Deleted
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Apr 19, 2024 13:34:19 GMT
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Post by Deleted on Aug 12, 2019 4:46:29 GMT
After nearly 3 years of fighting DH's Medicare plan (Humana) to allow him to get an opinion at Moffitt Cancer Center in Tampa, FL (for his bladder cancer that returned 3 years ago & has become highly aggressive), i won!!!! He has an appointment at the end of the month there, right before my next eye surgery on 9/5.
Im trying to set up his patient portal for Moffitt and pull all of his CT scans and tests for the past few years before then, but we're thrilled for this opportunity (4th opinion!!!!). No one will touch him because he's such a high risk, so we want to see what the best course of action is.
Fingers are crossed!! He's had one infection after another & has been fainting a lot bc his primary doctor somehow DOUBLED his heart Rx MG!!!! This is what happens when I'm bedridden for days, in pain!! I feel so guilty for not picking up on her mistake. Anyway onward and upward, I hope!!!! Xo
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Post by nlwilkins on Aug 12, 2019 4:51:28 GMT
Awesome, so happy for you
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Post by femalebusiness on Aug 12, 2019 4:51:39 GMT
Good news is GREAT!!!
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Post by idahopea on Aug 12, 2019 4:54:31 GMT
So happy to hear you get to see a specialist! I cannot believe how many things you both have gone through. I hope this is the beginning of lots of good news for you both! Keep us updated!
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Post by anniefb on Aug 12, 2019 6:28:47 GMT
Great news!
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hannahruth
Pearl Clutcher
Posts: 2,602 
Location: Adelaide, Australia
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Post by hannahruth on Aug 12, 2019 7:59:38 GMT
I'm sorry you have had to fight for so long for just a referral! I hope the wait for treatment is nothing like this fight! I hope you get more positive news at the appointment.
I despair reading at this type of medical woe that you guys have to endure in America. It is appalling that the situation is as it is especially when it is health care. I guess this is what happens when the need basis is financial and not medical. I do truly hope you get a better system sooner rather than later.
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RedSquirrelUK
Drama Llama
Posts: 6,724
Location: The UK's beautiful West Country
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Post by RedSquirrelUK on Aug 12, 2019 8:32:15 GMT
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Post by phoenixcov on Aug 12, 2019 9:57:55 GMT
Good news at last. I really hope this new Doctor will be able to give your DH the help and treatment he needs.
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purplebee
Drama Llama
Posts: 6,725
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Post by purplebee on Aug 12, 2019 10:50:50 GMT
So nice to hear some good news! Hope his appointment is positive and that your surgery is easy and healing is quick.
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Post by Spongemom Scrappants on Aug 12, 2019 10:53:15 GMT
Access to care is critical. It's good he'll be able to be seen by a premier cancer center.
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Post by revirdsuba99 on Aug 12, 2019 12:34:44 GMT
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ddly
Pearl Clutcher
Posts: 3,946
Jul 10, 2014 19:36:28 GMT
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Post by ddly on Aug 12, 2019 12:41:23 GMT
Great news!! Good luck!
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Post by malibou on Aug 12, 2019 12:44:06 GMT
So pleased to hear your perseverance has paid off. Wishing him an appt full of hope and a good plan.
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Post by destined2bmom on Aug 12, 2019 13:49:37 GMT
That is wonderful! I hope that his appointments go well.
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Post by lucyg on Aug 12, 2019 14:11:56 GMT
Great news. Best of luck to him going forward.
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lisaknits
Pearl Clutcher
Posts: 4,338
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Post by lisaknits on Aug 12, 2019 14:19:07 GMT
Great news!
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christinec68
Drama Llama
Posts: 5,109
Location: New York, NY
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Post by christinec68 on Aug 12, 2019 14:30:11 GMT
I am glad it finally came through!!
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Deleted
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Apr 19, 2024 13:34:19 GMT
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Post by Deleted on Aug 12, 2019 15:02:51 GMT
What great news about Moffitt! That's pretty bad about his doctor accidentally doubling the strength of his heart meds though.  |
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Deleted
Posts: 0
Apr 19, 2024 13:34:19 GMT
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Post by Deleted on Aug 12, 2019 15:10:10 GMT
What great news about Moffitt! That's pretty bad about his doctor accidentally doubling the strength of his heart meds though. It is, isn't it?  I traced it back to the Rx bottles and it had her name on it. I spoke to one of the NP's there who pulled DH's chart up and said, "I'm trying to see where his Cardiologist doubled his heart prescription". Umm, his name was never on the bottle!!!!! I'll pull up the old Rx orders and the month where it changed thru the pharmacy for proof, but all of a sudden his primary doctor is treating him very well. This could have been a tragic mistake!!!!!!!!! Thank you!
Thank y'all for your sweet comments! He's only approved for ONE visit to get another opinion, but once my little size 5 foot is in that door at Moffitt, I'm not leaving!!!!!! I will ask all of the questions to their main office, etc., and switch his insurance if we have to. Enough being on a hamster wheel for him while his life hangs in the balance!!!
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Post by roberta on Aug 12, 2019 15:20:38 GMT
Good news!
Best wishes with the appointment
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Post by cadoodlebug on Aug 12, 2019 15:41:21 GMT
Great update!
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smcast
Drama Llama
Posts: 5,288
Location: MN
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Post by smcast on Aug 12, 2019 15:47:43 GMT
All your hard work and diligence is paying off. It is exhausting, one thing after another with a loved one's care and you've had quite the load for your own care as well. I pray you find a treatment plan that is in his best interest.
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Deleted
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Apr 19, 2024 13:34:19 GMT
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Post by Deleted on Aug 12, 2019 16:12:40 GMT
It is, isn't it? I traced it back to the Rx bottles and it had her name on it. I spoke to one of the NP's there who pulled DH's chart up and said, "I'm trying to see where his Cardiologist doubled his heart prescription". Umm, his name was never on the bottle!!!!! I'll pull up the old Rx orders and the month where it changed thru the pharmacy for proof, but all of a sudden his primary doctor is treating him very well. This could have been a tragic mistake!!!!!!!!! Thank you! He is lucky you are so alert! That could have very well have ended differently. |
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Deleted
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Apr 19, 2024 13:34:19 GMT
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Post by Deleted on Aug 12, 2019 16:39:50 GMT
seasidemermaid I TRY to be on top of it all (DD31's disability case and all of her daily needs also!), but my own pain and medical status sometimes takes over. I will get to the bottom of it and hold his primary doctor and her office accountable. We like them a lot, but she has been making grave errors too often now that they've expanded and gotten bigger! Grrrr!!!
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Post by annie on Aug 12, 2019 16:43:08 GMT
That is awesome news!
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Post by unknown pea on Aug 12, 2019 19:51:08 GMT
So glad you finally got some good news!
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Post by librarylady on Aug 12, 2019 22:31:37 GMT
FINALLY!
Hope it all helps his situation.
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Post by cindyupnorth on Aug 12, 2019 23:20:50 GMT
YAY!! I hope it turns out well for you guys!!
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Post by papersilly on Aug 13, 2019 0:14:28 GMT
Good for you guys! Hope you have a good appt.
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scrappinmama
Pearl Clutcher
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Jun 26, 2014 12:54:09 GMT
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Post by scrappinmama on Aug 13, 2019 0:32:41 GMT
That's great! Here's hoping they can provide a solid plan of action!
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I traced it back to the Rx bottles and it had her name on it. I spoke to one of the NP's there who pulled DH's chart up and said, "I'm trying to see where his Cardiologist doubled his heart prescription". Umm, his name was never on the bottle!!!!! I'll pull up the old Rx orders and the month where it changed thru the pharmacy for proof, but all of a sudden his primary doctor is treating him very well. This could have been a tragic mistake!!!!!!!!! Thank you!
