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Post by refugeepea on May 13, 2022 10:16:26 GMT
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Post by AussieMeg on May 13, 2022 10:34:54 GMT
Wow, that's huge! They already do the heel prick test on all newborns, so I wonder if it's as simple as also testing these enzyme levels at the same time?
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Post by littlemama on May 13, 2022 10:49:56 GMT
I wonder what they would be able to do if the enzyme was low in an infant. Knowing it is a risk is important, but the solution is more important. Parents cant stay awake 24/7 to watch an at-risk infant
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peabay
Prolific Pea
Posts: 9,891
Jun 25, 2014 19:50:41 GMT
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Post by peabay on May 13, 2022 10:56:48 GMT
That whole story is amazing - finding the enzyme and the fact that it was a mom scientist who had lost a child to SIDS. She’s amazing. I don’t know her, never heard of her and I’m so proud of her.
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peaname
Pearl Clutcher
Posts: 3,390
Aug 16, 2014 23:15:53 GMT
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Post by peaname on May 13, 2022 11:00:24 GMT
I hope this news brings some peace for grieving parents who may wonder if they could have done something to prevent their baby’s death.
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Post by meriannj on May 13, 2022 11:13:30 GMT
this is super facinating. My niece was 11 and passed away in her sleep in January and they still haven't found a cause but have suspceted it could be related to SIDS but always discount that because of her age but this makes you think it could be something related.
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maryannscraps
Pearl Clutcher
Posts: 4,791
Aug 28, 2017 12:51:28 GMT
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Post by maryannscraps on May 13, 2022 11:16:35 GMT
Wow! Think of all the babies' lives that could be saved with this discovery.
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peabay
Prolific Pea
Posts: 9,891
Jun 25, 2014 19:50:41 GMT
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Post by peabay on May 13, 2022 11:38:41 GMT
this is super facinating. My niece was 11 and passed away in her sleep in January and they still haven't found a cause but have suspceted it could be related to SIDS but always discount that because of her age but this makes you think it could be something related. Oh, I’m so sorry. We had a family friend this happened to when he was in high school and they speculated the same thing. Gosh - that’s so sad. I’m so sorry for your family’s loss.
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iluvpink
Pearl Clutcher
Posts: 4,370
Location: Michigan
Jul 13, 2014 12:40:31 GMT
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Post by iluvpink on May 13, 2022 11:41:13 GMT
That's some good news in a time when there so rarely seems to be any. I hope those who have lost a child due to this get a little bit of peace at least. And I really hope they can use this info for prevention.
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Post by melanell on May 13, 2022 12:36:58 GMT
This is such hopeful news. I know so many parents mention that they spend the first year or so in fear of SIDS, and of course so many have experienced the loss of their precious children due to it. Knowing why it happens is so pivotal. Now not only can researchers start trying to find a medical form of prevention, but companies already creating more sophisticated baby monitoring systems can hopefully create even better products to help bridge the gap in time between now and a time when hopefully doctors can offer a form of prevention to parents of children at higher risk.
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casii
Drama Llama
Posts: 5,517
Jun 29, 2014 14:40:44 GMT
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Post by casii on May 13, 2022 12:54:11 GMT
Finally an answer! I hope it brings some comfort to those who have lost their babies and reassurance to parents who question their every step.
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Post by stormsts on May 13, 2022 12:58:18 GMT
This is great news!
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Post by Spongemom Scrappants on May 13, 2022 13:16:44 GMT
I always admire people who make it their life's mission to address an issue like SIDS. This research and the results she's found will be life changing.
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Post by pelirroja on May 13, 2022 13:34:52 GMT
This is such amazing news! A co-worker of mine lost her infant son to SIDS and her husband was so convinced she did something that he divorced her. I cannot imagine the grief of losing your child and your marriage at the same time. I admire how the scientist was determined to find the answer to this mystery and keep at it for nearly three decades.
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Post by revirdsuba99 on May 13, 2022 13:37:42 GMT
Wonderful news.
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caangel
Drama Llama
Posts: 5,676
Location: So Cal
Jun 26, 2014 16:42:12 GMT
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Post by caangel on May 13, 2022 13:54:47 GMT
this is super facinating. My niece was 11 and passed away in her sleep in January and they still haven't found a cause but have suspceted it could be related to SIDS but always discount that because of her age but this makes you think it could be something related. This happened to a child of a teacher at our school at the same age. She was at a sleepover and never woke up. 😥
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Anita
Drama Llama
Posts: 5,703
Location: Kansas City -ish
Jun 27, 2014 2:38:58 GMT
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Post by Anita on May 13, 2022 14:30:13 GMT
Wow! That's an amazing accomplishment!
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Post by Mel on May 13, 2022 14:34:32 GMT
I wonder what they would be able to do if the enzyme was low in an infant. Knowing it is a risk is important, but the solution is more important. Parents cant stay awake 24/7 to watch an at-risk infant Exactly!! Knowing is half the battle... preventing it is the other half. I hope the come up with a supplement or something to give to babies/kids who have the enzyme present. If not, while it will bring comfort to those who's baby/child has died from SIDS, how does this really help prevent deaths?
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Post by olbrwneyedgirl on May 13, 2022 14:37:31 GMT
Oh my goodness! This is on a short list of things that I have wondered if they will cure/understand in my lifetime. I can't believe it actually happened! It's weird, though, in this age of instant gratification....that I'm frustrated that it will take a few years to develop the screening tool. I certainly understand but there will be soooo many parents and caregivers that will still worry through those few years. Science is so cool. I can't even imagine what it must be like to be a part of the team that helped get an answer to such a big mystery. Yay nerds!!!!
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Post by scrapmaven on May 13, 2022 15:09:36 GMT
This is very positive news. I hope that they can use these findings to protect babies and prevent SIDS altogether. meriannj, I'm so sorry for the loss of your precious niece.
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Post by busy on May 13, 2022 15:18:07 GMT
I wonder what they would be able to do if the enzyme was low in an infant. Knowing it is a risk is important, but the solution is more important. Parents cant stay awake 24/7 to watch an at-risk infant Exactly!! Knowing is half the battle... preventing it is the other half. I hope the come up with a supplement or something to give to babies/kids who have the enzyme present. If not, while it will bring comfort to those who's baby/child has died from SIDS, how does this really help prevent deaths? Well, you have to know what the problem is to determine how to prevent it. This is a huge step in the direction.
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Post by lostwithout2peas on May 13, 2022 15:20:30 GMT
This is awesome news that I hope brings some peace to my sister-in-law who lost a twin newborn son 27 years ago this June. I need to find a gentle way to share the article with her. ❤️
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Post by padresfan619 on May 13, 2022 15:27:40 GMT
If they do develop a screening for this enzyme I hope it doesn’t give parents a false sense of security to then add crib bumpers, mesh panels, blankets, pillows, stuffed animals, bottles, or even bed share with their infant if they “pass” the test. I fear it will lead to parents being lax about safe sleep guidelines because they passed the screening.
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Post by jenjie on May 13, 2022 15:29:38 GMT
Exactly!! Knowing is half the battle... preventing it is the other half. I hope the come up with a supplement or something to give to babies/kids who have the enzyme present. If not, while it will bring comfort to those who's baby/child has died from SIDS, how does this really help prevent deaths? Well, you have to know what the problem is to determine how to prevent it. This is a huge step in the direction. Yes! From the article: “In the study, the researchers wrote, “This finding represents the possibility for the identification of infants at risk for SIDS infants prior to death and opens new avenues for future research into specific interventions.” As the cause is now known, researchers can turn their attention to a solution. In the next few years, those in the medical community who have studied SIDS will likely work on a screening test to identify babies who are at risk for SIDS and hopefully prevent it altogether.”
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Post by littlemama on May 13, 2022 15:33:21 GMT
Exactly!! Knowing is half the battle... preventing it is the other half. I hope the come up with a supplement or something to give to babies/kids who have the enzyme present. If not, while it will bring comfort to those who's baby/child has died from SIDS, how does this really help prevent deaths? Well, you have to know what the problem is to determine how to prevent it. This is a huge step in the direction. Not disputing that, but can you imagine the anxiety for parents who know their child lacks the enzyme and there is nothing else they can do?
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Deleted
Posts: 0
Oct 7, 2024 5:15:09 GMT
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Post by Deleted on May 13, 2022 15:41:23 GMT
I wonder what they would be able to do if the enzyme was low in an infant. Knowing it is a risk is important, but the solution is more important. Parents cant stay awake 24/7 to watch an at-risk infant Exactly!! Knowing is half the battle... preventing it is the other half. I hope the come up with a supplement or something to give to babies/kids who have the enzyme present. If not, while it will bring comfort to those who's baby/child has died from SIDS , how does this really help prevent deaths? This is the first step but a very huge step. More research will follow to find how to prevent it. As much as we would wish it to, medical science don't find answers overnight. The mother mentioned in the article is a sleep specialist not the actual scientists who will probably be the ones to do further research but working together has certainly paid dividends. Her website might be of interest to anyone that has a sleep problem Sleep for Health
I know two people that have lost their babies to SIDS, 20 years apart. The second family had no more of an explanation as to why it happened than the first family. This breakthrough is a wonderful step forward for many.
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Deleted
Posts: 0
Oct 7, 2024 5:15:09 GMT
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Post by Deleted on May 13, 2022 15:49:29 GMT
Well, you have to know what the problem is to determine how to prevent it. This is a huge step in the direction. Not disputing that, but can you imagine the anxiety for parents who know their child lacks the enzyme and there is nothing else they can do? I would imagine that they would also research the possibility of a manufactured replacement to cover the lack of the enzyme in the body now they have an idea of what is missing.
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Post by busy on May 13, 2022 15:51:48 GMT
Well, you have to know what the problem is to determine how to prevent it. This is a huge step in the direction. Not disputing that, but can you imagine the anxiety for parents who know their child lacks the enzyme and there is nothing else they can do? Surely that would be terrible but I imagine there will be sciences-backed recommendations for them while a true cure/treatment is developed. What’s the alternative? Not saying the cause has been discovered? That’s not really now scientific breakthroughs work.
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Post by smalltowngirlie on May 13, 2022 15:57:20 GMT
Such great news.
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Post by gar on May 13, 2022 16:14:22 GMT
What a fantastic breakthrough - I’m sure a test/treatment will follow before too long 😊
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