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Post by stampinbetsy on Oct 28, 2014 2:40:45 GMT
Did they suggest seeing an orthopedist at all? My ds went to his endocrinologist once, who noticed a curvature. He ordered xrays and said there was a 21 degree curvature. Saw a specialist who said it was 9 degrees. He was watched for a year and we're done. Now I know why our endocrinologist isn't an orthopedist. Lol
I don't know how fast you can go from no curve to significant curve. I guess I would wait and see what the xray says.
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Post by Skellinton on Oct 28, 2014 3:15:45 GMT
6 months can be a long time regarding scoliosis. She needs to see someone who specializes in scoliosis, not just her pediatrician. I had a 24 degree curve that doubled in less than a year and was up to 72 by the time they did surgery a little less than a year after the 48 degree measurement.
Just for your own peace of mind have her current curve evaluated by a specialist and see what he says. The curve could be drastically different than what the ped says. At the very least the specialist should at least recommend PT to help with her shoulder pain and posture.
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Lissy007
Junior Member
Posts: 97 
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Post by Lissy007 on Oct 28, 2014 11:52:50 GMT
My dd went from a 13 degree curve to a 29 degree curve in a year. She had a huge growth spurt. She now sleeps in a hard brace every night. She'll have to wear it for two years...or until she stops growing. She just turned 13. It's a battle every night with the brace. It's so uncomfortable for her, but if she doesn't wear it there will be surgery in her future. She's starting physical therapy next week to help strengthen her core.
Curves can change quickly during a growth spurt. I would see an orthopedist.
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Post by gracieplusthree on Oct 28, 2014 12:04:42 GMT
I was diagnosed with scoliosis at the age of 10. I wore a milwaukee brace for 23hours a day for 2 years and still had to have surgery when I was 12 to have harrington rods put in. I dont know the degree of the curves but I did have 2 curves.I also dont know what the treatment options are not(my surgery was in 1986) just wanted to let anyone who may want to know that life goes on and can be good even with surgery  I also would go see an ortho |
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Post by alibama on Oct 28, 2014 12:56:07 GMT
My grandson is 18months old and we were told at birth that he had this. So far they have not had to do anything though, I guess only time will tell if he will need surgery. He has his appointment coming up next month.
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Post by Skellinton on Oct 28, 2014 13:01:41 GMT
I was diagnosed with scoliosis at the age of 10. I wore a milwaukee brace for 23hours a day for 2 years and still had to have surgery when I was 12 to have harrington rods put in. I dont know the degree of the curves but I did have 2 curves.I also dont know what the treatment options are not(my surgery was in 1986) just wanted to let anyone who may want to know that life goes on and can be good even with surgery I also would go see an ortho My surgery was in 85, I wore the Milwaukie brace from age 6 to 12. I have no bad residual effects from the surgery either. But without it, I would certainly be crippled by now, if the crushing of the lungs didn't kill me. |
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Post by eebud on Oct 28, 2014 13:02:37 GMT
When I was in my early 30's, I was seeing a new doctor for the first time. He noticed that I had a slight curvature in my spine. He asked me if I had back pain and I told him no. He said that I probably will as I get older due to the curve. I was never diagnosed as a child and I don't think my curve is too bad but I have had back pain as I got older. I seem to be able to keep the pain away or minimal if I exercise regularly which builds my core and keep my weight down. My back feels it when I put on a few pounds. So, if there is something they can do while the child is still growing, then please do it. Mine is minor but I can have a VERY painful back that might be due to the slight curve.
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Post by Jockscrap on Oct 28, 2014 23:38:59 GMT
My daughter was diagnosed with idiopathic ie, no underlying cause, scoliosis when she was 15. She'd noticed one hip stuck out more than the other, but I didn't notice at all until I was rubbing sun cream on her back on holiday. Her grandparents had made a few comments about her posture being bad.
After ruling out no sinister cause with an MRI scan (rare for there to be), she got 6 monthly X-rays to check the progress of the curve, until she stopped growing a year or so later. At which point they said it was unlikely to get worse and she was discharged.
She has no back pain, is majorly in to circus training doing ribbons and trapeze, is incredibly bendy, and the scoliosis hasn't impacted on her life to any great extent. There are a few Pilates exercises where she needs to lie on her side that are uncomfortable for her, but Pilates is generally considered to be a great thing for scoliosis. She can correct the appearance of the curve to an extent by consciously altering her posture, but that is pretty hard work to do all the time. She often wears skin tight clothing, and I think it unlikely most people would notice the curve unless it was pointed out. It is in the high 20s.
I understand how you must be feeling. My DH and I were devastated when I realised she had it on holiday, and my DD and I were absolutely stunned when we saw her first X-ray as the curve looked so much worse than we had realised. I can't believe I hadn't seen it before, but at 15, I didn't really see her without clothes. But for my DD it really hasn't been anything like as awful as we imagined it to be, and I hope you have the same experience with your DD.
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