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Post by compwalla on Jul 9, 2015 14:33:19 GMT
I had some follow-up scans last week and they found spots on both my right lung and on my liver. This is not good news because if these spots are related to my original tumor it moves me from stage II to stage IV. The five year statistics for stage IV adrenal corticol carcinoma are depressingly grim. But the plan is to remove both spots. We're doing the liver one with a needle procedure called radio frequency ablation and if we can do the lung one the same way, we will. If not, my oncologist thinks they will be able to get it out using the robot so it will be minimally invasive laparoscopic surgery so much easier than my last surgery.
I have to consult a thoracic surgeon (tomorrow) to see what the options are. I am also scheduled for a PET scan tomorrow to see what else might be happening. Once the spots are out and if pathology is confirmed I start oral chemotherapy which I will stay on indefinitely. The weirdest thing is that since my main tumor was removed and I'm nearly recovered from that surgery, I feel better than I have in months but technically, I'm sicker than I've been yet.
We had a few days of boo-hooing and I'm still reeling from this news but my family is rallying and I have a lot of support from friends near and far. My doc said stage four is scary but there are different kinds of stage four and we have a good plan for my treatment that gives me the best chance I have at a good outcome. I was worried about whether I could take the vacation I had planned for next week but he told me to take it and that they would work my appointments around it. I have a feeling he encouraged me to stick to my plans because he knows shit's about to get real.
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Nicole in TX
Pearl Clutcher
Posts: 2,951 
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Post by Nicole in TX on Jul 9, 2015 14:35:21 GMT
You will be in my thoughts and prayers. You have an awesome attitude which is your best weapon in fighting this crap.
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freebird
Drama Llama
'cause I'm free as a bird now
Posts: 6,927
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Post by freebird on Jul 9, 2015 14:36:46 GMT
I am praying for you and your family. You are such a strong woman, I know you will do well.
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luckyexwife
Pearl Clutcher
Posts: 3,067
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Post by luckyexwife on Jul 9, 2015 14:36:51 GMT
Wow...I'm so sorry about the latest news. I'm glad your family is rallying around you! Lots of positive vibes coming your way! I hope you are able to relax and have a fabulous vacation!
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Post by Darcy Collins on Jul 9, 2015 14:37:01 GMT
I'm sorry - cancer sucks. One day at a time.
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Post by lucyg on Jul 9, 2015 14:37:07 GMT
I have faith in you. Be strong. Much love and high hopes!!
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Post by bearmom on Jul 9, 2015 14:38:47 GMT
You will be in my thoughts and prayers.
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Deleted
Posts: 0
May 17, 2024 16:17:18 GMT
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Post by Deleted on Jul 9, 2015 14:39:27 GMT
thoughts and prayers to you!
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Post by kristi521 on Jul 9, 2015 14:39:34 GMT
I am so sorry to hear about the spots that were found. I will keep you and your family in my thoughts and prayers.
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Post by gar on Jul 9, 2015 14:39:45 GMT
Really sorry you're having to deal with this. All good wishes coming your way for a strong and successful fight!
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Post by pelirroja on Jul 9, 2015 14:39:57 GMT
Take the vacation and have a great time. Being surrounded by the love of your family and friends will help you kick-ass and take names. Knowledge is scary (I totally get the boo-hooing part) but knowing exactly what you're up against will help you formulate a battle plan. My thoughts and prayers are with you. Stay strong.
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scrapgirl
Junior Member
Posts: 90
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Post by scrapgirl on Jul 9, 2015 14:39:57 GMT
I'm sorry to hear this update. Best wishes as you continue to fight the battle. May you find strength to fight, support from those you love and hope for long term healing. (hugs)
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Post by coffeetalk on Jul 9, 2015 14:40:08 GMT
I'm so sorry. Hugs to you. I hope you have a wonderful, relaxing vacation and enjoy every bit of it.
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eastcoastpea
Prolific Pea
Posts: 9,252
Jun 27, 2014 13:05:28 GMT
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Post by eastcoastpea on Jul 9, 2015 14:41:19 GMT
Sending positive vibes. We know you can do this. Have a great vacation.
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Post by gotranch on Jul 9, 2015 14:41:36 GMT
Chin up and full speed ahead for a full recovery. Prayers are with you.
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Post by ~KellyAnn~ on Jul 9, 2015 14:42:15 GMT
Keeping you and your medical team my thoughts and prayers.
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Post by cynipidae17 on Jul 9, 2015 14:43:06 GMT
Thinking of you and wishing for easy procedures.
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scorpeao
Pearl Clutcher
Posts: 4,521
Location: NorCal USA
Jun 25, 2014 21:04:54 GMT
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Post by scorpeao on Jul 9, 2015 14:43:33 GMT
I'm really sorry to read this update. I don't know what else to say...everything else sounds so trite.
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Post by peano on Jul 9, 2015 14:43:51 GMT
We're all pulling for you Virginia!  |
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Post by withapea on Jul 9, 2015 14:44:45 GMT
That's not an update I was hoping for, I'm so sorry. I know how strong you are and having a good support system will help immensely. I'm keeping you in my thoughts, hang tough!
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Post by liya on Jul 9, 2015 14:45:01 GMT
Sorry about the update. You are in my thoughts.
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Post by giatocj on Jul 9, 2015 14:45:02 GMT
You will definitely be in my thoughts.
I am sorry the news was not good, but know that we are all pulling for you. It also sounds like you have a wonderful support system surrounding you and that is a wonderful thing.
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Post by cannes on Jul 9, 2015 14:45:20 GMT
I'll be keeping you in my thoughts and prayers.
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Post by ktdoesntscrap on Jul 9, 2015 14:45:45 GMT
Thinking of you! Focusing on the good possibilities!
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caro
Drama Llama
Refupea 1130
Posts: 5,222
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Post by caro on Jul 9, 2015 14:47:03 GMT
You are in my prayers.
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Post by kckckc on Jul 9, 2015 14:47:46 GMT
You'll be in my thoughts - wishing you the best possible outcome. Hope you have a wonderful vacation.
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Post by spitfiregirl on Jul 9, 2015 14:47:55 GMT
Kick cancers ASS!!! You can do it Virginia! Were all cheering you on!
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Post by pierkiss on Jul 9, 2015 14:48:12 GMT
I'm so sorry. I hate that this is happening to you. I will think happy thoughts that they can grab those spots and that will be the end of them. Enjoy that vacation and try not to think of all this while your away! |
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Deleted
Posts: 0
May 17, 2024 16:17:18 GMT
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Post by Deleted on Jul 9, 2015 14:48:39 GMT
I'm sorry to hear that it isn't better news compwalla Stay strong and try and enjoy your vacation which will give you that added strength to deal with your next round of treatments. Positive thought are being sent your way,take care x |
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Post by magentapea on Jul 9, 2015 14:48:41 GMT
Keeping you in my thoughts.
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Time to get off the internet!
