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Post by cyndijane on Nov 2, 2015 2:27:41 GMT
I had severe preeclampsia/HELLP with my oldest, but it didn't really hit until 36 weeks- and he was taken by emergency c-section immediately. Long story, but it was bad. With my second, I started having symptoms at 37 weeks, and my OB just took him, rather than hold off and hope I didn't have issues. (Which was a million times easier delivery and recovery!) I'm just 28 weeks now, and I'm already starting to have early signs. High BP, trace amounts of protein in my urine... And I just keep thinking- it's too early! Way too early. My next appointment isn't until next week, although, when I call the office on Monday with my BP readings, I'm sure she'll have me come in this week. At that time, I'll get more info on what it'll look like before I'm on bedrest, or worse, in the hospital. I know from here on out she'll be weighing my health vs his every week. Have you had preeclampsia early? Did you end up delivering early, or were you able to hang in there until later? I can read stories online, but I haven't actually met anyone else who's had it IRL. I know stressing won't help, but sometimes it's hard to just not focus on it. It's always running in the back of my head. I'm trying to plan ahead and prepare my home for the bedrest possibility, but not freak out about it.
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tracyc27
New Member
Posts: 2
Jun 26, 2014 3:52:12 GMT
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Post by tracyc27 on Nov 2, 2015 2:39:17 GMT
I was diagnosed with preeclampsia during my 30th week. I was in the hospital for 4 days at that time for monitoring and received steroid shots to mature my baby's lungs in case I needed to deliver. Luckily my blood pressure remained stable and I was able to go home. I was not on bedrest but was just supposed to avoid strenuous activity. From that point on I went twice a week for non stress tests and once a week for a biophysical profile ultrasound and to see my doctor. Everything was stable until my 34th week when my platelets started to drop and my liver enzymes went up. I was admitted to the hospital and after a couple failed attempts at induction had a C-section at 34 weeks, 5 days. My baby was born on August 28 of this year. She was in the NICU for three weeks. She was never sick, just had to grow and learn to eat. She just turned two months and is doing great now. Hope everything stays stable for you.
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Post by cyndijane on Nov 2, 2015 2:50:54 GMT
Thanks, Tracy, for sharing when you delivered and how long she was in NICU. I'm so grateful our hospital is 5 minutes from our house, and has NICU. Neither of mine had to stay in the hospital past our 4 days after delivery. At this point, I'm praying to hold out through Thanksgiving, but that's still only 32 weeks. The best Christmas gift ever would be to make it until then!!
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 2, 2015 2:58:36 GMT
It's not typical to develop pre-eclampsia earlier in a subsequent pregnancy unless there are other underlying conditions such as chronic hypertension or certain diseases like lupus. Not saying either of those are in play. They may very be playing closer attention this time. Trace protein is exceedingly common in a random urine during pregnancy.
Also, I am not sure how long ago you delivered last, but today, it is only severe pre-eclampsia that is cause for a preterm delivery.
I highly suspect that you will indeed make it to Thanksgiving or longer. Your illness will have to be rather severe to deliver that early. I am sure they will keep a close eye on you in the mean time.
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Post by Basket1lady on Nov 2, 2015 3:14:34 GMT
I'd listen to Melissa. And stop "preparing for bed rest." I'd take it easy now. Easier said than done with little kids, but we do what we have to.
I was on bedrest from 21-36 weeks with DS (for preterm labor). It was a long 4 months, but he was born healthy and was only in the NICU overnight until his blood sugars stabilized.
I had a friend with it about 15 years ago. She was pretty much on bedrest until she delivered early. Her blood pressure would go up as soon as she stood up. But she had a healthy little boy. Just early, but I don't remember how early. But I know he wasn't in the hospital for long. I'm not sure that helps, but it's always good to hear good outcome stories!
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Post by cyndijane on Nov 2, 2015 3:19:34 GMT
Thank you, Melissa! As far as I know, there aren't any other issues. It's been 6 years since I've done this- almost 9 since the DS1. I think what scares me is just how fast everything escalated the first time. I love my OB, and yes, she is very watchful.
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Post by tania7424 on Nov 2, 2015 3:26:38 GMT
I was 30 weeks. Put on strict bedrest, and induced at 35 weeks on the dot. Unfortunately, even with medication my blood pressure was high enough it restricted blood flow in the umbilical cord and he was IUGR from 32 weeks on. Thanks to insulin dependent GD, he was still 5lbs 13oz and 18" though. Spent a week in the NICU.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 2, 2015 3:53:56 GMT
Well, in 6 years, some of the thinking and practices with pre-eclampsia have changed. Increased surveillance is the same, but delivery is very definitely different! Also, what one would deliver for at 36-40 weeks is very different than the parameter one would deliver for prior to that. We also have far fewer hospitalized on bedrest these days. We get an occasional patient admitted for closer observation for 1-2 days, but that's about it. I feel like this change has only been in the last 2 years or so.
I'm betting on a Christmas or New Year's baby!
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Post by shanni on Nov 2, 2015 4:00:24 GMT
It's been almost 10 years for me, but my youngest was delivered at 33 weeks due to preeclampsia. I had a similar story to yours. First baby born on time, second induced at 37 weeks because my blood pressure was climbing fast. With my third pregnancy, my blood pressure started to rise around 27 weeks. My dr didn't put me on bed rest at that point, but told me to "take it easy". I honestly wish I would have put myself on bedrest. At 31 weeks I was hospitalized, but we lived over an hour from the hospital or I think they wouldn't have made me stay. They gave me steroid shots at that point. My blood pressure continued to climb, and they made he choice to deliver at 33 weeks. Dd was in the NICU for exactly one month. She was never a sick baby, just a small one that needed to learn to eat and breathe at the same time. She is now a happy, healthy 9 year old.
If I had to do it again, I would seriously pull back my activities when my blood pressure first started to rise. I wonder if I could have held off another week or two if I had stopped trying to hurry and get everything done, and spent more time resting. I don't know if it really would have made a difference or not, but my doctors at the hospital were somewhat surprised that my home dr hadn't put me on bedrest.
Hang in there! It was a long couple of months, but it all turned out fine in the end. I have several friends that had preeclampsia, and I don't know of any that had a negative outcome. Good luck and keep us posted!
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infinity
Junior Member
Posts: 65
Aug 3, 2014 5:18:50 GMT
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Post by infinity on Nov 2, 2015 4:18:38 GMT
Hi there, I'm sorry you are going through this. I was diagnosed with preyclampsia at 32 weeks. It was a shock because I already had a daughter who was 3 and she was over two weeks late from due date. I thought she would never come out. My son however was born at 32 weeks when I started showing signs up high BP and protein in my urine. The dr.'s said he was at 5 pounds and it would be safe to deliver him. It was a blessing because he was born with a deformed placenta so he wasn't getting the proper oxygen or nutrition so when he was born he was only 3 pounds. Well, to make a long story short he stayed in NICU for 44 days and I stayed for 6 for high BP. He is now a very healthy happy 11 year old. He is on the smaller size for his age but he is catching up now. I will be keeping you in my prayers. Try not to stress, I know it's hard, everything will be ok. hugs xoxoxo
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Post by mom2rjcr on Nov 2, 2015 4:29:53 GMT
I delivered my second baby at 33 weeks due to severe pre-eclampsia. This was 18 years ago. I was put on bed rest the week before, but my blood pressure just kept going up. They were more worried about my health at the time. My son weighed 6 pounds at birth and only spent a short time in the NICU. I was in the hospital for 4 days. They had no idea why I had it so severely. I was also pre-eclampsic with my oldest son, but gave birth at 38 weeks. Several years later I was diagnosed with Lupus. That was probably the cause of the problems I had.
Take an easy, and try not worry.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 2, 2015 4:40:16 GMT
I honestly wish I would have put myself on bedrest. Please do not place any blame on yourself. If you look at the evidence on the importance of bedrest, you'll find it quite lacking, especially when the disease is mild. I do not believe you would have gained even a day more if you had gone on bedrest earlier. Severe pre-eclampsia is an animal that we still have little control to prevent except in certain circumstances.
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Post by alexa11 on Nov 2, 2015 5:09:31 GMT
With my first, it started at 34 weeks and they took her after a couple of days in hospital. With my second, it started at 24 weeks and I was in hospital on bed rest for a month. Always had to lie on right side- it was terrible. One night I was in pain- don't even remember what was hurting- 30 years ago- checked blood and liver enzymes were elevated. I had an emergency C-section that night. She was a 28 weeker and weighed 3 lb 15 1/2 oz- they wouldn't put 4 lbs on her birth certificate! She stayed in NICU for awhile- she's a healthy young lady today.
You and baby will be fine- try not to worry!
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Post by cyndijane on Nov 2, 2015 13:45:39 GMT
I honestly wish I would have put myself on bedrest. Please do not place any blame on yourself. If you look at the evidence on the importance of bedrest, you'll find it quite lacking, especially when the disease is mild. I do not believe you would have gained even a day more if you had gone on bedrest earlier. Severe pre-eclampsia is an animal that we still have little control to prevent except in certain circumstances. This is pretty much what my OB has said. If it's going to come, it will- and bed rest won't stop it. Thank you ladies for sharing your stories! It helps me not feel so alone!
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Deleted
Posts: 0
May 4, 2024 10:51:44 GMT
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Post by Deleted on Nov 2, 2015 14:16:05 GMT
I had eclampsia w seizures w my first delivery at 35 weeks. He was delivered in the ER.
For the second child, seven years later, we were watching more carefully and yes, I was hospitalized at 30 weeks when the seizures started again. Spent 6 weeks baking him in the hospital. On magnesium hell. He was delivered at 36 weeks.
I've never had seizures when not pregnant, before or after. I was fortunate that with the second child we lived 15 minutes from a wonderful maternal fetal specialist and a reputable research hospital. First son weighed four pounds at birth and has life-long issues. Second weighed five pounds and has no residual issues.
Hugs.
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Deleted
Posts: 0
May 4, 2024 10:51:44 GMT
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Post by Deleted on Nov 2, 2015 14:18:26 GMT
I'm headed to the gym, but wanted to reply quick. Will read and write more later.
DS 1 - hospitalized at 29 weeks, delivered by c-section at 31. DD - bed rest at 33 weeks, delivered by c-section at 35. DS 1 - hospitalized at 31 weeks, delivered by c-section at 33.
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Deleted
Posts: 0
May 4, 2024 10:51:44 GMT
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Post by Deleted on Nov 2, 2015 14:43:53 GMT
I had it with both pregnancies: first time diagnosed at 30 weeks, delivered at 33 weeks; second time was on bed rest due to pre-term labor, went into labor again at 35 weeks where the pre-eclampsia was diagnosed when I went to L&D, but the labor activity went away so I was induced the next day. My 33 week'r is now 21.5. She spent 15 days in the NICU, mostly because of protocols around pre 34 weeks not getting a bottle/breast, but IV/nasogastro nutrition. She never had any medical issues. 35 week (son) never spent time in NICU but I was kept in the hospital 2 extra days because my bp wouldn't go down. He's 17 now. While he has high functioning autism (Aspergers), I am not sure you could say his early delivery is related. My husband shows some signs of the condition, I believe. Just know that the technology today is so great that even a 28-30 week baby has really high chances of doing very well despite the early delivery. {{{{ hugs }}} Let us know how things are going as you can. Edited: to remove my old thinking based on Melissa's newer info/input
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Deleted
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May 4, 2024 10:51:44 GMT
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Post by Deleted on Nov 2, 2015 17:15:33 GMT
Well, in 6 years, some of the thinking and practices with pre-eclampsia have changed. Increased surveillance is the same, but delivery is very definitely different! Also, what one would deliver for at 36-40 weeks is very different than the parameter one would deliver for prior to that. We also have far fewer hospitalized on bedrest these days. We get an occasional patient admitted for closer observation for 1-2 days, but that's about it. I feel like this change has only been in the last 2 years or so. I'm betting on a Christmas or New Year's baby! I can believe that. There was a lot of difference between the 6 years I had DS1 and DS2 and DS is now 14 years old. Even if you go down for bed rest there isn't a lot to prepare. Care takers for children if you have them. Arrangements for work. Plan some meals. I was a big reader and I thought, "here is a great time to read and not feel guilty for laying around", but really I was too tired to read after a couple of days. I also had HELLP so perhaps that all played into the tiredness. When I was at home on bed rest DH put a card table next to my bed where we sat my computer - would have been great to have a laptop back then. But most of the time I was just tired enough that I watched TV. And sometimes not even that. Twenty-one years ago with my first I was really grateful when my aunt gave us a calling card so we could make long distance calls to my mom 2000 miles away. Love that most people have cell phones now so most don't have to worry about that. If you do end up going early try not to beat yourself up over it. I remember reading something about women who go early and/or have c-sections feeling guilty about it. I thought, "that's silly." Well, I didn't feel bad over the c-section, but I did about going early. Your emotions can just get all so tangled up with everything that goes on. It helps to know this ahead of time because then your logical mind can help your emotional mind come to terms with it.
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Post by shanni on Nov 2, 2015 17:23:02 GMT
I honestly wish I would have put myself on bedrest. Please do not place any blame on yourself. If you look at the evidence on the importance of bedrest, you'll find it quite lacking, especially when the disease is mild. I do not believe you would have gained even a day more if you had gone on bedrest earlier. Severe pre-eclampsia is an animal that we still have little control to prevent except in certain circumstances. Thanks, Melissa. It has been really interesting to read this thread and learn how pre-eclampsia treatment has been changed over the years. It feels like just yesterday that I was in the hospital with littlest dd, but the kid is almost 10, so it makes sense that things have changed!
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scorpeao
Pearl Clutcher
Posts: 4,521
Location: NorCal USA
Jun 25, 2014 21:04:54 GMT
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Post by scorpeao on Nov 2, 2015 18:15:45 GMT
My sister had it. She delivered my niece 6 weeks early. They gave my sister something a week prior to inducing to get my niece's lungs to develop...surfactant? Anyway, my sister was hospitalized for that week while they gave her the lung developing drug and magnesium. My niece never needed a ventilator and only stayed in the NICU because of low birth weight. I think they released her when she was 5 lbs. She was just under 4 lbs at birth.
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Post by Anne-Marie on Nov 2, 2015 19:15:07 GMT
I started showing signs around 28 weeks and was monitored for a couple of weeks before I was admitted to the hospital at 30 weeks. Like you, I just kept thinking, it's way too early, she's not ready. I was released the next day to bedrest at home.
It was mid-December and I was nesting and hadn't finished my Christmas shopping or decorating and I also had an 8-year-old special needs child. I am not going to lie, some days when my husband (at the time) left for work I would get up and clean up a mess that I couldn't stand to look at all day. He and my mom caught onto that pretty quick so she came up to babysit me. Other than doctor appointments I didn't leave the house, other than the one time I was pretty sure I was losing my mind and my dr. told me I could get out long enough to go to get a haircut.
I ended up having an emergency c-section on January 20th at just under 35 weeks. DD was 4 lbs 8 oz and overall pretty healthy. She spent 7 days in the NICU. She is 10 now and you would never guess she was a preemie.
I will be thinking about you, I know this is a scary, uncertain time. Hopefully your older children are of an age where they can be a little self-sufficient and maybe even fetch things for you if you are put on bedrest for the duration.
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Post by cyndijane on Nov 2, 2015 22:35:30 GMT
I understand the stir-crazy from bedrest, Anne-Marie! With my first one, my OB had my on bedrest for about 5 weeks before my BP skyrocketed, and all that HELLP mess happened. I hated being "confined". But now, if I thought it would help us hold a few more weeks, I'd do it in a heartbeat. This is just too early.
We homeschool, and while that would be the hardest to accomodate- we can do that from my bed, if we need to. Love the flexibility of homeschooling! My boys are 8 1/2 and almost 6, so they're pretty self-sufficient... when they want to be. Once we found out we were expecting another one, their chore charts changed a bit from "learn to take care of myself and my stuff" to "learn simple, basic household chores to help keep the household running". LOL. They're rockstars, really! And cannot wait to meet their little brother. They love feeling him kick and move (we call him Ninja because he's so active), they talk and sing to him daily- the younger one is already telling him jokes.
I appreciate hearing your stories- and knowing how long your little ones were in NICU, since that's the part of this craziness we've never experienced before. It makes all of this feel more doable! We can do this!!!
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peabay
Prolific Pea
Posts: 9,598
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Nov 2, 2015 23:03:53 GMT
Just a quick question: were others of you told not to get pg again because of pre-eclampsia? My now 13 year old was taken at 37 weeks because I developed pre-eclampsia and I was told "don't get pg again." Is that really outdated thinking? (she was my fourth - trust me, we weren't having any more!)
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Deleted
Posts: 0
May 4, 2024 10:51:44 GMT
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Post by Deleted on Nov 2, 2015 23:16:18 GMT
Just a quick question: were others of you told not to get pg again because of pre-eclampsia? My now 13 year old was taken at 37 weeks because I developed pre-eclampsia and I was told "don't get pg again." Is that really outdated thinking? (she was my fourth - trust me, we weren't having any more!) I was 30 when ds#2 was born. I had gestational diabetes and eclampsia with him. I had no desire to ever try to birth another child. My body just sucks at carrying babies. My MFS said "I really don't want to see you in my office again. I don't think that would be a smart course of action." I had my tubes tied. Not a risk I wanted to take.
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Post by cyndijane on Nov 2, 2015 23:21:02 GMT
Not really. I don't remember the first OB saying that. My OB changed from my first to my second. With my first, my pre-eclampsia was so severe, he need to be out RIGHT THEN, I have an up and down incision. The second OB wasn't sure what she was walking into when she delivered our second. We (DH, OB and me) had agreed in advance if she thought there was too much scar tissue/damage from the first time around that she would tie my tubes then. But she told me in the OR I was fine.
However, this whole pregnancy has been horrid. Aside from it being a surprise, we won't be doing this again.
ETA: Not really related, but my Mom had such big babies due to gestational diabetes, that her OB recommended she stop when her third was 11 lbs, 3oz- that the next one (if they let her go full term- again, 32 years ago) would probably be 14lbs! She quit.
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peabay
Prolific Pea
Posts: 9,598
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Nov 2, 2015 23:38:52 GMT
Not really. I don't remember the first OB saying that. My OB changed from my first to my second. With my first, my pre-eclampsia was so severe, he need to be out RIGHT THEN, I have an up and down incision. The second OB wasn't sure what she was walking into when she delivered our second. We (DH, OB and me) had agreed in advance if she thought there was too much scar tissue/damage from the first time around that she would tie my tubes then. But she told me in the OR I was fine.
However, this whole pregnancy has been horrid. Aside from it being a surprise, we won't be doing this again.
ETA: Not really related, but my Mom had such big babies due to gestational diabetes, that her OB recommended she stop when her third was 11 lbs, 3oz- that the next one (if they let her go full term- again, 32 years ago) would probably be 14lbs! She quit. My mother in law had a 13 pounder. But he was 24 inches!!!! She said the doctor said it was like he would never stop coming out, lol. He's still a really big guy.
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Post by cyndijane on Nov 2, 2015 23:41:09 GMT
I don't think any of us were very long. But her OB kept telling everyone in the hospital he delivered the "baby whale" in the nursery!
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Post by mom2rjcr on Nov 2, 2015 23:46:52 GMT
Just a quick question: were others of you told not to get pg again because of pre-eclampsia? My now 13 year old was taken at 37 weeks because I developed pre-eclampsia and I was told "don't get pg again." Is that really outdated thinking? (she was my fourth - trust me, we weren't having any more!) The OB that delivered my 2nd baby told me this after my second bout of severe eclampsia. I really wanted more children so after I had recovered from the birth, I asked my regular OB what he thought. We ran lots of blood work and at the time could find no underlying cause for it. He told me that I should a wait a couple of years and let my body recover. I got pregnant 2 years later, but was considered high risk and was very closely monitored. I had an uneventful pregnancy and delivered my 3rd baby at 37 weeks. I had a fourth baby 21 months later and once again uneventful, but was considered high risk. He was born at 41 weeks.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 3, 2015 6:37:28 GMT
My sister had it. She delivered my niece 6 weeks early. They gave my sister something a week prior to inducing to get my niece's lungs to develop...surfactant? Anyway, my sister was hospitalized for that week while they gave her the lung developing drug and magnesium. My niece never needed a ventilator and only stayed in the NICU because of low birth weight. I think they released her when she was 5 lbs. She was just under 4 lbs at birth. Your niece was given a steroid injection (or two) before being induced. 6 weeks earlier is 34 weeks. A 34 weeker typically would not need surfactant. Most 34 weekers do not need vents, but do need to learn to eat, maintain temps and grow! It's always amazing to see such tiny babies doing so well!
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 3, 2015 6:40:24 GMT
Just a quick question: were others of you told not to get pg again because of pre-eclampsia? My now 13 year old was taken at 37 weeks because I developed pre-eclampsia and I was told "don't get pg again." Is that really outdated thinking? (she was my fourth - trust me, we weren't having any more!) That would depend on the severity. 37 weeks isn't considered super early, so I am guessing you were in bad shape. Severe pre-eclampsia without any underlying conditions (various autoimmune issues, etc) only repeats about 15% of the time. That was definitely known 13 years ago. I suspect you were severe enough that your doctor did not want to take even that risk!
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