sueg
Prolific Pea
Posts: 8,017
Location: Munich
Member is Online
Apr 12, 2016 12:51:01 GMT
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Post by sueg on Jul 23, 2018 8:17:01 GMT
I have my follow up appointment with my surgeon today. She called me just before we left for vacation to tell my that all the lab work from the surgery looked good - most impotantly, my lymph nodes are clear!
And I have just received news that makes my recovery even more important. My son and DiL have been trying for a baby for ages, and late last year turned to IVF. They had their 3rd implant 2 weeks ago, and have just had a positive pregnancy test. It is still early days, and prayers that it will 'stick' would be much appreciated, but if all goes well, I will be a grandmother late next March!!! I am totally bursting, but I can't tell anyone who knows them, as they are keeping it to immediate family for the next month or so.
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Post by mikklynn on Jul 23, 2018 15:17:11 GMT
I have my follow up appointment with my surgeon today. She called me just before we left for vacation to tell my that all the lab work from the surgery looked good - most impotantly, my lymph nodes are clear! And I have just received news that makes my recovery even more important. My son and DiL have been trying for a baby for ages, and late last year turned to IVF. They had their 3rd implant 2 weeks ago, and have just had a positive pregnancy test. It is still early days, and prayers that it will 'stick' would be much appreciated, but if all goes well, I will be a grandmother late next March!!! I am totally bursting, but I can't tell anyone who knows them, as they are keeping it to immediate family for the next month or so. Fabulous news x 2! Adding my prayers for a successful pregnancy.
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Post by Fidget on Jul 23, 2018 15:45:07 GMT
May I please add my Dear Sister Debbie to this list, she is not a pea, but lost her oldest son (early 40's) to a sudden heart attack last week, we are all devastated.
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Deleted
Posts: 0
May 3, 2024 12:13:16 GMT
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Post by Deleted on Jul 23, 2018 17:37:51 GMT
Please keep my nephew RB in your prayers. His wife confessed to having an affair, and a divorce is in the works. They have 3 children. Thank you!
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Post by KikiPea on Jul 23, 2018 18:00:25 GMT
Stephanie Smokovich (owner of scrapbook company Bella Blvd) is starting 12 months of chemo this week.
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Post by scrapmaven on Jul 23, 2018 23:47:15 GMT
I've been thinking/ praying about Donna's family and their grief disneypal .....How is your friend's daughter doing? zella .....How are you doing? (( hugs )) Thank you so much for asking! So I was in the hospital for 6 nights with cellulitis around my implanted port. My mast cell disease was very bad some of that time, probably because of the IV antibiotic. After getting the port out and a new PICC IV line put in, I came home. The first week was rough. I'm doing better now, but I may have an infection in or around the PICC. I'm on oral antibiotics, and am just watching it for now. I don't know why things have suddenly gone haywire, but there it is. Honestly, though, any day I don't feel nausea is a good one. I've had maybe 3 of those in the last 3 weeks. Family things have improved. My older daughter, SIL and granddaughter have moved out and are all doing well. Younger DD is doing rotten, though. She has mast cell disease too, plus fibromyalgia, chronic daily migraines, and some other issues. Poor kid. We're enjoying the sunshine and long days, even though mostly we just look from inside the house, lol! I feel for you, zella. I had 3 ports and each time I developed Sepsis due to the skin breaking down around the port. It was IV Vanco and then picc's. I'm so sorry that you are dealing w/this. I can't encourage you enough to get back into therapy. Get a new therapist if you didn't like the one you had.
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zella
Pearl Clutcher
Posts: 3,884
Jul 7, 2014 19:36:30 GMT
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Post by zella on Jul 24, 2018 3:07:58 GMT
scrapmaven I do like my previous counselor. A lot. But I just feel like I can't financially do it right now. My $550 or so disability doesn't even cover our daughter's health insurance premium. I just had a big vet bill. We just last week had to spend $2000 to get some trees cut down (two had recently fallen, others were rotten, dead or unsafe). Both DD's and my counselor are out of network (I tried finding in network care, believe me), and I'd rather DD got the care. She's so young, and I think there's still hope for her. And fundamentally I don't feel like anyone can help me right now. I'm sick of being sick. I don't have hope that I'll ever be able to live a regular life. I desperately want to go on vacation to Hawaii (we have a timeshare) and I don't know if I can make that happen. I hate this. This isn't how I want to live. And unless I can get well, which primarily means getting my mast cell disease very well controlled or in remission, I am going to be depressed. I know there are people with chronic illness or chronic pain who still manage to be happy and feel good about their lives. But that's just not me. I'm not strong, I'm not resilient, and I'm just plain tired. Thank you for caring about me. To be honest I don't care about myself that much right now. I feel like a burden. Because I am a burden. You are awesome, btw.
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Post by destined2bmom on Jul 24, 2018 4:44:13 GMT
Could you please add my brother to your prayers? I found out last Sunday that he has Non-Hodgkins Lymphoma. We don’t know the stage yet.
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theshyone
Pearl Clutcher
Posts: 3,402
Jun 26, 2014 12:50:12 GMT
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Post by theshyone on Jul 24, 2018 5:52:46 GMT
We just got home yesterday after a week at Mayo Clinic in Rochester. My daughter had two days of clinical testing regarding her sudden arrhythmia death syndrome long qt, had some unexpected bad news which was very unsettling, on Wednesday she had a LCSD left cardiac sympathetic denervation; and a TEE which showed the bad unsettling news wasn't. She then had a really bad allergic reaction to morphine while coming out of recovery from the surgery. It was a really rough long day, a six hour surgery lasted way longer, I was pacing and so anxious as it just kept going and going with no updates. Then Thursday she had a ICD (implanted cardioverter defibrillator) placed that can both pace her heart and shock it out of deadly arrythmias. Like having her own built in AED. She also had her LINQ a heart monitor removed as well. She has five five holes in her, three like deep stab wounds from the laparoscopic equipment used to reach her heart. They seem to be causing her the most pain. We had a 12 hour trip home yesterday. It was an amazing and extremely stressful week, that seemed both incredibly short and incredibly long. She has been awesome through the whole ordeal. My friend Heidi a month ago today lost both her mom and dad in a car accident, it's been a hard month for her, and her family. My prayers go out to you for your daughter. This hit me as DH has heart issues (A-Fib, CHF, etc...) and is also allergic to morphine and codeine. He's had reactions to both. Also, they tried to pace his heart 7 years ago (they stop it and then paddle it---they tried 4 times to get it to be more regulated with no luck!). Instead, he got bad burn marks from the procedure and nothing changed.
I pray that your daughter's pain is only from what's been done recently.
Thank you. It's been a hard couple of weeks. The glue and closure of where her LINQ device was removed came off prematurely, leaving a gaping wound, and even now almost a month later las not totally stabbed over yet. She is being watched closely due to risk of infection. The three incisions needed for the LCSD surgery where the nerve in her heart is cut and removed, have caused great nerve pain. Ice can't get inside aff enough to ease it, Mayo is trying to help us manage pain long distance. Her new ICD implant site seems to be healing well. She says it feels great. She has also been finishing grade 12 math, between surgery and recovery. She got her three remaining lessons completed and has wrote two of the lesson tests and is writing another tomorrow. Then in August she writes the provincial diploma exam. Tomorrow she will also also attend a funeral of her girl guide leader from five years ago. Jen was only 37 and passed in her sleep. She volunteered at all levels of girl guides and will be missed by many. My daughters bunny, Whipping Cream, is ill, has been seen by vet, but nothing is really pointing to what is wrong. Just something she doesn't need to worry about right now.
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Post by scrappintoee on Jul 24, 2018 6:53:21 GMT
I've read every post and prayed after each one. fidget ---I'm so very sorry! Your nephew was so young; and a sudden loss like that is SO awful No warning, no time to say good-bye, total shock. (( hugs )) zella ---I was so sad to read your updates....(( hugs )) I want to thank everyone who prayed for my dear friend Debbie I mentioned on last month's thread; she is doing better! I've posted on other threads about my battle with depression. Many peas have sent hugs, prayers, positive thoughts, and very encouraging words, and I'm thankful. I am VERY VERY happy to report that my horrible "black clouds" (as I call them) FINALLY lifted about 2 months ago. I thank God first always, and secondly---a new doctor who started me on Zoloft. OMG, if I'd known HOW MUCH it was going to help, I would've started it much sooner!!!! (Lexapro helped me A LOT for many years, but I guess it'd stopped working). I'd like to ask for prayers for three medical issues I'm dealing with. I'm too tired to post about them all, but the prayer I need is for me to stop being AFRAID! I have total faith that all 3 of my issues will get better, it's just the fear of SURGERY! One GOOD thing I can say is that even though I am in a LOT of PHYSICAL pain, I am just sooo happy to not have horrible depression anymore that I try to concentrate on THAT!
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Deleted
Posts: 0
May 3, 2024 12:13:16 GMT
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Post by Deleted on Jul 24, 2018 16:21:02 GMT
I've read every post and prayed after each one. fidget ---I'm so very sorry! Your nephew was so young; and a sudden loss like that is SO awful No warning, no time to say good-bye, total shock. (( hugs )) zella ---I was so sad to read your updates....(( hugs )) I want to thank everyone who prayed for my dear friend Debbie I mentioned on last month's thread; she is doing better! I've posted on other threads about my battle with depression. Many peas have sent hugs, prayers, positive thoughts, and very encouraging words, and I'm thankful. I am VERY VERY happy to report that my horrible "black clouds" (as I call them) FINALLY lifted about 2 months ago. I thank God first always, and secondly---a new doctor who started me on Zoloft. OMG, if I'd known HOW MUCH it was going to help, I would've started it much sooner!!!! (Lexapro helped me A LOT for many years, but I guess it'd stopped working). I'd like to ask for prayers for three medical issues I'm dealing with. I'm too tired to post about them all, but the prayer I need is for me to stop being AFRAID! I have total faith that all 3 of my issues will get better, it's just the fear of SURGERY! One GOOD thing I can say is that even though I am in a LOT of PHYSICAL pain, I am just sooo happy to not have horrible depression anymore that I try to concentrate on THAT! Prayers to you, my dear friend. I totally understand about being too tired to post about each medical issue!! I'm so sorry you're going through so much. Glad about your experience with Zoloft though!! About the fear of surgery----------you can feel free to write me privately if you'd like, but I have quite a bit of experience with surgeries. I'm not sure if you're fearful of the anesthesia part of it, or something else. I might be getting ONE MORE surgery (when my DH is in a stable portion of his cancer treatment). It's the recovery that bums me out. The surgery and anesthesia? It's really 2nd nature to me!! I've lost track of my # of surgeries but it's getting close to 50 now! theshyone : Continued prayers that your daughter's recent incredible medical issues will heal. That's SO much for anyone to go through! I'm sure she'll do well with her studies. I was homeschooled from 8th grade to 12th, on and off, in between surgeries, and I made the honor roll each time.
I'm so sorry about the loss of Jen. That sadness is something that your daughter didn't need right now. I'd try not to mention it or focus on it too much.... but I'm sure it's such a profound loss.
About the bunny: Could Whipping Cream be missing your daughter? Could she be picking up on the medical stress?? Bunnies are so sensitive. I hope that's what's going on. Keep an eye on it and bring Whipping Cream back (if you can) if it continues. Prayers that she'll get back to normal so it'll be 1 less thing for you both to worry about! xoxo
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Deleted
Posts: 0
May 3, 2024 12:13:16 GMT
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Post by Deleted on Jul 24, 2018 16:26:56 GMT
This atheist thanks any and all of you who are praying for me. I'm not doing well. At all. Physically or emotionally. I'll try to post something soon. I just got released from a 6 night stint in hospital for a serious infection. I'm crying a lot. Thank you for caring. It means a lot. Zella, I know that you suffer from depression and have many health issues. However, I want to remind you that when you've had a serious infection it's normal to be even more depressed afterwards. The meds, the lack of privacy, the environment and the scariness of the infection itself really do a number on the mind. Please take that into account. I get what you're saying. I'm a 3 time sepsis survivor. Believe me when I tell you that you're not alone. ((((HUGS)))). ITA. DH just had sepsis and was in the ICU for many days. He has depression and anxiety to begin with, and has bladder cancer, diabetes, high blood pressure issues, etc......... but everything was way out of whack because of the sepsis. When we got home and things were more stable, THAT was when it all hit him and he got withdrawn and sad. It's tough. That's when you need friends and family checking on you and spoiling you a bit (we don't have that here)........ I'm hoping that you feel better by now (I have to finish reading this thread--DH is akin to a 4 year old lately--I can't leave him alone for too long!!).
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azredhead
Drama Llama
Posts: 5,755
Jun 25, 2014 22:49:18 GMT
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Post by azredhead on Jul 24, 2018 20:34:49 GMT
scrappintoee j totally understand the black cloud thing. Both medically and not I’m actually going to talk to my dr about going back on Zoloft for the anxiety when we discuss my B12 shots. . I’m glad it’s helping you! It’s a nice relief when you do find something. Even if it’s something small. I hope things improve for you! And I always love seeing your cute doggies! Big Hugs for everyone and prayers !
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Post by scrappintoee on Jul 25, 2018 6:54:36 GMT
@bergdorfblonde .....You are soooo sweet, thank you!!! You have SO. MUCH. going on, I honestly don't think I could handle all of that!!! And on top of everrrrything else, it's so sad that you have no family or friends to help! I suppose you don't have the time (and probably transportation?) to get to a caregivers' support group meeting where you could make friends and vent/ hug/ cry/ with people who exactly what you're going through? Many prayers and ((( hugs ))) to you, and I also sent up prayers for your hubby and daughter. To answer your question, I totallllly trust my surgeons. My biggest fears are post-op; the NURSES making errors---Trust me, I've seen and experienced some horror stories!!! I believe in God's love, protection, and the power of prayer (or I obviously wouldn't be on this thread! LOL!). Sooo, I'm working on putting it all in His hands!!! If a nurse accidentally gives me meds I'm allergic to in my IV & I die suddenly, then I guess it was "my time" #note to self---pack Benadryl and an epi-pen in hospital bag to avert deadly nurse errors! #
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Deleted
Posts: 0
May 3, 2024 12:13:16 GMT
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Post by Deleted on Jul 25, 2018 13:55:28 GMT
@bergdorfblonde .....You are soooo sweet, thank you!!! You have SO. MUCH. going on, I honestly don't think I could handle all of that!!! And on top of everrrrything else, it's so sad that you have no family or friends to help! I suppose you don't have the time (and probably transportation?) to get to a caregivers' support group meeting where you could make friends and vent/ hug/ cry/ with people who exactly what you're going through? Many prayers and ((( hugs ))) to you, and I also sent up prayers for your hubby and daughter. To answer your question, I totallllly trust my surgeons. My biggest fears are post-op; the NURSES making errors---Trust me, I've seen and experienced some horror stories!!! I believe in God's love, protection, and the power of prayer (or I obviously wouldn't be on this thread! LOL!). Sooo, I'm working on putting it all in His hands!!! If a nurse accidentally gives me meds I'm allergic to in my IV & I die suddenly, then I guess it was "my time" #note to self---pack Benadryl and an epi-pen in hospital bag to avert deadly nurse errors! # Ooh, no need to thank me. YOU have been there with sweet, supportive words for a while!!!! (And, no, I have no time to get away with the car and go for any helpful meetings. I WILL get to making calls though...... Something comes up daily. Today I go back to my surgeon. DH feels okay enough to drive to Tampa--yeah. It'll wear him out for the rest of the day though. At least I should see where I'm at and if I need more surgery. It'll ALL have to wait until DH is really stable, but at least I'll have an idea of what I still need to finish!) As far as your surgery: THIS is why DH and I both have lists for ourselves and each other with our meds and our allergies. We're both always there for each other's surgeries and we discuss it all with the nurse, the PA, the anesthesiologist, etc................ No mistakes were made before and really, I've had close to 30 surgeries. BUT, with all of that said, I still bring my own meds as a backup with me (my own pain meds and my own daily meds, just in case!!!). Good luck with everything!!
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Post by disneypal on Jul 31, 2018 17:47:02 GMT
Just wanted those to know that I am still praying for you!
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eastcoastpea
Prolific Pea
Posts: 9,252
Jun 27, 2014 13:05:28 GMT
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Post by eastcoastpea on Aug 1, 2018 21:46:12 GMT
Checking in to let peas needing prayers and hugs know that I'm here saying prayers every day and sending hugs.
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