craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Jun 4, 2019 10:09:02 GMT
I posted in the thread about silly purchases that I'd bought a funny t-shirt for my DH and ended up with a totally different one. Never mind, I thought, he can have that one instead.
Checking my bank account last night, I notice 2 t shirt purchases from different companies. Turns out the one I THOUGHT I ordered just hasn't arrived yet. The other tshirt is...a mystery! It's my account, I paid for it, but I have no memory of ordering it AT ALL
Please help me sit on my hands so I don't do this again!
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RedSquirrelUK
Drama Llama
Posts: 6,742 
Location: The UK's beautiful West Country
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Post by RedSquirrelUK on Jun 4, 2019 10:39:57 GMT
Oh babes! That's funny and a little scary at the same time.
How's the treatment going? How much more have you got?
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Post by tiffanyr on Jun 4, 2019 11:46:00 GMT
craftykittenI'm 3 years out from chemo and I still have residual chemo brain!! I struggle to find words that I shouldn't even have to think about!! Enjoy BOTH your shirts! LOL!
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Post by destined2bmom on Jun 4, 2019 12:05:06 GMT
Huge hugs craftykitten. My brother worries with every treatment that he is going to start experiencing it. Be kind to yourself. |
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Post by malibou on Jun 4, 2019 13:58:36 GMT
At least the cool shirt you picked out is still on its way.
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Jun 4, 2019 15:27:40 GMT
Oh babes! That's funny and a little scary at the same time. How's the treatment going? How much more have you got? I'm done. I did 6 rounds of the bowel cancer chemo and on the last 2 the side effects were BRUTAL. I lost feeling in my hands, I had mouth ulcers so bad I couldn't speak, and I was so exhausted I was spending days in bed. I told the oncologist I couldn't do any more and she agreed. Apparently they only expected me to do 2 or 3 cycles, so 6 is a good bit more. Now I am just trying to recover, and regain strength. I will have scans in 3 months. I've also been diagnosed with a rare genetic mutation which predisposes me to cancer (TP53, Li Fraumeni Syndrome) so we will probably have to discuss more preventative surgery. I feel like I'm having bits cut off to evade something that will get me eventually, if that makes sense? It's a weird feeling. I have given DH the t-shirt and apparently he showed me this design in the first place! So maybe I'm not going as mad as I thought. I just wish I could remember ordering it1 destined2bmom I hope your brother is recovered and enjoying life. I do try to be kind to myself but I will admit I am impatient to be back to full strength. malibou I know! I'm really glad I ordered that one but I think it is coming from the US. It's actually for a Christmas present so now I just have to remember where I put it... |
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RedSquirrelUK
Drama Llama
Posts: 6,742
Location: The UK's beautiful West Country
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Post by RedSquirrelUK on Jun 4, 2019 15:35:50 GMT
Oh babes! That's funny and a little scary at the same time. How's the treatment going? How much more have you got? I'm done. I did 6 rounds of the bowel cancer chemo and on the last 2 the side effects were BRUTAL. I lost feeling in my hands, I had mouth ulcers so bad I couldn't speak, and I was so exhausted I was spending days in bed. I told the oncologist I couldn't do any more and she agreed. Apparently they only expected me to do 2 or 3 cycles, so 6 is a good bit more. Now I am just trying to recover, and regain strength. I will have scans in 3 months. I've also been diagnosed with a rare genetic mutation which predisposes me to cancer (TP53, Li Fraumeni Syndrome) so we will probably have to discuss more preventative surgery. I feel like I'm having bits cut off to evade something that will get me eventually, if that makes sense? It's a weird feeling. I have given DH the t-shirt and apparently he showed me this design in the first place! So maybe I'm not going as mad as I thought. I just wish I could remember ordering it1 destined2bmom I hope your brother is recovered and enjoying life. I do try to be kind to myself but I will admit I am impatient to be back to full strength. malibou I know! I'm really glad I ordered that one but I think it is coming from the US. It's actually for a Christmas present so now I just have to remember where I put it... I'm glad the chemo is finished. That's fascinating about the TP53 Li-Fraumeni syndrome. I've never heard of that, but it does explain why this horrid thing keeps attacking you. And now that you have a diagnosis, they'll keep you screened and checked to make sure that any more can be nipped in the bud. So that's good. But yes it must feel very odd indeed.  |
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Post by SweetieBugs on Jun 4, 2019 15:40:42 GMT
craftykitten, I am so sorry to hear how brutal your treatment has been. The side effects you describe are exactly what my step father encountered 35 years ago as he did chemo before a bone marrow transplant. I thought treatments had improved but I guess some haven't.
Please be kind to yourself and dig deep for that patience to see things through (the mental part would be my greatest challenge as I'm a "now-now-now" type of person).
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Jun 4, 2019 15:45:43 GMT
Aw, thanks SweetieBugs. I think there are a lot of treatments for the side effects, but I've had a LOT of chemo - I had bowel cancer chemo 9 years ago, breast cancer last year, and then this was another round of bowel cancer chemo. I think it just all added together. I'm feeling better every day, but yes, it is a big mental challenge. |
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Post by grammadee on Jun 4, 2019 15:54:03 GMT
Hang in there, craftykitten! I would recommend you give the shirt to dh when it comes. No point in worrying about where it is come Christmas or finding it two years later and wondering "Where did this come from?" I got used to Chemo brain. It IS real. I started writing things down for the first time in my life. But then I would never remember to bring my lists with me, or read them when i was actually where they would have done some good. I kept thinking I would remember  . But now aging has added a whole new batch of holes in my Swiss Cheese brain. What I DO remember is that I had only half my chemo doses 25 years ago, and I am still kicking. |
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Post by newscrapper05 on Jun 4, 2019 15:54:51 GMT
Best wishes for a full recovery craftykitten! It definitely is real - my sister started a new chemo and changed all the passwords on all their accounts - no memory of doing it and no memory of any of the passwords!
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Jun 4, 2019 15:58:10 GMT
Best wishes for a full recovery craftykitten! It definitely is real - my sister started a new chemo and changed all the passwords on all their accounts - no memory of doing it and no memory of any of the passwords! I did that too....still can't remember what I changed my google password to. Thank goodness for auto-fill. grammadee these are the stories I like. Here's hoping I am still kicking (and scrapbooking) in 25 years time! |
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Post by malibou on Jun 4, 2019 16:13:40 GMT
malibou I know! I'm really glad I ordered that one but I think it is coming from the US. It's actually for a Christmas present so now I just have to remember where I put it... Great, then that chemo brain can come full circle when it's time to find it.  |
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