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Post by **Angie** on Jan 9, 2017 22:09:23 GMT
What treatment medication are you using? I've been using Avonex since I was diagnosed but I'm having another flare up and my doctor said it's time to change. He gave me a list to look over tonight and research. I figured the Peas are as good as Google, maybe better, when it comes to user reviews.  |
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Post by wallyagain on Jan 9, 2017 23:22:54 GMT
I have RRMS and have been using Beta Seron since March 2000. I am currently waiting for Plegerdy to be approved for payment here. One shot every two weeks instead of every two days. There are so many options now.
Good luck, let us know what you end up using.
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scrappyesq
Pearl Clutcher
You have always been a part of the heist. You're only mad now because you don't like your cut.
Posts: 4,029 
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Post by scrappyesq on Jan 10, 2017 0:53:19 GMT
Tecfidera. I started on rebif but the side effects were terrible so I went on Tysabri which was the best drug ever. But then I had to stop taking it because I became JCV+
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Post by **Angie** on Jan 10, 2017 4:35:01 GMT
I have RRMS and have been using Beta Seron since March 2000. I am currently waiting for Plegerdy to be approved for payment here. One shot every two weeks instead of every two days. There are so many options now. Good luck, let us know what you end up using. How long do the side effects from the shot last? |
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Post by **Angie** on Jan 10, 2017 4:37:51 GMT
Tecfidera. I started on rebif but the side effects were terrible so I went on Tysabri which was the best drug ever. But then I had to stop taking it because I became JCV+ I get sick easily so my doc has put Tysabri on the "no" list. |
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Post by wallyagain on Jan 10, 2017 14:51:41 GMT
I do my shot right before bed, so most of the time, no reaction. When I do have a reaction, I take tylenol and turn up the electric blanket. It takes about an hour to ease and is not fun. However, it means my body is still not "used" to the drugs, so still working.
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Post by **Angie** on Jan 10, 2017 15:52:42 GMT
I do my shot right before bed, so most of the time, no reaction. When I do have a reaction, I take tylenol and turn up the electric blanket. It takes about an hour to ease and is not fun. However, it means my body is still not "used" to the drugs, so still working. Is it comparable to the "flu-like" side effects of Avonex? I used to freeze and ache all over. |
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Post by wallyagain on Jan 10, 2017 20:43:36 GMT
I do my shot right before bed, so most of the time, no reaction. When I do have a reaction, I take tylenol and turn up the electric blanket. It takes about an hour to ease and is not fun. However, it means my body is still not "used" to the drugs, so still working. Is it comparable to the "flu-like" side effects of Avonex? I used to freeze and ache all over. I'm going to say yes, even though I've never taken Avonex. Every muscle seizes up, freezing cold, and sometimes shivers rattling my teeth. So much fun. |
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Post by Blind Squirrel on Jan 11, 2017 0:07:42 GMT
When I was first diagnosed, I took Rebif, but stopped all meds shortly thereafter.
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