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Post by crazy4scraps on Mar 15, 2022 4:50:31 GMT
Yes. I completely understand, and I wasn't that far from my parents (4 hours). In the end, after my father died, we basically kidnapped my mother to assisted living here in Virginia, one mile from me and just across the river from my sister. She still says she wants to go back to Pittsburgh. The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. I know this makes me sound terrible, but part of my frustration with my inlaws is that they could literally afford 24-7 care without it affecting their lifestyle and instead of hiring people my MIL insists that only my FIL should be helping her out and my FIL is slowly going mad. I think this is really, really common. My sister’s in-laws were like that. The mom had major mobility issues and the dad was “taking care” of her, except he was 88 years old at the time and couldn’t get her up off the floor if she fell which happened a few times. The kids had all been trying like hell to get dad to agree to at least move mom to a nursing home and he flat out wouldn’t do it, nor would he let a PCA come in to assist him. Things got really, really bad and eventually the mom passed away. Now dad is 90 and can’t really care for himself or the house he lives in. He refuses to move or let someone other than the kids come in to help him, and 3/5 of the kids live out of state so it’s brutal for the two who live here. The whole situation is sad because the guy truly needs help but won’t allow it.
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Post by mollycoddle on Mar 15, 2022 9:51:47 GMT
I’m sorry; what a difficult, sad situation.
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Post by lg on Mar 15, 2022 10:00:38 GMT
One of the things I will NEVER forget is my Grandfather getting his affairs in order before his illness (cancer) got too much for him. He and my grandmother moved from a large property to a retirement village, held numerous yard sales to clear out their house of things that were not important, sold their van and extra car etc etc. It meant that when the time came that he was too sick to function, my grandmother was in a safe place that still held memories of him and them but wasn’t so large that she couldn’t live there safely on her own. Everything in her villa is important or of value, and many pieces have a name taped on the back so that when she passes we know which of the kids/grandkids the item was promised to. She has the flexibility to travel and stay with family, and the freedom to do so as any jobs around the villa while she is gone are taken care of as a part of the village where she lives.
In comparison, my husband has just lost his grandmother at a young age to dementia. Not only was the family house on a large acreage packed to the rafters with stuff, but it is a few states away from any family assistance. Just the thought of what had to be done sent his Grandfather on a downward spiral of depression and being unable to make any decisions whatsoever, this then ended in him not being able to physically look after himself at all. It was a huge burden to get him somewhere safe where he could be cared for.
End of life planning is so often overlooked or put off as being too “morbid” but is so vitally important for the people who actually care and love you that you leave behind. Why do people spend more time planning a holiday than they ever spend on making sure they are leaving a happy memory of themselves to their closest and dearest rather than a memory of ongoing (sometimes for YEARS) stress, pain and trauma?
I have nothing but empathy with those having to deal with the lack of preparation from their loved ones, and all I can do is make sure that I personally make a good example (when my time comes!) of what being positive and proactive about this life stage can look like and be for my kids.
Sorry for the rant, this topic hit a recent sore spot 🙂
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Post by mikklynn on Mar 15, 2022 11:14:30 GMT
I am so sorry. I can hear how frustrated you are...and rightfully so. Re: your mom --- is there any chance a dr would prescribe her something to help her chill a bit? The anxiety that she normally has is probably being ulitplied by the stress of your dads condition. Not prescribe her anything that will leave her zombies out, but something to just calm her down a notch or two?Something to maybe talk to her about. Add in grief that she is probably already. starting to feel, maybe now would be a good time to consider an antidepressant. My mother last saw a doctor when I was ten. She refuses medical care of any kind and there is zero chance she is going to see a doctor for mental health. That . . . is a whole other thread. She also called me today to let me know that they are opting back out of hospice. Sigh. I am emailing the social worker now to let her know my concerns about the situation; my parents are mentally competent in my view, just making some bad decisions right now. Oh, no. I am so sorry. What a nightmare.
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Post by twinks on Mar 15, 2022 12:46:16 GMT
Hugs to all of you. It is a hard situation for everyone.
I do have a humorous situation to share. It wasn’t so funny at the time, but we all laugh about it now. My mother was a recent widow taking care (not literally but organizing the care) of my father’s parents and aunt (whose only child had died in a tragic accident and was herself a widow). There are 4 children and we had divided things up pretty good. My mother was meals on wheels to both households. My aunt had severe dementia and had live in, round the clock nursing arranged by my mother. My grandmother died first from leukemia (she was sick when my Dad passed away if cancer). Then the Aunt passed away, leaving us to only take care of Grandpa. My father fully supported his parents financially and even in his death had made arrangements to do so via a living will. My grandfather was a very cantankerous person. My mother and us had taken care of my Dad at home as he died of cancer (this was prior to Hospice. My grandfather insisted that he wanted to move into my mother’s home and have her take care of him. No way!!! None of us would allow that. My grandfather was basically a total jerk for a year and would fire anyone that we had hired to come into his home to take care of him and things. My mother would send over a meal and my grandfather would throw it back at us because it wasn’t what he wanted. However, if 1 of us picked him up and brought him over to Mom’s for dinner, he was quite the gentleman. We went through this daily for about 6 months before my grandfather ended up with a severe heart problem and hospitalized. He had precious heart issues. My father had been a physician at the hospital where my grandfather was hospitalized. Everyone knew and loved my Dad. My mother started getting calls from the hospital staff about my grandfather. He didn’t like his room and wanted to be in a suite like my Dad had. He threw the meals at the staff because he wanted my Mom to bring him meals. He was basically a 2 year old throwing temper tantrums. The hospital social worker was talking to us on a daily basis. We were advised to keep my Mom out of the situation. My older brother was now in charge. It became evident that my grandfather would need more care than anyone could provide at his home. He needed round the clock nursing. My siblings and I visited serval senior living/nursing facilities and had chosen a nice one with different levels of care. My brothers moved in his favorite chair and my sister and I had purchased him new clothes and pajamas. We were all present when the van arrived with my grandfather. My grandfather was so very angry at everyone. He wanted to move in with my mother and have her take care of him. He arrived yelling and didn’t stop. The social worker suggested we all leave. We were walking out of his room and he yelled, “I show you! I will die!” My older brother got the call at 2am the next morning that my grandfather had indeed died.
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Post by sabrinae on Mar 15, 2022 12:57:02 GMT
I’m so sorry. It’s such a tough spot to be. I’m helping care for my grandmother, my father and then my own full time plus job, my oldest medical issues, and kids activities. I’m exhausted. And like everyone else, no one wants or is able to acknowledge their own limitations. You have my deepest sympathies
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SweetieBsMom
Pearl Clutcher
Posts: 4,785
Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on Mar 15, 2022 12:57:49 GMT
Yes. I completely understand, and I wasn't that far from my parents (4 hours). In the end, after my father died, we basically kidnapped my mother to assisted living here in Virginia, one mile from me and just across the river from my sister. She still says she wants to go back to Pittsburgh. The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. I had to kidnap my Dad. I had to fly down to Florida (he was a snow bird), his PCP basically said “go bring him home, he’s too sick to stay there alone”. We got off the plane at Logan in Boston, into a cab and directly to an emergency room. He was in the hospital for 3 weeks and then in rehab for 4. I moved him right from rehab to assisted living 4 minutes from me. Enough was enough. I couldn’t handle him at his home anymore, I was caring for DH with terminal cancer and DS with Autism. Having him so close I could manage his appointments, take him shopping and see him daily to bring him coffee. I’m sorry you’re dealing with this. It’s so hard when you have to parent your parent.
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Post by peasapie on Mar 15, 2022 13:13:52 GMT
Yes. I completely understand, and I wasn't that far from my parents (4 hours). In the end, after my father died, we basically kidnapped my mother to assisted living here in Virginia, one mile from me and just across the river from my sister. She still says she wants to go back to Pittsburgh. The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. We had to do something similar. MIL had lost her mind; we had to extract her from a hovel, become guardians, and put her in assisted living. I’ve been organizing and divesting myself of unneeded “stuff” for years and, given my mom had Alzheimer’s, will continue to plan ahead as time goes on. OP I feel your pain. His father will need to face the fact that she needs needs constant care in a facility. We made that decision for my dad when the time came with my mom, and it was a relief for him to hear it from us. He still visited her daily and fed/cared for her til the end, but at least he was no longer ready to have a stroke trying to care for her.
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Deleted
Posts: 0
Nov 23, 2024 14:28:45 GMT
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Post by Deleted on Mar 15, 2022 14:49:13 GMT
Yes. I completely understand, and I wasn't that far from my parents (4 hours). In the end, after my father died, we basically kidnapped my mother to assisted living here in Virginia, one mile from me and just across the river from my sister. She still says she wants to go back to Pittsburgh. The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. I had to kidnap my Dad. I had to fly down to Florida (he was a snow bird), his PCP basically said “go bring him home, he’s too sick to stay there alone”. We got off the plane at Logan in Boston, into a cab and directly to an emergency room. He was in the hospital for 3 weeks and then in rehab for 4. I moved him right from rehab to assisted living 4 minutes from me. Enough was enough. I couldn’t handle him at his home anymore, I was caring for DH with terminal cancer and DS with Autism. Having him so close I could manage his appointments, take him shopping and see him daily to bring him coffee. I’m sorry you’re dealing with this. It’s so hard when you have to parent your parent. Goodness you are an angel to juggle all of that for your family. Did you have to get any legal documentations to move your Dad? Or did he go willingly?
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bethany102399
Pearl Clutcher
Posts: 3,661
Oct 11, 2014 3:17:29 GMT
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Post by bethany102399 on Mar 15, 2022 21:12:50 GMT
I had to kidnap my Dad. I had to fly down to Florida (he was a snow bird), his PCP basically said “go bring him home, he’s too sick to stay there alone”. We got off the plane at Logan in Boston, into a cab and directly to an emergency room. He was in the hospital for 3 weeks and then in rehab for 4. I moved him right from rehab to assisted living 4 minutes from me. I'm sorry, looking back I question whether or not something like this would have helped my mom, but the reaction from her would have been awful and I suspect would have fully fractured our relationship. Hugs to all of you who have gone thorough this with a parent. it's just awful and has lasting consequences.
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SweetieBsMom
Pearl Clutcher
Posts: 4,785
Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on Mar 16, 2022 13:30:52 GMT
I had to kidnap my Dad. I had to fly down to Florida (he was a snow bird), his PCP basically said “go bring him home, he’s too sick to stay there alone”. We got off the plane at Logan in Boston, into a cab and directly to an emergency room. He was in the hospital for 3 weeks and then in rehab for 4. I moved him right from rehab to assisted living 4 minutes from me. Enough was enough. I couldn’t handle him at his home anymore, I was caring for DH with terminal cancer and DS with Autism. Having him so close I could manage his appointments, take him shopping and see him daily to bring him coffee. I’m sorry you’re dealing with this. It’s so hard when you have to parent your parent. Goodness you are an angel to juggle all of that for your family. Did you have to get any legal documentations to move your Dad? Or did he go willingly? He fought me but he almost died in Florida so I think he FINALLY realized this was his only option. I didn’t give him any other option. He sided he’d fight me and I said “do it” but he didn’t. I kick myself because if I forced the issue a couple of years before when I first tired to get him in assisted living I think he’d still be with us.
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SweetieBsMom
Pearl Clutcher
Posts: 4,785
Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on Mar 16, 2022 13:31:32 GMT
I had to kidnap my Dad. I had to fly down to Florida (he was a snow bird), his PCP basically said “go bring him home, he’s too sick to stay there alone”. We got off the plane at Logan in Boston, into a cab and directly to an emergency room. He was in the hospital for 3 weeks and then in rehab for 4. I moved him right from rehab to assisted living 4 minutes from me. I'm sorry, looking back I question whether or not something like this would have helped my mom, but the reaction from her would have been awful and I suspect would have fully fractured our relationship. Hugs to all of you who have gone thorough this with a parent. it's just awful and has lasting consequences. He was mad at me but it was tough to stay mad at me when he was now seeing me every day.
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hannahruth
Pearl Clutcher
Posts: 2,714
Location: Adelaide, Australia
Aug 29, 2014 18:57:20 GMT
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Post by hannahruth on Mar 16, 2022 14:24:57 GMT
The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. I couldn’t agree more! We are beginning to look at retirement homes as we downsized 15 years ago so we are okay to begin this next move. We live about 15-20 minutes from our DD so we want to stay in that radius. Unfortunately our DS lives overseas so DD will be our go to.
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Deleted
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Nov 23, 2024 14:28:45 GMT
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Post by Deleted on Mar 16, 2022 18:28:32 GMT
Goodness you are an angel to juggle all of that for your family. Did you have to get any legal documentations to move your Dad? Or did he go willingly? He fought me but he almost died in Florida so I think he FINALLY realized this was his only option. I didn’t give him any other option. He sided he’d fight me and I said “do it” but he didn’t. I kick myself because if I forced the issue a couple of years before when I first tired to get him in assisted living I think he’d still be with us. Aww. You have to realize that you did the best you could with the circumstances. My father is super stubborn and making poor choices right now but he will not listen to any reason. He actually digs in his heels and starts to self sabotage in order to be stubborn. So there comes a point where I say to myself, I did the best I could. And right now backing off is the best even if he's making a horrible choice. Your father was lucky to have you. Remember that.
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Post by scrappintoee on Mar 16, 2022 23:09:53 GMT
I couldn’t handle him at his home anymore, I was caring for DH with terminal cancer and DS with Autism I'm so sorry you had to deal with ALL of that ! Please don't kick yourself---you did the best you could! ((( hugs )))
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Post by mikklynn on Mar 19, 2022 12:58:54 GMT
I'm so sorry your dad is worse. I am glad you are receiving help from hospice. Gentle hugs, epeanymous.
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Post by scrapmaven on Mar 19, 2022 15:56:14 GMT
It sounds like a roller coaster, as illness and hospice almost always is. Thank you for allowing us to be there to listen, epeanymous. Have you asked for a script for Ativan for your dad? My mom's doctor gave her a script when she entered hospice. When she would have anxiety it went through the roof. We would dose her w/an Ativan and that allowed her to rest.
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Post by malibou on Mar 19, 2022 16:32:43 GMT
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Post by epeanymous on Mar 19, 2022 17:36:31 GMT
It sounds like a roller coaster, as illness and hospice almost always is. Thank you for allowing us to be there to listen, epeanymous. Have you asked for a script for Ativan for your dad? My mom's doctor gave her a script when she entered hospice. When she would have anxiety it went through the roof. We would dose her w/an Ativan and that allowed her to rest. My dad has five medicines he takes every day (some several times), one of which is anti-anxiety and one of which is anti-agitation. When I was at their place yesterday meeting with the nurse and social worker, we discovered that she has not been giving him several of the medications and, the ones she has given him, she is often giving half of the prescribed dose (that turned out to be true for morphine, eg). I think we have it all straightened out now, and now I call every six hours, run down the list of medicines and doses, and wait until he takes them to get off the phone. As a result, he actually slept last night, which helps a lot. We’re also interviewing home health companies now, although my mother doesn’t want the help—she can’t do this alone, whatever she says, and while I can help, I am not even in town half the week right now.
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Deleted
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Nov 23, 2024 14:28:45 GMT
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Post by Deleted on Mar 19, 2022 17:53:51 GMT
epeanymous Oh my gosh. My heart goes out to you. This entire situation sounds all too familiar. The FL situation is tough when family is far away. I fully understand your mother about letting people in and out of the condo a lot. At first it DID seem like a revolving door. We got calls that each person was coming, set up the time, and I'd have to make sure the cats wouldn't run out, etc. Eventually, DH had only his main nurse come each Monday, and had an aide come 2x/week to bathe him (which was a relief for me). Still, I had to let them in our gated community and then let them in thru our lanai (it's in front of our apt).
Prayers to your dad. Hospice was/is a blessing. They brought medical equipment, stat, if you needed it. They had meds sent to the home. The social worker came once every few weeks. DH had a Chaplain come every few weeks. He had his Veteran pinning ceremony (which I'll never forget), and I'm getting bereavement counseling thru Hospice.
Calling them 24/7 and getting advice or the nurse (or doctor) to come out in an emergency really helped. I did that a few times. And because DH was on home-hospice, they were here constantly in the final few days and handled everything as planned. My heart goes out to your mom. It's such a stressful, sad, horrible thing to go through to begin with, but if you have physical or mental issues while you're their caregiver, it's 1000 times tougher. xo
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Deleted
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Nov 23, 2024 14:28:45 GMT
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Post by Deleted on Mar 19, 2022 18:04:05 GMT
Yes. I completely understand, and I wasn't that far from my parents (4 hours). In the end, after my father died, we basically kidnapped my mother to assisted living here in Virginia, one mile from me and just across the river from my sister. She still says she wants to go back to Pittsburgh. The one good thing that came out of it all for me was the realization that my dh and I WILL NOT do this to our kids. We will be moved out of our house and into a senior apartment somewhere long before we need a lot of help. I know this makes me sound terrible, but part of my frustration with my inlaws is that they could literally afford 24-7 care without it affecting their lifestyle and instead of hiring people my MIL insists that only my FIL should be helping her out and my FIL is slowly going mad. (Sorry I also thought this was about your parents, not your in-laws). This would drive me me nuts too. Hospice said, "This is the time you call in the troops--your family, friends, etc." because they knew that I was disabled and not physically able to help DH 24/7. He was over 6' and 265 lbs, and I'm barely 5'. I told Hospice, "I wish we did have family and friends down here, but we have no one". They responded with, "Well, that's the time you hire a private nurse". I WISH that we could have afforded any private help, but we couldn't. DH told me so very often that he felt terrible and worried about me. I'd encourage your in-laws to THINK about lining up extra help with a private nurse in case this becomes too much for your MIL.
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Post by hop2 on Mar 19, 2022 18:06:18 GMT
I am so sorry you are dealing with this
Hugs
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