Sarah*H
Pearl Clutcher
Posts: 3,978
Jun 25, 2014 20:07:06 GMT
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Post by Sarah*H on Oct 9, 2023 1:33:41 GMT
I had my second lumbar epidural last week and the doctor who did the epidural told me he will not do any more because I'm too young and it will cause too much long term damage. In addition, although the first injection helped for a few months, this one doesn't seem to have worked. This was all in attempt to buy some time before necessary surgery.
The main doctor I have been seeing for my back issues is an orthopedic surgeon specializing in the spine. I have an appointment next month with a second orthopedic surgeon in the same department. Which leads me to my main question - if you had back surgery, how did you decide between an orthopedic surgeon or a neurosurgeon? I'm starting to wonder if I should get a third opinion with a neurosurgeon.
My second question is, how long did your recovery take? How long until you were able to get around the house safely on your own? How long until you could return to work?
And my final question is, did it work and how well did it work? I swear I have heard so many back surgery horror stories/failures over the last couple months that I'm wondering why anyone undergoes the surgery.
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Post by FrozenPea on Oct 9, 2023 3:29:59 GMT
I had a discectomy and interbody spacer/graft insertion at L3-L4 and L4-L5 levels. This was through an incision on my side. I was supposed to have another surgery 2 days later at L5-S1 with another spacer and some additional hardware but the first surgery removed all my pain and I was able to walk with no problems. That was on 2019.
I have no regrets at all & no problems since.
I was walking around the hospital before I left with a walker and at home for about 2 weeks. I started PT @ 4 weeks to build strength back in my legs and core.
I don't work but back to household chores at 6 weeks and driving then as well.
I went to a neurosurgeon that my pc recommend.
I had incredible tinging and numbness in my legs and feet. I was barely able to sit or walk without pain before surgery. Surgery was the best thing I did.
Good luck with your decision. Feel free to message me with any questions.
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Post by pjaye on Oct 9, 2023 3:53:37 GMT
In one job I had I worked with a spinal surgeon, he was also an orthopaedic surgeon who went on to specialize in spinal surgery, His patients all did really well post-op, and never had any complications that I saw. He also used to operate on a lot of athletes and Olympians. He did back surgery on 2 of our gold medal swimmers, so he was always my first choice. I saw him when I had an episode of loss of power in my left leg, but that ended up improving with conservative treatment.
Then 5 years later when I woke up in excruciating pain - he was overseas. I ended up in ER and had a back-up neurosurgeon that I was referred to (that a friend had surgery with), the ER Dr was happy to refer me to him, but he recommended another surgeon on staff there, I asked him if that was just because it was easier or if he had a reason...he told me he sent his own mother to him to have her surgery. He was also an orthopod, who specialized in spines and was head of the spinal surgery unit. I was admitted to hospital on a Sat at 10am and he came to see me 2 hours later. he answered my questions and I liked him, plus I couldn't walk so that sped up my decision. Personally I don't think it matters as long as spinal surgery is their primary practice. I wouldn't go to an orthopod who does mainly joint replacements, nor would I go to a neurosurgeon who does mainly brain tumours. If they are older and have plenty of spinal surgery experience, then they are both capable of doing the exact same surgery. Also go with someone you have a rapport with, you need to feel relaxed and able to ask questions etc.
My decision to have surgery was swayed by knowing 2 people who also had back issues, who both didn't want surgery and pursued all the other options first - and they both had outcomes I wouldn't have been happy with. One ended up with a limp and one got addicted to pain meds and it took her a year to get off them again. And despite trying all the other stuff - physio, chiro, injections etc, both needed surgery at the end anyway. I'm a "lets just get it over and done with in one go" type personality.
I had a decompression laminectomy at L4-5 & L5-S1 and a microdiscectomy. I recovered really well, although initially the pain was still quite bad, at least I could walk to the toilet. I went to stay with my mother for 3 weeks after the surgery, my instructions were to go for short walks (inside the house) and to be in bed about 80% of the time. I was on slow release narcotic pain medication for about 3 weeks and took regular OTC meds as well. I saw him after two weeks and he was happy with everything and said I could gradually increase my exercise. I had no physio because my surgeon doesn't like them. I stayed with my mother for another week and then went home alone. I did get shopping and premade meals delivered for several weeks, and I gradually started going for short walks outside the house etc.
I'm a nurse, so obviously needed to be quite a lot better than people in other jobs before I could return to work. I had 3 months off, then started back on a return to work plan where I did one shift of 4 hours per week, then increased to 2x4hrs etc...over the next 6 weeks until I went back to my regular hours of 5x9hr shifts in two weeks.
If I over do it (for example a busy shift where I barely sit for 9 hours and almost do 10,000 steps), then I do get some pain in my back and down my leg...but that's fixed with some rest and OTC meds. I don't have any ongoing problems and no regular pain. I have zero regrets about surgery, healed well, had no complications and no ongoing pain. I don't need to take any pain medication apart from occasional OTC simple pain meds. I don't have the walking tolerance that I used to, and even 5 years later I am still mindful of how I move, I bend slowly at the knees, don't twist etc and I limit the amount (weight) I pick-up or carry (generally nothing over 5kg...except for the cat!) I never forget I've had surgery and even though mine was completely successful, I have no desire to do it again.
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katybee
Drama Llama
Posts: 5,378
Jun 25, 2014 23:25:39 GMT
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Post by katybee on Oct 9, 2023 6:17:06 GMT
I had a discectomy on my L4 and L5. My surgeon was an orthopedic surgeon, but he only works on neck and spine issues. My nerve damage was so bad it was starting to interfere with my bladder and bowel. I was scheduled to have the surgery and my surgeon ended up bumping it up two weeks because he was afraid I would have permanent damage. It was very successful. They get you up in the hospital and MAKE you walk. It was very painful for the first week or so, but it got better everyday. I haven’t had any major issues since and it’s been 15 years. Of course, the more complicated the surgery, the longer the recovery—mine was only a discectomy.
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Post by peasapie on Oct 9, 2023 11:18:54 GMT
My son had a laminectomy and fusion when he was 25. He had it done at HSS and the doctor was an orthopedic specialist and did a great job.
My son has some residual back stiffness, but that is because the dr said he would have liked to fuse one more vertebrae but felt my son was too young and he didn’t want to do that at his age.
If they are just doing a laminectomy, the recovery is much easier and quicker. With a fusion it takes longer. The first week was tough for him as the pain meds made him nauseous. Overall it took two weeks before he could be without his father or me caring for him.
That was 14 years ago and he would 100% do it again. It made a huge difference. Personally, I’m a huge fan of HSS because that’s their specialty and I know several people who have had their surgery done there. We are on the East Coast and I’m not sure where their other locations are.
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Post by littlemama on Oct 9, 2023 11:27:20 GMT
Follow the post op instructions and do what the PT and OT tell you to do!
My stepdad had a ridiculous number of back surgeries because he didnt follow directions.
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Post by Tearisci on Oct 9, 2023 15:23:39 GMT
I had a laminectomy between L4-L5 because a disc had ruptured. It was a fairly easy surgery and I did stay overnight just because I was the last surgery of the day. I had to wear a back brace for a couple of weeks but as soon as they removed the piece that was impinging on my sciatic nerve, I felt immediate relief. Walking as much as you can seems to be what the doctor ordered for me which wasn't much the first few days after the surgery but I gradually built up.
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Post by Patter on Oct 9, 2023 16:09:55 GMT
I had a laminectomy between L4-L5 in 2020 right before Covid hit. My nerve was being crushed literally. I went to my daughter's neurosurgeon who did her spinal fusion. He is AMAZING. Wouldn't go to anyone else. I left the surgery center walking. He was not sure I would regain the feeling in my foot but I have. I went from a 7+ on the pain scale to about 2 each day. He said my spine is very unstable now because the piece of bone he had to remove was very large. He said I may eventually need a fusion but I am holding off as long as I can. I want to avoid that. I can function now though. I don't know where I would be had I not had spinal surgery. The injections were worthless. I am SO thankful I did it.
I also referred a friend of mine to this particular neurosurgeon, and she just had her cervical spine fused about 6 weeks ago. She is doing amazing!
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The Birdhouse Lady
Drama Llama
Moose. It's what's for dinner.
Posts: 7,175
Location: Alaska -The Last Frontier
Jun 30, 2014 17:15:19 GMT
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Post by The Birdhouse Lady on Oct 11, 2023 0:17:59 GMT
I had a laminectomy and spinal fusion last October. It's been almost one year and it is amazing how much better I am. It was literally the best thing I have ever done for myself. I used a neurosurgeon.
I had a couple of problems, severe spinal stenosis, and something called spondylolisthesis. It is when a vertebra slips out of place onto the vertebra below it. My nerves were being crushed causing severe pain, numbness and tingling.
It was a 6 week recovery. No bending, no lifting, no twisting, no driving. I was up and walking the day after surgery. Lots of walking was encouraged.
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Post by dewryce on Oct 11, 2023 0:23:47 GMT
Follow the post op instructions and do what the PT and OT tell you to do! My stepdad had a ridiculous number of back surgeries because he didnt follow directions. Seconded. DH, an OT, sees this same thing in hips all the time. His residents are older and not having back surgeries, but he says it’s the same. Good luck! Also, I am of the opinion that an additional medical opinion is a good thing. Especially since it could be someone outside of your current practice. This other practice might like different protocols for various reasons so becoming familiar with them could only help, I’d think. And for me personally, I’d feel more confident in my decision if the different types of doctors and different practices were in agreement.
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Post by karenlou on Oct 11, 2023 1:20:08 GMT
Do get another opinion from a neuro surgeon… I am an OR Nurse with 40 years experience…..cannot hurt to get a different perspective. You need to make an educated decision!!
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Post by Jen in NCal on Oct 11, 2023 19:19:47 GMT
My chiropractor recommended I talk to my neurologist who referred me to a neurosurgeon. I had a L4-L5 extreme herniation. I was released from PT early but I do have permanent damage to my L5. It's not bad enough to hinder anything I want to do.
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Post by Lexica on Oct 11, 2023 21:05:30 GMT
Which leads me to my main question - if you had back surgery, how did you decide between an orthopedic surgeon or a neurosurgeon? I'm starting to wonder if I should get a third opinion with a neurosurgeon. I was referred to a neurosurgeon. I think it was because there was a lot of nerve involvement. My second question is, how long did your recovery take? How long until you were able to get around the house safely on your own? How long until you could return to work? I was able to get around the house pretty well after about a week. I did not return to work for several months though. And my final question is, did it work and how well did it work? I swear I have heard so many back surgery horror stories/failures over the last couple months that I'm wondering why anyone undergoes the surgery. I was in horrific pain. I knew I could not live too much longer with that pain level. When I asked my neurologist what would happen if I postponed the surgery for as long as I possibly could, she said given where was at that present time, it wouldn’t be too much longer before I lost the ability to walk and lost bowel and bladder control. I scheduled the surgery. In my case, the neurosurgeon was very successful in correcting all of the issues in my spine. But by the time I got into surgery my nerves had been compressed for so long and were permanently damaged. They explained it by saying to picture a nerve like a piece of cooked spaghetti. Once that spaghetti has been smashed down, you cannot ever make it normal and round again. I am on pain medication for the rest of my life. It was horrible in the beginning because I was put on some strong pain meds, but they were not extended release. It was like a roller coaster with the pain ramping up before it was time for my next pill. I was very careful to take all medication by the clock so that I remained within my allowed dosage. If I took it every time I needed one, I would have run out before it was time for a refill and I would have been a full-blown addict. I was terrified of becoming an addict so I was super careful with taking them by the clock. Then once I took the pill, it took about 30 minutes to feel adequate relief. That relief lasted about 3 hours and the pain gradually got worse until it was time for the next pill. All day and all night, I experienced relief in 3 hour increments bookended by increasing pain. I never slept through the night, laying awake and in pain until the time was acceptable for the next pill. I was seriously considering checking out. Then I was put on a time-released morphine and it gave me my life back. I now take a Vicodin about an hour before the morphine is due to wear off. The morphine is good for 12 hours so I just need a Vicodin twice a day to get me through the transition between morphine pills, one in the morning and one at night. It has made all the difference in the world. I am never completely pain free, but it is not as bad as it once was, so I can live with that. I am so happy that I did get the issues fixed before I lost bowel and bladder control and the ability to walk. I just wish I had gotten the surgery months before I did. I didn’t know that no amount of physical therapy would help me until the surgeon showed me my films and fully explained what I was dealing with. I think if I had gotten into surgery sooner, I might have been fixed before being left with chronic pain. So yes, I still live in some pain, but everybody has something they deal with, right? This is just mine. And the time released pain meds make it so much more bearable. Although with all of the issues with people becoming addicted to oxy, my insurance put a maximum dosage level on all pain patients. They had to cut mine in half! I do sparingly use OTC pain meds too but I am careful with those due to potential organ damage. Good luck!
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