melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Jan 16, 2016 16:14:36 GMT
From FB:
We will hopefully be bringing Phoebe home this week under the care of Hospice. We went to a meeting with all of Phoebe's team this week expecting to talk about a plan for transplant. But once the team got to talking it became clear that Phoebe would not survive transplant and would suffer quite a bit if we tried to push forward.
Further, the trauma that she has suffered neurologically was much more significant than they had previously thought. So even if by some chance she did survive, she would never be able to live, communicate, or do anything independently. That is not how we feel Phoebe would want to live.
So our difficult choice has been made. We don't know how long she has to live--from weeks to possibly 2 months. We have been here for over 4 months straight. She needs to go home to feel sunshine on her face, see her house, and be with her dog again.
We cannot thank you enough for all you have done to support our family and all the amazing work you have done for Be the Match. Although we could not go to transplant, we are glad that in some small way, Phoebe’s story resonated and drew some much needed attention to the need for minority donors.
We know in our hearts that the work that you all did will save another life. We are forever grateful to our family, friends and community--we love you all and cannot thank you enough for all you have done.
*************************************************************************************
Heartbroken for all who know and love her.
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Post by jann0319 on Jan 16, 2016 16:15:57 GMT
Just read this on fb. So sorry to hear this terrible news.
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Phoebe
Jan 16, 2016 16:16:32 GMT
Post by paperaddictedpea on Jan 16, 2016 16:16:32 GMT
I'm so sad to hear this. I was hoping for a miracle for Phoebe.
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luckyexwife
Pearl Clutcher
Posts: 3,067
Jun 25, 2014 21:21:08 GMT
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Phoebe
Jan 16, 2016 16:16:50 GMT
via mobile
Post by luckyexwife on Jan 16, 2016 16:16:50 GMT
Oh, this is so, so sad. Prayers for dear sweet Phoebe and all who love her.
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NoWomanNoCry
Drama Llama
Posts: 5,856
Jun 25, 2014 21:53:42 GMT
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Phoebe
Jan 16, 2016 16:17:30 GMT
via mobile
Post by NoWomanNoCry on Jan 16, 2016 16:17:30 GMT
Just read this on fb. So sad. Prayers for her and her family.
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Post by danalz on Jan 16, 2016 16:17:50 GMT
Prayers for Phoebe and her family. So heartbreaking!
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Post by mom on Jan 16, 2016 16:18:25 GMT
I just saw this as well on Facebook. I think it could be time for the Peas to shower Phoebe will cards of love.
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Post by shamrock on Jan 16, 2016 16:19:02 GMT
So sad to see this update. Prayers for Phoebe & her family. 2016 is off to a rough start for many Peas
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Phoebe
Jan 16, 2016 16:19:09 GMT
Post by Skellinton on Jan 16, 2016 16:19:09 GMT
Omg, my heart is breaking for her family. What a terrible decision to be faced with. I am glad Phoebe will be home at last and hope being in familiar surroundings and with her dog brings her and her family peace. What devastating news, but thank you for letting us know. Prayers being said.
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Phoebe
Jan 16, 2016 16:19:18 GMT
Post by blarneygirl on Jan 16, 2016 16:19:18 GMT
I don't even know what to say. I cannot imagine their pain. My prayers remain with Phoebe and her family.
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Phoebe
Jan 16, 2016 16:20:11 GMT
via mobile
Post by Jili on Jan 16, 2016 16:20:11 GMT
Absolutely awful. My cousin lost her son to this same condition. It is heartbreaking. I am glad that Phoebe will be able to go home.
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scrapngranny
Pearl Clutcher
Only slightly senile
Posts: 4,773
Jun 25, 2014 23:21:30 GMT
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Phoebe
Jan 16, 2016 16:20:26 GMT
Post by scrapngranny on Jan 16, 2016 16:20:26 GMT
Such sad news. I pray for her and her family at this very difficult time.
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momto4kiddos
Drama Llama
Posts: 5,153
Jun 26, 2014 11:45:15 GMT
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Phoebe
Jan 16, 2016 16:20:34 GMT
Post by momto4kiddos on Jan 16, 2016 16:20:34 GMT
This is heartbreaking! Hugs and Prayers for her and her family.
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Phoebe
Jan 16, 2016 16:20:51 GMT
Post by marmargirl on Jan 16, 2016 16:20:51 GMT
Oh, I'm just so sad for Phoebe, Shescrafty, and her entire family. I am glad she is going to be home with her dog and her loved ones. My heart and prayers go out to this family.
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moodyblue
Drama Llama
Posts: 6,196
Location: Western Illinois
Site Supporter
Jun 26, 2014 21:07:23 GMT
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Phoebe
Jan 16, 2016 16:21:38 GMT
Post by moodyblue on Jan 16, 2016 16:21:38 GMT
Melissa, thank you for posting this. I'm so sorry that things didn't go the way we had all hoped and wished. I'm sending good thoughts for strength and peace to Phoebe and her family.
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Post by hosschick on Jan 16, 2016 16:22:25 GMT
I have no words. I think of Phoebe daily; she has truly touched my life. My heart aches for her family.
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Phoebe
Jan 16, 2016 16:22:55 GMT
via mobile
Post by salem on Jan 16, 2016 16:22:55 GMT
Heartbreaking. Sending thoughts to the whole family.
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Phoebe
Jan 16, 2016 16:23:05 GMT
Post by Tamhugh on Jan 16, 2016 16:23:05 GMT
My heart hurt reading that. Phoebe, her family, and her hospice care team are in my thoughts and prayers.
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valincal
Drama Llama
Southern Alberta
Posts: 5,672
Jun 27, 2014 2:21:22 GMT
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Phoebe
Jan 16, 2016 16:23:26 GMT
via mobile
Post by valincal on Jan 16, 2016 16:23:26 GMT
So sorry to hear this. My heart goes out to this brave little fighter and her family.
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Phoebe
Jan 16, 2016 16:23:33 GMT
Post by **GypsyGirl** on Jan 16, 2016 16:23:33 GMT
Such a sad update. They will be in my thoughts and prayers.
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Phoebe
Jan 16, 2016 16:23:43 GMT
Post by lucyg on Jan 16, 2016 16:23:43 GMT
Such sad news. I weep for Phoebe and her family. Thanks for letting us know.
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Phoebe
Jan 16, 2016 16:25:41 GMT
Post by travelscrapper on Jan 16, 2016 16:25:41 GMT
So sorry to hear this about your beautiful daughter. Praying for comfort and peace as your savor every minute you have with her on earth.
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Phoebe
Jan 16, 2016 16:25:53 GMT
Post by pattipea on Jan 16, 2016 16:25:53 GMT
Oh no. So not the report we had all been hoping to read. May the love of family and friends surround Phoebe and her family, and give them strength in the days ahead.
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MaryMary
Pearl Clutcher
Lazy
Posts: 2,975
Jun 25, 2014 21:56:13 GMT
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Phoebe
Jan 16, 2016 16:26:56 GMT
via mobile
Post by MaryMary on Jan 16, 2016 16:26:56 GMT
Oh gosh, this has been a brutal winter for the peas. I'm so sorry to hear this news about Phoebe. You will be in my prayers.
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Phoebe
Jan 16, 2016 16:27:09 GMT
Post by coffeetalk on Jan 16, 2016 16:27:09 GMT
My heart goes out to Phoebe and her family.
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Phoebe
Jan 16, 2016 16:28:06 GMT
Post by Karmady on Jan 16, 2016 16:28:06 GMT
Such a sad update Prayers for Phoebe and her family.
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Phoebe
Jan 16, 2016 16:29:07 GMT
via mobile
Post by CarolT on Jan 16, 2016 16:29:07 GMT
I just saw this on FB, as well. I am heartbroken for her family <3
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Post by lostwithout2peas on Jan 16, 2016 16:34:40 GMT
Not the update I was hopping for. My thoughts and prayers are with sweet little Phoebe and her family at this unbelievably difficult time.
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uksue
Pearl Clutcher
Posts: 2,507
Location: London
Jun 25, 2014 22:33:20 GMT
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Phoebe
Jan 16, 2016 16:38:23 GMT
Post by uksue on Jan 16, 2016 16:38:23 GMT
As heartbreaking as news has been on here lately, it seems so much more poignant when a child is involved. God bless Phoebe and her family, they have my prayers.
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julieb
Pearl Clutcher
Posts: 2,845
Jul 3, 2014 16:02:54 GMT
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Phoebe
Jan 16, 2016 16:39:31 GMT
Post by julieb on Jan 16, 2016 16:39:31 GMT
Heartbreaking. In my prayers and thoughts.
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