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Post by stormycat on Jul 27, 2022 13:13:41 GMT
Update!!!!!!
We were all set for surgery this morning, since we were an add on case, we had to wait, and wait.
After the surgeon talked with this afternoon, we got him up to walk again. He seemed to be walking somewhat better, and I was second guessing myself. We spoke with the Dr and we agreed to not go forward with surgery that was explanatory in nature, that we might not have gotten answers anyway.
Quickly they decided there was nothing more to be done as an Inpatient so we were discharged and are now home.
We will follow up with his regular Dr’s and increase his therapy.
Thanks everyone for your love and support
——————/
I know I’m not a well known pea, but I could use all the good thoughts you can spare
1 year ago today I was at Chop (philadelphia) with my 4 year old, as he was going into brain surgery. He suffered a TBI at 5 weeks old at the hands of his birth parents. I was his foster mom at 10 weeks old., then adopted him. He has intractable Epilepsy as the result of his injury, along with CP and he is Visually Impaired. He had the surgery, which was a right hemispherotomy, which is where they disconnected the right side of the brain. He had an amazing recovery and made huge cognitive gains.
Last week he suddenly had a noticeable left sided weakness, that had progressively gotten worse. So here we are at Chop shin, waiting to go to the OR on the sane day we did a year ago. Today they are going to drain some cysts that built up hoping that maybe there was a pressure issue, and this will help.
He is such a fighter, he has beaten all the odds several times over. I just hate this for him. It’s truly unfair. I also adopted his next younger down sibling (13 mo younger) who is having a really hard time with this as well. Broke my heat when my husband told me he asked to sleep in Colton’s bed because he missed him so much.
Jen was such a great support to me lady year, just like she is to everyone. I’m calling on support, thoughts, abd prayers from the peas for my sweet boy Colton. He is the love of our lives and I just want him to be better,
Thanks Heather
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Post by Linda on Jul 27, 2022 13:14:50 GMT
((((Hugs)))) and prayers for Colton and all of you
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purplebee
Drama Llama
Posts: 6,734
Jun 27, 2014 20:37:34 GMT
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Post by purplebee on Jul 27, 2022 13:16:52 GMT
Sending prayers for dear Colton. Hugs…
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gb2015
Full Member
Posts: 150
May 5, 2020 13:29:23 GMT
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Post by gb2015 on Jul 27, 2022 13:17:04 GMT
Praying!! Please do keep us posted!
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Post by jeremysgirl on Jul 27, 2022 13:17:54 GMT
I'm sending my prayers. What a worried mom you must be. I just want to hug you.
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Post by stormycat on Jul 27, 2022 13:18:14 GMT
My sweet boy!
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gb2015
Full Member
Posts: 150
May 5, 2020 13:29:23 GMT
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Post by gb2015 on Jul 27, 2022 13:20:15 GMT
My sweet boy! Oh he is so precious!
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Post by auntkelly on Jul 27, 2022 13:20:23 GMT
I will say prayers for Colton and family. I am so sorry he has to have another surgery.
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anniebeth24
Pearl Clutcher
Posts: 3,551
Jun 26, 2014 14:12:17 GMT
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Post by anniebeth24 on Jul 27, 2022 13:20:29 GMT
Thank you for sharing this so we can pray you through it. Hugs to you and your family.
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Post by playingcinderella on Jul 27, 2022 13:20:44 GMT
Prayers for you and that sweet boy!
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Post by Spongemom Scrappants on Jul 27, 2022 13:21:07 GMT
Oh, that photo... he just melts my heart. I'm sending every warm thought I can to you and your family. I'm glad you reached out to us.
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Post by dmopal on Jul 27, 2022 13:21:24 GMT
He is such a cutie! Prayers for you all!
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Post by auntkelly on Jul 27, 2022 13:22:02 GMT
The picture popped up just as I was posting. He is adorable. It's nice to be able to put a face w/ your prayers.
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Post by mollycoddle on Jul 27, 2022 13:25:33 GMT
You are in my thoughts. Best wishes for a good outcome. {Hugs}
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Post by dewryce on Jul 27, 2022 13:30:10 GMT
What a cutie! I will keep Colton and your entire family in my thoughts.
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Post by KelleeM on Jul 27, 2022 13:31:49 GMT
Prayers for your precious son and the rest of your family. ♥️
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MorningPerson
Pearl Clutcher
Posts: 2,506
Location: Central Pennsylvania
Jul 4, 2014 21:35:44 GMT
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Post by MorningPerson on Jul 27, 2022 13:33:34 GMT
Sending prayers and positive thoughts for Colton and all who love him (especially his sweet brother), and for his doctors and caregivers for wisdom on how to best help Colton.
And a big hug to you Mama. 💕
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luvnlifelady
Pearl Clutcher
Posts: 4,421
Jun 26, 2014 2:34:35 GMT
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Post by luvnlifelady on Jul 27, 2022 13:33:39 GMT
I hope your son recovers quickly from this set back. I will be thinking of your family during this challenging time.
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Post by sabrinae on Jul 27, 2022 13:35:06 GMT
Good thoughts to him and you. I’m sorry you both have to go through this.
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Jul 27, 2022 13:42:56 GMT
He’s adorable! I will be praying for him and his medical team, for wisdom and solutions. And for you and his brother too!
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Post by mom22grlz on Jul 27, 2022 13:44:39 GMT
Praying for Colton.
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Post by paulao on Jul 27, 2022 13:44:45 GMT
Prayers sent to Colton and your family.
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Post by Skellinton on Jul 27, 2022 13:44:50 GMT
What a beautiful boy! Prayers for you and Colton!!!
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Post by GamGam on Jul 27, 2022 13:45:35 GMT
Lots of healing love to your beautiful boy and you and the family.
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Post by librarylady on Jul 27, 2022 13:46:54 GMT
Prayers for you, Colton and all who love him.
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ajax
Shy Member
Posts: 38
Jul 7, 2014 17:54:36 GMT
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Post by ajax on Jul 27, 2022 13:52:12 GMT
Sending good thoughts your way.
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luckyexwife
Pearl Clutcher
Posts: 3,067
Jun 25, 2014 21:21:08 GMT
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Post by luckyexwife on Jul 27, 2022 13:54:15 GMT
Praying!!! His picture is adorable!!!
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Post by quinlove on Jul 27, 2022 13:54:19 GMT
Oh my goodness. Colton looks so cute, and most important, happy. 😊
Sending prayers and love to your precious son and your concerned family 🙏❤️
Is there anything you need or if we can do something for you ? ❤️
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SweetieBsMom
Pearl Clutcher
Posts: 4,612
Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on Jul 27, 2022 13:55:16 GMT
Saying prayers.
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kate
Drama Llama
Posts: 5,517
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
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Post by kate on Jul 27, 2022 13:57:36 GMT
God bless Colton, grant him healing, and guide the hands of his surgeons. And please, God, some comfort for the hearts of his loving family.
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