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Post by aljack on Oct 17, 2016 16:28:52 GMT
***final update Praise Jesus! I met with the surgeon who did my hysterectomy today and it was granulation! Treated in office and out! I was basically scared beyond belief after that obgyn said she didn't know what it was and needed to have laprascopic surgery to explore and remove the adhesion. I am also angry that I spent over $800 out of pocket with her when I saw the oncologist today whom diagnosed and treated today for $50. The two office visits and the ultrasound were over $800! I just can't imagine another person having to go through this. Husband said he's just glad it was this simple because the fear we have been muddling over the past few weeks was agonizing and we literally put plans on hold. I hope this is the last of that. Thanks for support peas! Any peas have post op bleeding after hysterectomy? It's been over a year and half since my total hysterectomy and had bleeding last month that was very scary and noticed a little blood a few times here and there but wasn't sure if it was from vaginal cuff. I went today and the doctor said it was a fallopian tube or granulation? Urine results had red and white blood cells. Sent for culture. No burning but do have back pain and have for most of my life. She took a picture and showed me. I don't know how to describe it. It was honesty a bleeding adhesion and I thought surely that was the answer and some silver nitrate would stop it. She did a qtip swab and it was bleeding and it hurt. I was almost in tears. Then she said surgery to correct because she said it shows like fallupion tube came through the cuff but first a ultrasound. I told her my tubes are gone. She finally read my records and said yes they were. So I said, it's granulation then? She said, I don't know. So she said do ultrasound, but will probably need an MRI. The she said she would clear her surgery schedule for two weeks out. What?!! Yeah I lost it. I have been googling and I keep coming back to adhesions. Does anyone have experience with this? ****update**** Went for ultrasound, ovaries MIA. Oh well. Guess that clears up the tube theory. ***update***on page 2
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Post by SallyPA on Oct 17, 2016 16:38:02 GMT
I work in gyn (just finished assisting on a hyst, actually).
Is this doctor the same one that did the original surgery? Were your rubes and/or ovaries removed? Do you have any pain with the bleeding? Is the bleeding associated with intercourse? Did the doctor do an exam on you?
I've seen many cases of granulation tissue. Its easily seen on a regular exam. It is almost always easily cauterized right it the office using silver nitrate. In 12 years, I have seen one lady have to go back to the OR to have a neuroma removed from the cuff. At that was after trying many times unsuccessfully to treat it in the office over the course of months.
Also, if I were your provider, I would start with a pelvic ultrasound, as MRI is not well suited to image the bony pelvis. Don't get too nervous, odds are it's nothing sinister.
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Post by aljack on Oct 17, 2016 16:52:37 GMT
I work in gyn (just finished assisting on a hyst, actually). Is this doctor the same one that did the original surgery? Were your rubes and/or ovaries removed? Do you have any pain with the bleeding? Is the bleeding associated with intercourse? Did the doctor do an exam on you? I've seen many cases of granulation tissue. Its easily seen on a regular exam. It is almost always easily cauterized right it the office using silver nitrate. In 12 years, I have seen one lady have to go back to the OR to have a neuroma removed from the cuff. At that was after trying many times unsuccessfully to treat it in the office over the course of months. Also, if I were your provider, I would start with a pelvic ultrasound, as MRI is not well suited to image the bony pelvis. Don't get too nervous, odds are it's nothing sinister. Thank you for replying! To answer your questions. No, she did not perform my surgery, that was my gynecologic oncologist. This is my obgyn. No to ovaries removed. Just cut out a cyst on left ovary which is same side as the adhesion. The pain is on my right though. I had pain with the large bleeding/spotting incident. It felt like a cyst burst on my right side. It was painful. Next day had the most bleeding. But I think I have been bleeding a little for 5-6 months now. Just enough to see a tiny bit brown on a pad. No intercourse. Yes, she examined me and did the qtip swipe after seeing the area right after inserting the specula. I have ultrasound tomorrow. Will see what the results are. Just wondered if it was adhesions and she didn't see that.
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Post by SallyPA on Oct 17, 2016 17:09:13 GMT
Ok it definitely sounds like granulation tissue. Adhesions are intra-abdominal, not vaginal, so they won't be seen on exam. They also aren't seen on ultrasound. Adhesions can cause pain, but it bleeding, especially because of their location. I am glad you're having an ultrasound, since it's always good to look at the ovaries and their location and if they are mobile. If you were my patient, I would tell you not to worry. It's important to check it all out, but mostly likely it is the granulation tissue .
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Oct 17, 2016 18:25:42 GMT
O/P I hope they'll be able to find and take care of the problem. I would definitely be uncomfortable with the bleeding!
I do have a question, which is probably due to my uneducatedness. You mentioned you had a full hyster, but then said you kept your ovaries? I thought a full hyster meant everything came out? (My Dr. called mine a partial because I kept my good ovary for hormones, but she took everything else out).
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byondbzr
Junior Member
Posts: 67
Jun 26, 2014 0:50:24 GMT
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Post by byondbzr on Oct 17, 2016 18:56:03 GMT
I hope everything is OK!
It's funny, I only read here and hardly post. But today when I log in the first thing I see is a hysterectomy post. I just left my doctor, and after months of poking,prodding, testing, and a biopsy I was told I need the hysterectomy. I knew it could happen, I am OK with it. I just think it's funny I rarely see these posts and yet today I do! So I'll soon be joining you! And I am keeping my ovaries as well.
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Post by SallyPA on Oct 17, 2016 18:58:24 GMT
Flute - different physicians and different patients all use different terminology, which is exactly why I asked what she had removed.
Technically, hysterectomy is only removal of the uterus. Some people say total hyst to indicate the cervix was removed also. As opposed to a supracervical hyst which removes the top of the uterus and leaves the cervix intact.
The removal of tubes and/or ovaries is usually designated separately. I think it's outdated terminology to have total hyst mean uterus, tubes, and ovaries. But it is widely used. HTH!
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Oct 17, 2016 19:46:39 GMT
Flute - different physicians and different patients all use different terminology, which is exactly why I asked what she had removed. Technically, hysterectomy is only removal of the uterus. Some people say total hyst to indicate the cervix was removed also. As opposed to a supracervical hyst which removes the top of the uterus and leaves the cervix intact. The removal of tubes and/or ovaries is usually designated separately. I think it's outdated terminology to have total hyst mean uterus, tubes, and ovaries. But it is widely used. HTH! It does help, indeed, thank you!!
So what would be the proper terminology for what I had done? I had a dermoid tumor on my right ovary (5-6cm, with all the lovely contents present), so surgery was a necessity. I opted to have the uterus & cervix out, as well, but kept the left ovary as I have a family history of BC so am advised not to take hormones. I honestly don't know if she took out the tubes or not, but I would imagine so.
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Post by mom on Oct 17, 2016 19:48:41 GMT
melissa is my go-to-pea for all things like this. Maybe she can chime in.
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Post by SallyPA on Oct 17, 2016 19:53:51 GMT
Ok- you most likely had a hysterectomy with right salpingo-oophorectomy (you can shorten that to RSO). Unless your surgery was recent, your left tube is probably left intact with the ovary. In the last year, whenever possible, we've been removing tubes because some ovarian cancers may actually originate in the tube and migrate to the ovary. But that is newer research. So yours is probably there .
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Post by Zee on Oct 17, 2016 19:58:02 GMT
Flute - different physicians and different patients all use different terminology, which is exactly why I asked what she had removed. Technically, hysterectomy is only removal of the uterus. Some people say total hyst to indicate the cervix was removed also. As opposed to a supracervical hyst which removes the top of the uterus and leaves the cervix intact. The removal of tubes and/or ovaries is usually designated separately. I think it's outdated terminology to have total hyst mean uterus, tubes, and ovaries. But it is widely used. HTH! It does help, indeed, thank you!!
So what would be the proper terminology for what I had done? I had a dermoid tumor on my right ovary (5-6cm, with all the lovely contents present), so surgery was a necessity. I opted to have the uterus & cervix out, as well, but kept the left ovary as I have a family history of BC so am advised not to take hormones. I honestly don't know if she took out the tubes or not, but I would imagine so.
Total hyst: uterus and cervix Partial hyst: Just uterus, not cervix Vag hyst: removal through the vagina instead of an abd incision Salpingectomy: removal of Fallopian tube Oopherectomy: ovary removal Salpingo-oopherectomy: removed tube and ovary You had a total abdominal hysterectomy with right salpingo-oopherectomy.
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Post by Zee on Oct 17, 2016 19:59:28 GMT
Sorry SallyPA, you beat me to it and I was just butting in!
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Post by SallyPA on Oct 17, 2016 20:13:12 GMT
Sorry SallyPA, you beat me to it and I was just butting in! You're all good!
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Oct 17, 2016 20:14:49 GMT
It does help, indeed, thank you!!
So what would be the proper terminology for what I had done? I had a dermoid tumor on my right ovary (5-6cm, with all the lovely contents present), so surgery was a necessity. I opted to have the uterus & cervix out, as well, but kept the left ovary as I have a family history of BC so am advised not to take hormones. I honestly don't know if she took out the tubes or not, but I would imagine so.
Total hyst: uterus and cervix Partial hyst: Just uterus, not cervix Vag hyst: removal through the vagina instead of an abd incision Salpingectomy: removal of Fallopian tube Oopherectomy: ovary removal Salpingo-oopherectomy: removed tube and ovary You had a total abdominal hysterectomy with right salpingo-oopherectomy. Can I still just say partial hyst? Cause there's no way I can pronounce all of that, let alone remember it.
Mine was vaginal, if that makes any difference. It was probably 10ish years ago. Now I'm really curious about my tubes. They had been "tied" when my youngest was born, so I wonder if the surgeon took them or not. I do remember being concerned with keeping the ovary, that I would somehow miraculously conceive and then have a baby with nowhere to land. She assured me that would be on the cover of every medical journal in the world if it happened. Ha!
Thank you both for the information - sorry for the hijack O/P!
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Post by Zee on Oct 17, 2016 20:18:53 GMT
Total hyst: uterus and cervix Partial hyst: Just uterus, not cervix Vag hyst: removal through the vagina instead of an abd incision Salpingectomy: removal of Fallopian tube Oopherectomy: ovary removal Salpingo-oopherectomy: removed tube and ovary You had a total abdominal hysterectomy with right salpingo-oopherectomy. Can I still just say partial hyst? Cause there's no way I can pronounce all of that, let alone remember it.
Mine was vaginal, if that makes any difference. It was probably 10ish years ago. Now I'm really curious about my tubes. They had been "tied" when my youngest was born, so I wonder if the surgeon took them or not. I do remember being concerned with keeping the ovary, that I would somehow miraculously conceive and then have a baby with nowhere to land. She assured me that would be on the cover of every medical journal in the world if it happened. Ha!
Thank you both for the information - sorry for the hijack O/P!
Oh, sorry, I thought you didn't have it vaginally. A partial hyst actually means you still have your cervix, which you don't, so you could just say you had everything removed except your left ovary. To keep it simple.
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Oct 17, 2016 20:24:33 GMT
Can I still just say partial hyst? Cause there's no way I can pronounce all of that, let alone remember it.
Mine was vaginal, if that makes any difference. It was probably 10ish years ago. Now I'm really curious about my tubes. They had been "tied" when my youngest was born, so I wonder if the surgeon took them or not. I do remember being concerned with keeping the ovary, that I would somehow miraculously conceive and then have a baby with nowhere to land. She assured me that would be on the cover of every medical journal in the world if it happened. Ha!
Thank you both for the information - sorry for the hijack O/P!
Oh, sorry, I thought you didn't have it vaginally. A partial hyst actually means you still have your cervix, which you don't, so you could just say you had everything removed except your left ovary. To keep it simple. Thanks! (and I miss my cervix )
Wasn't there a thread here about a lady who lost her cervix? That was the funniest thread ever!
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Post by Zee on Oct 17, 2016 20:31:30 GMT
Ha! I don't miss my cervix at all. Never really noticed it was missing, to be honest. What I really don't miss is my uterus, buh-bye.
OP, sorry to hijack. I hope it's just granulation tissue. I had a little bit of that and my Dr took care of it in the office. I didn't have the pain or bleeding that you had, though. Perhaps there was a cyst on the tube that burst? I have no idea if that is even possible or would cause vaginal bleeding, seems unlikely but gyn isn't my specialty. The sharp one-sided pain doesn't seem like it would be granulation tissue but I'd try not to worry too much until after the ultrasound.
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Post by aljack on Oct 18, 2016 0:30:31 GMT
Ok it definitely sounds like granulation tissue. Adhesions are intra-abdominal, not vaginal, so they won't be seen on exam. They also aren't seen on ultrasound. Adhesions can cause pain, but it bleeding, especially because of their location. I am glad you're having an ultrasound, since it's always good to look at the ovaries and their location and if they are mobile. If you were my patient, I would tell you not to worry. It's important to check it all out, but mostly likely it is the granulation tissue . Thank you! I was so upset earlier and in full on panic mode because I thought I might be preparing for a surgical procedure. I am letting go and handing this over to man above because I can't stress it away at this point. She did say she wanted to see where the ovaries are. My girlfriends one ovary that was left after her procedure was behind her belly button, it gravitated over I guess. She had it removed two years later because it was causing problems when they discovered it hiding out. I pray it is granulation, but the fear this doctor projected when she saw the site and declared it is the Fallopian tube or possible granulation, then unsure after reading my surgical notes from two years ago had me in tears. I won't say she was horrible but I just wish she had said, let's order an ultrasound and then come back for the results first instead of saying both of her original thoughts were automatic surgery. Husband is so angry. On a different note, thanks to all the peas for the responses!
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Post by aljack on Oct 18, 2016 0:34:00 GMT
I hope everything is OK! It's funny, I only read here and hardly post. But today when I log in the first thing I see is a hysterectomy post. I just left my doctor, and after months of poking,prodding, testing, and a biopsy I was told I need the hysterectomy. I knew it could happen, I am OK with it. I just think it's funny I rarely see these posts and yet today I do! So I'll soon be joining you! And I am keeping my ovaries as well. Hugs to you! When is yours? Are you doing da Vinci? I know where you are at and I still say I am beyond happy I did it. Don't miss it one bit. I go back and forth on wishing they had removed my ovaries because of the cysts. I don't like the pain but I also don't want hormones or osteoporosis. I am praying menopause kicks in soon and they stop. Keep us posted on your procedure!
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Oct 18, 2016 4:10:44 GMT
Can I still just say partial hyst? I never know what a partial hyst is. It is not a medical term. I have found that laypeople often refer to leaving tubes and ovaries behind as a partial hyst or it could refer to a subtotal hyst, which does not include the cervix. Back to the OP, I agree that granulation tissue is the most likely scenario, but there are other possibilities. Did she do any additional testing? A biopsy? What's your pap/HPV history? If it were me, I'd make an appointment with the surgeon who did the procedure, if it all possible. I am also a little confused reading these posts. If even one ovary was left behind, then so was that tube in most cases, unless there was another reason to remove the fallopian tube. Did they or did they not remove both tubes? If it is not specific that both tubes were removed and she thinks it looks like a tube, it probably is.
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Post by hlghmalntenence on Oct 18, 2016 4:17:18 GMT
I have had chronic pain from pelvic adhesions for 13 years. The pain started in my lower back, I found out my uterus was attached to the back of my abdominal wall. I have since then had 3 surgeries (one surgery was removing Fallopian tube that had been strangled and then became infected) as well as a full hysterectomy. I am now a pain clinic patient because no one else knows what to do to stop the pain. I have not, however, had bleeding from my adhesions. You could have a cyst on your ovary? If you do have adhesions, they could be strangling your ovary and causing issues? Adhesions do not show up on any scans or ultrasounds. The only way they can find them is from doing exploratory surgery. A lot of Drs. will try to tell you adhesions do not cause pain but tell that to the 15,000+ people that have chronic pain because of them.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Oct 18, 2016 5:03:39 GMT
She's talking about something very different. She is having bleeding from the area of the vaginal cuff.
Adhesions can also occur in the vagina and between the labia, but it does not sound like this is the case. BTW, those types of adhesions can be seen with the naked eye. A cyst on the ovary will not cause vaginal bleeding.
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Post by aljack on Oct 18, 2016 13:52:59 GMT
Can I still just say partial hyst? I never know what a partial hyst is. It is not a medical term. I have found that laypeople often refer to leaving tubes and ovaries behind as a partial hyst or it could refer to a subtotal hyst, which does not include the cervix. Back to the OP, I agree that granulation tissue is the most likely scenario, but there are other possibilities. Did she do any additional testing? A biopsy? What's your pap/HPV history? If it were me, I'd make an appointment with the surgeon who did the procedure, if it all possible. I am also a little confused reading these posts. If even one ovary was left behind, then so was that tube in most cases, unless there was another reason to remove the fallopian tube. Did they or did they not remove both tubes? If it is not specific that both tubes were removed and she thinks it looks like a tube, it probably is. Thanks Melissa for giving insight. She did the urine culture, a swab, and ordered an ultrasound. She read the lab results from hysterectomy and it said bilateral tubes so she agreed then they must have been removed, but she was questioning that. Prior to this, she looked and said immediately it looked like a tube and she was certain it was. However, I told her again that they were removed she went to my file and read the notes from surgeon. Past Pap smears have been clean and sometimes not. I never had anything done, like LEEP. I don't think I have been tested for HPV. I hope it is granulation. Since poking it yesterday, I think the area is angered because it hurts. Not looking forward to the ultrasound.
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Post by SallyPA on Oct 18, 2016 14:30:27 GMT
It would be interesting to see what the pathology report stated (this may only be on your record at the gyn onc- you can call that office and ask them to look at it). That's where I would look to see if both tubes were removed for sure, not the op report.
Were you ever diagnosed with endometriosis? Endometrial implants can show up in strange places after surgery too.
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Post by aljack on Oct 18, 2016 16:01:14 GMT
It would be interesting to see what the pathology report stated (this may only be on your record at the gyn onc- you can call that office and ask them to look at it). That's where I would look to see if both tubes were removed for sure, not the op report. Were you ever diagnosed with endometriosis? Endometrial implants can show up in strange places after surgery too. Never diagnosised with that but I wouldn't be surprised. I asked my surgeon and she said no. Yes, the lab results came back benign and it read as bilateral. This is what stumped her as she was sure it was a tube. After reading that, she said she was not certain what it was. She said she would review photo she took further with the ultrasound results and we should meet next week but she wanted me to schedule an appointment right away in case her schedule was full. I don't know. I feel like it's granulation. I suppose endometriosis could be a possibility. Thank you SallyPA for responses. I appreciate your feedback!
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Post by aljack on Oct 18, 2016 22:10:05 GMT
That ultrasound was the most painful one I have ever had. Never had that intense pain before.Thankfully it was short. Ovaries were MIA.
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Deleted
Posts: 0
May 11, 2024 15:43:37 GMT
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Post by Deleted on Oct 18, 2016 22:21:00 GMT
Went for ultrasound, ovaries MIA. Oh well. Guess that clears up the tube theory. LOL - I don't mean to laugh because you obviously have a situation that needs to be taken care of, but I had an ultrasound about a year ago and my ovaries were MIA too. Strangely enough, they showed up at a follow up ultrasound a few weeks ago. I'm having another in 3 weeks so we'll see if they are playing hide and seek again. Every time I tell someone they were missing, I get a confused look so at least I don't feel alone now! ETA: I did not have a hysterectomy - mine are just playing games
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momto4kiddos
Drama Llama
Posts: 5,151
Jun 26, 2014 11:45:15 GMT
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Post by momto4kiddos on Oct 18, 2016 22:31:19 GMT
Went for ultrasound, ovaries MIA. Oh well. Guess that clears up the tube theory. LOL - I don't mean to laugh because you obviously have a situation that needs to be taken care of, but I had an ultrasound about a year ago and my ovaries were MIA too. Strangely enough, they showed up at a follow up ultrasound a few weeks ago. I'm having another in 3 weeks so we'll see if they are playing hide and seek again. Every time I tell someone they were missing, I get a confused look so at least I don't feel alone now! ETA: I did not have a hysterectomy - mine are just playing games Glad you explained because I was thinking wth - how do ovaries go missing?!!
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Post by Delta Dawn on Oct 18, 2016 22:45:21 GMT
LOL - I don't mean to laugh because you obviously have a situation that needs to be taken care of, but I had an ultrasound about a year ago and my ovaries were MIA too. Strangely enough, they showed up at a follow up ultrasound a few weeks ago. I'm having another in 3 weeks so we'll see if they are playing hide and seek again. Every time I tell someone they were missing, I get a confused look so at least I don't feel alone now! ETA: I did not have a hysterectomy - mine are just playing games Glad you explained because I was thinking wth - how do ovaries go missing?!! A pea lost her cervix. Stuff gets lost apparently!
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Oct 19, 2016 1:01:10 GMT
Endometrial implants can show up in strange places after surgery too That would be reportable if both ovaries were removed and super unlikely if there was no evidence at the time of the original surgery. Stranger things have happened. I am aware of a vaginal cuff pregnancy! (For those not in the field, this is an ectopic, not viable).
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