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Post by friendly on Jul 30, 2023 1:27:29 GMT
I've had it since I was 24 (I'm 59 now) and have spent the last 5 years dealing with brain and nervous system problems. I have tons of autonomic difficulties. The diagnosis this week stopped me dead in my tracks.
I have stage 3b kidney disease. Stage 4 is dialysis and hopefully a transplant.
Can anyone help me? I'm really freaking out here.
Thank so very much for listening.
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Post by christine58 on Jul 30, 2023 1:50:36 GMT
My college roommate has had lupus for 43 years. She’s 65. She also went into to kidney failure and had a kidney transplant about two years ago and is doing very well. Her donor was her sister-in-law who she had no blood relation to.
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katybee
Drama Llama
Posts: 5,378 
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Post by katybee on Jul 30, 2023 12:53:04 GMT
I’m so sorry. That must be terrifying. ((((Hugs)))) to you. Sending you good vibes.
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Post by mikklynn on Jul 30, 2023 12:56:38 GMT
I'm so sorry to hear that!
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iluvpink
Pearl Clutcher
Posts: 4,291
Location: Michigan
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Post by iluvpink on Jul 30, 2023 13:58:55 GMT
No, but I'm sorry you are dealing with it and kidney disease.  I hope you can find help and get good treatment. |
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Post by librarylady on Jul 30, 2023 14:11:25 GMT
I think you meant this for the thread about hangers, not lupus. Opps! Now how in the heck did that get here? Sorry. Do you realize that a post can be deleted? Go to your post, look at the far right with the little drop down menu and you will see delete post as an option (this is using a laptop/desktop). On a phone, it is slightly different but involves the little gear on the right of the post. |
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Post by librarylady on Jul 30, 2023 14:19:17 GMT
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snyder
Pearl Clutcher
Posts: 3,956
Location: Colorado
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Post by snyder on Jul 30, 2023 14:26:22 GMT
Opps! Now how in the heck did that get here? Sorry. Do you realize that a post can be deleted? Go to your post, look at the far right with the little drop down menu and you will see delete post as an option (this is using a laptop/desktop). On a phone, it is slightly different but involves the little gear on the right of the post. Thanks! |
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Post by friendly on Jul 30, 2023 18:21:05 GMT
Thank you so much for your support. I'm glad to hear that someone was able to get a transplant and a return to health. I'll try very hard to stay positive. ❤️
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peabay
Prolific Pea
Posts: 9,616
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Jul 30, 2023 18:56:57 GMT
Wow - yeah, that would be a tough pill to swallow. I'm sorry - I hope everything works out - and quickly!
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Post by friendly on Jul 30, 2023 19:47:18 GMT
Thank you for those links. I just joined Lupus Connect and it's a wonderful online support group. 🤗 |
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scrapngranny
Pearl Clutcher
Only slightly senile
Posts: 4,763
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Post by scrapngranny on Jul 30, 2023 20:09:02 GMT
I’m sorry you are suffering through these struggles. I know nothing about lupus, but I wish you the very best.
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Post by maryland on Jul 30, 2023 23:21:53 GMT
So sorry you are dealing with this worry. I hope you are able to get whatever is needed to get you back to good health. Thinking of you!
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Post by christine58 on Jul 31, 2023 0:46:37 GMT
Thank you so much for your support. I'm glad to hear that someone was able to get a transplant and a return to health. I'll try very hard to stay positive. ❤️ My friend is in great health. mikklynn is a great resource for anyone with kidney issues. She helped me tremendously with my father was first diagnosed with kidney cancer because her husband was going through the same thing and had for many years. Her suggestions for foods to eat and avoid were awesome. |
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Post by friendly on Jul 31, 2023 1:35:15 GMT
Thank you so much for your support. I'm glad to hear that someone was able to get a transplant and a return to health. I'll try very hard to stay positive. ❤️ My friend is in great health. mikklynn is a great resource for anyone with kidney issues. She helped me tremendously with my father was first diagnosed with kidney cancer because her husband was going through the same thing and had for many years. Her suggestions for foods to eat and avoid were awesome. Thank you! I really need some help making my way through the changes I need to make. I've been eating a high protein/low carb diet to prevent diabetes but I think too much protein is really bad for kidney disease. Thank you again for all your help |
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Post by friendly on Jul 31, 2023 1:36:19 GMT
My friend is in great health. mikklynn is a great resource for anyone with kidney issues. She helped me tremendously with my father was first diagnosed with kidney cancer because her husband was going through the same thing and had for many years. Her suggestions for foods to eat and avoid were awesome. Thank you! I really need some help making my way through the changes I need to make. I've been eating a high protein/low carb diet to prevent diabetes but I think too much protein is really bad for kidney disease. Thank you again for all your help How are both of your dad's doing? |
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Post by flanz on Jul 31, 2023 2:41:18 GMT
I'm sending you love and healing vibes.
That must have come as quite the shock!
xo
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