Deleted
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May 18, 2024 9:31:51 GMT
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Post by Deleted on Feb 1, 2021 0:47:23 GMT
Well I have hit the Covid wall. I am surprised it took this long.
I have had one of the kids home all day, every day before under the Home Hospital Program. One time ds was extremely ill and on TPN and Oxygen.
But both kids have been home, ds is teaching from home, I am homeschooling ds on top of 1:1 teacher, I do dd's weekly IgG infusions, she ended up at the ER and has needed more care after along with doctor visits, I am helping her with college application and essays for grants.
I am just being pulled in a lot of places and I don't have my respite anymore. School was my respite. It was my time during the day, away from reality.
How are you all dealing with the extra weight of Covid? How are you getting self care?
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Post by ntsf on Feb 1, 2021 2:54:07 GMT
I just want to say hugs.. my own child with autism is an adult, still living at home but doing ok. the only drag is she lost her wallet in the house so now we have to replace everything.. minor issues.
big hugs.
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kate
Drama Llama
Posts: 5,517 
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
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Post by kate on Feb 1, 2021 3:01:27 GMT
God bless you - it must be so hard!  |
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Post by janniepea on Feb 1, 2021 3:16:32 GMT
We have a son who has Down syndrome and has been home from his program since last year. He has some underlying health issues so we’ve been keeping him home. Literally.
He had a hip replacement in July so apart from all the doctors appointments and hospitalization and a few car rides where we didn’t get out of the car, that’s it.
He sees friends often on Zoom and House Party and that helps but I know he’s anxious to be out.
He and my husband and I are getting the first dose of the vaccine this Wednesday and once we’ve had the second dose plus a few weeks beyond that, we’ll try getting out a little.
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Post by revirdsuba99 on Feb 1, 2021 3:32:12 GMT
I am so very sorry you all are dealing with this mess, not your kids, but the SIP 24/7. There are no easy answers. I had to go out the other day and I felt so free riding around in the car. I decided I should do it more often, of course we are in the begining of a major snow storm, so it is a no go.. Someday it must improve for all of us.
(((((((((((((HUGS))))))))))))) for all.
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Post by angel97701 on Feb 1, 2021 4:08:58 GMT
So sorry @sunnycamom .
My self care is daily walks in our field (we live on property), yoga, and Bible journaling. I also get shiatsu massage once a month.
My special needs kiddo is physically strong and healthy, we just have to have 24-7 supervision and check his room/bathroom all the time. My only respite since Covid sent him home from school in March was Wilderness Therapy (for 100 days at $565/day), we were afraid he would purposefully or accidentally commit suicide. He's been home 5 months from WT, and my only respite has been when I go grocery shopping by myself, or an hour or two when the grandparents have him over. He has FASD an IQ of 78, and we are working towards eligibility with the county and state for some in home mentor time, etc. He starts 2/8 in person learning two days a week so that is going to help! So glad DH has only traveled 3 times in the last 5 months. Before Covid it was almost every other week, so thankful they do all their engineering meetings online. |
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Post by Merge on Feb 1, 2021 4:28:27 GMT
I hear you. Parents are dealing with all kinds of crap right now. Vent away! And hugs. I hope for all our sakes that things get better soon.
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