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Post by Patter on Aug 31, 2015 21:08:37 GMT
One of my daughter's has a 7% curve. One they watched but said it didn't need intervention if it never got worse. It didn't. She will be 21 tomorrow, and hasn't had any issues. Her area of discomfort sounds like the same area as your daughter's. How old is she? Now my other daughter had a spinal fusion with rods and screws back in May but hers was due to something else not scoliosis.
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Post by rst on Aug 31, 2015 21:35:16 GMT
Different surgeons have different threasholds for what's acceptable. My son went from about 70 degree to 110 in a month during a big growth spurt. We had to do the surgery to preserve his lung function, but honestly, it was brutal.
Is bracing an option for your daughter? The newer night braces are supposed to be well tolerated and helpful for some.
As far as getting an earlier eval, I would keep pushing. The squeaky wheel, and all that. Sometimes seeing a nurse practitioner in the practice is easier to schedule, and if the case warrants it, they will get you in to see the surgeon fast, like that day, or they may be able to alleviate your concerns so you are comfortable waiting for a later appointment.
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Post by brina on Aug 31, 2015 23:19:53 GMT
My ds has an s-curve - 48 degrees at the top and 45 degrees at the bottom. Right now our surgeon is in wait and watch mode. I know some surgeons consider 40 degrees the cutoff for surgery. We are looking into a second opinion. My son occasionally complains about pain, but the doctor doesn't think it is related to the scoliosis.
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Post by sunraynnc on Sept 1, 2015 1:21:47 GMT
I had 16 degree c curve & was able to get away with just doing pt. Back pain stopped when I stopped taking piano lessons. Ugh.
Hopefully it is just growing pains. Has she been professionally fitted for a bra?
Try stretching, yoga, hot tubbing & massage. Best of luck!
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Post by hop2 on Sept 1, 2015 1:35:39 GMT
DD has s 2% curve it's less than when she was 1st diagnosed ( because I don't think she would be diagnosed at 2% ) Any way, she will have pain if she spends too much time not sitting properly or laying wrong or standing wrong or wearing her back pack wrong. There is really nothing they could actually do for her at 2% to 'fix' it because the risks outweigh any benefit. So she had to do physical therapy excercises. They helped tremendously. Also building core strength helps in conjunction with proper posture. But mostly the PT is super helpful. She went like 3x to learn the excercises and she is supposed to do them On her own 2x a week but she only does them when her back bothers her now.
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Post by Dixie Lou on Sept 1, 2015 1:54:19 GMT
My nieces both had scoliosis surgery. Niece 2 (younger sister) had it around age 12. The curvature in her spine changed dramatically even from Friday till Monday (surgery day.) Looking at the before and after scans was hugely amazing.
Niece 1 had her surgery at age 16.
They both had a lot of pain and wore back braces. Niece 2 wore her brace consistently with no improvement. Niece 1 wasn't committed to wearing her brace. The doctor wouldn't do the surgery if she wouldn't try the brace first.
My nieces had their surgery at Scottish Rite hospital in Dallas. 50% curvature is when they start talking about surgery. SIL just told me that theirs were both around 70% at the time of surgery.
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Post by gracieplusthree on Sept 1, 2015 21:41:17 GMT
We were told since she's had her period for a year she won't grow and all is well. I'm not entirely sure how accurate this is. I have scoliosis. I was diagnosed at age 10, a couple months after starting my period. I wore a milwaukee brace for 2yrs for 23hrs a day and mine still progressed enough that at age 12 I had to have surgery to get harrington rods put in. I have a *s* curve and have no idea if that could make a difference(technically i have 2 curves) and I don't know what the degrees and such of the curves were, I just know that the top curve progressed enough from one check to another(I had to have adjustments to the brace like every 4months or something) that they feared if it kept up at that pace id be paralyzed from about shoulder level down, hence why the surgery. not trying to scare you, just not sure how accurate that is |
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Post by canadianscrappergirl on Sept 1, 2015 22:22:23 GMT
My son has scoliosis due to his Spina Bifida but he also has a sever latex allergy and although the doctors feel surgery is needed ultimately we are not wanting to do it because of him having a sever reactions to anesthetic during two of his prior surgeries and you throw in a latex allergy so we only do surgeries now when absolutely needed. He has had over 20 surgeries in his life and the latex allergy is because of his prolonged exposure to latex based medical supplies etc.
It is a huge surgery but I think for those that have had the surgery feel it was the right choice.
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Post by Minty118 on Sept 1, 2015 23:26:12 GMT
My daughter had her surgery for a 50 degree curve three weeks ago. Her surgeon's mark for intervention was 45 degrees. She started her period in March, and her curve progressed rapidly. About 5 degrees in 4 months. We were told she would be completely folded onto herself within 12-18 months if we did nothing. It was a major surgery, but the doctor and the hospital made it so easy. They told us to anticipate 6 weeks before she was back to her normal self, but she is healing much faster than that. It was scary, but definitely worth it. My dd gained an inch in height that she's very happy with  |
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bryce77
One Post Wonder
Posts: 1 
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Post by bryce77 on Sept 22, 2015 10:25:04 GMT
Scoliosis and back pain in teens is becoming a common issue. This is quite serious problem. I have heard that acupuncture lorne park clinic provides best treatment for both of these problems in just 2 or 3 sittings. You should visit this clinic for more details. |
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Post by pelirroja on Sept 22, 2015 10:33:22 GMT
Have you tried physical therapy? The degree of my curve was right on the borderline but I stopped growing. My doc sent me for PT (just one single time) and they taught me several on the floor exercises that are very easy and take away back pain. I still do them to this day and they still work (and I'm several decades past being a teenager). HTH
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Post by anonrefugee on Sept 22, 2015 14:14:51 GMT
I grew over an inch post-period, relating growth & height to period is not always accurate.
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melissa
Pearl Clutcher
Posts: 3,912 
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Post by melissa on Sept 22, 2015 17:20:44 GMT
Growth may continue for about 4 years after the first menses. Obviously, there are outliers. The average age of first menses is 12 and a few months. Most women are not the size they were at age 12!
The pain may very well not be from scoliosis. It could easily be from how she is sitting (my dd will sometimes sit/lay in what seems to be to be awkward positions while reading or using her laptop on her bed), carrying a heavy backpack, etc. I would investigate the easily changeable avenues first.
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