Deleted
Posts: 0
Aug 18, 2025 21:44:26 GMT
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Post by Deleted on Feb 9, 2018 19:28:11 GMT
There was a pea who has it, or family member has it.. she posted in a thread that I think was really about another disease. But if it's you or you know who it is, I have some questions for her. Mostly about how to get it diagnosed.
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Post by SallyPA on Feb 9, 2018 21:55:52 GMT
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Deleted
Posts: 0
Aug 18, 2025 21:44:26 GMT
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Post by Deleted on Feb 9, 2018 22:57:26 GMT
Thanks.I will pm her.
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zella
Pearl Clutcher
Posts: 3,884 
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Post by zella on Feb 10, 2018 3:36:47 GMT
Hi Elayne. It's probably me you were thinking of. I have Mast Cell Activation Disorder, which is different to mastocytosis, but shares most of the same symptoms. I do know a bit about both disorders, and about diagnosis and treatment of each. Off to see if I have a PM from you. And good memory, Sally!
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Judy26
Pearl Clutcher
MOTFY Bitchy Nursemaid
Posts: 2,974
Location: NW PA
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Post by Judy26 on Feb 10, 2018 4:47:50 GMT
My daughter has adult onset masto. Please feel free to PM me if you have questions.
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Deleted
Posts: 0
Aug 18, 2025 21:44:26 GMT
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Post by Deleted on Feb 10, 2018 14:45:43 GMT
My daughter has adult onset masto. Please feel free to PM me if you have questions. Thanks! &thanks to SallyPa. |
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