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Post by putabuttononit on May 4, 2022 11:05:47 GMT
My mil is entering an assisted living facility tomorrow. My fil has dementia and can’t care for her so he asked for her to go. She’s so angry she doesn’t want to even see him, and insisted that NO photos of them be packed to go with her. They’ve always had a beautiful relationship- this is a bit heartbreaking. She is expected to not live through the summer.
My dad has pancreatic cancer that went to the liver. He’s terminal but continuing to fight. He’s angry, and mean to my mom sometimes, who is a saint. She’s scared to lose him and loves him dearly. Married 58 years and now struggling to deal with all of this. Sickness is hurting their relationship.
Is this how the end of life must be? I cried so hard during this last episode. Care-giving is brutal.
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peaname
Pearl Clutcher
Posts: 3,389
Aug 16, 2014 23:15:53 GMT
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Post by peaname on May 4, 2022 11:09:28 GMT
It’s heartbreaking. I work in long term care and I see this all the time. Please make sure you’re connecting with others going through similar hardships and getting professional help if needed it can really weigh on a person.
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Post by mikklynn on May 4, 2022 11:26:45 GMT
It's so hard when everything happens at once. I am so sorry. It's a lot.
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Post by Bridget in MD on May 4, 2022 13:06:14 GMT
It is just awful. Hugs to you.
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Post by mom on May 4, 2022 13:50:20 GMT
I am sorry things are so rough right now. It is a lot to deal with.
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janeinbama
Pearl Clutcher
Posts: 3,174
Location: Alabama
Jan 29, 2015 16:24:49 GMT
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Post by janeinbama on May 4, 2022 15:05:56 GMT
It is overwhelming and then there is the guilt. You are in the trenches so keep digging and remember all the wonderful years your parents and inlaws have had as couples.
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Post by jenjie on May 4, 2022 15:15:13 GMT
I’m so sorry. This goodbye is so hard.
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Post by myshelly on May 4, 2022 15:20:47 GMT
I don’t think it’s the way it HAS to be. I think our society should support end of life choices, but we can’t even stop squabbling about things like being gay, so that’s not going to happen.
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Post by flanz on May 4, 2022 15:23:53 GMT
That's brutal. I'm so sorry.
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Post by deekaye on May 4, 2022 15:25:58 GMT
My heart goes out to you. I'm not there yet but I can see it coming... FIL is getting frail and forgetful and DH doesn't want to have "the talk" to either him or me about what we should be planning.
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Post by beaglemom on May 4, 2022 18:37:16 GMT
Hugs! I am so sorry, I can't imagine how hard this must be on all of you.
slight hijack, but I really wish that we as a society were better about having these conversations and supporting people with end of life care. My inlaws are in complete denail that they are getting older (early 80s) and that they need a plan. The current "plan" is that fil will die and mil will move in with her favorite daughter in a different state. My parents have been actively planning because they don't want to burden us. We have buried all 4 of their parents in the last 5 years, so it is fresh and they know how hard it can be.
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Post by Spongemom Scrappants on May 4, 2022 18:50:02 GMT
I haven't watched that show in years, but I can imagine the episode because I've also seen posts about it on Facebook. We moved my mother in with us (I'm an only child) in late March and started in-home hospice services. While hard, we are all in agreement about the plan and realistic that she is "transitioning to end of life care" as her doctor terms it. I'm grateful for the support from my husband, children, and friends as well as the hospice program. It's not an easy task, but we've talked about feeling privileged in a way to be able to be there for her and with her at this time. putabuttononit - Are either of your sets of parents working with a hospice program? They can provide a lot of resources not only for care, but also for the process of acceptance as things progress along.
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Post by 950nancy on May 4, 2022 18:55:10 GMT
Hugs. It sounds awful. So hard for everyone involved.
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Post by trixiecat on May 4, 2022 19:25:35 GMT
With your father-in-law having dementia, can't he go with her to the assisted living facility where they both could get assistance? I have been there and done this recently, and it is hard in the beginning. My mom and dad lived in family home with 4 acres. Finally at the age of 87 my dad agreed to move him and my mom into a 2 bedroom condo on an assisted living/independent living/nursing home "campus". It was a big adjustment and lucky the person who bought their home took it as is with everything in it they left. Six months after moving in my dad ended up in the hospital. My mom has dementia and thank God there was one room in the assisted living tower to take my mom in until my dad got out. Well my dad came out, on hospice, and moved in with her. Three months later he died. I can't even imagine if this would have happened with them living in their original home. At least my mom had time to adjust to her new surroundings with my dad and ease into everything. She is doing really well now.
My parents had a very real love affair their whole life. Couple like that need to be together until the end. When my dad was getting rehab and my mom came to visit him, he would tell her how much he missed her, missed sleeping with her and how much he loved her. It made me cry because I have nowhere near that relationship with my husband. It was so touching to see.
Now to tell you a quick sidenote, from about 6 weeks since my dad's death my mom has been talking about meeting another guy - ha! Remember, she has dementia and my dad literally took care of her and guided her. I was telling this to a friend and he made a really good comment. People that have a very loving relationship want to be with someone else because they had such a good experience with the first relationship. It made total sense.
I tell my husband we need to buy our cemetery plots now. Maybe pay for our coffins in the next several years. I don't want to put my kids in this situation. It really was unfair to my brother and I. Nothing had been done to make my brother financial power of attorney or make both of us have health care power of attorney. We got that done while my dad was in rehab. facility. The bank accounts were set up all wrong for a situation like this and my brother is still trying to get access to all of them since my mom can't handle the finances.
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Post by revirdsuba99 on May 4, 2022 19:37:20 GMT
Justice Sandra Day O'Connor said how difficult is was to visit her DH in his facility with him talking about his lady friend he met there.
It is not uncommon..
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Post by papersilly on May 4, 2022 20:31:28 GMT
i'm sorry you are going through this. sickness affects relationships beyond just the marriage. there are feelings of helplessness, guilt, stress, exhaustion. when i would hear people say "sick of being sick", i never understood until my mom got terminally ill. it was such a long and painful journey that was only going to end one way. it controlled her, she didn't control it. there came a time when she just got sick of being sick. it made her agitated, irritable, and we felt so helpless and scared to see her that way. it affected all relationships.
i wish your parents peace and comfort through their journey. i wish the same for you.
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Post by lisae on May 4, 2022 21:17:23 GMT
I'm so sorry. There are no easy decisions when it comes to taking care of your parents and you have them all at once. Your FIL is wise to realize he needs help and I hope your MIL adjusts and accepts.
"This is Us" did a good job of showing how devoted spouses can be to the point of sacrificing their own health.
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Deleted
Posts: 0
May 17, 2024 2:35:59 GMT
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Post by Deleted on May 5, 2022 0:59:33 GMT
My mil is entering an assisted living facility tomorrow. My fil has dementia and can’t care for her so he asked for her to go. She’s so angry she doesn’t want to even see him, and insisted that NO photos of them be packed to go with her. They’ve always had a beautiful relationship- this is a bit heartbreaking. She is expected to not live through the summer. My dad has pancreatic cancer that went to the liver. He’s terminal but continuing to fight. He’s angry, and mean to my mom sometimes, who is a saint. She’s scared to lose him and loves him dearly. Married 58 years and now struggling to deal with all of this. Sickness is hurting their relationship. Is this how the end of life must be? I cried so hard during this last episode. Care-giving is brutal. I'm SO very sorry!!! This sounds so tough on both of your parents and so emotional and tough on you. Hugs and thoughts to you.
I just want you to know that sole-care-giving is tough and brutal sometimes, but it's often a blessing and a time where you get even closer to your mate. That's how it was in my case with my DH who passed in November. He only had a very short time to live and he faced it with such bravery and kindness. Still, no matter what, it's TOUGH on both people. It was tough on me physically because I'm disabled with chronic pain, but he was my focus and I cared for him to the best of my abilities until the very end.
I can see where people facing terminal illness often take it out on the loved ones closest to them. I'm SO sorry if your father is handling it that way. I'm sorry for your mom. I hope that she gets help, physically and emotionally. It's a lot to deal with. Hugs again to you too. It's hard to hear people going through such a draining, rough time. xo
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Mystie
Pearl Clutcher
Posts: 4,299
Jun 25, 2014 19:53:37 GMT
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Post by Mystie on May 5, 2022 3:28:45 GMT
i'm sorry you are going through this. sickness affects relationships beyond just the marriage. there are feelings of helplessness, guilt, stress, exhaustion. when i would hear people say "sick of being sick", i never understood until my mom got terminally ill. it was such a long and painful journey that was only going to end one way. it controlled her, she didn't control it. there came a time when she just got sick of being sick. it made her agitated, irritable, and we felt so helpless and scared to see her that way. it affected all relationships. i wish your parents peace and comfort through their journey. i wish the same for you. This was just how it was for my dad; he'd often say he was "sick of being sick." He was diagnosed with brain cancer and died almost six years later, and it was terribly hard for him and for all of us, especially because he was angry a lot. I wish I had comforting words putabuttononit ...these times are sad and scary. Seeing our parents struggle and suffer is terrible because we love them, but it's also a possible preview for ourselves. It's a LOT to process. Please do whatever you can to take care of yourself, too.
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Post by scrappintoee on Jul 15, 2022 23:16:04 GMT
putabuttononit....Wow, I'm sorry that your parents AND parents-in-law have so much anger and illness. Has anything gotten better? I saved your thread to see what others are doing in these situations. My Dad has lived with us almost 3 years, which has been SOOO stressful, only because he has a HORRIBLE temper! He's not rude to *US*, he just yells and cusses when he drops things, can't get his TV to work, etc. He's 91 and has been mostly healthy. He's had a few bad falls, but no serious injuries. DH jokes that Dad will outlive us all! But, the last 3 days, he's in the hospital for sepsis, and went from acutely ill and barely speaking to improving a lot. So, he's physically improving, but I'm at my breaking point for other reasons! His normal anger came back yesterday, I know he HATES being in the hospital, and I just cannot. handle. it. anymore. What makes all of this much harder is dealing with my sister and brother !!!!!!!!!!!! Thank God, my dear hubby is a saint !!! Sis and bro have said for the last 3 years that they know how hard it must be to have Dad living with us. I have told them countless stories of how I cannot handle his RAGE any longer, and it was time to find assisted living, but he cannot afford it. On top of the 3 years that DH and I have dealt with his rage and impatience, now, we may need to deal with long-term care, which---again, he cannot afford. We don't know yet if he'll go to rehab/ SNF for a while, or they'll send him direcently home with us. He's going to need a home nurse to give IV antibiotics for a lonnng time. Just that is freaking him out. Aside from all of that stress, my sister and brother are already upsetting me for soooo many reasons! I just cannot believe how bad they are at dealing with all of this...it's so disappointing! I have explained MANY of the potential health issues he could have, and how many long-term care facilities are ALWAYS under-staffed, and even moreso with Covid. They're not worried at all about what might happen, they are too wrapped up in their own lives in another city. I have been telling them for yearssss that we needed to have PLANS for the future of his care and what it was going to cost, but they just ignored it. And now, here we are. No one wanted to help me plan anything----thanks! Also, I'm angry with Dad that he never got long-term care insurance or even just SOME kind of plan for the future.
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Post by scrappintoee on Jul 15, 2022 23:27:08 GMT
I don't want to put my kids in this situation. It really was unfair to my brother and I. YES! It REALLY is !!!! How did my Dad not think ahead? My family has ALWAYS teased me that I worry enough for everyone, and how I "think too much and over-plan". To make it even worse, they are older than me! Aren't the older kids known to be the most responsible? But they will NEVER acknowledge that I was correct. If they would have bothered to HELP US with some research and made phone calls (like DH and I have), we wouldn't be scrambling to figure out how we're going to afford home care nurses! But no, they're only focused on their own lives 8 hours away. MUST. BE. NICE!
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peaname
Pearl Clutcher
Posts: 3,389
Aug 16, 2014 23:15:53 GMT
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Post by peaname on Jul 16, 2022 15:21:22 GMT
Long term care, assisted living, home care agencies with visiting nursing and home caregivers are all understaffed in my area. I work in a nursing home and the two agencies we refer to for visiting nursing which includes therapy take turns not accepting new referrals because they can’t keep up. I remember when they’d fight over referrals and now they can’t take them it’s a burden. Which is why the Medicare 3 night hospital stay waiver for the public health emergency got renewed. In some cases Medicare beneficiaries can be admitted to a nursing home for rehab without being hospitalized first.
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Post by femalebusiness on Jul 16, 2022 17:16:05 GMT
I don't want to put my kids in this situation. It really was unfair to my brother and I. YES! It REALLY is !!!! How did my Dad not think ahead? My family has ALWAYS teased me that I worry enough for everyone, and how I "think too much and over-plan". To make it even worse, they are older than me! Aren't the older kids known to be the most responsible? But they will NEVER acknowledge that I was correct. If they would have bothered to HELP US with some research and made phone calls (like DH and I have), we wouldn't be scrambling to figure out how we're going to afford home care nurses! But no, they're only focused on their own lives 8 hours away. MUST. BE. NICE! If I were in this situation I would physically pack him up and take him to either sister or brother's house. Tell them you are bringing him and that now it is their turn. When they whine about how they can't handle it tell them to figure it out just like you did.
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Deleted
Posts: 0
May 17, 2024 2:35:59 GMT
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Post by Deleted on Jul 16, 2022 17:23:45 GMT
Thinking of you all.
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Post by epeanymous on Jul 16, 2022 18:15:00 GMT
The last few months of my father's life were about the hardest I have ever dealt with. His unrealistic ideas about care were among them. Financially, logistically, emotionally, all of it miserable for him, my mother, and me.
It has given me the resolve to ensure my kids do not have to navigate what I did. I hope that as I age I am able to do so manageably.
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Deleted
Posts: 0
May 17, 2024 2:35:59 GMT
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Post by Deleted on Jul 16, 2022 18:34:23 GMT
scrappintoee so sorry to hear that things are hard for you too.
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Peal
Pearl Clutcher
Posts: 2,524
Jun 25, 2014 22:45:40 GMT
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Post by Peal on Jul 16, 2022 19:11:30 GMT
Long term care, assisted living, home care agencies with visiting nursing and home caregivers are all understaffed in my area. I work in a nursing home and the two agencies we refer to for visiting nursing which includes therapy take turns not accepting new referrals because they can’t keep up. I remember when they’d fight over referrals and now they can’t take them it’s a burden. Which is why the Medicare 3 night hospital stay waiver for the public health emergency got renewed. In some cases Medicare beneficiaries can be admitted to a nursing home for rehab without being hospitalized first. We have home caregivers helping with my mom while we wait for an opening in a memory care unit (6-8 month wait expected) and the turnover the past year has been enormous. They can't keep employees. Part of the problem I'm sure is the pay is so poor. My sister has considered finding someone who will work off the books just to have consistency. But even those people are overwhelmed with requests. And of course, my mom is going to have an absolute fit when we move her. But, she cannot care for herself and my sister is burnt out trying to juggle it all.
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hannahruth
Pearl Clutcher
Posts: 2,616
Location: Adelaide, Australia
Aug 29, 2014 18:57:20 GMT
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Post by hannahruth on Jul 17, 2022 13:47:24 GMT
It is a very difficult time as our aged parents/loved ones come to end of life situations.
DH and I have purchased our cemetery plots and paid for cremation fees so our DD and DS don’t have to worry about these costs. The rest of the service they choose for us will be up to them. Our wills are up to date and all relevant persons to be notified when the time comes.
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quiltz
Drama Llama
Posts: 6,708
Location: CANADA
Jun 29, 2014 16:13:28 GMT
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Post by quiltz on Jul 17, 2022 14:46:17 GMT
It is a very difficult time as our aged parents/loved ones come to end of life situations. DH and I have purchased our cemetery plots and paid for cremation fees so our DD and DS don’t have to worry about these costs. The rest of the service they choose for us will be up to them. Our wills are up to date and all relevant persons to be notified when the time comes. I have done the same, as a divorced woman and have 1 living child (adult). Although I am still a young Oma, I have made decisions for my more senior years. I have decided that I will *age in place*, in my condo. Everything is one level, I have a large main room with open access to the kitchen. It is paid for and I have enough income for monthly bills. Our Health Care system will provide in home care, if necessary. I have friends in my building and feel safe & secure. My own Oma, decided in 1978 to move into a retirement home. Her relatives in Europe were aghast at her decision UNTIL they came over and saw how lovely the retirement home was. My parents moved into a retirement community and after dad passed, mom moved into a single room retirement home. I am so grateful that they planned for their future and that us kids, didn't have to. I think that it is very selfish of parents who do not make their own decisions and then laden their children with having to make decisions and then the parents object, usually loudly. Be responsible, make your own plans for your life.
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Post by peasapie on Jul 17, 2022 14:52:15 GMT
I'm so sorry. For each of my parents and inlaws it was a different approach, none easy to decide upon, none easy for us to live with -- we always wanted to do better. Be kind to yourself and know you are making the best choices possible within your purview.
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