Deleted
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Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 23, 2020 6:01:05 GMT
If his IgE was over 4k, test his triptaste for MCAD!!! And yes, follow the night shade list. From my daughter I found most use soy or yeast in products for GF or vegan.
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PrettyInPeank
Pearl Clutcher
Posts: 4,691
Jun 25, 2014 21:31:58 GMT
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Post by PrettyInPeank on Jan 23, 2020 6:06:10 GMT
I believe smart balance soy-free doesn’t have yeast.
With the exception of the seafood & beef, mushrooms, carrots, & yeast, most of what he’s allergic to in excluded from the Autoimmune Protocol Diet. I highly recommend looking into some recipes if you run out of ideas. It may work really well for your RA as well. AIP is sorta considered an anti-inflammatory diet.
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msliz
Drama Llama
The Procrastinator
Posts: 6,419
Jun 26, 2014 21:32:34 GMT
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Post by msliz on Jan 23, 2020 6:29:53 GMT
I noticed chicken isn't on your avoid list. If you save the chicken fat, you could use it as a butter substitute.
After I roast a chicken, I boil the skin and bones for broth, and then filter through a sieve. The bowl goes into the fridge, and by the next day, the fat has risen to the top and hardened making it very easy to remove.
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Post by malibou on Jan 23, 2020 6:40:43 GMT
In sorry your family is in such turmoil. I have no advice as I have no experience with food allergies other than coconut. I think you are the only other person beside my husband and daughter with a coconut allergy. How does their allergy manifest? As I've gotten older it's getting worse and I'm afraid I'm going to need an epi pen soon. It took forever to figure out what was causing my massively swollen lips, as I don't like coconut. It used to be I needed to ingest it to have a reaction, now anything topical triggers me and my lips and the tip of my tongue swell. If I ingest, my tongue swells almost to my throat. I hate how many beauty products have coconut in them.
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Post by malibou on Jan 23, 2020 6:43:22 GMT
I think you are the only other person beside my husband and daughter with a coconut allergy. My dd and I are severely anaphylactic to coconut, and all other nuts I eat nuts all the time, I'm so glad I'm not allergic to those as well.
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Post by Spongemom Scrappants on Jan 23, 2020 11:55:37 GMT
I really don't have any experience with allergies in our family, but that sure is a daunting list of things he cannot eat. The advice to seek a nutritionist who specializes in allergies is probably spot on. That could save you endless time doing the research on your own.
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teddyw
Drama Llama
Posts: 6,808
Jun 29, 2014 1:56:04 GMT
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Post by teddyw on Jan 23, 2020 12:02:59 GMT
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Post by LisaDV on Jan 23, 2020 12:19:52 GMT
I’m so sorry for what your family is going through. I’ve been down the long list of foods to avoid. For butter with no soy, dairy etc. Earth Balance was our favorite. They make different varieties so make sure it’s the right one. We use EVOO and sunflower oil.
I’ll come back as we had some breads that were good too.
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Post by twistedscissors on Jan 23, 2020 14:03:27 GMT
I think you are the only other person beside my husband and daughter with a coconut allergy. My dd and I are severely anaphylactic to coconut, and all other nuts I’m allergic to coconut even tho I tested negative for it. Very quick reaction if I come in contact. Hives, itching and if it’s in something I unknowingly eat my tongue will swell instantly.
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Deleted
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Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 23, 2020 14:13:22 GMT
I think you are the only other person beside my husband and daughter with a coconut allergy. How does their allergy manifest? As I've gotten older it's getting worse and I'm afraid I'm going to need an epi pen soon. It took forever to figure out what was causing my massively swollen lips, as I don't like coconut. It used to be I needed to ingest it to have a reaction, now anything topical triggers me and my lips and the tip of my tongue swell. If I ingest, my tongue swells almost to my throat. I hate how many beauty products have coconut in them. My husband will get a headache that lasts for days. Daughter gets the head, rash, sore throat.
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Post by revirdsuba99 on Jan 23, 2020 14:35:54 GMT
I did NOT go back and read your list again. But just saw this which might help someone, not necessarily your family, sorry! Water Cake: No Eggs, No Milk, No Butter, No Problemby Paola Toia contributor November 17, 2019 This dessert is a snap to make but very good, especially for children. Try this lite recipe! Want to make a cake, but don’t have much time or many ingredients in the house? Try water cake: this is a lite, simple dessert that doesn’t call for eggs or butter. It’s good for kids because it isn’t super-high in calories, and there are many variations. For example, you can replace the water with orange or lemon juice, or you can add chocolate chips. Water cake is also perfect if you’re feeding vegans, because it contains no animal-products. Here’s how it’s done. Ingredients for water cake12 oz water (or orange juice for more flavor), 3 ½ cups Italian type 00 flour, 1 1/4 cup sugar, 2.8 oz sunflower seed oil, Grated zest of 1 lemon (or the beans from a vanilla pod), 2 tsp. baking powder InstructionsPreheat the oven to 350°F. Sift the flour and baking powder together into a large bowl. Then add the sugar and lemon zest. In a separate bowl, combine the oil and water and mix well. Slowly add the dry ingredients to the water and oil, and mix it all. When the oven is hot, pour the mixture into a greased cake pan and bake for about 45 minutes. Always test the cake with a toothpick in the center before removing it from the oven. If you like, you can dust the cake with powdered sugar. Water cake is a lite and delicate dessert because it contains no eggs or butter. Be sure to sift the flour and baking powder together thoroughly, as this is the base for the batter and they must be evenly combined. Vanilla is not essential but adds a sweet touch to water cake. Slice the vanilla pod down the side and use a small knife to scrape out the seeds. Some people add lemon zest to the cake, but others prefer to add both juice (in place of the water) and zest. ** www.lacucinaitaliana.com/trends/healthy-food/how-to-cook-water-cake-no-eggs-no-milk-no-butter?utm_source=outbrain&utm_medium=cpc&utm_campaign=LCI-desk&dicbo=v1-0d8622059f45a2e2799623491620b483-001d8ad5cd40e00b317ed2d7401695833b-mvstmnrvmfrgkljsgqzweljugi2tgljymq4dollbgqytcmbwmq2dmzrxgu
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Post by yodutchess on Jan 23, 2020 14:39:40 GMT
I follow you on FB, sending positive thoughts. Can you look to some Whole 30 recipes for inspiration too for some that may work in the meantime?
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Post by ntsf on Jan 23, 2020 16:11:42 GMT
I grew up in a family that had a long long list of allergies. not quite your list but close. my dad--with the worst of them--is now 93 and in good health. frankly, the way we made it work was to find a few things that worked and we ate them over and over. we never went out to eat, never went to potlucks, basically always ate at home. mom made things like mayo and whole wheat bread. as in the 1950's and 60's cause very little choice was available in the grocery store.
so, be encouraged.. find several things to make and just start by sticking to them. I grew up eating no poultry, seafood, fish, pork, soy, safflower, tomatoes, chocolate, milk, eggs, spices, -- no mexican no italian no asian food. and lived just fine.
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RosieKat
Drama Llama
PeaJect #12
Posts: 5,374
Jun 25, 2014 19:28:04 GMT
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Post by RosieKat on Jan 23, 2020 21:06:14 GMT
For baking, could you use lard?
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Jan 23, 2020 21:17:00 GMT
Is this list from RAST (blood work) or scratch testing?
Please discuss this with your allergist and let them guide you. Their office should be guiding much of this.
If it is of any help, my brother and I were food allergy kids growing up in the 70's when the general public and schools were not very aware at all. My mother kept a list on the fridge of each of our allergies. Funny thing is that my brother is not genetically related to me at all but we both had our lists. I have been retested several times and can actually eat almost everything I was previously allergic too. Eggs was one of the things I had a low positive to on the skin test but I do eat eggs without an allergic reaction today. My brother is still allergic to some berries, but I doubt he has ever been tested as an adult. So there is hope!
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Post by Skellinton on Jan 23, 2020 21:17:19 GMT
I am sorry, I agree with others to list what he can eat and work from there.
I have weird allergies, and the worst part is that when eating out people look at me like I am either crazy or a liar. Eating out is the worst part for sure, and missing foods I used to eat. Also, for any prepared food read the labels on each and every box, no matter how many times you have bought the product before, I had a reaction to a cereal I had been eating for years because they changed the ingredients. Good look to you and your son. It is not easy, but it is doable.
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Deleted
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Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 23, 2020 21:18:15 GMT
Oh wow!!! Hugs to you. That's some huge list!!!!
About protein: by choice we've all been having plant based protein powder for breakfast & lunch. We add almond milk. I'll have to look at your list again and look at the ingredient s on this protein powder.
I'd also say to get help asap from a nutritionist. Hopefully they'll come up with more safe options.
Hugs to you!!!!
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Deleted
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Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 23, 2020 22:04:56 GMT
Is this list from RAST (blood work) or scratch testing? Please discuss this with your allergist and let them guide you. Their office should be guiding much of this. If it is of any help, my brother and I were food allergy kids growing up in the 70's when the general public and schools were not very aware at all. My mother kept a list on the fridge of each of our allergies. Funny thing is that my brother is not genetically related to me at all but we both had our lists. I have been retested several times and can actually eat almost everything I was previously allergic too. Eggs was one of the things I had a low positive to on the skin test but I do eat eggs without an allergic reaction today. My brother is still allergic to some berries, but I doubt he has ever been tested as an adult. So there is hope! This is the scratch test. I am waiting on results from blood test for food allergies. He “has” been eating everything however with the latest tests we are committing to the challenge as he is in the 0% for weight. I have asked for yrs for him to see a specialist about his weight but until this past Oct when he finally fell of the charts did we get a referral but the appointment isn’t till next month ( 4 month wait list) The one thing I am thankful for is tricare finally let us go back to his old civilian ped whom I loved. In 2012 they made it mandatory to go to a military clinic here at Fort Hood to “save” cost.
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Post by elaine on Jan 23, 2020 22:06:35 GMT
Is this list from RAST (blood work) or scratch testing? Please discuss this with your allergist and let them guide you. Their office should be guiding much of this. If it is of any help, my brother and I were food allergy kids growing up in the 70's when the general public and schools were not very aware at all. My mother kept a list on the fridge of each of our allergies. Funny thing is that my brother is not genetically related to me at all but we both had our lists. I have been retested several times and can actually eat almost everything I was previously allergic too. Eggs was one of the things I had a low positive to on the skin test but I do eat eggs without an allergic reaction today. My brother is still allergic to some berries, but I doubt he has ever been tested as an adult. So there is hope! I can eat a number of things that my skin test said I was allergic to. Interestingly, I am VERY allergic to grass and I ended up skin testing allergic to milk, but the allergist decided - since I have no digestive issues with dairy - that it was probably because the cows ate grass that I tested positive to milk. I also tested allergic to peanuts, but have no issues eating those either. I think that once they had scratched me with the grass (and I swelled up way beyond its square in the grid), it activated my allergic response, and I started having stronger reactions to other things that I wasn’t necessarily allergic to. I also have dermagraphia and it made it difficult to get accurate readings. I agree with Melissa that you should let your allergist advise you. Allergy testing is not 100% accurate - it can be fairly inaccurate: www.healthline.com/health/allergies/rast-test-vs-skin-testwww.mayoclinic.org/tests-procedures/allergy-tests/about/pac-20392895
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Jan 23, 2020 22:08:26 GMT
With all of that, I do also wonder about mast cell activation syndrome, as someone else mentioned. Way out of my wheelhouse though!
Perhaps they can set you up with a dietician with a special interest in multiple food allergies too.
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Deleted
Posts: 0
Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 23, 2020 22:14:02 GMT
Is this list from RAST (blood work) or scratch testing? Please discuss this with your allergist and let them guide you. Their office should be guiding much of this. If it is of any help, my brother and I were food allergy kids growing up in the 70's when the general public and schools were not very aware at all. My mother kept a list on the fridge of each of our allergies. Funny thing is that my brother is not genetically related to me at all but we both had our lists. I have been retested several times and can actually eat almost everything I was previously allergic too. Eggs was one of the things I had a low positive to on the skin test but I do eat eggs without an allergic reaction today. My brother is still allergic to some berries, but I doubt he has ever been tested as an adult. So there is hope! I can eat a number of things that my skin test said I was allergic to. Interestingly, I am VERY allergic to grass and I ended up skin testing allergic to milk, but the allergist decided - since I have no digestive issues with dairy - that it was probably because the cows ate grass that I tested positive to milk. I also tested allergic to peanuts, but have no issues eating those either. I think that once they had scratched me with the grass (and I swelled up way beyond its square in the grid), it activated my allergic response, and I started having stronger reactions to other things that I wasn’t necessarily allergic to. I also have dermagraphia and it made it difficult to get accurate readings. I agree with Melissa that you should let your allergist advise you. Allergy testing is not 100% accurate - it can be fairly inaccurate: www.healthline.com/health/allergies/rast-test-vs-skin-testwww.mayoclinic.org/tests-procedures/allergy-tests/about/pac-20392895I know, when I had my testing in August for outdoor allergies, I also had them do wheat and soy... those two ( wheat/soy) were outrageously positive. Two weeks later when I went to do foods, everything was meg, including my blood tests. We are trying to figure out why his IgE is through the roof. Only way is to take everything out of his diet for a month, see how his asthma/stomachaches are, then do challenges. An odd finding is everyone in the household is deficient in subclass 2, while except for me also has a subclass 1 deficiency. I’m thinking the mold has affected the immune system as everyone but myself tested positive for mycotoxins with the kids had the highest levels.
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Post by elaine on Jan 23, 2020 22:29:00 GMT
I can eat a number of things that my skin test said I was allergic to. Interestingly, I am VERY allergic to grass and I ended up skin testing allergic to milk, but the allergist decided - since I have no digestive issues with dairy - that it was probably because the cows ate grass that I tested positive to milk. I also tested allergic to peanuts, but have no issues eating those either. I think that once they had scratched me with the grass (and I swelled up way beyond its square in the grid), it activated my allergic response... I know, when I had my testing in August for outdoor allergies, I also had them do wheat and soy... those two ( wheat/soy) were outrageously positive. Two weeks later when I went to do foods, everything was meg, including my blood tests. We are trying to figure out why his IgE is through the roof. Only way is to take everything out of his diet for a month, see how his asthma/stomachaches are, then do challenges. An odd finding is everyone in the household is deficient in subclass 2, while except for me also has a subclass 1 deficiency. I’m thinking the mold has affected the immune system as everyone but myself tested positive for mycotoxins with the kids had the highest levels. It sounds like the mold has really negatively affected everyone in the household to varying degree. It is really awful and so much for you to deal with. Seeing if a restricted diet helps makes sense. Hopefully, some of those positive results aren’t accurate and you’ll be able to successfully add some foods back into his diet.
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Post by scrapmaven on Jan 24, 2020 3:20:40 GMT
I don't have any advice, but it would be a good idea to consult w/a pediatric nutritionist. Get an expert on the job, because he or she will have creative ideas and lots of suggestions.
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Post by katiekaty on Jan 25, 2020 23:47:01 GMT
Looks like he can still have pork, chicken and turkey! Silver lining! I have a beef allergy and thought life was over because I ate beef a lot, but have managed to do a lot with these other proteins and now don't even miss them!
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Deleted
Posts: 0
Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 26, 2020 5:17:14 GMT
Looks like he can still have pork, chicken and turkey! Silver lining! I have a beef allergy and thought life was over because I ate beef a lot, but have managed to do a lot with these other proteins and now don't even miss them! yes chicken is a life saver. Can I ask with the beef allergy does it rule out lamb? He wasn't tested so I am just going to assume it is all "red" meats. His first allergist was no help and basically said if he didn't react he could eat it. I say this because his first testing in 2014 included ALL meat, beef, chicken, pork and turkey. This latest testing showed just beef but all the allergies switched up. He has drank milk every single day in large quanities and loves eggs never complained but skin testing shows allergies. He is using almond milk and ate almonds (he has never had almond milk before and don't recall eating almonds) yesterday and complains of stomach pains yet it was neg. on skin testing. I am soooo confused.
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PrettyInPeank
Pearl Clutcher
Posts: 4,691
Jun 25, 2014 21:31:58 GMT
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Post by PrettyInPeank on Jan 26, 2020 15:43:03 GMT
Looks like he can still have pork, chicken and turkey! Silver lining! I have a beef allergy and thought life was over because I ate beef a lot, but have managed to do a lot with these other proteins and now don't even miss them! yes chicken is a life saver. Can I ask with the beef allergy does it rule out lamb? He wasn't tested so I am just going to assume it is all "red" meats. His first allergist was no help and basically said if he didn't react he could eat it. I say this because his first testing in 2014 included ALL meat, beef, chicken, pork and turkey. This latest testing showed just beef but all the allergies switched up. He has drank milk every single day in large quanities and loves eggs never complained but skin testing shows allergies. He is using almond milk and ate almonds (he has never had almond milk before and don't recall eating almonds) yesterday and complains of stomach pains yet it was neg. on skin testing. I am soooo confused. I have not been tested for beef, but react to it. I had some bison, started reacting, and googled it. They’re both are in the bovine family. As for almonds, nuts in general are quite inflammatory, I can’t have any nuts or peanuts without joint pain. Switch him to coconut milk. Try to find one that’s refrigerated with the least amount of ingredients.
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Deleted
Posts: 0
Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 26, 2020 15:50:06 GMT
Looks like he can still have pork, chicken and turkey! Silver lining! I have a beef allergy and thought life was over because I ate beef a lot, but have managed to do a lot with these other proteins and now don't even miss them! yes chicken is a life saver. Can I ask with the beef allergy does it rule out lamb? He wasn't tested so I am just going to assume it is all "red" meats. His first allergist was no help and basically said if he didn't react he could eat it. I say this because his first testing in 2014 included ALL meat, beef, chicken, pork and turkey. This latest testing showed just beef but all the allergies switched up. He has drank milk every single day in large quanities and loves eggs never complained but skin testing shows allergies. He is using almond milk and ate almonds (he has never had almond milk before and don't recall eating almonds) yesterday and complains of stomach pains yet it was neg. on skin testing. I am soooo confused. Lamb is its own test. My skin test had: chicken, turkey, beef, lamb, fish, salmon, shell fish, shrimp. For fish I have to test every fish I eat over a 3 to 5 day period to see if I react. I am allergic to chicken, beef, turkey, fish, shell fish, salmon, shrimp. But not lamb. If he has reactions to nut I would avoid coconut milk.
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PrettyInPeank
Pearl Clutcher
Posts: 4,691
Jun 25, 2014 21:31:58 GMT
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Post by PrettyInPeank on Jan 26, 2020 16:15:00 GMT
If he has reactions to nut I would avoid coconut milk. Why? Many people who have reactions to nuts can have coconut just fine. I’m one of them. He drank huge amounts of milk everyday, and now can’t have dairy, oat milk, soy milk, and probably all nut milks. Poor thing. It’s his last option and definitely worth experimenting with IMO. Also consider a lot of “milks” have gums and thickeners that he could be adverse to instead. I feel not so great with some of them, which is why I suggested the least amount of ingredients. I hope it works for him. The idea of no cereal as a kid makes me sad.
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Post by Skellinton on Jan 26, 2020 16:37:05 GMT
If he has reactions to nut I would avoid coconut milk. Why? Many people who have reactions to nuts can have coconut just fine. I’m one of them. He drank huge amounts of milk everyday, and now can’t have dairy, oat milk, soy milk, and probably all nut milks. Poor thing. It’s his last option and definitely worth experimenting with IMO. Also consider a lot of “milks” have gums and thickeners that he could be adverse to instead. I feel not so great with some of them, which is why I suggested the least amount of ingredients. I hope it works for him. The idea of no cereal as a kid makes me sad. I agree with Prettyinpeank I have terrible reactions to Almonds and soy and can’t drink those milks, but coconut milk is fine. Nut allergies don’t always include coconuts. Coconuts aren’t nuts in any event, they are a fruit.
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Deleted
Posts: 0
Apr 26, 2024 1:36:09 GMT
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Post by Deleted on Jan 26, 2020 16:53:14 GMT
If he has reactions to nut I would avoid coconut milk. Why? Many people who have reactions to nuts can have coconut just fine. I’m one of them. He drank huge amounts of milk everyday, and now can’t have dairy, oat milk, soy milk, and probably all nut milks. Poor thing. It’s his last option and definitely worth experimenting with IMO. Also consider a lot of “milks” have gums and thickeners that he could be adverse to instead. I feel not so great with some of them, which is why I suggested the least amount of ingredients. I hope it works for him. The idea of no cereal as a kid makes me sad. My dd has never had cereal. I guess I don't see cereal as some big deal though. Everyone I know who is allergic to nuts also have issues with coconut, be it tummy issues, eczema, hives, or full on severe reaction at some point. My dd has been allergic to all nuts since age 2. At age 13 she had a severe reaction to coconut.
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