Post by uksue on Jan 1, 2025 20:18:33 GMT
I've shared before that my daughter was diagnosed with relapsing remitting MS in 2020 at the age of 29. My youngest is on the autism spectrum.
My middle child Matt is 29 and has always been disgustingly healthy. Until this Christmas he hadn't seen a doctor for 15 years. He lifts weights, has gone through boxing training off and on and has an active job.
I've only just found this out, but on Christmas eve he drove into work at 5am, then had difficulty getting out of his car. His legs seemed stiff, they felt numb and he also noted tingling in his fingers. Later he noted some pain in his legs alongside the numbness- he says it's hard to explain.
His colleagues pushed him into going to A/E and he was there 6 hrs but they didn't take it very seriously and in the end he came home without saying anything to me. Christmas day he was subdued- I thought he was just tired as December is extremely busy in his shop.
He drove 100 miles to pick up his son on boxing
day and again seemed subdued during the big meal I cooked, but I had no idea what was going on .
He was supposed to go to work on the 27th but instead took himself back to A/E. His reflexes weren't 'right' as he described it when he eventually told me what was going on. They took blood- he told them about his dad's severe lupus diagnosis and his sisters MS. He said he couldn't feel when they jabbed him with a needle over most of his legs.
He had a lower spine MRI yesterday but is waiting for a Brain/spine MRI with contrast- the earliest they could book him was 22/01.
His symptoms have stayed the same- numbness, pain and stiffness in his legs, tingling in his hands.
I'm worried sick š¢
Dysferlin, muscular dystrophy, MS, lupus, what other things am I missing? Obviously I'm not saying anything to him. He's very off-handed and doesn't want to discuss it, doesn't want sympathy etc but I know him well- he bottles things up terribly. He's mentioned being scared he could have something he's passed on to his son š¢
I feel like I'm falling apart ATM. I'm already exhausted with the three of them moving home, my house needing repairs I can't afford and nme giving up my bedroom so that they could all have a bedroom. I'm just wondering how much more I can take but at the same time, it's not about me- I'm heartbroken that my third child is now also likely looking at a future with disability.
I'd be grateful if anyone has any idea what these symptoms could be. They don't think he has a brain tumour. I know lupus can mimic other diseases, my daughter thinks he may have a different type of MS that young men get more frequently and which can be quickly disabling. I'm so tired I can't remember what she called it.
My middle child Matt is 29 and has always been disgustingly healthy. Until this Christmas he hadn't seen a doctor for 15 years. He lifts weights, has gone through boxing training off and on and has an active job.
I've only just found this out, but on Christmas eve he drove into work at 5am, then had difficulty getting out of his car. His legs seemed stiff, they felt numb and he also noted tingling in his fingers. Later he noted some pain in his legs alongside the numbness- he says it's hard to explain.
His colleagues pushed him into going to A/E and he was there 6 hrs but they didn't take it very seriously and in the end he came home without saying anything to me. Christmas day he was subdued- I thought he was just tired as December is extremely busy in his shop.
He drove 100 miles to pick up his son on boxing
day and again seemed subdued during the big meal I cooked, but I had no idea what was going on .
He was supposed to go to work on the 27th but instead took himself back to A/E. His reflexes weren't 'right' as he described it when he eventually told me what was going on. They took blood- he told them about his dad's severe lupus diagnosis and his sisters MS. He said he couldn't feel when they jabbed him with a needle over most of his legs.
He had a lower spine MRI yesterday but is waiting for a Brain/spine MRI with contrast- the earliest they could book him was 22/01.
His symptoms have stayed the same- numbness, pain and stiffness in his legs, tingling in his hands.
I'm worried sick š¢
Dysferlin, muscular dystrophy, MS, lupus, what other things am I missing? Obviously I'm not saying anything to him. He's very off-handed and doesn't want to discuss it, doesn't want sympathy etc but I know him well- he bottles things up terribly. He's mentioned being scared he could have something he's passed on to his son š¢
I feel like I'm falling apart ATM. I'm already exhausted with the three of them moving home, my house needing repairs I can't afford and nme giving up my bedroom so that they could all have a bedroom. I'm just wondering how much more I can take but at the same time, it's not about me- I'm heartbroken that my third child is now also likely looking at a future with disability.
I'd be grateful if anyone has any idea what these symptoms could be. They don't think he has a brain tumour. I know lupus can mimic other diseases, my daughter thinks he may have a different type of MS that young men get more frequently and which can be quickly disabling. I'm so tired I can't remember what she called it.