Post by mom26 on Apr 9, 2019 2:47:42 GMT
(Original Post)
*4/16 Update*:
I posted this on page 2 in response to christine58 :
It's hard to believe that 2 weeks ago DD was in a coma and we were told to not expect her to live. If she did survive, she'd mostly like be left in a vegetative state.
These people did not know my girl, because she will be walking out of that hospital within the next few days with only short term memory issues. :D :D :D
It is truly hard to put into words how miraculous her recovery has been. She has floored the nurses and doctors with her progress. For example, on Friday, she could not stand. Saturday, she could stand with the help of a walker and take a few steps with staff support. On Sunday, she could stand with the walker and take many steps with no assistance.
Monday (yesterday), she's walking all by herself. Steady as a rock with zero assistance.
She's regained complete use of her hands and is constantly on the phone calling us and everyone else she knows, lol. She wants OUT of the hospital and is making no bones about it, lol.
So, pending arrangements for either home visit therapy or outpatient at a facility (she's not going to be allowed to drive for a time) she will be released to go home sometime this week.
To say we are beyond ecstatic is the biggest understatement ever.
I can also never express my gratitude for all the prayers and thoughts from the RefuPeas. While I am agnostic, I fully believe in the power of positive energy, be it prayers or thoughts or whatever and you guys definitely have The Power of the Peas. Felt it the whole time, I did. So again, my lifelong thanks for being here and giving us that.
If you have more to spare, Amanda's sponsor Erin, could use a few. That girl has been at the hospital every single day for DD, often staying all night. Last Thursday, her mom was admitted to the same hospital (to a room just down the hall from DD's) with shortness of breath. Long story short, she underwent a triple bypass surgery on Friday. She's recovering well, but Erin sure could use a break. She's been an absolute angel and I love that girl. So, thoughts for rest and strength for Erin would be so very much appreciated.
---Original Update----
Apologies for taking so long to update (and thank you, christine58 , for asking in the other thread. You are such a sweetheart.).
As one could probably imagine, it's been quite exhausting and once we get home we pretty much just drop and stay where we land 'till we have to get up and do it again.
The last few days have been hard ones. They attempted to do an MRI on Thursday, but as soon as DD was in the tube, she went berserk and put up a heck of a fight to get out of that tube. The charge nurse said she'd never seen anyone fight like she did. She even kicked the MRI tech square in the face. :(
It took quite a while to calm her down and since then she has continued to be very combative. She's cursed out the nursing staff more than a few times.
She was moved out of ICU on Friday and is getting some therapies - speech and physical, but she doesn't want to cooperate. She's convinced they are trying to kill her. She's having a few delusional thoughts, actually - including that a male nurse sexually assaulted her. :(
(We know this did not happen, as there is ALWAYS someone - family or friend - with her at all times. DD becomes very distraught if there is not someone with her that she knows.)
While she has the ability to speak, she does struggle with some words and many times her words do not make sense. Many times they do, though. That gives us hope.
She can move her extremities quite well but has no fine motor skills or balance (has zero use of her hands). She cannot sit up by herself - no core or back strength/control.
She refuses to eat or drink. Insists that everything is 'eeewwww'. Her gag reflex works and we did manage to get her to take a few small sips of water and swallow, she just doesn't want anything offered.
There's talk of discharging her soon, but no plan yet for where she will go for rehab. That's a big, giant bag of bureaucratic crap that I just don't have the energy to go into just now. :(
DD did ask what happened. Early Friday morning when she was with her sponsor, she asked. The charge nurse said we are not to tell her, so DD's sponsor tried to distract her, but DD broke down in the most gut-wrenching sobs. She cried for a very long, long time. I'm so grateful to the wonderfully amazing young woman that is her sponsor/friend for being there for her in that moment. She held DD for hours as she sobbed.
All in all, the road ahead is going to be a long one and we have no idea of where we will end up.
DGD is coping okay and staying with extended family right now so her schooling isn't interrupted. Baby Serenity is with her father and doing well.
*4/16 Update*:
I posted this on page 2 in response to christine58 :
It's hard to believe that 2 weeks ago DD was in a coma and we were told to not expect her to live. If she did survive, she'd mostly like be left in a vegetative state.
These people did not know my girl, because she will be walking out of that hospital within the next few days with only short term memory issues. :D :D :D
It is truly hard to put into words how miraculous her recovery has been. She has floored the nurses and doctors with her progress. For example, on Friday, she could not stand. Saturday, she could stand with the help of a walker and take a few steps with staff support. On Sunday, she could stand with the walker and take many steps with no assistance.
Monday (yesterday), she's walking all by herself. Steady as a rock with zero assistance.
She's regained complete use of her hands and is constantly on the phone calling us and everyone else she knows, lol. She wants OUT of the hospital and is making no bones about it, lol.
So, pending arrangements for either home visit therapy or outpatient at a facility (she's not going to be allowed to drive for a time) she will be released to go home sometime this week.
To say we are beyond ecstatic is the biggest understatement ever.
I can also never express my gratitude for all the prayers and thoughts from the RefuPeas. While I am agnostic, I fully believe in the power of positive energy, be it prayers or thoughts or whatever and you guys definitely have The Power of the Peas. Felt it the whole time, I did. So again, my lifelong thanks for being here and giving us that.
If you have more to spare, Amanda's sponsor Erin, could use a few. That girl has been at the hospital every single day for DD, often staying all night. Last Thursday, her mom was admitted to the same hospital (to a room just down the hall from DD's) with shortness of breath. Long story short, she underwent a triple bypass surgery on Friday. She's recovering well, but Erin sure could use a break. She's been an absolute angel and I love that girl. So, thoughts for rest and strength for Erin would be so very much appreciated.
---Original Update----
Apologies for taking so long to update (and thank you, christine58 , for asking in the other thread. You are such a sweetheart.).
As one could probably imagine, it's been quite exhausting and once we get home we pretty much just drop and stay where we land 'till we have to get up and do it again.
The last few days have been hard ones. They attempted to do an MRI on Thursday, but as soon as DD was in the tube, she went berserk and put up a heck of a fight to get out of that tube. The charge nurse said she'd never seen anyone fight like she did. She even kicked the MRI tech square in the face. :(
It took quite a while to calm her down and since then she has continued to be very combative. She's cursed out the nursing staff more than a few times.
She was moved out of ICU on Friday and is getting some therapies - speech and physical, but she doesn't want to cooperate. She's convinced they are trying to kill her. She's having a few delusional thoughts, actually - including that a male nurse sexually assaulted her. :(
(We know this did not happen, as there is ALWAYS someone - family or friend - with her at all times. DD becomes very distraught if there is not someone with her that she knows.)
While she has the ability to speak, she does struggle with some words and many times her words do not make sense. Many times they do, though. That gives us hope.
She can move her extremities quite well but has no fine motor skills or balance (has zero use of her hands). She cannot sit up by herself - no core or back strength/control.
She refuses to eat or drink. Insists that everything is 'eeewwww'. Her gag reflex works and we did manage to get her to take a few small sips of water and swallow, she just doesn't want anything offered.
There's talk of discharging her soon, but no plan yet for where she will go for rehab. That's a big, giant bag of bureaucratic crap that I just don't have the energy to go into just now. :(
DD did ask what happened. Early Friday morning when she was with her sponsor, she asked. The charge nurse said we are not to tell her, so DD's sponsor tried to distract her, but DD broke down in the most gut-wrenching sobs. She cried for a very long, long time. I'm so grateful to the wonderfully amazing young woman that is her sponsor/friend for being there for her in that moment. She held DD for hours as she sobbed.
All in all, the road ahead is going to be a long one and we have no idea of where we will end up.
DGD is coping okay and staying with extended family right now so her schooling isn't interrupted. Baby Serenity is with her father and doing well.