane. There will be an area in the airport for you to go, marked with the wheelchair logo. They will take you through security and right to the gate. In our experience, they bypass the security lines and go right to the front of the line. They will meet you at the plane when you land and take you out to the curb or to baggage claim. Be sure to tip the person pushing the wheelchair. We tip $10.
It is so easy and everyone at every airport has been very kind and helpful.
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Post by phoenixcov on Jun 19, 2021 11:51:21 GMT
Your DG should be aware that there is more to pushing a wheelchair than you would think. My OH nearly tipped me out a couple of times by not pulling the chair over a surface instead of pushing it. Also there is a way to push a chair that won`t hurt his back. If his friend is going to push himself for any length of time he will need some wheelchair users gloves. They help a lot. No help with the travelling aspect from me as I have only travelled by car.
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Post by Restless Spirit on Jun 19, 2021 12:26:43 GMT
We traveled on and off for over 30 years with my elderly parents and my brother who was classified as a quadriplegic because of a TBI.
Beyond all of the great advice/help posted above, I’d like to add the following - which may seem obvious:
Traveling with someone that has mobility issues takes a lot of patience. Everything will take longer. It’s starts at the beginning of the day. Getting a shower, getting dressed, using the restroom. Even before leaving the hotel room, the challenges begin. Planning on starting the day early to do a lot of sightseeing in a few days *may* be overly ambitious. Travel, going to restaurants, sightseeing- all may take longer because handicap accommodations often are accomplished by directing you to wait for help, wait for lifts, use different entrances or exits, etc.
My brother used to get extremely exhausted by mid-day. Even getting in and out of his wheelchair was tiring. He often had to rest before he had dinner, then we could go back out and do a few things. Traveling by car with him meant many stops to rest. There were many things we would like to have seen and done but it wasn’t possible, not because of his disability, but of how tired he would get. The vacation trips with him and my parents, while fun and rewarding, we’re very different than traveling with our only daughter. Shorter trips, shortened itinerary and short days made traveling all over the US doable- just different.
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Post by Spongemom Scrappants on Jun 19, 2021 12:56:10 GMT
My 96 y/o mama uses both a walker and a companion chair (not a full wheelchair, but meant for someone to push you). We manage travel with her pretty easily. The comments about allowing extra time for ‘everything’ are true. It just takes longer to do things.
I took her and two of her friends on a cruise several years back. I had all three in wheelchairs in the airport. The staff could not have been more helpful. They made it super easy to get through all the procedures in the airports and board the planes. Same for Carnival with the cruise itself. They helped me arrange for a rental wheelchair and some bathroom equipment needed for each cabin. Staff were always willing to step up when assistance was needed.
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Post by Skellinton on Jun 19, 2021 14:45:53 GMT
Make sure you note the disability and request assistance when you make the reservations, not when you show up. I really like hotels.com for booking accessible hotel rooms. The room listings show exactly what accommodation each room has (for example, there are hearing/sight impaired rooms, wheelchair rooms, etc.). The listing will list and show a picture of every accommodation. It is SO much easier than calling each individual hotel and asking about accommodations. That is great to know about hotels.com. It is frustrating to book an ada room and find that all that means is that it is on the ground floor with a grab bar next to the toilet. I truly appreciate that info.
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sassyangel
Drama Llama
Posts: 7,456
Jun 26, 2014 23:58:32 GMT
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Post by sassyangel on Jun 19, 2021 15:28:49 GMT
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Post by scrapmaven on Jun 19, 2021 16:07:01 GMT
I have found that airport personnel are really efficient when I need help. When you check in your luggage, even w/the outdoor skycap you can let the person helping you know that you will need help getting through the airport. If the terminal is long the airport might have someone that picks diabled people and their companions up on a cart. Otherwise they will have people who can help wheel your bil to the gate so that your dh can carry luggage. A gate agent will wheel your bil onto the plane, where he'll pre-board. Once all passengers disembark they'll bring a special chair to the seats and will wheel it to his real chair on the jetway.
I use a mobility scooter for lengthy travel and just do it all myself down to the jetway. Though lately, I've been able to use my cane. However, when I was wheelchair/scooter bound I found air travel to be very easy. HTH.
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Post by rst on Jun 19, 2021 16:20:11 GMT
From what the OP said, it doesn't sound like the BIL is entirely wheelchair dependent -- just that he recognizes that it's time to add a chair to his repertoire of tools. He may not need a full "Accessible" hotel room or table at a restaurant if he can park the chair and make his way short distances on level surfaces. Unfortunately, when you get the accessible hotel room, often you lose amenities like a comfortable chair and table in order to make room for the wheelchair. Same with restaurant seating. If you don't have to have room for a wheelchair and can opt to park it, you have choices for better scenery or more interesting table placement. Besides which, unless his disability requires full supports all the time (it probably doesn't from what OP said) it will be very good for him to get up and walk short distances, reposition, get blood flowing, etc.
With the train, there probably is a lift. But again, he probably doesn't want to sit in his wheelchair the entire trip. The wheelchair can be checked baggage. If he has an extra few minutes in boarding to navigate the stairs and get situated, that may well be all he needs.
My personal tip for traveling with a disabled loved one -- tip lavishly and always be super-polite and pleasant. You come to realize how much you rely on help from porters, doormen, all kinds of service people, when you need just a bit of extra time, space, or assistance.
oh -- also, many cities have aps that show routes for wheelchair access and places that have truly accessible restrooms, etc. Worth taking a look for one.
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Post by cecilia on Jun 19, 2021 17:11:28 GMT
I would be concerned about that entry and exit to/from the train. Can your BIL makes the steps? I have no idea about resources, but definitely check out what Amtrak might be able to provide. My aunt (who is nearly 90) has mobility issues. She rode Amtrak back to IL. Train attendant had a stool to help with the intial step onto the train and held her hand to steady her. I would see if that can happen for BIL.
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