Post by Deleted on Oct 29, 2017 3:26:18 GMT
My dd (14) has Dysautonomia and with that a common sub condition of extremely low immune system (509).
Allergy Immunology has stated that if dd falls below 500 or becomes sick again multiple times we will need to look at IVIG treatment.
Abby has been sick twice in a month and may be coming down with something again.
Stress is certainly making her Dysautonomia and POTS worse and this week her legs gave out 3 times. I had to pick her up after 2 hours at school and when she got home she crashed on her bed and slept for 3 hours. She did so again today!
I know the 100° weather didn't help either.
For those whose kids have had IVIG, can you tell me about it? Any complications? Pre medicated with iv benedryl? 12 hour, 24 hour treatment?
I know after a year of IVIG we can go to injections. Anyone do those? Painful?
Did IVIG help? Allergy Immunology said its a 50/50 chance that it will work due to this being a result of her Dysautonomia.
Allergy Immunology has stated that if dd falls below 500 or becomes sick again multiple times we will need to look at IVIG treatment.
Abby has been sick twice in a month and may be coming down with something again.
Stress is certainly making her Dysautonomia and POTS worse and this week her legs gave out 3 times. I had to pick her up after 2 hours at school and when she got home she crashed on her bed and slept for 3 hours. She did so again today!
I know the 100° weather didn't help either.
For those whose kids have had IVIG, can you tell me about it? Any complications? Pre medicated with iv benedryl? 12 hour, 24 hour treatment?
I know after a year of IVIG we can go to injections. Anyone do those? Painful?
Did IVIG help? Allergy Immunology said its a 50/50 chance that it will work due to this being a result of her Dysautonomia.
