Post by azredhead on Mar 29, 2019 19:26:35 GMT
I start doing them on Tue.And then once a month if they work? They called to give me all the info and confirm it today. They sent me the papers home on the last appt. I made the mistake of googling the shots and the length of time etc.. effectivness.. etc. I'm literally freaked out! LOL! I have had MANY procedures and surgeries in my life time why am I scaring myself lol! Tell me it's not that bad. I had one done a few years ago when I menegitis. I wasn't sedated then, it was horrible but I was also deathly sick so we didn't have a choice. My aunt said just don't look at the needles lol. I'm not afraid of needles either with all that I've gone through. I will get the sedation. this time. I've never had kids.
I also hope they are going to work. It's for lower lumbar stenosis severe to moderate scoliosis. I was just diaganosed with it a few months ago.
4/21 Update of sorts - the Epideral shots were an epic fail. And I hated the side affects. My body is very weird. For what it's been through it's hit and miss when it comes to new treatments. So now I'm not sure what my options are. Even increasing pain meds is sketchy with the new laws that make it damn near impossible to get relief. And I'm on the low end.
The next step is a similar procedure where they deaden the nerves causing some of the pain. It's supposed to 'shut of' the signal to my brain that is recognizing the pain. The worst of the pain is the tail bone. I'm getting a little scared because now I'm having a hard time having a bowel movement. Some of it is because of all the stomach issues and infections. I have these 'flair ups' that have put me in the fetal position in the bathroom at any given time. No clear diagnosis. My lower instenstines are severly inflamed but nothing diagnosed, except the newest with the scoliosis and stenosis. Especially down lower.
I'm discouraged. I've been through a lot in my 45yrs as a heart patient from birth. I know I say that a lot on here, the peas go through a lot. I know it's hard to say what you can tolerate. I thought I had a pretty good fear level as well as pain level. It used to take a lot to scare me. Not so much these days, I was scared to do the shots. I had a bad flair up on Sunday. Put a call in to the Pain Spec on Mon haven't heard back yet, probably tomorrow, but I just saw them on Wed. We discussed these other shots. DH and I were told to discuss and decided if it's worth the risks. It's a 50/40 shot.
I spoke to someone who is a friend of ours that works for another pain group here. He said the same, the odds aren't good. It has to be in the right place and they have to know if worked right. It won't help the swelling in my left leg. Which goes numb when I have the flair ups. I'm convinced now that the two are related or at least a 'reason' for the leg pain. They are only treating the stenosis and the scolosis for now.
I know you have all been so helpful. I'm almost home bound and that thought is driving me to fight the pain. I'm too young!! But tonight having a hard time.
small update 4/12
It's been a full week, since I've had the shots. I hurt A LOT! I do have the pain meds but it's just taking the edge off. I'm on the lower dose of the oxy. It's the only pain med I take. I have to be careful with my heart stuff. The worst of the pain is in my tailbone. Sometimes it feels like I rolled it when I sit. So I lay on the couch most of the time. But it goes from tailbone to my hip and when it's bad down to my knee. Is this normal? I was having the tailbone pain before. I have a follow up on Wed. So I don't know if it would do any good to go to the ER or Insta care to get another xray, especially with the follow up on Wed..? I just can't seem to get relief. If this is part of the scoliosis? Since it's down so low. It's getting hard to find a comfortable position. I know a lot of you have given me advice and so appreciate it. I also get chatty on my meds lol! But this is stupid! I'm supposed to do 3 series of shots. I don't know if I'll do the other two!
UPDATE 4/6
The shots were the easy part.. Thank you for the tips, I didn't look at anything when they took me into the prep room. lol!
I don't remember much except asking if he could take out my tailbone while he's in there and he said "I'm not that kind of Dr lol!" So we'll see what works. They did two shots one in my upper hip and one in my butt region. They kinda feel like rocks, but that in a week or so we'll know if they really help. My whole leg was numb to foot for about two two days and my head was mess. So I wasn't crazy about the side affects. Only because I have had the menegitis and that fear of the head mess. So I might have been in a my head a bit.
Anyway hopefully the pain gets better. I really really can't do another surgery. I need to save it for my heart stuff as that is getting a lot harder to recover.
They will do two more shots if I want or need.. or look at other options down the road.
I also hope they are going to work. It's for lower lumbar stenosis severe to moderate scoliosis. I was just diaganosed with it a few months ago.
4/21 Update of sorts - the Epideral shots were an epic fail. And I hated the side affects. My body is very weird. For what it's been through it's hit and miss when it comes to new treatments. So now I'm not sure what my options are. Even increasing pain meds is sketchy with the new laws that make it damn near impossible to get relief. And I'm on the low end.
The next step is a similar procedure where they deaden the nerves causing some of the pain. It's supposed to 'shut of' the signal to my brain that is recognizing the pain. The worst of the pain is the tail bone. I'm getting a little scared because now I'm having a hard time having a bowel movement. Some of it is because of all the stomach issues and infections. I have these 'flair ups' that have put me in the fetal position in the bathroom at any given time. No clear diagnosis. My lower instenstines are severly inflamed but nothing diagnosed, except the newest with the scoliosis and stenosis. Especially down lower.
I'm discouraged. I've been through a lot in my 45yrs as a heart patient from birth. I know I say that a lot on here, the peas go through a lot. I know it's hard to say what you can tolerate. I thought I had a pretty good fear level as well as pain level. It used to take a lot to scare me. Not so much these days, I was scared to do the shots. I had a bad flair up on Sunday. Put a call in to the Pain Spec on Mon haven't heard back yet, probably tomorrow, but I just saw them on Wed. We discussed these other shots. DH and I were told to discuss and decided if it's worth the risks. It's a 50/40 shot.
I spoke to someone who is a friend of ours that works for another pain group here. He said the same, the odds aren't good. It has to be in the right place and they have to know if worked right. It won't help the swelling in my left leg. Which goes numb when I have the flair ups. I'm convinced now that the two are related or at least a 'reason' for the leg pain. They are only treating the stenosis and the scolosis for now.
I know you have all been so helpful. I'm almost home bound and that thought is driving me to fight the pain. I'm too young!! But tonight having a hard time.
small update 4/12
It's been a full week, since I've had the shots. I hurt A LOT! I do have the pain meds but it's just taking the edge off. I'm on the lower dose of the oxy. It's the only pain med I take. I have to be careful with my heart stuff. The worst of the pain is in my tailbone. Sometimes it feels like I rolled it when I sit. So I lay on the couch most of the time. But it goes from tailbone to my hip and when it's bad down to my knee. Is this normal? I was having the tailbone pain before. I have a follow up on Wed. So I don't know if it would do any good to go to the ER or Insta care to get another xray, especially with the follow up on Wed..? I just can't seem to get relief. If this is part of the scoliosis? Since it's down so low. It's getting hard to find a comfortable position. I know a lot of you have given me advice and so appreciate it. I also get chatty on my meds lol! But this is stupid! I'm supposed to do 3 series of shots. I don't know if I'll do the other two!
UPDATE 4/6
The shots were the easy part.. Thank you for the tips, I didn't look at anything when they took me into the prep room. lol!
I don't remember much except asking if he could take out my tailbone while he's in there and he said "I'm not that kind of Dr lol!" So we'll see what works. They did two shots one in my upper hip and one in my butt region. They kinda feel like rocks, but that in a week or so we'll know if they really help. My whole leg was numb to foot for about two two days and my head was mess. So I wasn't crazy about the side affects. Only because I have had the menegitis and that fear of the head mess. So I might have been in a my head a bit.
Anyway hopefully the pain gets better. I really really can't do another surgery. I need to save it for my heart stuff as that is getting a lot harder to recover. They will do two more shots if I want or need.. or look at other options down the road.
. A little bit of pain to take care of a much bigger problem made so much sense to me. I can still remember the name of that doctor, but not the guy who delivered the baby. I told him I loved him. He said most women did.
It's not the needle that bothers me, it's the seeing it go into the skin (I watched an epidural once 
) like with an IV. I give myself insulin shots, though, and seeing that doesn't bother me.