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Post by pattipea on Nov 8, 2015 14:44:30 GMT
Still thinking of, and praying for, your sweet Phoebe. Hoping you are able to find time to get some much needed rest, shescrafty. Please stop by to update when you can. Know that your 'pea family' truly cares!
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Post by sunnyd on Nov 11, 2015 1:06:06 GMT
Hi shescrafty Just checking in on Miss Phoebe! I hope you have gotten some answers and positive news! Hugs & prayers to your family!
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Post by shescrafty on Nov 11, 2015 1:51:02 GMT
Good news and bad news (seems to be our system).
The last LP was clear and they were talking about a plan to get us home for a bit and do outpatient treatment.
Sunday morning at 445 she had a high fever and difficulty breathing. She was found to be having seizures and went on a versed drip and was intubated with a breathing tube. Since then they have been able to get the seizures under control and are going to try and remove the tube this evening around 1 am. They just got back an hour ago from a ct scan and said the CT scan went well. It was to rule out any other infection that may have caused the seizures and make sure they are not issuing anything. The neuro team believes she has something called PRES which is reversible, but our hematology team is not so sure and is concerned more about infection since she is so immuno suppressed due to medications,
Please send good healing thoughts that she can be removed from the breathing tube successfully and she has a quick and peaceful recovery tonight and tomorrow, we do not know what (if any) neurological impact this trauma has had on her brain. We just have to wait and see what the removal will bring.
Thank you for thinking of our sweet Phoebe. I haven't been updating since it is all so up in the air and so hard, but it means so much to me that so many of you care. Thank you.
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stittsygirl
Pearl Clutcher
Posts: 3,580
Location: In the leaves and rain.
Jun 25, 2014 19:57:33 GMT
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Post by stittsygirl on Nov 11, 2015 1:55:26 GMT
Sending you and Phoebe hugs. Such a roller coaster for you all.
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scrapngranny
Pearl Clutcher
Only slightly senile
Posts: 4,763
Jun 25, 2014 23:21:30 GMT
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Post by scrapngranny on Nov 11, 2015 1:59:19 GMT
Sending prayers.
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psiluvu
Pearl Clutcher
Posts: 3,217
Location: Canada's Capital
Jun 25, 2014 22:52:26 GMT
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Post by psiluvu on Nov 11, 2015 2:02:15 GMT
More hugs and positive thoughts coming yours and Phoebe's way.
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ModChick
Drama Llama
True North Strong and Free
Posts: 5,062
Jun 26, 2014 23:57:06 GMT
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Post by ModChick on Nov 11, 2015 2:04:36 GMT
Continued prayers and good thoughts sent your way.
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Post by baslp on Nov 11, 2015 2:05:56 GMT
Continuing to send thoughts of strength and healing.
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Post by Darcy Collins on Nov 11, 2015 2:31:24 GMT
Such a tough journey you're on @shecrafty I hope you get some good news soon.
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Post by SweetieBugs on Nov 11, 2015 3:01:20 GMT
I'm so sorry that she continues to struggle. I hope for a better day soon.
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Post by Linda on Nov 11, 2015 4:01:50 GMT
praying
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Post by Jili on Nov 11, 2015 4:22:10 GMT
All my best wishes for little Phoebe. Thinking of your family often.
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Post by anonrefugee on Nov 11, 2015 4:30:23 GMT
Continuing prayers for each of you!
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Post by anniefb on Nov 11, 2015 4:40:28 GMT
Sending prayers!
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Post by CarolT on Nov 11, 2015 5:14:06 GMT
Sending healing thoughts and gentle hugs for you all <3
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Post by ktdoesntscrap on Nov 11, 2015 5:16:24 GMT
Thinking of you all.
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Post by alexa11 on Nov 11, 2015 6:14:12 GMT
Sending prayers- stay strong mom.
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Post by miominmio on Nov 11, 2015 7:19:51 GMT
Sending positive thoughts your way.
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wellway
Prolific Pea
Posts: 8,766
Jun 25, 2014 20:50:09 GMT
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Post by wellway on Nov 11, 2015 10:03:22 GMT
Sending hugs and positive thoughts ((hugs)). You and your family must be exhausted, I think of Phoebe often and hope always for the best.
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Post by shescrafty on Nov 11, 2015 13:31:19 GMT
So far they have not been able to remove her from the breathing tube. She is really struggling
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Post by bearmom on Nov 11, 2015 13:43:47 GMT
Prayers for Phoebe and your family.
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Post by blarneygirl on Nov 11, 2015 13:47:21 GMT
Continued prayers for Phoebe and her family. May there only be good news ahead for your sweet girl who has been through so much!
I just saw the above update. I'm heartsick for you. My prayers continue for Phoebe.
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Post by *sprout* on Nov 11, 2015 13:57:33 GMT
Praying for Phoebe!
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Post by Darcy Collins on Nov 11, 2015 15:05:42 GMT
I'm so sorry shescrafty Praying for your sweet girl.
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Post by shescrafty on Nov 11, 2015 15:18:12 GMT
Phoebes lung has apparently collapsed and they are doing what they can to help it open up again. They have sent off cultures to make sure it is not an infection and started other antibiotics in case. Most likely not extubating for a few days until lung is better.
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anniebeth24
Pearl Clutcher
Posts: 3,545
Jun 26, 2014 14:12:17 GMT
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Post by anniebeth24 on Nov 11, 2015 15:22:55 GMT
Hugs to you, momma. I'll continue to pray for your girl and for you.
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Post by coffeetalk on Nov 11, 2015 15:25:42 GMT
Holding you and your sweet girl in my thoughts.
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gloryjoy
Pearl Clutcher
Posts: 3,332
Jun 26, 2014 12:35:32 GMT
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Post by gloryjoy on Nov 11, 2015 16:05:00 GMT
Keeping your sweet girl in my thoughts and prayers, she has been through so much.
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Post by anonrefugee on Nov 11, 2015 16:08:43 GMT
Strength and hugs to you! Praying.
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Deleted
Posts: 0
May 13, 2024 7:14:44 GMT
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Post by Deleted on Nov 13, 2015 1:27:24 GMT
Britta, prayers continued for Phoebe and her team and you all.
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