Updated! I am published in a medical publication!

I am part of a parent/patient/medical provider collaborative for the disease my daughter and I have. I helped to write a disease self-management handbook for parents and patients and an abstract was printed in the American College of Rheumatology publication. It will be handed out to families at 25 pediatric hospitals across the continent. This is why I push myself and keep advocating. Even when I am worn out physically from work and family responsibilities. If it makes this journey easier for just one other family, then it's worth it.

Update: I learned that other health collaboratives are interested in our project. One is the group our own is modeled after. We can now give back to them for their mentorship.