Deleted
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May 19, 2024 1:35:34 GMT
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Post by Deleted on Feb 22, 2017 4:16:24 GMT
This question is for those who have teen girls on the spectrum or had teen girls on the spectrum. What helped your dd remember to wewr and change her pads? I am at a loss on how to help dd (14) remember to change her pad, especially at school. She bleeds out at home and has done so at school. Its gross. I have no idea why she cant remember or why she chooses not to change her pad.
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Post by seikashaven on Feb 22, 2017 4:51:13 GMT
No experience here but would a solution that requires less frequent changes help? Menstrual cups can go up to 12 hours between changes. Then you could help remind her before/after school. Not sure if you or her would be comfortable with that but they're not too different than tampons.
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julieb
Pearl Clutcher
Posts: 2,845
Jul 3, 2014 16:02:54 GMT
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Post by julieb on Feb 22, 2017 4:52:11 GMT
I have no advice from experience, I hope you find a solution. The only thing I can think of is to ask the nurse, her teacher, teacher's aide or someone from administration to remind her? Does she carry a phone? If so, set a few alarms throughout the day.
I know this is stretching because I'm sure that last thing you want to do is put a 14 yo on birth control, but possibly putting her on patch where she would only get her period every three months? Or it might actually be a shot - I'm out of the loop with bc these days.
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Deleted
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May 19, 2024 1:35:34 GMT
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Post by Deleted on Feb 22, 2017 4:59:39 GMT
I have no advice from experience, I hope you find a solution. The only thing I can think of is to ask the nurse, her teacher, teacher's aide or someone from administration to remind her? Does she carry a phone? If so, set a few alarms throughout the day. I know this is stretching because I'm sure that last thing you want to do is put a 14 yo on birth control, but possibly putting her on patch where she would only get her period every three months? Or it might actually be a shot - I'm out of the loop with bc these days. Due to her POTS Dysautonomia that option is on the table as they are very heavy and last a long timd.with a short time between. Also other issues run on my side of the family.
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Post by RobbyKay on Feb 22, 2017 5:02:17 GMT
I have a son on the spectrum, so this isn't a problem we have had to address, but whenever we have issues with changing bodies or hygiene, we seek out social stories about the topic. Just google "social stories about periods or menstruation" and there are several options that come up.
Do you use visual cues to help your daughter achieve certain behaviors? Maybe you can work some of those into her routine. Does she carry a smart phone? Can you set a "period alarm" that tells her when to attend to her hygiene?
And since the Peas are awesome at recommending products, there was a thread about Thinx panties a few months back. They are undies designed to absorb flow without leakage.
Good luck!
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Post by scrappychick on Feb 22, 2017 5:06:25 GMT
I was going to suggest the Thinx panties as well! I would also have her get in the habit of visiting the bathroom right after lunch.
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Post by Basket1lady on Feb 22, 2017 5:25:19 GMT
Do you think she's just trying to pretend that nothing is happening? I could see my DS doing that when he was younger. In his mind, if he didn't acknowledge it, it didn't happen.
I used the phrase, "Social convention dictates that you do/do not ..." with DS. At that age we worked a lot with being productive members of society and the social contract we have with each others as people who share space.
And I like the idea of getting an aide or a school nurse involved. As it's a hazmat situation requiring special clean up (spilling of body fluids), I would thing they would be receptive to helping out.
I think it would be a good idea to discuss this with her doctor as well. It seems like fewer/lighter periods would be a blessing for all.
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Post by ntsf on Feb 22, 2017 5:27:40 GMT
I have a child who dealt with this.. just got the shot birth control to lessen the number to deal with. since organization is the big problem.. I would go with alarms, plus, you must change every time you go to bathroom.. and if in a public school.. get an adult to remind. during school day.. and frankly, my child often stayed home the first day or two and loaded up with pain meds.
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Deleted
Posts: 0
May 19, 2024 1:35:34 GMT
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Post by Deleted on Feb 22, 2017 5:35:19 GMT
Time to take her to a gynecologist. There are great doctors who can explain in clear language what is happening and why she needs to kept tidy. They may be able to prescribe a bcp that will work for her. Buy the panties and dark color pants. She should carry wipes with her.
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Deleted
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May 19, 2024 1:35:34 GMT
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Post by Deleted on Feb 22, 2017 5:45:23 GMT
I need to add this:
Buy her looser clothing in breathable fabric. Pull on pants and thick tshirts or light sweaters. Absolutely no buttons. A good sports bra is a must. If the clothing shrinks buy new stuff.
I could not stand tight clothing or buttons.
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Post by darkangel090260 on Feb 22, 2017 6:01:05 GMT
ok this may sound strange, but there is a watch call a potty watch its for little kids. I think you can set it to go off every hour or something like that. Maybe try it , it has a low alarm that goes off.
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MaryMary
Pearl Clutcher
Lazy
Posts: 2,975
Jun 25, 2014 21:56:13 GMT
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Post by MaryMary on Feb 22, 2017 6:11:10 GMT
I don't have any experience with this, but would that period underwear work in this situation? You know, the ones that are supposed to work in place of pads? I would maybe use them in addition to pads so that if she leaks at school, the underwear will contain it? I haven't used the underwear, so I'm not sure if that would actually be a viable option.
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Post by pierkiss on Feb 22, 2017 10:46:29 GMT
For at home, could you put up a picture/word reminder across from the toilet in the bathroom she uses? Maybe having some kind of visual cue might help remind her to care for herself? Also where are the pads kept in the bathroom? Maybe during her period they go on a shelf or counter that she can easily see while she's sitting on the toilet? That can also serve as a prompt to remind her to change her pad.
Does she have a cell phone that she carries around with her? If yes, you could set an alarm to go off every x hours. That would remind her that she needs to go to the bathroom and change her pad. And just make a rule that when you hear x sound, you need to go to the bathroom and change your pad real quick.
I would also suggest the new period panties that others have mentioned. Those should help contain some (hopefully all!) of the mess should she forget to change her pad.
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Post by MommyofTriplets on Feb 22, 2017 12:39:52 GMT
My DD on the spectrum is on BCP to regulate and lighten. She only has four periods a year and we know when they are so we can help with reminders. Her teacher reminds her at school. It's worked well for us as we had similar issues to yours before the BCP. Good luck!
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scrappington
Pearl Clutcher
in Canada
Posts: 3,139
Jun 26, 2014 14:43:10 GMT
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Post by scrappington on Feb 22, 2017 15:34:55 GMT
What about a bigger pad? Always has different colour ones. The purple thin one is awesome. Heavy duty and long
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scrappyesq
Pearl Clutcher
You have always been a part of the heist. You're only mad now because you don't like your cut.
Posts: 4,032
Jun 26, 2014 19:29:07 GMT
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Post by scrappyesq on Feb 22, 2017 17:33:32 GMT
I have no personal experience. Is there a teacher or a counselor you can trust and make aware of the issue? that way if you set a phone alarm for your daughter the person could be a back up reminder if its not too inconvenient for them.
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