ashley
Pearl Clutcher
Posts: 3,572
Jun 17, 2016 12:36:53 GMT
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Post by ashley on Dec 1, 2019 3:58:06 GMT
Ok, so this is a tiny bit gross but I’m also somewhat fascinated by it and sharing it in case anyone else has had the same issue. For many years my toe nails were super weird... they grew with cracks in them moving UP the nail (like parallel to my feet/toes, not across from left to right) and would sort of flake and peel. I mentioned it to doctors a couple times, they weren’t discoloured and no one thought it was a fungus or anything much of concern. I tried vitamins, keeping nail strengthening products on them, never wore nail polish so not to cause any damage by nail polish removers, etc. A couple of times huge pieces of my toenails would break right off.
I gave up gluten for good in January and noticed a couple of months ago that my toe nails have been growing in almost completely normally! And now there’s just a tiny bit of the weird old growth left I can tell that all the new growth is very different and healthy. I can’t believe what a difference this is!
I would never have guessed gluten intolerance could make toe nails so unhealthy and odd.
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Deleted
Posts: 0
Aug 18, 2025 21:40:22 GMT
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Post by Deleted on Dec 1, 2019 4:31:39 GMT
Did anyone ever do a scope with biopsy for Celiac?
I ask because dd has Celiac and when she had a shut down (when we found out she had Celiac Disease) her nails got brittle and broke easily. It was due to her gut not being able to absorb any nutrients.
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ashley
Pearl Clutcher
Posts: 3,572
Jun 17, 2016 12:36:53 GMT
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Post by ashley on Dec 1, 2019 4:37:21 GMT
I had a blood test for Celiac and it came back negative. The doctor I was seeing said she felt it was unnecessary to do any biopsies or scope procedures because my stool had no signs of blood in it. Her advice was “to not eat what made me sick”.
My hair is a lot healthier now although still sparse. I’m not anemic any more. My arms don’t ache and hurt all the time; I can lift my winter coat this year and my cast iron frying pans again. My bloodwork was always odd — especially immune cells didn’t make sense. I had some signs of malnutrition.
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Deleted
Posts: 0
Aug 18, 2025 21:40:22 GMT
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Post by Deleted on Dec 1, 2019 4:47:18 GMT
Her IgG is below 500 and her IgA, IgE, and IgM are off too.
She keeps having screens for MCAD as well (triptaste I believe is the screen).
Those with MCAD have weird immune system screens
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Post by lucyg on Dec 1, 2019 6:30:59 GMT
Wow. I’m glad you solved your toenail problems.
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Deleted
Posts: 0
Aug 18, 2025 21:40:22 GMT
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Post by Deleted on Dec 1, 2019 6:42:08 GMT
I might try this... my fingernails have always been bad.
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ashley
Pearl Clutcher
Posts: 3,572
Jun 17, 2016 12:36:53 GMT
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Post by ashley on Dec 1, 2019 15:39:28 GMT
I might try this... my fingernails have always been bad. It did take about 9 months to notice a difference. The odd thing was is my finger nails were never that bad. One nail on each finger had a weird split going down the length, and the ends of a few peel a bit, but I figured it was mostly from doing dishes. Honestly, I’ve been so embarrassed about my toe nails for years and years despite doing all the “right” things, it is a relief to have them look more normal again.
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milocat
Drama Llama

Posts: 5,900
Location: 55 degrees north in Alberta, Canada
Mar 18, 2015 4:10:31 GMT
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Post by milocat on Dec 1, 2019 15:45:52 GMT
That's a wierd one! I cut out gluten and my low grade daily migraine went away (when my migraines had really kicked it up, I started having a constant ache also), I am never bloated anymore, my eczema never flares up. Crazy what an intolerance can do.
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Post by freecharlie on Dec 1, 2019 15:46:58 GMT
I had a blood test for Celiac and it came back negative. The doctor I was seeing said she felt it was unnecessary to do any biopsies or scope procedures because my stool had no signs of blood in it. Her advice was “to not eat what made me sick”. My hair is a lot healthier now although still sparse. I’m not anemic any more. My arms don’t ache and hurt all the time; I can lift my winter coat this year and my cast iron frying pans again. My bloodwork was always odd — especially immune cells didn’t make sense. I had some signs of malnutrition. not saying your doctor was wrong, but I have no symptoms and can accidentally eat gluten and not know it and a biopsy confirmed i have celiac. Oddly, i did have a punky toenail that sounds similar to yours. I hit it on the couch around the time I was diagnosed and it has come in normal.
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ashley
Pearl Clutcher
Posts: 3,572
Jun 17, 2016 12:36:53 GMT
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Post by ashley on Dec 1, 2019 16:04:44 GMT
I had a blood test for Celiac and it came back negative. The doctor I was seeing said she felt it was unnecessary to do any biopsies or scope procedures because my stool had no signs of blood in it. Her advice was “to not eat what made me sick”. My hair is a lot healthier now although still sparse. I’m not anemic any more. My arms don’t ache and hurt all the time; I can lift my winter coat this year and my cast iron frying pans again. My bloodwork was always odd — especially immune cells didn’t make sense. I had some signs of malnutrition. not saying your doctor was wrong, but I have no symptoms and can accidentally eat gluten and not know it and a biopsy confirmed i have celiac. Oddly, i did have a punky toenail that sounds similar to yours. I hit it on the couch around the time I was diagnosed and it has come in normal. Honestly I did not like that doctor and she had no clue about the issues I was facing. So (TMI) I had chronic, liquid, nearly uncontrollable diarrhea for years... and it got worse and worse over time. It was pretty much pure water. Anyway, she told me to just take anti-diarrrhea medication! And I kept trying to explain that didn’t really help and wasn’t the problem and she just shrugged her shoulders at me. I’d love her to be both constipated (it was like my insides couldn’t function or move while on anti-diarrhea meds) and still have liquid diarrhea at the same time and then have someone shrug shoulders at her... I need to find a doctor who will listen to me but it’s hard to doctor shop and right now the situation here is that doctors decide whether or not they want you as a patient, rather than it being my choice as a client who I want to trust my body and medical care to.
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ashley
Pearl Clutcher
Posts: 3,572
Jun 17, 2016 12:36:53 GMT
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Post by ashley on Dec 1, 2019 16:08:52 GMT
That's a wierd one! I cut out gluten and my low grade daily migraine went away (when my migraines had really kicked it up, I started having a constant ache also), I am never bloated anymore, my eczema never flares up. Crazy what an intolerance can do. I feel like my skin is nicer too, and I get less infections. Also I’ve noticed I only get migraines during weird weather events instead of several times a month.
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Post by jubejubes on Dec 1, 2019 17:17:41 GMT
Ask your doctor for the lab (blood) test CA-125. Since you have mentioned your loose movements and also have cervical issues, this test might be able to add some information. Unfortunately, this is not covered by OHIP and is about $30. for the test. Just a suggestion.
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milocat
Drama Llama

Posts: 5,900
Location: 55 degrees north in Alberta, Canada
Mar 18, 2015 4:10:31 GMT
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Post by milocat on Dec 1, 2019 17:24:36 GMT
That's a wierd one! I cut out gluten and my low grade daily migraine went away (when my migraines had really kicked it up, I started having a constant ache also), I am never bloated anymore, my eczema never flares up. Crazy what an intolerance can do. I feel like my skin is nicer too, and I get less infections. Also I’ve noticed I only get migraines during weird weather events instead of several times a month. I still get my hormonal ones but at least I eliminated the other ones. When we went to the Maritimes this summer I had a few lobster rolls on regular bread ( when I couldn't find GF) and bam migraine. It was so worth it, this Alberta girl never gets lobster. And the migraine was a take a pill go to bed and it was gone in the morning vs a 48 hour and medication doesn't help plus there is build up and hangover hormonal migraine.
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Post by flanz on Dec 1, 2019 17:39:49 GMT
Ashley, I totally validate you. I am queen of super weird reactions to foods.
In my mid 20s I developed severe reactions to dairy and oranges. Dairy: I had to pee practically every ten minutes (to the point that I couldn't sleep) and it felt like I imagine drinking two POTS of strong coffee would feel. Oranges: I would cry all day long. Both of these were tested with several months of severe avoidance and then slow introduction of offensive food.
In my mid 30s I became severely allergic to fish. This is a true allergy, FPIES, where potentially deadly gastro symptoms are horrific. I haven't had fish in 23 years and never will again. Vigilant about avoiding fish sauce, Worchestershire, anything with small amounts of fish. FPIES is a truly horrific form of allergies - babies are born with it and have to be hospitalized when each new food is introduced, as they might need resuscitation. At least I'm a grown ass woman and can deal with avoiding certain foods.
In my mid 40s, cinnamon, coffee and wheat started causing me asthma symptoms. Practically non-stop coughing for 24 hours or so. Most recently when I've tried wheat, it causes me to be on the sofa for 3 days, feeling like I'm coming out from under anaesthsia. Three years ago I did a little test in Poland and was able to eat their wheat 3x a day without any symptoms at all. Same for Italian and german pastas, breads. Haven't been to France or had imported French goodies.
Our reactions to foods can be extremely bizarre. When I was 25 and starting to deal with this, there was an Allergy Association of Canada, or something to that effect. Their personal stories made me feel like I wasn't alone. That was back in '85. Thankfully, at least now we can go online and find lots and lots of anecdotes with similar or varied odd reactions. We have to be our own medical investigators, because trad. educated Western docs will NOT believe that oranges can make you cry and milk can make you feel hyper and irritate your urinary tract so severely. If there hasn't been a double blind study, they don't believe it. I can only imagine how many medical charts of mine have some version of "crazy hypochondriac" on them, and that is so very frustrating!
Thanks - it felt good to write that out.
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Post by Scrapper100 on Dec 1, 2019 19:39:42 GMT
Very interesting thread.
I totally hate when drs just look at you like you are from Mars when you explain a situation to them and swear it can’t work that way. Figuring out food intolerance is so not a fun thing to do.
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RedSquirrelUK
Drama Llama

Posts: 7,077
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
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Post by RedSquirrelUK on Dec 1, 2019 22:40:16 GMT
OK, vertical ridges in nails are more likely to be genetic or from an old injury, but horizontal ridges in finger/toenails are often from ill-health. If you have a cold or virus that pulls you down, you might notice that a month or so later, you'll have a horizontal ridge across (some or all of) your nails. That's because the nail bed has not grown properly because your immune system was busy fighting something instead. Intolerances work the same way. If you're not absorbing your food properly (malnutrition when your diet is "healthy" is a classic sign) then nails will behave as if you're sick. Because actually you are sick.
I think it's sad that some doctors can't acknowledge that there are some things that they don't know. Surely if the numbers don't add up and they don't know why, they should refer people to a different branch of medicine that might be able to help?
You don't have to be coeliac to have a gluten intolerance. I'm really glad you've found the cause. Good for you.
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Post by nysparkle on Dec 2, 2019 3:12:52 GMT
I consider myself gluten intolerant. I also test negative to Celiac tests.
I find your toenail issue interesting as recently I had a few toenails curl up and fall off. There was a new nail underneath. Totally odd and I do not know if it is related to the gluten intolerance.
My weird gluten side effect is a persistent itch in my inner ears. Once I gave up gluten that went away.
I also have a lot of digestive issue with gluten. My doctors would just send me for a colonoscopy. The results from that would be normal and the doctors would just say your fine. No I am not fine.So I stopped eating gluten on my own and helped myself tremendously.
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Deleted
Posts: 0
Aug 18, 2025 21:40:22 GMT
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Post by Deleted on Dec 2, 2019 12:56:25 GMT
I had a blood test for Celiac and it came back negative. The doctor I was seeing said she felt it was unnecessary to do any biopsies or scope procedures because my stool had no signs of blood in it. Her advice was “to not eat what made me sick”. My hair is a lot healthier now although still sparse. I’m not anemic any more. My arms don’t ache and hurt all the time; I can lift my winter coat this year and my cast iron frying pans again. My bloodwork was always odd — especially immune cells didn’t make sense. I had some signs of malnutrition. not saying your doctor was wrong, but I have no symptoms and can accidentally eat gluten and not know it and a biopsy confirmed i have celiac. Oddly, i did have a punky toenail that sounds similar to yours. I hit it on the couch around the time I was diagnosed and it has come in normal. My son is severe celiac and most blood tests came back negative. I can’t recall which test finally revealed it, but many of the screening tests they do are inaccurate. His life has changed dramatically since he’s been off gluten for a year.
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