|
Post by monicad on Dec 14, 2023 3:02:14 GMT
Dh and I recently received our home tests from Kaiser. He took his, sent it back maybe two weeks ago, and received a call today that it was positive and he needs a colonoscopy which he scheduled for the first week of January. We’re trying not to worry and be positive, but are obviously upset at the news. No history of colon cancer or associated issues that I know of in the family, and previous tests have come back negative. Dh is 52.
If you have any history with these tests or similar results, can you let me know? I asked him if there are any symptoms lately that are out of the ordinary but he said no.
|
|
|
Post by mncmom on Dec 14, 2023 3:18:20 GMT
That happened to me this year. I'd done the at home test for several years and it was always fine. Then I got a positive result. I was very nervous, but I have a friend who is a colon-rectal surgeons nurse, and she assured me not too worry. There's a lot of false positives with the at home tests. I went in for a colonoscopy, and before the procedure, the surgeon said he hates those tests for that reason. My scope was fine, no problems found. s
|
|
kate
Drama Llama
Posts: 5,596
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
|
Post by kate on Dec 14, 2023 3:18:39 GMT
Good for him for getting tested! If his previous tests were clear, then nothing's been growing/proliferating over a long period, so IF there's anything to find (there's a >10% false positive rate, I think), hopefully it can be grabbed during the colonoscopy and he'll be done. That has been the experience of several members of my family.
Hope all goes well. I'm sorry you're stuck with this waiting over the holidays!
|
|
|
Post by malibou on Dec 14, 2023 3:20:44 GMT
I'm sorry his test came back positive. That must feel mighty scary.
|
|
|
Post by KikiPea on Dec 14, 2023 3:22:36 GMT
My friend did one earlier this year and got a positive result. She had a colonoscopy, and all turned out fine. They found a couple of polyps, but they were benign.
Prayers that your husband’s will turn out the same.
|
|
|
Post by monicad on Dec 14, 2023 3:27:45 GMT
Good for him for getting tested! If his previous tests were clear, then nothing's been growing/proliferating over a long period, so IF there's anything to find (there's a >10% false positive rate, I think), hopefully it can be grabbed during the colonoscopy and he'll be done. That has been the experience of several members of my family. Hope all goes well. I'm sorry you're stuck with this waiting over the holidays! Thank you…our kids live out of state and we’re so excited to see them for the holidays; this feels like a little bit of a black cloud but we’ll do our best to be positive.
|
|
|
Post by librarylady on Dec 14, 2023 3:36:50 GMT
Was it Cologuard or a different test. Fingers crossed for your and your family as you await the conclusive testing.
|
|
|
Post by monicad on Dec 14, 2023 3:42:43 GMT
Was it Cologuard or a different test. Fingers crossed for your and your family as you await the conclusive testing. I believe the ones Kaiser sends are not branded but are similar? I still need to do mine but now I’m extra nervous. 😕
|
|
|
Post by dewryce on Dec 14, 2023 4:13:15 GMT
I have pretty bad medical anxiety, and fear of cancer is my absolute worst. If anything is wrong my mind immediately goes there and I get really scared. But I personally wouldn't be too worried with this. Due to false positives. But also, because it checks for DNA changes and blood. I couldn’t discern if it has to be positive for both to get a positive result, but I wouldn’t think so. Surely they’d want to have a look around if only blood was found in the stool. And blood in the stool can be from so many things, including internal hemorrhoids he’s not even aware that he has.
|
|
|
Post by dewryce on Dec 14, 2023 4:25:09 GMT
Was it Cologuard or a different test. Fingers crossed for your and your family as you await the conclusive testing. I believe the ones Kaiser sends are not branded but are similar? I still need to do mine but now I’m extra nervous. 😕 My father died from primary colon & stomach cancers, and I have had a lot of polyps removed in each of my 3 colonoscopies. But I’m actually the least worried about this kind of cancer for me because with colonoscopies you have the opportunity to remove the polyps before they can turn. So I feel some measure of control over the possibility of me developing colon cancer. And if your DH has been testing regularly, as a previous pea mentioned, if there is anything you’ve caught it early. Most are not caught until symptoms appear and that’s one of the reasons for such poor prognoses. I just verified (American Cancer Society) that most colorectal cancers are slow growing, they say over many years. So you doing these screenings is great news! The best advice I can give you is don’t Google. If you have any specific questions ask someone to look them up for you. Heck, post your question here and I’m sure someone would be happy to help. I’ve learned the hard way over half a dozen instances (at least) where I just knew one of us had cancer, and what I read really seemed to verify that. Spoiler alert: neither of us has ever had cancer. But I’ll be damned if I didn’t have my DH see an oncologist out of town who had his fellowship at the place where Lance Armstrong was treated. (And I was calling to make an appointment out of state but she recommended this doctor a couple of hours away). Because back then it wasn’t well known and I wanted the best. Did you miss the part where I had him at an oncologist? Without a diagnosis? Yeah. His advice? Don’t Google. Okay, that’s my second best advice. The first best is take your test. And when his colonoscopy comes back clear, both of you continue screening/getting colonoscopies as advised by your doctors.
|
|
|
Post by monicad on Dec 14, 2023 4:29:03 GMT
Thank you [mention]dewryce [/mention]. I’m a worrier too, so this is tough. I appreciate your advice.
|
|
|
Post by peano on Dec 14, 2023 4:48:36 GMT
DH took a home test which came back positive. So he had to go for a colonoscopy anyway, which he had been trying to avoid (dope!) by taking the home test. They removed 10(!) polyps and two more which he will have removed in a few weeks. All 12 were biopsied and he found out today that all were negative.
|
|
|
Post by monicad on Dec 14, 2023 4:58:35 GMT
DH took a home test which came back positive. So he had to go for a colonoscopy anyway, which he had been trying to avoid (dope!) by taking the home test. They removed 10(!) polyps and two more which he will have removed in a few weeks. All 12 were biopsied and he found out today that all were negative. Oh, that’s great news!! I’m sorry he has to go through the removal, but so glad it’s not serious.
|
|
|
Post by peano on Dec 14, 2023 5:06:16 GMT
DH took a home test which came back positive. So he had to go for a colonoscopy anyway, which he had been trying to avoid (dope!) by taking the home test. They removed 10(!) polyps and two more which he will have removed in a few weeks. All 12 were biopsied and he found out today that all were negative. Oh, that’s great news!! I’m sorry he has to go through the removal, but so glad it’s not serious. Thanks monicad. The man drives me nuts because he doesn't take care of his health. He's almost 65 and this was his first colonoscopy. I was the one sweating the biopsy results. I'm sorry you have to sit with this until after the holidays, but as others have said, there is a fairly high incidence of false positives.
|
|
|
Post by monicad on Dec 14, 2023 5:14:57 GMT
Yes…these men! I’m shoving vitamins down my throat, getting regular lab work, (trying to) manage perimenopause, attempting to exercise regularly and can barely get him to drink water. Ugh! Getting older is stressful…for both of us. 😕
|
|
|
Post by crazy4scraps on Dec 14, 2023 5:47:26 GMT
I have one of those tests sitting here that I’m supposed to do. What irritates me is that I had an actual colonoscopy in 2017 and it came back clear, the doctor doing it said I was good for another ten years. Yay! So why has my health *insurance* (not the clinic) been hounding me for the last three years to do a home test? WTH. My insurance has a high deductible, like $7500 per person $15K per family. They will cover one test like that per year, so if this one pops a false positive and I have to go in and have another followup actual colonoscopy, I would be on the hook for that much higher cost OOP because we haven’t met my deductible. I think that sucks.
|
|
|
Post by krys on Dec 14, 2023 6:36:22 GMT
My husband had the same thing happen last Christmas. He took the test and then we went on an 18 day vacation to Portugal. While there they called and said it was positive. They scheduled a colonoscopy for when we got back. The doctor said it was good he came in. It was a fairly big polyp that turned out to be non cancerous but he said if he left it a year or two more most likely would have been. My husband is only 45 with n no family history.
I know it is hard not to worry but most likely everything will be fine. I think these tests often come back as positive and maybe he will even be have a polyp but most likely it won’t be cancerous and they can just remove it.
|
|
|
Post by vjlau on Dec 14, 2023 6:40:12 GMT
Due to polyps a few years ago, I've had several colonoscopies, and done several of these at home tests. Don't be lazy, and do the testing. It can absolutely save his life. (I'm not suggesting that you were going to, just that lots do wait).
That being said, the at home test mostly tests for blood in stool. He could have a hemerroid, not eating enough fiber, a polyps, or other things. The colonoscopy is 100% painless and they remove everything at the same time. You're basically asleep and feel nothing. The prep is the worst, but have him start eating less "roughage" a few days before. Ask for the pills over the liquid. It's really not that bad.
Hope things go well!
|
|
|
Post by lucyg on Dec 14, 2023 6:57:23 GMT
I had a similar result several years ago (also Nor Cal Kaiser) but I don’t think they actually called it “positive.” Maybe something more like “suspicious.” But they made me come in and have a colonoscopy, where they found a couple of polyps which they removed. ETA since everyone else has used the term “positive,” that’s probably what I had, too, and I’m just remembering wrong.
After that they wanted me to come in every three years for a colonoscopy. I, being me, didn’t get in right on time three years later, and ended up being diagnosed with stage 4 colon cancer about nine months past when I was due to have it done (by that point I had one scheduled, but after I was diagnosed via CT scan, the colonoscopy was no longer needed).
Anyway, I vote for “don’t start panicking yet,” but also “get his butt (ha ha) back in there ON TIME” for future colonoscopies.
Try not to let this ruin your holidays. And good luck to him.
|
|
|
Post by cakediva on Dec 14, 2023 12:56:30 GMT
You've gotten all positive comments - but I can't just let it go by without sharing.
One of my best friends did her first home after she turned 50 (it flicks a switch here in Ontario and you get sent all the over 50 things). She had something on it, and was sent for a colonoscopy.
The colonoscopy revealed she had colon cancer - but it was caught super early. She's had it removed in September, and has received the all clear. No follow up radiation or chemo. She's back at work and all is well, just the follow up testing more often.
|
|
SweetieBsMom
Pearl Clutcher
Posts: 4,785
Jun 25, 2014 19:55:12 GMT
|
Post by SweetieBsMom on Dec 14, 2023 13:19:36 GMT
You've gotten all positive comments - but I can't just let it go by without sharing. One of my best friends did her first home after she turned 50 (it flicks a switch here in Ontario and you get sent all the over 50 things). She had something on it, and was sent for a colonoscopy. The colonoscopy revealed she had colon cancer - but it was caught super early. She's had it removed in September, and has received the all clear. No follow up radiation or chemo. She's back at work and all is well, just the follow up testing more often.I was taking to my doc when I went in for my colonoscopy and he was saying the one good thing about those tests is that the false positives get people to schedule colonoscopies they otherwise wouldn't have scheduled which allows them to catch things in the early stages. I'm hoping you only have a false positive case and everything is ok.
|
|
|
Post by Lexica on Dec 14, 2023 14:51:49 GMT
I have had Kaiser for many years and get the colon test in the mail regularly. My previous doctor mentioned that they can give a false positive and told me not to panic if it does come back that way, especially if all previous tests were fine. None of mine have shown anything suspicious so far, but I will do my best not to panic if it ever does. As others have mentioned, if it is cancer it will be early stages and dealt with promptly and successfully. Your husband had the test last year show nothing, right?
I really do appreciate the aggressive preventative approach that Kaiser takes and although it is an annoyance sometimes, I show up for all of the testing they recommend and take every pill they add to my pile. And be prepared, it sure increases as you get older, so tell your husband there is a lot more coming at him as he nears 65.
In addition to regular mammograms and PAP smears, I recently had the bone scan which added a pill to my routine as well as learned I was prediabetic, another pill, slightly higher blood pressure, another pill, and at my last appointment she started me on a pill to prevent heart attacks. This also added a blood pressure cuff and a blood sugar testing gadget to my arsenal to self monitor.
My bloodwork recently showed the need for a Vitamin D with calcium pill and a thyroid pill. Oh, and I get the regular flu and Covid injections too as well as had an injection to prevent pneumonia recently added to the injection list. I also have allergies and asthma, two more pills. And of course, there is the pill I take for my fibromyalgia and two more pills for the chronic severe pain I was left in after what they term a “failed” spinal surgery. And those pain pills necessitated a pill for constipation. 👍
No disease is going to want to mess with me through all these preventative measures.
I get my blood work done twice a year to monitor everything going on within my body. I am currently overdue for an eye scan and just got a text yesterday telling me that my blood work is already due again. It feels like I am being monitored for something monthly these days. I know Kaiser’s preventative approach is financially based, you know, to catch everything early before expensive procedures are required, but if gives me peace of mind to know they are watching out for anything that could develop as I get older. My dad always said getting old sucks. I just didn’t realize it came with a bucket o’ meds, a drawer filled with equipment, and a long list of monitoring medical tests.
Please let us know how your husband is doing after he gets the colonoscopy done.
|
|
|
Post by chrissyc72 on Dec 14, 2023 14:56:27 GMT
That’s exactly why I don’t do home tests. Just do the colonoscopy. That is the best thing you can do for yourself!!!! Good luck!!!
|
|
|
Post by Merge on Dec 14, 2023 14:59:11 GMT
That’s exactly why I don’t do home tests. Just do the colonoscopy. That is the best thing you can do for yourself!!!! Good luck!!! Same. This is timely as I’m doing my clear liquid diet and colonoscopy prep today. I’m sure I won’t enjoy it but grandpa died of colon cancer so it’s a necessity.
|
|
caangel
Drama Llama
Posts: 5,730
Location: So Cal
Jun 26, 2014 16:42:12 GMT
|
Post by caangel on Dec 14, 2023 15:28:30 GMT
That’s exactly why I don’t do home tests. Just do the colonoscopy. That is the best thing you can do for yourself!!!! Good luck!!! Same. This is timely as I’m doing my clear liquid diet and colonoscopy prep today. I’m sure I won’t enjoy it but grandpa died of colon cancer so it’s a necessity. I have my first scheduled in February. Any recommendations?
|
|
bethany102399
Pearl Clutcher
Posts: 3,661
Oct 11, 2014 3:17:29 GMT
|
Post by bethany102399 on Dec 14, 2023 15:53:33 GMT
I have my first scheduled in February. Any recommendations? I used the white gatorade, as the prep they had me drink was an over the counter laxative. MUCH nicer than gallons of water. DH is a repeat offender, so he gets the prescription stuff and drinks it with water. OP, I want to reassure you that even if they do find something the treatment is often removal of the polyp and that's that. DH went in for one at 48 and they found a cancerous polyp, scared the crap out of us. They removed it, went back in 3 months later and were able to get clean margins and we were sent on our way. No further treatment necessary. So even if and it's a big if, they find something the fact that you've had previous negative tests means it hasn't had time to turn into something beyond early stages and it's very treatable. That said, it sounds like there's a high change it's a false positive which means the worst part is the prep, and honestly it's not bad just disruptive to your schedule. The procedure day is a nice nap and real food.
|
|
GiantsFan
Prolific Pea
Posts: 8,502
Site Supporter
Jun 27, 2014 14:44:56 GMT
|
Post by GiantsFan on Dec 14, 2023 16:10:29 GMT
Same. This is timely as I’m doing my clear liquid diet and colonoscopy prep today. I’m sure I won’t enjoy it but grandpa died of colon cancer so it’s a necessity. I have my first scheduled in February. Any recommendations? I chill the prep so it's cold. I have lemons cut into wedges, maybe six or eight wedges per lemon. Bite into a lemon, don't eat the pulp, just bite into the wedge, then quickly drink the prep through a straw then bite into another wedge. Make your appointment late-morning, so you don't have to get up at 2 am and start drinking prep. My first one, I made the appointment to be there at six a.m. to get it over and done. Mistake!
|
|
|
Post by monicad on Dec 14, 2023 16:11:58 GMT
Thank you all for the reassurance. I feel much better today and am glad he was able to get in soon. We did our tests around the same time last year (mine was November and I think he sent his in just after) so hopefully this is something they caught early.
I agree with some of you that I think just getting the big test is better; I’d rather have the peace of mind knowing everything is clear. I will say Kaiser doesn’t mess around with these tests and I’ve been able to get mammograms as often as I want, so that’s one positive about them.
|
|
MDscrapaholic
Drama Llama
Posts: 6,632
Location: Down by the bay....
Jun 25, 2014 20:49:07 GMT
|
Post by MDscrapaholic on Dec 14, 2023 17:30:41 GMT
I just got notice that my Cologuard test came back positive, and was told to schedule a colonoscopy. My last one was 10 years ago and was fine. My doctor said the same thing - the positive result means blood in the stool or DNA changes. I read online that if you take aspirin it can cause a positive result. I wish someone had told me to stop taking the baby aspirin I take every day before doing the test.
|
|
|
Post by monicad on Dec 14, 2023 17:39:48 GMT
I just got notice that my Cologuard test came back positive, and was told to schedule a colonoscopy. My last one was 10 years ago and was fine. My doctor said the same thing - the positive result means blood in the stool or DNA changes. I read online that if you take aspirin it can cause a positive result. I wish someone had told me to stop taking the baby aspirin I take every day before doing the test. Thinking of you [mention]mdscrapaholic [/mention] …I hope your test comes back clear. It’s good to know about any changes, but this does a number on your nerves for sure.
|
|