mystydog
Junior Member
Posts: 99
Location: Ramsgate, UK
Jul 3, 2014 7:28:10 GMT
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Post by mystydog on Nov 2, 2024 20:11:57 GMT
My grandson is 16 months old, and I suspect he may have autism. I don't know if I should say something to my son and daughter-in-law.
The reasons I suspect this is: He does not say any words, not no, or Muma or Dada. He used to babble when he was younger, but that seems to have stopped. He does not seem to react much if he gets hurt, everyone has always said how tough he is. He can bang himself hard on something and he just walks away. He does not respond to his name at all. I called him at least 30 times the other day and there was no reaction at all, but he can definitely hear. He is fascinated with lights, buttons and switches things on and off for ages.
He used to wave goodbye and clap hands when he was younger, but does not do either now. He will sit in his mums lap and just twirl her hair around and around his fingers. He has no problem at all with strangers. A new person could pick him up and he would be fine. If certain things come on the TV, he will get totally immersed in them and tune out everything else. Toy Story came on the other day and he watched it from start to finish. This seems such a long time for a 16 month old. If he gets very excited he just screams with pleasure. He is quite fussy with food, he will not eat anything that needs to be chewed, such as meat. If he eats something like bread or a french fry, he seems to suck them until they turn to mush, rather than chew them. He does not seem to recognise danger.
He does not react to, "No". On holiday he would continually run straight for the pool, someone would have to physically pick him up each time, as saying, "No", did not have any effect.
He has progressed well in other ways. He is very interested in things and very quick to figure out how they work. He seems very intelligent.
He crawled at an appropriate age and walked just before one year. He cuddles people, and will go to anyone. He points at things, but not often. He does look at peoples faces, but not if you call him, or try to get him to look, only if he feels like he wants to. He is a beautiful little boy and very cherished and loved. Am I just imagining things? Should I leave it or say something? My partner thinks it will cause problems in our relationships if I say something.
I don't want to upset anyone, his parents think he is absolutely perfect and the brightest baby in the world. (Which he is!). If I don't say anything, will it affect his progress if he is Autistic, and it is not noticed for a while?
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Post by Merge on Nov 2, 2024 20:27:14 GMT
I assume he is having regular well baby checks with a pediatrician? If so, they are likely asking mom about milestones and will catch anything that seems like a red flag.
I don't think I'd say anything, TBH, unless you are concerned that they are not having well baby checks.
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mystydog
Junior Member
Posts: 99
Location: Ramsgate, UK
Jul 3, 2014 7:28:10 GMT
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Post by mystydog on Nov 2, 2024 20:29:25 GMT
Thank you.
He is having his regular checks and nothing has been mentioned.
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scrappinmama
Drama Llama
Posts: 5,121
Jun 26, 2014 12:54:09 GMT
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Post by scrappinmama on Nov 2, 2024 20:29:25 GMT
Mom of 2 autistic sons here. They may suspect it already and just haven't shared their suspicions. Does he make any babbling at all? All the things you describe aren't necessarily autistic traits. But if he isn't even babbling, that is concerning. At a minimum I would mention that. Babies tend to say their first word between 1 year to 18 months so he is in the age where he should at least be babbling. Don't say autism. In my opinion, there isn't enough evidence for that.
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Post by padresfan619 on Nov 2, 2024 20:35:16 GMT
We didn’t start on the process of speech therapy and potential autism screening until my son was 18 months old in 2022. It takes a long time. I would gently mention your local early intervention center and leave it at that.
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mystydog
Junior Member
Posts: 99
Location: Ramsgate, UK
Jul 3, 2014 7:28:10 GMT
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Post by mystydog on Nov 2, 2024 20:36:29 GMT
Thank you.
He used to babble, but now the only sounds he makes are screams when he gets excited. He does laugh too.
I think I might be over-thinking things and looking too deeply into things.
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wellway
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Jun 25, 2014 20:50:09 GMT
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Post by wellway on Nov 2, 2024 20:57:07 GMT
I won't say anything just yet but it might be useful for you to do some reading on the nhs site and other sites that it suggests. Knowledge is power as they say. www.nhs.uk/conditions/autism/Does he go to a toddler group? If so, mum might start to spot differences that she wants to follow up on.
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caangel
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Posts: 5,732
Location: So Cal
Jun 26, 2014 16:42:12 GMT
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Post by caangel on Nov 2, 2024 21:00:13 GMT
If/when you decided to say something I'd shared what you noticed not what you think it means.
That being said... My son is my first born. Although I was a teacher I was not aware enough of the timing of all the milestones and what was typical for toddlers. If I had been I would not have waited until preschool to get him tested for speech services. It all ended up ok, although we still think there's a small processing struggle but he has managed it ok and doesn't want to pursue things further at this time (he's 17).
But since you don't know how they will take it I would be very cautious especially since it may impact your relationship with them.
My SIL's niece was recently diagnosed with AuADHD and her dad still does not want to get her treatment as he thinks it is just something she will grow out of 😵💫. Mom is totally on board and pushed for testing to begin with. SIL knew there was a unique situation going on but waited until her sister came to her with questions/observations.
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Post by librarylady on Nov 2, 2024 21:23:51 GMT
Has his hearing been checked? His hearing may have been damaged and that is why his speech is delayed.
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Post by ntsf on Nov 2, 2024 21:34:14 GMT
in the usa, there is something.. either through the school district or county called child find. I would wait a few months, then express a little concern to the parents. child find will test kids with suspected disabilities for free and offer services .. the sooner for kids like this the better.
I think the tone you take is important, and just keep it casual, like, just wondering if you noticed these things.. have you mentioned it to kid's doctor. etc.
my own kid was dx at 8. in the dark ages. no services through school cause they didn't know what to do with a brilliant kid with autism.
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Post by aj2hall on Nov 2, 2024 21:56:35 GMT
I would mention concerns about his speech and language. That’s an easier conversation. And chances are, if he gets evaluated, it will be an extensive evaluation that also picks up the things that you mentioned. My oldest was 2 1/2 when we had him evaluated for speech. His speech and hearing were both fine, but there were other developmental delays and red flags. He was diagnosed with Asperger’s when he was 3 1/2. He’s doing really well now, I think in part because of amazing teachers and early intervention. If you have concerns, I wouldn’t wait to talk to your family. But, I would start by mentioning concerns about speech and language, then see what happens.
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Post by librarylady on Nov 2, 2024 22:02:20 GMT
Proceed with caution. Preschool Granddaughter showed speech problem. I very, very carefully suggested an evaluation. Parents were angry. I said no more about it. When she entered kindergarten, school evaluation sent her to speech therapy. Nothing was ever said regarding my suggestion but she got what she needed . I can only guess that they realized that I might have known something after all.
I am the step grandmother and I think that played a role in why my suggestion was rejected.
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Post by malibou on Nov 2, 2024 22:20:21 GMT
Many of the things on your list are my son to a T. I sought services at 18 months when there were no verbal milestones being met. Mine was a county program and was fantastic. They put him in speech therapy straight away and checked for any mouth anomalies, there were none. And a hearing test, also so problem. He was a very happy baby, smiled a lot, would go to anyone, but he did not laugh out loud or do any real vocalizations. The speech therapists worked with him weekly hoping they were correcting any common vocalizations without knowing if he had issues. They finally decided that his needs were few and they were being fully met. He did add a few more words, but didn't put 2 words together. Finally around 3.75, he finally started talking, and it came out in sentences. He is on the spectrum, but no one really notices. He finished college in May, and has taken a job in Chicago and is loving it. Absolutely thriving.
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Post by AussieMeg on Nov 2, 2024 23:12:29 GMT
If it were my grandchild, I would definitely say something to my son or daughter. Early intervention is so important! I wouldn't blurt out "I think your child might have autism!" Like others have said, I would just make an observation about the lack of speech, and ask whether the maternal health nurse had said anything about it at the regular check ups.
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kate
Drama Llama
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Location: The city that doesn't sleep
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Jun 26, 2014 3:30:05 GMT
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Post by kate on Nov 2, 2024 23:19:26 GMT
I agree that mentioning an evaluation for speech might be more palatable - and appropriate, since that's the biggest thing you're noticing.
Early intervention can do wonders. DS has a pal who similarly lost skills/words in young toddlerhood. He had intervention. He is not without struggles, like any young person, but he did well enough to get into Harvard.
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Post by VanC on Nov 2, 2024 23:45:55 GMT
After my husband passed away I started helping a neighbour with MS care for her baby. Her MS was affecting her hands and arms and she couldn't hold or pick up and dress her own child. He was a very sweet little boy but he was older than two of my own nephews and they were walking talking feeding themselves and all the other things you expect a little toddler to do. Ben wasn't even close. I noticed that whenever too much was going on he'd zone out til something would startle him out of it but that led to him screaming for what seemed like hours. Then my nephew got RSV and suffered from Apraxia and lost a lot of his milestones. He had been talking plainly and correctly said about 200 words but after the RSV he was babbling all over again. POor guy he would get so mad when we didn't understand, it was like the scene from Mr Holland's Opus. My sister got Seth evaluated and they ended up with sign language and speech therapy and all sorts of help. Ben was still behind the younger boys so I got busy and looked up the services here in Utah that my sister was using in Washington. Then I sat his folks down and told them about my worries. Nothing really happened so I called his Grandma. Things moved pretty fast after that. [/font] [/font]
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kelly8875
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Posts: 4,441
Location: Lost in my supplies...
Oct 26, 2014 17:02:56 GMT
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Post by kelly8875 on Nov 3, 2024 0:03:32 GMT
Mention it. I would have gladly taken the advice when my kids were babies. Just take caution and preface by saying you are only trying to help, and want the best for him. You know your family and how you should probably approach it.
I think if you don’t mention it, you’ll always wish you did. What if it helps?
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Post by melanell on Nov 3, 2024 0:28:35 GMT
That's a tough situation to comment on since I don't know the parents at all, and so I have no idea how they may respond to you noting any concerns.
If I were to bring up anything at all, I think I would start with just asking if they still hear the child babbling, because you haven't heard it in awhile. Or maybe ask them how they get him to answer his name, because you can't get him to do so. Something like that.
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mystydog
Junior Member
Posts: 99
Location: Ramsgate, UK
Jul 3, 2014 7:28:10 GMT
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Post by mystydog on Nov 3, 2024 13:39:45 GMT
Thank you everyone for your advice. It has helped me just by sharing.
I live in the UK, but I'm sure the baby checks are very similar.
I'm not going to mention anything ATM, as my Daughter-in-Law can be a little prickly if she thinks anyone is trying to interfere. She had a falling out with someone else, due to this. She is a fantastic Mum and I can completely understand that she wants to bring her son up in her own way.
I will keep an eye on him for the next few months and just see what happens.
I see them all regularly, so I'm pretty sure my son will ask for advice if he does get worried about anything.
Again, thank you for taking the time to give me your thoughts and advice.
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Post by disneypal on Nov 3, 2024 14:00:53 GMT
That’s a tough call, and I probably would say something
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Post by littlemama on Nov 3, 2024 14:09:32 GMT
I wouldnt say anything. Their pediatrician should be checking on all milestones
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Post by mollycoddle on Nov 3, 2024 14:12:16 GMT
Speech Pathologist here. Like others have said, I would not use the word autism, because he might be one of those kids who is a late talker. I would very carefully mention the lack of speech. And again, some kids just start talking late. My oldest nephew was one of them.
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Post by mikklynn on Nov 3, 2024 14:41:04 GMT
I assume he is having regular well baby checks with a pediatrician? If so, they are likely asking mom about milestones and will catch anything that seems like a red flag. I don't think I'd say anything, TBH, unless you are concerned that they are not having well baby checks. I would have thought this, too. But, my grandson's pediatrician was not concerned at his 2 year check up that grandson did not speak a single word. There is no way a normal developing 2 year old can't say mama, dada, bye bye. I had my DIL reach out to her school district for early childhood education for an assessment. He had a serious speech delay that required intervention. You laid out great examples for why you are concerned. I'd sit down with my son only and talk about it.
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Post by ScrapbookMyLife on Nov 3, 2024 15:27:58 GMT
I would not say anything, because it could be perceived as criticism and-or an insult to their parenting skills......it could be held against you, meaning limited or no future visits with grandchildren.
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SweetieBsMom
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Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on Nov 3, 2024 15:58:03 GMT
I assume he is having regular well baby checks with a pediatrician? If so, they are likely asking mom about milestones and will catch anything that seems like a red flag.I don't think I'd say anything, TBH, unless you are concerned that they are not having well baby checks. My son's pediatrician missed it. I will be forever grateful to his 2 preschool teachers that sat me down and brought it to my attention. I would say something, gently. Ask them to bring it up with his pediatrician.
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jimmysgirl
Shy Member
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Jun 15, 2015 4:32:58 GMT
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Post by jimmysgirl on Nov 3, 2024 22:06:01 GMT
I would say something, although I wouldn't start with your suspicion of autism. I would simply say that you have a gut feeling that there are some developmental delays in some areas and if it turns out to be something, early intervention is going to be critical for his future success.
If it turns out that experts see no concerns with those developmental issue, you've lost nothing.
But honestly, I'm going to guess that a lot of this is going to hinge on your relationship with the child's parents and also how you approach it with them.
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peabay
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Posts: 9,940
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Nov 3, 2024 22:54:27 GMT
I know you said his hearing is fine, but my dd#2 had frequent ear infections and when we finally took her to an ENT she had to have tubes put in (about 18 months). Her tube surgery took a little longer than we thought it would because her ears were so full of gunk and the doctor told us everything must have sounded underwater to her.
The ride home from her surgery she babbled the whole way and just made a million different sounds - because it all finally sounded clear.
Could this possibly be an issue for him?
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camcas
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Jun 26, 2014 3:41:19 GMT
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Post by camcas on Nov 4, 2024 3:13:23 GMT
If it were my grandchild, I would definitely say something to my son or daughter. Early intervention is so important! I wouldn't blurt out "I think your child might have autism!" Like others have said, I would just make an observation about the lack of speech, and ask whether the maternal health nurse had said anything about it at the regular check ups. ITA- early intervention is key I would rather they were angry and help/evaluation resulted than I said nothing and delayed intervention that was needed
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Post by lily on Nov 4, 2024 19:22:26 GMT
Wow you described our son perfectly. He is an adult now, but he had all the traits you stated. He is listed under the Autism spectrum and as Developmentally Delayed. Yes I think you should show your son the list and talk to him about it.
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Post by pinkgreen on Nov 4, 2024 21:28:56 GMT
Yes, I would say something. But like others have said, framing it as a concern about speech/language is the way to go.
I taught public school PreK for 15 years and still teach in an elementary school. You would be surprised how many students we get that were not referred to early intervention by the pediatrician. So many of the milestones on the checkup lists are not reported accurately by the parents. I believe this is as much about some parents not realizing what typical development looks like, or not understanding how important it is to be forthcoming. Of course, also there may be denial.
Early intervention is so important, especially because it connects children with services before they begin school. If it is just speech/language, sometimes that can be remediated before the child reaches school age. And if it’s more than that, things will be set in motion for other types of therapy.
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