My DD's, 10 yo, scolios has worsened. Experiences?

I don’t, but I wanted to say I’m sorry you didn’t get better news. I hope whatever plan you all pursue is able to fix these issues with ease.

No advice just sending you warm thoughts. How scary this must be. <3

I wore a brace from the time I was 5 till I was 13 and had fusion surgery at which point I wore a different brace for 10 months, post surgery.

My curve doubled from 24 to 48 when I was 11 or so, I think when I was 12 is when we knew I would have to have surgery. I was given the choice to wait until I was 16, but even at 12 I didn’t see any wisdom in that. I think maybe they knew surgeries were progressing and maybe I wouldn’t end up in the really awful brace post surgery, but I am not sure. I just knew I didn’t want to wear the brace for another 3 years and surgery was going to happen in any event. I think by the time I went in it was 72 degrees.

So, I pretty much grew up wearing the Boston brace so I don’t really recall anything different. I was only allowed to take it off for two hours a day. I don’t have any memories of it affecting my life negatively, but then again I didn’t know any life but the one I was living, I couldn’t do much of the tumbling stuff in gym, or sit ups, but I was able to play normally on soccer and what ever else I wanted to play. Fortunately this was all going on from the late 70’s to mid 80’s so clothes were baggy, I don’t think anyone outside of my class knew I wore a brace before my surgery.

The post surgery one was much different, it was the Milwaukee brace and of course that one everyone could see. Fortunately I had a good group of friends and everyone in my grade at middle school knew it was happening, so although that one was super ugly and impossible to hide I don’t feel like it negatively impacted my quality of life. It was super awkward going to stores and stuff, but I don’t like people looking at me in any event, so that didn’t help. I think most people assumed I had been in an accident or something. No one laughed or pointed, but I was certainly self conscious. That one had to stay on all the time except for my 15 minute shower. In the shower we had to have everything I needed put up high and I had a handheld shower thing because I wasn’t allowed to bend at all without the brace.

I have to run right now, but I am happy to answer any questions you have and I can ask my mom too as she likely has more knowledge about the medical aspects and parenting aspect of it. I will just leave you with the fact that it didn’t negatively impact my life, I don’t recall much about it (other then all the doctor’s appointments) and when I look back at my childhood it is one of the last things I think about, I think about all the games I played with friends, stupid stuff we did together, movies we watched, places I went on vacations, things I did with my family, etc. it is really just a blip on my radar.

Dd went from no curve to a 40 degree curve between 15 and 16. Four year later is has gotten slightly worse, but due to her age at onset bracing wouldn’t help. Right now it is wait and see game. She might need surgery, she might not. She doesn’t have any symptoms (back pain, numbness, etc) so the current recommendation is to wait. We will see next January when she goes back to see her neurosurgeon what he says. 

At 10, absolutely. It is hard knowing dd will need surgery at some point.

I had the surgery in 85.  Did you have to wear the Milwaukee brace afterwards?  
I agree with everything about the lasting effects, I just have to be cautious when heavy lifting and the few times my back has been thrown out like that I take a half a muscle relaxer for one day then the next day I am as good as new.  

I think the surgery is harder on moms then the patients.  

I had surgery when I was 12 in 1979. by the time my parents took me to see a dr. the curve had progressed too far for bracing. I was in a body cast for 7 1/2 months after. I have not any problems and I sit really straight now. Sometimes I get some lower back pain but it isn't anything terrible.

My cousin had the surgery in her 20s two years ago and it was a vastly different experience than what I went through. She was out of the hospital in less than a week with just a brace that you couldn't really see under her clothes. I was in the hospital for 3 1/2 weeks.