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Post by jcmom04 on Feb 8, 2019 2:46:44 GMT
I took my 6th Injection this evening. I had migraines for about 22 years, roughly 12/month until last year. I’d been in many meds for around 10 years but last year they increased to about 23/month and the medication to stop them didn’t work. My pain level increased tremendously as well. I’m down to 5/month the last 2 months and my pain level is back to a normal level for me. I even got off of some of my oral meds!
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peabrain
Pearl Clutcher
Posts: 2,588
Jun 25, 2014 22:18:04 GMT
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Post by peabrain on Jun 20, 2019 13:15:26 GMT
I just wanted to revive an old thread. I had an appt with my dr yesterday. I've been in a migraine rut for a bit and couldn't get out. I've been on topamax for YEARS! I had been nervous to try new medicines. And my dr had been reluctant to switch me as well. However, yesterday was the day and we discussed trying the Aimovig/Emgality/ajovy family of drugs.
He said which one I receive mostly depends on my insurance. So I ended up with Emgality.
I feel good so far. Day 1. I have to slowly get off this topamax. I'm hoping my speech improves. It will be interesting to see.
Anyway, I just wanted to give someone a push forward. If you're suffering with migraines, please go talk to your dr.
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Post by birukitty on Jun 20, 2019 21:53:22 GMT
Update: Aimovig which I've been taking since October stopped working for me all of a sudden 2 months ago even after I'd been taking the increased dosage (2 shot). I've heard from other users that it's becoming more common for this medication to stop working after 6 months. Because of an insurance change this is the first month I'm not taking it. I've been using medical marijuana to stop my migraines when they occur and I started something last month called micro dosing to help prevent them. Micro dosing is using a bit of medical marijuana (MM) every night whether I have a migraine or not and it seems to be working. So far from June 1st until June 20 I've had 4 migraines. Typically before MM I would have had 15 migraines. So that's a huge improvement. I was diagnosed with chronic migraines two years ago, and migraines 39 years ago. Now it could be that I have Aimovig left over in my system from last month. I don't know. But it also hasn't been working for 2 months either.
What I'm going to do is to continue with my micro dosing and not using Aimovig to see if the good results will continue.
What I'd like to add for other migraine patients is to check to see if your state allows MM medically and if it does to consider getting a card and using it for migraines. I wouldn't have thought of it if my neurologist who treats me for migraines hadn't suggested it. It has helped me so much to help to get rid of a migraine too. It's been a life changing medication.
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AllieC
Pearl Clutcher
Posts: 3,080
Jul 4, 2014 6:57:02 GMT
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Post by AllieC on Jun 20, 2019 23:24:11 GMT
Thanks for the updates. I think it is really good to have these discussions so that those of use that suffer chronically can keep up to date with what others are trying. I keep them in the memory bank just in case I need to revisit my regime.
Thankfully Botox has worked amazingly for me. I have been having it for 7+ years now and have gone from around 20+ days of headache of which 12-15 were migraines to maybe 1-2 migraines a month and no general headaches. Life changing!
Birukitty, MM is really interesting to me so thanks for sharing your experience. The area where I live has been approved for a large growing facility and it is approved for use for a few conditions here and I expect more to be added.
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Post by Patter on Jun 21, 2019 10:06:53 GMT
Botox quit working for my daughter after a couple of years. Aimovig (higher dose) has been working for now. She has been on it for almost a year now I think. Praying it continues to work!
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peabrain
Pearl Clutcher
Posts: 2,588
Jun 25, 2014 22:18:04 GMT
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Post by peabrain on Jun 21, 2019 11:57:35 GMT
Thanks AllieC I thought my dr was going to go the botox route as he had talked to me about that previously. I still may talk to him about it if this emgality does not work for me. I am just glad to know there are more options today than previously.
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Post by lbp on Jun 21, 2019 13:03:34 GMT
Aimovig has stopped working for me too. Maybe I need to talk to my Dr. about a higher does.
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