teddyw
Drama Llama
Posts: 7,159 
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Post by teddyw on Oct 21, 2024 21:33:48 GMT
bc2ca and lucyg I did not realize that chemo even messed with tastebuds. Geez, as if you need that one more thing to go with the poison. When my dad was going through chemo, he lost pretty much all sense of taste. We went out for Chinese and he covered it with Sriracha. I didn't know at that point how bad it had gotten. I asked if he wanted some food with that sauce. He said he couldn't taste the food but could get a bit of tingle and taste of the Sriracha. I still think about this and him when I use Sriracha. I feel Mondays are not a good day for me to post. I don't have dinner on Mondays. However, I might tonight. I roasted some sweet potatoes yesterday and made some roasted chickpeas. So I may make a concoction of those 2 things with some sort of sauce. Or just be too tired to do anything when I get home and just call it a day. scrapmaven danggit!! Hope you get to feeling better soon. sueg that does sound very frustrating. Dinner sounds great! jeremysgirl I would like to see the official diagnosis. Man, she is a piece of work. Knowing 2 people with lupus, it's more than just headaches and fatigue. But again, I'm not a doctor nor did I sleep at Holiday Inn last night. Stir fry sounds good. cadoodlebug, my DH will be over shortly. I do think those are 2 of his favorite dinners. And the meme!! Being from the south I say, PUH-kahn. My DD, also the quintessential southern girl says PEA-can. I tell her she is all sorts of wrong yet she continues... lucyg, I made a roast on Saturday for sliders. We had it as actual roast last night. It was good. hutchfan yum! teddyw I love a veggie burrito out but I never make them at home. All the veggie sauteing, wears me out. Tearisci I hope you can get the coughing under control. Sometimes that is the worst symptom. taylortroop do you just do the meatballs or is there any kind of sauce? I wish I could do meatballs more often. My DH just doesn't care for them. Can I just say I understand people need help but when you call the office of a church asking for help and it is something we don't do or you don't like the answer, don't call me evil (I've been called worse) or talk about me as you hang up. That really makes me giggle. Save any veggies you use this week and add them to some of the TJs spicy Mexican-style riced cauliflower.anlso if I have TJs fire roasted peppers & onions I add those too. Add a can of black beans, can or some frozen corn and a can of green chilis. The only thing I sautéed was mushrooms. I also have avocado, tomatoes, lettuce, jalapeno and radishes to add that won’t be cooked. Super easy. |
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Post by taylortroop on Oct 21, 2024 21:37:58 GMT
naby64: The meatballs I prepared tonight were already packaged with a barbeque sauce and it was quite good. Typically I make them in a crockpot with some sort of sauce. I used to be able to buy specific meatball sauce to use but I can’t find it anymore.
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Post by cadoodlebug on Oct 21, 2024 23:28:39 GMT
So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. I care and will miss you if you leave. I also miss leannec's and Delta Dawn's posts. |
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Post by lucyg on Oct 21, 2024 23:33:16 GMT
There are all kinds of possible side effects from chemo and they vary from drug to drug. My sense of taste issues are leftover from last year’s chemo. So is the neuropathy in my fingers and feet. No idea if these will ever go away, but I’m used to living with them now and barely notice. This year my main side effect is skin growths (because it’s always skin issues with me!). So I have a bunch of new freckles and small moles and warts.  This chemo drug can also cause melanoma, so I have to see the dermatologist every two months. She freezes off the warts for me, and I don’t mind the freckles … they’re kind of cute.  So it’s not so bad. bc2ca , that’s funny about the excess saltiness. I basically can’t taste anything (besides sugar) at this point. I mean, I can taste things. But not strongly. I’ve stopped adding salt to my food, because it doesn’t make any difference. |
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Post by lucyg on Oct 21, 2024 23:35:52 GMT
So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. I care and will miss you if you leave. I also miss leannec 's and Delta Dawn 's posts. I agree with all of this. |
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Post by scrapmaven on Oct 22, 2024 0:23:16 GMT
PolarGreen12 , though I'm sure that Wed. can't come soon enough, just remind yourself that the doctors think it's benign. Distract yourself w/your favorite movies/stuff in the meantime. Frankly, your return just made my weekend. The next part is devoted to everyone: christine58 , I'm sorry to see you leave the thread. Please think twice. There really isn't a hierarchy on this thread. If there was I would be queen mucky muck and I am not in that role. I'm a woman who has time to post the thread in the mornings and I care about everyone, equally. So, I post the thread. Though I can't do it 7 days per week, but will do so temporarily. Hopefully, Leanne and Elannah will return to the thread. Do not think that you are amongst the thread peasants, because you are important. I never wanted to be the popular girl and I don't want that now. Not one of you is more important than any other. Frankly, some of our tribe members have had some pretty significant issues and I will focus on them, because I want to send energy and support their way. That doesn't mean that I'm not thinking about the rest of you, as well. The way I see it, this is just a thread on an anonymous message board. A group of us found some common ground and we share our daily lives. This thread is what you make of it. It seems to me that we take turns focusing on one another. All of us struggle or celebrate or just live our lives and you can choose to post about it or not. I'm very open about my illness in order to help others who are also ill. I'm an example of living a good life despite having crap thrown at me. As for the coworker, she has had so many health excuses in order to not do her job that it's very hard to take her seriously. Ordinarily, I would never be sarcastic or suspicious about someone's illness, but in this case I have serious doubts. There's not one ounce of me that believes her stories. If she was a poster on this thread I would obviously not be vocal about my thoughts. In this case, I'm supporting and validating a friend who has to work w/her. We all have people on the board that we like or dislike. That's normal life. I taught my kids years ago that you might not like everyone and not everyone will like you, but you have to be civil. On those occasions when I haven't been civil I did try to apologize, sincerely. It's perfectly acceptable not to "like" a post if you don't like the post or poster. christine58 , what I see when I read your posts is a woman who was a very compassionate sped teacher and has a very close, loving family. You've suffered very tragic losses. You give w/all of your heart and you truly care about people. If you weren't important I wouldn't know any of this, because I would just scroll by. When someone says they're leaving the thread because of hurt feelings I give them that grace to take care of themselves and I don't call them back. However, I do encourage them to think twice before leaving. I'm not the thread mom and I stay out of arguments btwn 2 people. FWIW, I do care that you are leaving. It sucks and I'm sad, but I hope that you'll be happy wherever you are, because you deserve happiness. In otherwards, Do what you feel is best for yourselves.
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Post by scrapmaven on Oct 22, 2024 0:30:39 GMT
lucyg, whomever decided that chemo should cause melanoma or other cancers needs to be fired! I know that chemo and radiation can cause other cancers and that is just cruel. You deserve to eat whatever you want to eat and enjoy every bite. My mom was able to eat chocolate, though she lost her appetite w/chemo. Oddly enough, it didn't taste bitter or metallic as it often does for chemo patients. We were able to get her to drink Boost chocolate for the nutrients.
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kokomo37
Full Member
Posts: 168
Apr 17, 2022 21:03:36 GMT
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Post by kokomo37 on Oct 22, 2024 0:46:42 GMT
What if your coworker truly has lupus? It’s a horrible disease and very difficult to diagnose. A very good friend of mine was just diagnosed with lupus and it hasn’t been a fun journey for her. So with all of you questioning her diagnosis and poking fun at someone that we don’t even know bothers me immensely. I think we have to keep in mind that when anyone of us post something here we’re getting one side of the story. This woman has some mental health issues going on, we don’t know. We only know what’s been told to us. This thread is no longer fun for me. Contrary to what a lot of people think there is a hierarchy here. There are certain people that are treated with kid gloves, and others who are not. Case in point Leanne. what she said about Elannah came from a place of concern and it wasn’t even a nasty post. Many people liked her post and I even posted that I agreed with her. But then jeremysgirl was not very kind to her in her response. Once again no one came to defend someone who disagreed with Jeremy’s girl. I’ve seen it a lot and I’m done. I won’t be posting here anymore. So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. |
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pantsonfire
Drama Llama
Take a step back, evaluate what is important, and enjoy your life with those who you love.
Posts: 6,264
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Post by pantsonfire on Oct 22, 2024 0:47:07 GMT
christine58 I hate to see you go. And I will say this, it's quite possible my coworker does have lupus. And that's why this morning when she announced it, not only did say I was sorry to hear that but I shared with her that my good friend also has it and has found it to be very treatable. But my coworker has had COVID, the flu twice, pneumonia, bleeding from her brain surgery site a year and a half later, an ear infection, two sinus infections and food poisoning in the last 9 months. That is not even noting how many headaches she has had in the past year. I think you need to understand though that there are people who truly get sick a lot. I missed almost half of my 6th grade year because I was sick all the time. My IgG was very low but I didn't qualify for treatment at the time. Things have changed and the standard of need has changed. I would qualify now. But my Congenital Heart Defect caused me to not be qualified back in the 80s. I had pneumonia 4 times that year. I missed 2 months of school and had to go back the last month still sick. I spent that entire summer sick. And I am fully aware of late life diagnosis. I am almost 50 and 1.5 years ago was finally diagnosed with my AI conditions. And it only happened because of dd. If she hasn't been diagnosed I am 100% sure I would still be looking for answers. It is very hard to find the right Dr and get your PCP to not question you and your mental health by seeking testing. And having a family member with Lupus, I saw first hand how many years it took to get diagnosed. Labs were off but never concrete. Then after several years, it was right there. So many of us who deal with health issues have enough crap given to us by medical professionals especially being a woman. We get a lot of oh its in your head. Oh just lose weight. Oh just get out and walk. I was told over and over for years "oh your a girl who played sports. What do you expect to have happened to your knees??" Like wtf. I am crying in pain not able to walk and a Dr said that. I was 16. That stuck with me. It sucks to see comments like yours. It also makes me a scratch my head for someone to keep track of each illness and have a running list. I get she has been a lot to deal with because of her lack of work. But she is still a person who has a lot on her plate and has opened up to let you know what is going on. I am sure it is a huge relief to know it's not in her head. Then to come back and use that against her here isn't kind. I am also fully aware of what Chris said. Experienced it myself. I have seen it with others too. I guess my point is, you should never question a person's illness. We get that enough from others. A lot. CPS was called on me. Enough said about what people think. It sucks and it's hard and it's lonely and it's debilitating enough to have conditions. When people question...it's very hurtful. |
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kokomo37
Full Member
Posts: 168
Apr 17, 2022 21:03:36 GMT
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Post by kokomo37 on Oct 22, 2024 0:50:34 GMT
What if your coworker truly has lupus? It’s a horrible disease and very difficult to diagnose. A very good friend of mine was just diagnosed with lupus and it hasn’t been a fun journey for her. So with all of you questioning her diagnosis and poking fun at someone that we don’t even know bothers me immensely. I think we have to keep in mind that when anyone of us post something here we’re getting one side of the story. This woman has some mental health issues going on, we don’t know. We only know what’s been told to us. This thread is no longer fun for me. Contrary to what a lot of people think there is a hierarchy here. There are certain people that are treated with kid gloves, and others who are not. Case in point Leanne. what she said about Elannah came from a place of concern and it wasn’t even a nasty post. Many people liked her post and I even posted that I agreed with her. But then jeremysgirl was not very kind to her in her response. Once again no one came to defend someone who disagreed with Jeremy’s girl. I’ve seen it a lot and I’m done. I won’t be posting here anymore. So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. |
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kokomo37
Full Member
Posts: 168
Apr 17, 2022 21:03:36 GMT
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Post by kokomo37 on Oct 22, 2024 0:51:56 GMT
What if your coworker truly has lupus? It’s a horrible disease and very difficult to diagnose. A very good friend of mine was just diagnosed with lupus and it hasn’t been a fun journey for her. So with all of you questioning her diagnosis and poking fun at someone that we don’t even know bothers me immensely. I think we have to keep in mind that when anyone of us post something here we’re getting one side of the story. This woman has some mental health issues going on, we don’t know. We only know what’s been told to us. This thread is no longer fun for me. Contrary to what a lot of people think there is a hierarchy here. There are certain people that are treated with kid gloves, and others who are not. Case in point Leanne. what she said about Elannah came from a place of concern and it wasn’t even a nasty post. Many people liked her post and I even posted that I agreed with her. But then jeremysgirl was not very kind to her in her response. Once again no one came to defend someone who disagreed with Jeremy’s girl. I’ve seen it a lot and I’m done. I won’t be posting here anymore. So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. |
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Post by jeremysgirl on Oct 22, 2024 1:00:09 GMT
christine58 I hate to see you go. And I will say this, it's quite possible my coworker does have lupus. And that's why this morning when she announced it, not only did say I was sorry to hear that but I shared with her that my good friend also has it and has found it to be very treatable. But my coworker has had COVID, the flu twice, pneumonia, bleeding from her brain surgery site a year and a half later, an ear infection, two sinus infections and food poisoning in the last 9 months. That is not even noting how many headaches she has had in the past year. I think you need to understand though that there are people who truly get sick a lot. I missed almost half of my 6th grade year because I was sick all the time. My IgG was very low but I didn't qualify for treatment at the time. Things have changed and the standard of need has changed. I would qualify now. But my Congenital Heart Defect caused me to not be qualified back in the 80s. I had pneumonia 4 times that year. I missed 2 months of school and had to go back the last month still sick. I spent that entire summer sick. And I am fully aware of late life diagnosis. I am almost 50 and 1.5 years ago was finally diagnosed with my AI conditions. And it only happened because of dd. If she hasn't been diagnosed I am 100% sure I would still be looking for answers. It is very hard to find the right Dr and get your PCP to not question you and your mental health by seeking testing. And having a family member with Lupus, I saw first hand how many years it took to get diagnosed. Labs were off but never concrete. Then after several years, it was right there. So many of us who deal with health issues have enough crap given to us by medical professionals especially being a woman. We get a lot of oh its in your head. Oh just lose weight. Oh just get out and walk. I was told over and over for years "oh your a girl who played sports. What do you expect to have happened to your knees??" Like wtf. I am crying in pain not able to walk and a Dr said that. I was 16. That stuck with me. It sucks to see comments like yours. It also makes me a scratch my head for someone to keep track of each illness and have a running list. I get she has been a lot to deal with because of her lack of work. But she is still a person who has a lot on her plate and has opened up to let you know what is going on. I am sure it is a huge relief to know it's not in her head. Then to come back and use that against her here isn't kind. I am also fully aware of what Chris said. Experienced it myself. I have seen it with others too. I guess my point is, you should never question a person's illness. We get that enough from others. A lot. CPS was called on me. Enough said about what people think. It sucks and it's hard and it's lonely and it's debilitating enough to have conditions. When people question...it's very hurtful. Understood. Thank you for sharing your perspective. I value it. It made me pause. I do not think I am the type who would normally question such things, I'm just in a real craptastic place right now at work. Yes, it's impacting my attitude. In a negative way. I'll think twice about this though going forward. I really do not wish anyone any harm. |
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kokomo37
Full Member
Posts: 168
Apr 17, 2022 21:03:36 GMT
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Post by kokomo37 on Oct 22, 2024 1:12:04 GMT
Ok guys, I have no idea how quote Christine’s thread, nor do I know how to remove it . Sorry, just scroll past please
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Post by scrapmaven on Oct 22, 2024 2:10:50 GMT
I will apologize, too. I used to get the "It's all in your head" diagnosis, too. It's frustrating beyond belief. So, I was bold when I stepped up w/my suspicions about the coworker. Yes, she might very well have Lupus and if so, I hope that she finally gets the medical and psychological support that she needs. It doesn't give her a right to treat jeremysgirl so poorly and it doesn't give coworker the right to be so bad at the job. If she's in over her head then she needs to take responsible action. It's possible that coworker needs to leave her job and file for permanent LTD. Either way, I'm supporting my friend, jeremysgirl and voicing my suspicions in front of people who are not in anyway connected to coworker. My opinions come from 2 places, my former HR background and my loyalty to jeremysgirl, whom I believe 200%. |
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Post by bc2ca on Oct 22, 2024 2:13:22 GMT
Are people getting reported on the board for f**k bombs?!!? I’ll have to watch my typing. 😂😂 Not that I'm aware of, I just want you all to think of me as a proper lady.  I think we have to keep in mind that when anyone of us post something here we’re getting one side of the story. This woman has some mental health issues going on, we don’t know. We only know what’s been told to us. While this is 100% true, I actually think jeremysgirl gave this coworker an incredible amount of grace before going to her boss and then boss's and HR looking for help. And I'm stunned that effectively nothing has been done for months (years?) to deal with the lack of responsibility to the job. bc2ca , that’s funny about the excess saltiness. I basically can’t taste anything (besides sugar) at this point. I mean, I can taste things. But not strongly. I’ve stopped adding salt to my food, because it doesn’t make any difference. Thankfully my sweet tooth is working very well and I was a little scared to get my A1C done in Sept. Super thankful to be well within normal ranges and I can continue to enjoy more sweet stuff. This thread is what you make of it. 100% agree with this. I don't think there is a hierarchy and I appreciate the team of thread starters that get us going every morning. IME, the more you interact with people, the more you feel you know them but, as discussed before, all of us have different times of day and methods of posting that can limit some of the interaction. whomever decided that chemo should cause melanoma or other cancers needs to be fired! I love all the info packs that include "your medical team has determined the benefits of this drug outweigh the possible side effects".  I think you need to understand though that there are people who truly get sick a lot. I understand how this is a big trigger for you, but in fairness to jeremysgirl , tracking this coworkers illnesses has been important in documenting her inability to do her job and the pressure to cover for her. It has come across as a never ending new illness situation when it looks like she might get called on it. This could be totally unfair, but at some point management needs to do something. Not fire her, but deal with the options available (short term leave, job restructure, etc.) so that other employees are not unfairly impacted. |
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Post by scrapmaven on Oct 22, 2024 2:19:15 GMT
Are people getting reported on the board for f**k bombs?!!? I’ll have to watch my typing. 😂😂 Not that I'm aware of, I just want you all to think of me as a proper lady. When in doubt pinkies out! |
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teddyw
Drama Llama
Posts: 7,159
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Post by teddyw on Oct 22, 2024 3:07:51 GMT
There’s a female hand surgeon who has started a company called
Feelbetr.health
She’s interested in hearing stories of people misdiagnosed, fighting to get diagnosed, not believed, gaslighted….
She’s trying to get physicians to believe people who are struggling and suffering.
Autoimmune diseases especially.
Her name is Dr.Erin Nance. On TikTok she goes by littlemisdiagnosed.
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Post by karenlou on Oct 22, 2024 12:03:56 GMT
karenlou , Were you awake all night waiting for the phone to ring? Does this resident have communication issues that annoy everyone else? So I have the night duties to do, checking code carts and room temps/humidity in both the Main OR's and the Day surgery side...However there is a fair amount of down time when the previous shifts haven't been busy. So I am at the desk, waiting for the phone to ring or the Trauma pager to go off. I am ready for anything, Bring me your gunshots, stabbings, or perforated bowels!!!! Of course I respond to you after my call night, and I was called in for a lesser emergency...😱 |
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Tearisci
Pearl Clutcher
Posts: 3,248
Member is Online
Nov 6, 2018 16:34:30 GMT
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Post by Tearisci on Oct 22, 2024 13:18:54 GMT
So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. I care and will miss you if you leave. I also miss leannec 's and Delta Dawn 's posts. I'm fairly new to the group but would be sad to see you go - same with leannec and @deltadawn |
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hannahruth
Pearl Clutcher
Posts: 2,715
Location: Adelaide, Australia
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Post by hannahruth on Oct 22, 2024 14:51:50 GMT
So I hope everyone stays well and I will be in touch with a couple of you but at this point, I am no longer going to participate here not that like I said anybody cares. this is an open board which to me means that any one can participate, share their views and nobody has to agree with them. It is a little community that has, in the main, similar views. I find it a little sad that because the opinion shared, was not supported by you and others, means that it must be wrong. sorry you have the need to leave the board but wish you well. |
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This chemo drug can also cause melanoma, so I have to see the dermatologist every two months. She freezes off the warts for me, and I don’t mind the freckles … they’re kind of cute. 
