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Post by destined2bmom on Apr 19, 2018 21:39:04 GMT
I am so sorry for your loss.
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Nink
Pearl Clutcher
Posts: 4,963 
Location: North Idaho
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Post by Nink on Apr 19, 2018 22:00:21 GMT
Please, to any peas who read this message, please, make sure that your affairs or "stuff" is in order. You never know what the next day will bring. The best gift you can ever give to your family is a completed book, binder or envelope that has all of your "stuff" in order. I cannot emphasize this enough. Anything would help. We didn’t even know what his burial wishes were. We decided to have him cremated and scatter half his ashes where we grew up in OR and the other half will be put in the family cemetery in Gernach, Germany where he lived for almost 30 years and where his former wife and daughter still live. We hope he’s happy with that. |
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Post by malibou on Apr 19, 2018 22:01:41 GMT
I'm so sorry for your loss Nink. Geez, what a year for your family. Love that picture of the two of you. |
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Apr 19, 2018 22:15:04 GMT
I am so very for your loss and what you're facing now that he's gone. The photo you posted is lovely! I don't have anything to add, but I agree with investigating it to the fullest. ((HUGS))
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Gravity
Pearl Clutcher
Posts: 3,244
Jun 27, 2014 0:29:55 GMT
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Post by Gravity on Apr 19, 2018 22:36:42 GMT
I am so sorry for your loss.
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kate
Drama Llama
Posts: 5,667
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
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Post by kate on Apr 19, 2018 22:57:58 GMT
I'm so sorry. I hope you get some answers.
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Deleted
Posts: 0
Aug 18, 2025 21:33:05 GMT
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Post by Deleted on Apr 19, 2018 22:58:55 GMT
I'm so sorry for your loss Nink and for what you are all going through now. I have no advice but I too would want some answers if I was in your shoes. |
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Post by mrssmith on Apr 19, 2018 23:02:54 GMT
I am so sorry to hear of your loss and that you have to now deal with all of this. Hoping you find a resolution as quickly as possible.
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Post by Lexica on Apr 19, 2018 23:17:50 GMT
I am very sorry for your loss. It certainly does sound quite likely that the port could have been where the infection entered his body. I agree asking for the records from the agency that was supposed to be tending to him would be a good start. I applaud you for wanting to make sure this doesn't happen to someone else, and taking on the effort to do so while you are in the midst of dealing with your grief. I would think the records from this final hospitalization are important to obtain too. I imagine the medical staff that cared for him could tell that his port was in bad shape, especially if your brother mentioned in his text that he didn't like the looks of it. This is a good reminder to be your own advocate when it comes to your health and make phone calls, show up at care centers, or whatever you need to do to get someone's attention if you feel something is wrong. Of course, we will never know for sure if earlier treatment would have made a difference or not, but I imagine it would have done.
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Nanner
Drama Llama
Posts: 6,039
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Post by Nanner on Apr 20, 2018 0:56:39 GMT
I'm sorry for your loss.
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Post by Really Red on Apr 20, 2018 1:12:56 GMT
I'm so sorry about your loss. You've gotten good advice about seeking out an attorney. It's money well spent to find out what happened.
I'd like to add one thing to bring you a little comfort. All deaths are reported to Social Security by law. Social Security then puts out a list. All insurance companies are required to pull that list (monthly?) and from there, notify the third party or beneficiary if there is insurance. So even if you don't know about that, you'll find out. I don't know about retirement accounts, but I imagine they work in a similar way. This is pretty well regulated.
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Post by mikklynn on Apr 20, 2018 1:19:29 GMT
I have nothing to add, but want to extend my sympathy for the loss of your brother. I am so sorry.
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Post by megop on Apr 20, 2018 2:25:52 GMT
You've received great advice. Not sure what type of entity was providing your brother's home care or how old your brother was, but his son also has options to file complaints with the residential state Department of Health, CMS and HHS in certain cases.
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Post by scrapmaven on Apr 20, 2018 2:31:12 GMT
Ports need to be inspected and accessed regularly. That the home health care agency went two weeks sounds absurd to me. When the line goes septic you need immediate hospitalization. The question will be whether going 2 weeks is practicing below the standard of care? Based upon my own experience w/ports I had a nurse come every other day to change the dressing and inspect the port. I developed a line infection w/3 different ports and was septic all 3 times, leading to emergency hospitalization. I think you need to get some professional guidance here from a medical professional who knows the rules. I'm very sorry about the loss of your brother.
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Post by donna on Apr 20, 2018 2:33:45 GMT
I am so sorry for your loss.
You our have received some great advice here.
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Post by ~summer~ on Apr 20, 2018 2:34:02 GMT
File a grievance with the company taking care of the port as well as the insurance company. You can request to see their policy for patients with a port.
If he died from sepsis, it very well may have been the port.
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Post by gritzi on Apr 20, 2018 2:39:23 GMT
There's no way that I would let it go. If someone was negligent for your brother's death there should be repercussions. I would request his medical records, while also being in contact asap w/an attorney.
I'm sorry for the loss of your brother.
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Deleted
Posts: 0
Aug 18, 2025 21:33:05 GMT
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Post by Deleted on Apr 20, 2018 15:44:45 GMT
I'm so sorry for your loss, especially when it sounds like your brother's passing was something that might have been preventable. Hoping the attorney will get to the bottom of this so no other family has to go through the same type of loss.
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casii
Drama Llama
Posts: 5,588
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Post by casii on Apr 20, 2018 15:55:28 GMT
I'm so sorry for your loss and hope you find closure that might help others in the end.
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gramma
Pearl Clutcher
Posts: 3,332
Location: Sacramento, Ca
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Post by gramma on Apr 20, 2018 16:05:52 GMT
This is the sort of thing that infuriates me. We claim to have the best health care in the world. Which we do. It's accessing it that is the problem.
My DH is diabetic. One evening he became so ill (I'll spare you the details) that I thought he was having a heart attack and called 911. By the time I got dressed and followed the ambulance to the ER they were doing blood tests and found that he was septic but they could not tell where is was coming from. I pulled a small band aid off a little sore he had developed on his shin. That spot was smaller than my little finger nail. It was the source. Hospitalized for 4 days in isolation. Sepsis is a nasty killer.
The point? Pursue what happened. You can't save him but you can certainly ring the alarm for others. I'm sorry for the loss of your brother. It's bad enough when it's expected but when it seems that he received less than proper care, it's heartbreaking.
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schizo319
Pearl Clutcher
Posts: 3,030
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Post by schizo319 on Apr 20, 2018 17:04:27 GMT
I am so very sorry for your loss.
I am in Alabama and we had problems with a neglectful nurse when my father passed away (she misplaced a stomach tube into his lung which later developed a blood clot that killed him). Coincidentally, this same nurse was in charge of caring for my step-father years later and there was an issue with his level of care as well (she took his nurse call button and moved it out of reach telling him "I don't have time to deal with you tonight"). My mother and his father ended up meeting with the hospital board of directors - we have not seen that particular nurse again.
Whatever organization was in charge of scheduling his nursing care (hospital, rehabilitation facility, home health care company, cancer institute, etc.) would be the first place that I would go - if possible in person with the highest person in the organization.
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peaname
Pearl Clutcher
Posts: 3,390
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Post by peaname on Apr 20, 2018 20:25:55 GMT
Ports need to be inspected and accessed regularly. That the home health care agency went two weeks sounds absurd to me. When the line goes septic you need immediate hospitalization. The question will be whether going 2 weeks is practicing below the standard of care? Based upon my own experience w/ports I had a nurse come every other day to change the dressing and inspect the port. I developed a line infection w/3 different ports and was septic all 3 times, leading to emergency hospitalization. I think you need to get some professional guidance here from a medical professional who knows the rules. I'm very sorry about the loss of your brother. Was the port accessed at the time of his death? If it's not accessed it's only flushed once a month. Of course, if it looked infected and he reported it to the home care agency and they didn't do anything about it that's another story. Nine, I'm so sorry for your loss. I hope you find peace with this. |
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Post by AussieMeg on Apr 21, 2018 0:21:56 GMT
I'm very sorry about your brother Nink.  I hope the rest of the mess gets sorted quickly for you all. |
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Post by librarylady on Apr 21, 2018 0:26:12 GMT
My condolences to you and all who loved him.
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Post by peace on Apr 21, 2018 3:05:03 GMT
Great photo!! He looked like a warm soul. I am so very sorry for your loss.
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I hope the rest of the mess gets sorted quickly for you all. 
