Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 12, 2019 18:53:04 GMT
Has anyone been diagnosed with Meniere's disease? It happened to me a few days ago (though I had long suspected I had it). I know there are a few threads about vertigo, but they're a bit old.
|
|
ashley
Pearl Clutcher
Posts: 3,400
Jun 17, 2016 12:36:53 GMT
|
Post by ashley on Jan 12, 2019 18:55:43 GMT
My ex boyfriend had this. I know it can be very difficult to live with.
|
|
keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,277
Jun 29, 2014 3:29:30 GMT
|
Post by keithurbanlovinpea on Jan 12, 2019 19:02:56 GMT
My dad was diagnosed with it many years ago and he took decongestant to help
|
|
maryannscraps
Pearl Clutcher
Posts: 4,736
Aug 28, 2017 12:51:28 GMT
|
Post by maryannscraps on Jan 12, 2019 19:16:17 GMT
My sister has dealt with it for many years (10+). It comes and goes. Her main symptoms are hearing loss and vertigo. A low salt diet helped a bit.
|
|
RedSquirrelUK
Drama Llama
Posts: 6,748
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
|
Post by RedSquirrelUK on Jan 12, 2019 19:19:25 GMT
One of my close friends has it. Is there anything in particular you would like to know? I can ask her.
|
|
kate
Drama Llama
Posts: 5,528
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
|
Post by kate on Jan 12, 2019 19:33:59 GMT
My mom has it. She carries meclizine (Dramamine II or Bonine) tablets with her at all times. Her attacks are not frequent, but they can be debilitating. DH has inner ear issues, but no diagnosis. He carries meclizine, too.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 12, 2019 19:43:42 GMT
|
|
ashley
Pearl Clutcher
Posts: 3,400
Jun 17, 2016 12:36:53 GMT
|
Post by ashley on Jan 12, 2019 19:48:41 GMT
I know that he recently got a hearing aid and has found it to be a huge improvement. There was enough hearing loss to be inconvenient — I don’t recall the exact percentage, but I quickly learned to always stay on the side of his better ear. I know the vertigo, and change in hearing comes and goes in bouts — sometimes it goes away, sometimes it is a matter of adjusting to it. His doctor says there is little evidence the low salt diet makes any difference — and recommended to eat salt normally, just avoid adding extra to already salty foods.
|
|
|
Post by paperaddictedpea on Jan 12, 2019 19:50:24 GMT
My manager has it - if I remember correctly he was diagnosed about 5 years ago. He had frequent attacks the first year, many severe and lasting multiple days, but now he seems to have a minor attack every month or two. When he feels an attack coming on he immediately goes home, takes meclizine and then goes to sleep; and generally feels better when he wakes up. He follows a low sodium diet and avoids caffeine and says that's helped to manage it. I believe he takes an antihistamine every day as well. He does have pretty significant hearing loss as a result of the disease and needed to get hearing aids.
|
|
uksue
Pearl Clutcher
Posts: 2,505
Location: London
Jun 25, 2014 22:33:20 GMT
|
Post by uksue on Jan 12, 2019 19:52:52 GMT
My father has had it quite badly now for 18 yrs. He now wears a heating aid but his worst symptom is the sickness she duzziness . He's also I. slow salt diet and has been advised against caffeine and alcohol .
|
|
|
Post by Lindarina on Jan 12, 2019 20:38:30 GMT
My mother was diagnozed over 20 years ago. The first few years were the worst, with attacks that would last a week. But Meniere’s usually “burns out”. The attacks of dizzines goes away but unfortunatly, so does the hearing. The tinnitus can be overwhelming to some so I strongly advice you to get professional help dealing with it. My mother has learned coping mechanisms and lives a good life.
Stay strong. It will get better😊
|
|
maryannscraps
Pearl Clutcher
Posts: 4,736
Aug 28, 2017 12:51:28 GMT
|
Post by maryannscraps on Jan 12, 2019 21:04:09 GMT
My sister had tinnitus and hearing loss that goes on for months at a time, then her hearing comes back and she's fine for months. For her, the vertigo is the worst.
She's lived with it for a long time, and except for short periods of vertigo manages to lead a healthy and busy life. I'm not saying it's a cake walk for her, but she manages with it. The first time she had the hearing loss, she thought it was permanent, but that wasn't the case for her.
|
|
kate
Drama Llama
Posts: 5,528
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
|
Post by kate on Jan 12, 2019 21:38:17 GMT
That's interesting - I didn't know about the hearing loss connection. My mom has mild hearing loss - enough that I noticed some change, but not enough to trigger any kind of conversation from her doctor the last time she had it checked. I had assumed it was the common hearing loss from getting older. I know she has tinnitus, but I haven't talked with her lately about its severity.
|
|
keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,277
Jun 29, 2014 3:29:30 GMT
|
Post by keithurbanlovinpea on Jan 12, 2019 22:32:04 GMT
Well my dad was well into his late 60s when he was diagnosed and his primary symptoms were tinnitus and some vertigo / dizziness. He later became hard of hearing but there was never a definitive answer regarding the hearing loss being from Mennieres or just old age. In his early 80s he was diagnosed with a craniopharyngioma (a benign brain tumor) that can cause balance issues. So it's possible that he had tinnitus but not Mennieres disease.
|
|
RedSquirrelUK
Drama Llama
Posts: 6,748
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
|
Post by RedSquirrelUK on Jan 12, 2019 22:34:40 GMT
Yes. She wears a hearing aid, and some days she struggles worse than others. I try to make sure she can see me when I speak so that she knows I'm talking and can lip-read/tune in. It's worse when she has a cold, and worse when she gets stressed. She tells me when she's having a bad day so that I can make doubly sure she can see me. Hugs to you. Be honest with your friends - they will help you if they know how.
|
|
|
Post by Susie_Homemaker on Jan 12, 2019 23:53:22 GMT
I have it. I’m very blessed that I can generally manage it by staying very well hydrated. I have to drink more water than I want on a daily basis. It’s not huge amounts but enough to keep me well hydrated. Try increasing your water intake. I also stay away from foods with super high amounts of sodium. Last time I had ramen noodles I had a bout with vertigo. I haven’t had a bad ‘attack’ in a long time because I keep myself hydrated. I do get some vertigo due to not drinking enough water. I generally know that that is the cause and I can end the vertigo after a day or two. I do have tinnitus and hearing loss in that ear. I’ve really just learned to live with it. I know that if I’m in a noisy environment (like a sports arena) or if I listen to music real loud in the car that it will make the tinnitus worse. I’m learning to carry squishy ear plugs in my purse for noisy events. They help a lot and my hair covers my ears so no one even knows I have them in. My family knows that my hearing is impaired and are used to me not hearing them. I say ‘mom can’t hear, remeber’. I’ve read online about how bad this disease can be and I feel very blessed that mine isn’t worse. My ear dr did say that if I need a hearing aid in the future that I’m a good candidate for it. She checks my hearing every year and I know that I don’t hear well in the mid range. OP, I hope some of that is helpful. I’ll be glad to try and answer any questions.
|
|
|
Post by angiet on Jan 13, 2019 0:16:25 GMT
My bff has had it for about a year. Stress seems to make the buzzing worse.
|
|
|
Post by mcjunkin on Jan 13, 2019 0:19:43 GMT
I have a friend with it. She had vertigo and terrible motion sickness for w few years. After a few chiropractor visits she is able to fly and ride as a passenger in a car.
|
|
dald222
Pearl Clutcher
Posts: 2,602
Jun 27, 2014 0:50:15 GMT
|
Post by dald222 on Jan 13, 2019 6:00:27 GMT
I am sorry that you are dealing with this.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 13, 2019 7:04:54 GMT
My mother was diagnozed over 20 years ago. The first few years were the worst, with attacks that would last a week. But Meniere’s usually “burns out”. The attacks of dizzines goes away but unfortunatly, so does the hearing. The tinnitus can be overwhelming to some so I strongly advice you to get professional help dealing with it. My mother has learned coping mechanisms and lives a good life. Stay strong. It will get better😊 That's what I read, too. Both my ears are affected, so future hearing loss is scary to me. Thanks.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 13, 2019 7:05:15 GMT
I am sorry that you are dealing with this. Thank you.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 13, 2019 7:17:46 GMT
I have it. I’m very blessed that I can generally manage it by staying very well hydrated. I have to drink more water than I want on a daily basis. It’s not huge amounts but enough to keep me well hydrated. Try increasing your water intake. I also stay away from foods with super high amounts of sodium. Last time I had ramen noodles I had a bout with vertigo. I haven’t had a bad ‘attack’ in a long time because I keep myself hydrated. I do get some vertigo due to not drinking enough water. I generally know that that is the cause and I can end the vertigo after a day or two. I do have tinnitus and hearing loss in that ear. I’ve really just learned to live with it. I know that if I’m in a noisy environment (like a sports arena) or if I listen to music real loud in the car that it will make the tinnitus worse. I’m learning to carry squishy ear plugs in my purse for noisy events. They help a lot and my hair covers my ears so no one even knows I have them in. My family knows that my hearing is impaired and are used to me not hearing them. I say ‘mom can’t hear, remeber’. I’ve read online about how bad this disease can be and I feel very blessed that mine isn’t worse. My ear dr did say that if I need a hearing aid in the future that I’m a good candidate for it. She checks my hearing every year and I know that I don’t hear well in the mid range. OP, I hope some of that is helpful. I’ll be glad to try and answer any questions. Thank you for offering to help, this is very nice of you and I appreciate it. May I ask for how long you've had Meniere's disease? Both my ears seem affected, so I'm a bit scared of losing my hearing. I also read many things about the disease, but my ENT seemed detached and didn't quite adressed my concerns.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 13, 2019 7:19:58 GMT
Yes. She wears a hearing aid, and some days she struggles worse than others. I try to make sure she can see me when I speak so that she knows I'm talking and can lip-read/tune in. It's worse when she has a cold, and worse when she gets stressed. She tells me when she's having a bad day so that I can make doubly sure she can see me. Hugs to you. Be honest with your friends - they will help you if they know how. Thank you. May I ask how long she's had it? I've read many times that hearing gets worse with time. You're a good friend to her.
|
|
RedSquirrelUK
Drama Llama
Posts: 6,748
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
|
Post by RedSquirrelUK on Jan 13, 2019 15:33:53 GMT
Yes. She wears a hearing aid, and some days she struggles worse than others. I try to make sure she can see me when I speak so that she knows I'm talking and can lip-read/tune in. It's worse when she has a cold, and worse when she gets stressed. She tells me when she's having a bad day so that I can make doubly sure she can see me. Hugs to you. Be honest with your friends - they will help you if they know how. Thank you. May I ask how long she's had it? I've read many times that hearing gets worse with time. You're a good friend to her. I'll be seeing her tomorrow. I'll ask her then, but I know it's quite a few years - more than 5. Please feel free to ask any questions you would like. I know she won't mind answering.
|
|
|
Post by Susie_Homemaker on Jan 13, 2019 18:18:29 GMT
@millefeuilles I’ve known that I have it probably 6 years but I think it started before that with very mild symptoms. I’m 49 so in my 40s when diagnosed. It’s only my left ear. I’m sorry you’re dealing with this. Not knowing what the future is with the progression is a scary thought.
|
|
Deleted
Posts: 0
Jun 2, 2024 10:36:11 GMT
|
Post by Deleted on Jan 13, 2019 18:46:12 GMT
Susie_Homemaker It is a scary thought. Everyone is affected differently, so I don't *want* to worry too much , but I can't help.
|
|
|
Post by Susie_Homemaker on Jan 13, 2019 18:54:16 GMT
And I meant to say I think you should find a new ENT. Yours sounds horrible and not helpful or infomative at all!
|
|