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Post by stacmac on Jun 10, 2015 5:00:08 GMT
Yes, I do and I have the medication (naramig) to take at the onset of symptoms. I have to take it STRAIGHT AWAY at the first sign or it doesn't work as effectively.
I wish I had some info to help for you. My last migraine I thought I might be having a stroke and called an ambulance. So embarrassed afterwards when my classic migraine symptoms came out but better yo be safe! I'm so sorry for your daughter, how awful.
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Post by stacmac on Jun 10, 2015 5:00:53 GMT
Was going to say, can you get to see a good neurologist?
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Post by jumperhop on Jun 10, 2015 5:12:00 GMT
How many days out of the month does she have a migraine?
Has the Dr ordered an MRI?
Jen
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garcia5050
Pearl Clutcher
Posts: 2,729 
Location: So. Calif.
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Post by garcia5050 on Jun 10, 2015 5:36:31 GMT
Poor girl. I do know what it's like. I started getting them at 11 years old, but I only got them for about 5 hours once every three months. From 14 to about 24, I had maybe a dozen migraines that scared me. In addition to being numb on my left side (rarely the right) I became unable to talk. It was a terrible feeling. I knew what I meant to say, but nonsense came out of my mouth.
I didn't like taking any medicine. If I let the migraine run its course, it would go away for this 'episode.' If I took medicine, the migraine would come back the next day, even stronger. But everyone is different.
I finally persisted at the doctor when I was in my late 20's. By then, I had a couple of migraines that lasted 3 days. The doctor said that in order to get the good medicines, I had to start at the bottom of the list. He put me on beta blockers. I took them for 3 months, but still got migraines during that time, so I stopped after the three months. Ever since then, my migraines have very little pain, and now I only go temporarily blind for about 20 minutes. I always did have the aura/flashing lights, but it was just one of the many symptoms of my migraines. Now it's the only one.
I hope your doctor is able to find something that works well for her.
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Post by lattemomof3 on Jun 10, 2015 11:33:14 GMT
I think I'll schedule an appointment with a neurologist asap. It looks like there are some that deal with the hemiplegic, stroke like migraines in the Denver area, which is about 5 hours from us. We're in small town NE and would have to drive far for a good neurologist anyway. Not sure how to choose which one, guess I'll do some more Internet research. Her migraine yesterday lasted 7 hours:(.
Jumper hop, at their worst, last winter, she was getting them about 3 times a month. She was a starter on the jr high basketball team, but had to let another girl take her place because of missing too many games and practices. She's an A student so she had to make up a lot of missed school and that bothered her a lot. After having her tonsils out in Dec of 2013, weirdly, she didn't have another migraine for 6 months, then she started getting them, but they weren't as severe and didn't last as long. She had a few last summer, and maybe 2 or 3 this winter, but now they are severe and last all day again, and the last 2 have been only 8 days apart.
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blue tulip
Pearl Clutcher
Posts: 2,986
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Post by blue tulip on Jun 10, 2015 11:37:14 GMT
I see a nucca practitioner for my headaches. they are adjustments to the axis vertebrae only, no back cracking or anything. and they are such light adjustments you think they aren't doing a thing, in fact we call the doctor the witch doctor since it seemed like BS. but we went there on a strong recommendation from a couple friends who had migraines, and you know what? it DID work. I do every 3-4 weeks for a touch up adjustment, but my number of headaches is way way down. now my 10 yr old goes there for his headaches as well, and they have been reduced way down. with the way she has arm numbness and that her tonsillectomy helped (which would've involved manipulating her head and neck and changing that axis) leads me to believe that that would help her too!  |
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Post by lattemomof3 on Jun 10, 2015 11:40:51 GMT
Poor girl. I do know what it's like. I started getting them at 11 years old, but I only got them for about 5 hours once every three months. From 14 to about 24, I had maybe a dozen migraines that scared me. In addition to being numb on my left side (rarely the right) I became unable to talk. It was a terrible feeling. I knew what I meant to say, but nonsense came out of my mouth. I didn't like taking any medicine. If I let the migraine run its course, it would go away for this 'episode.' If I took medicine, the migraine would come back the next day, even stronger. But everyone is different. I finally persisted at the doctor when I was in my late 20's. By then, I had a couple of migraines that lasted 3 days. The doctor said that in order to get the good medicines, I had to start at the bottom of the list. He put me on beta blockers. I took them for 3 months, but still got migraines during that time, so I stopped after the three months. Ever since then, my migraines have very little pain, and now I only go temporarily blind for about 20 minutes. I always did have the aura/flashing lights, but it was just one of the many symptoms of my migraines. Now it's the only one. I hope your doctor is able to find something that works well for her. Sounds similar to DD's, I told her to be sure to come get me as soon as she thinks she's getting one, so she could take her medicine. Supposedly it only works if you take it right away. DD told me at the onset of one, she gets blurred vision, and then she can't think or speak right well enough to call out for help:(. She doesn't like to take the medicine anyway, because she always vomits at least once, if not several times during her migraine, and she is afraid the med will make her more nauseous. I'm glad you seem to have outgrown your worst symptoms. |
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peaname
Pearl Clutcher
Posts: 3,389
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Post by peaname on Jun 10, 2015 12:16:39 GMT
Poor girl. I do know what it's like. I started getting them at 11 years old, but I only got them for about 5 hours once every three months. From 14 to about 24, I had maybe a dozen migraines that scared me. In addition to being numb on my left side (rarely the right) I became unable to talk. It was a terrible feeling. I knew what I meant to say, but nonsense came out of my mouth. I didn't like taking any medicine. If I let the migraine run its course, it would go away for this 'episode.' If I took medicine, the migraine would come back the next day, even stronger. But everyone is different. I finally persisted at the doctor when I was in my late 20's. By then, I had a couple of migraines that lasted 3 days. The doctor said that in order to get the good medicines, I had to start at the bottom of the list. He put me on beta blockers. I took them for 3 months, but still got migraines during that time, so I stopped after the three months. Ever since then, my migraines have very little pain, and now I only go temporarily blind for about 20 minutes. I always did have the aura/flashing lights, but it was just one of the many symptoms of my migraines. Now it's the only one. I hope your doctor is able to find something that works well for her. Sounds similar to DD's, I told her to be sure to come get me as soon as she thinks she's getting one, so she could take her medicine. Supposedly it only works if you take it right away. DD told me at the onset of one, she gets blurred vision, and then she can't think or speak right well enough to call out for help:(. She doesn't like to take the medicine anyway, because she always vomits at least once, if not several times during her migraine, and she is afraid the med will make her more nauseous. I'm glad you seem to have outgrown your worst symptoms. Maybe the nasal spray would work better for her. |
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caro
Drama Llama
Refupea 1130
Posts: 5,222
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Post by caro on Jun 10, 2015 13:51:16 GMT
I'm sorry for your DD. the aura before a migraine is scary for me because my first thought is stroke. Then the pain starts and I realize it's a migraine.
At the onset of the aura, I have enough time to take 4 liquid gels ibuprofen. It works well for me and lessens the timeframe of the pain.
I hope you can get in to see a good neurologist.
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Post by katiekaty on Jun 10, 2015 22:32:34 GMT
These are called hemiplegic migraines. I get them. Sometimes they will cause numbness in my left arm or left eye lid droop. I take Topamax as a preventative. I have a neurologist that I see that specializes in hemiplegic migraines. This type of migraines does not increase the risk of stoke. It is just a very strange feeling.
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Post by crimsoncat05 on Jun 10, 2015 23:34:33 GMT
those sound horrible! I get the classic visual aura with mine, but never get actual nauseous-sick, thank goodness. (knock on wood, lol!)
could they have a hormonal connection?? It doesn't sound like it, since she gets multiple ones a month, but could they coincide with her menstrual cycle in any way?? If so, could you possibly think about regulating her hormone levels with birth control pills?
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Deleted
Posts: 0
May 18, 2024 13:29:01 GMT
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Post by Deleted on Jun 11, 2015 0:56:49 GMT
I had two in the last week. They were caused by me taking the medication SERAX. (My dr prescribed it for sleep. I took it for a few nights and had throwing up headaches in the AM. I thought I just had to get used to it.) Now I take nothing to help me sleep. Nothing at all. Come 11:30 or midnight I fall asleep on my own. I just do and I am good. I don't know what is different but I do feel better for sure. I woke up this morning and yesterday refreshed! Is she taking any sleep meds? This caused my problem. I don't know about her's though  I hope you get some answers. I take Axert for migraines and it works well! |
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Post by jumperhop on Jun 11, 2015 1:29:18 GMT
Have you asked about birth control? I heard it can help even out the hormones.
Jen
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tincin
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Jul 25, 2014 4:55:32 GMT
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Post by tincin on Jun 11, 2015 2:23:21 GMT
DD16, who is just the sweetest kid, has been battling migraines for about 3 years. I've taken her to a Dr, and he gave us some meds to take at the onset of one, but they don't help. When she gets a migraine, her vision gets blurry, she gets confused and disoriented, and her arm and sometimes her face get tingly and then go numb. We have also tried the chiropractor without much success. She had her tonsils out a year ago, which strangely did seem to help for a while, but now she is getting them again. She's had 2 migraines in a 7 day period, and they last a good 5 hours or more. I'm getting worried, when I googled her symptoms, it really seems as if she has hemiplegic migraines, which doesn't sound good. Any peas familiar with these? TIA My XH suffers from hemiplegic migraines. They are nothing to play with. The primary thing you need to remember is that if she suffers from it, it is caused by constriction of her blood vessels instead of dilation of the blood vessels and she should NEVER be given vasoconstrictors to help the migraine. They can cause additional damage by constricting the blood vessels even further. She needs to be seen by a neurologist ASAP. The migraines can cause permanent damage and should be treated as quickly as possible. |
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Post by fridaycat on Jun 11, 2015 3:32:18 GMT
I'm not totally sure of the details but can find out if need... a teacher friend of mine just had surgery because her migraines got so bad. She would have spells of slurred speech and one side of her face would droop. Once at school just a couple months ago she dropped her class off at music and then couldn't remember where she left them a half hour later. It was very scary and it wasn't long after that that a surgery was scheduled because this went way beyond, yet was still related, her migraines. She spent several days in the hospital after surgery and is now recovering at home.
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Post by scrapsuzy on Jun 11, 2015 5:41:46 GMT
My dad has had that kind of migraine, and 2 of my sons have atypical migraines. They all have seen a neuro-ophthamologist who has really helped them.
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M in Carolina
Pearl Clutcher
Posts: 3,128
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Post by M in Carolina on Jun 11, 2015 5:54:03 GMT
I got those and then had an actual stroke. It turned out that I had a Patent Foramen Ovale (PFO) hole in my heart. I had been on beta blockers for years and have had several cardiac echos.
The hole didn't show up in the regular echo but did in the trans-esophogeal echo my neurologist team did when I was in the ICU after my stroke.
I had a patch put in my heart, and now everything is better.
My migraines have all but disappeared since I've gone into menopause since my hysterectomy.
Migraines are a stroke risk, and I can't take vasoconstrictors. When my migraines would get really bad or not get better in 24 hours, my neurologists insisted that I go to the ER for pain medication and to be checked out.
I had a hard time with rote memorization in school--especially after having to run to class. My neurologists say that I probably had hundreds of TIAs that were occuring in a part of my brain that didn't give me a lot of physical symptoms. My tachycardia made me feel so badly anyway, that I couldn't have been able to tell if I felt bad because of the reduced blood flow from my heart or because I was weak from a TIA. I'd be better within a few hours.
I am at a higher risk of having another stroke even though my heart is patched. My dh is really good at doing the neuro checks--having me squeeze his hands, smile at him, etc. when I don't feel good. It is pretty scary sometimes. I'm just glad that I got my heart fixed--and I was at the one hospital in the country that did the patch by catherization instead of open heart surgery. God really looked out for me because open heart would have been a huge ordeal with my other health issues.
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my3freaks
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Posts: 3,206
Location: NH girl living in Colorado
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Post by my3freaks on Jun 11, 2015 7:44:17 GMT
I took her to our regular Dr today, and he also thought it was time for her to see a neurologist in Denver. I hope they call to set up an appointment tomorrow. Thanks peas! I'll let you know what we find out, I'm really thinking she has the hemiplegic migraines. I sure wish there was some better treatment options for that, other than trying hit or miss meds with bad side effects. An MRI will at least hopefully rule out some other scary things that it could be. ETA- the migraines are very random and don't seem to be hormonal, but, DD does track and cross county, so her periods aren't consistent. We saw our Dr about that last year, and he said it is fairly typical in girls who run a lot. She has a thin frame, but eats like a horse, (oh to be young!) so he wasn't worried. She usually gains about 7 pounds back in the winter, in between XC and track, and then her period appears again. When you have names, I can ask around to a few people and see if they can tell me anything about the doctors to pass along to you. (I live right outside Denver). I take Maxalt MLT at the start of a migraine. It's a small tablet that goes under my tongue and gets absorbed. They work well for me. They'll help with the migraine, but I have other weird feelings for a while afterward. They're not my favorite, but they beat the hell out of having a migraine for even 10 minutes. About 7 months ago, my PCP stated me on Topamax, to try and prevent migraines all together. I'd say it's cut out 80% of mine. It also might be the only med I take that has potential side effect of weight loss, which I've had some of since I started it, and making changes to my diet around the same time. |
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31jackson
New Member
Posts: 2
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Post by 31jackson on Jun 11, 2015 13:31:45 GMT
Wow, some of you have really been through the wringer with migraines and other migraine related problems, so sorry you have to go through it. I've been doing a lot of research on them the past few days, it's crazy how many factors there are, and how many different things can trigger them.
If you look on amazon under "migraine relief", there are hundreds of products, from pillows to herbs, that might help. I won't have DD take any herbal supplements or vitamins without asking the neurologist about them first, as some could be hard on the liver or cause other problems.
Medical issues really are a mysterious process of elimination aren't they?
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I hope you get some answers. I take Axert for migraines and it works well!
Southern Side eyed Pea 