Deleted
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Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 3:30:54 GMT
My older sister was diagnosed with breast cancer about five weeks ago from a routine mammogram. She does not have health insurance nor is she working since her diagnosis. She applied for Medicaid two days after her diagnosis with the hopes her application would be approved on the fast track due to her situation. She called the state yesterday (Texas) and they said it was going to take another 45-days because she only filled out the first part of the application. She has alway been healthy and her annual doctor appointments have always been paid out of pocket. Her sickest point in the last 10 years was having bronchitis where she paid $500 that year for her three doctor visits. Physicals and recommended scans were free under AFA. My sister has never been one to financially plan very well. Not that she is a big spender - the girl can manage a dollar. She and her husband have had more lean years than good years with her high school education and no certifications or special training - she has coasted through various jobs throughout her life. The money they made gave them enough to live with a few nice things along the way. She doesn't have any idea of how the proverbial shit is going to hit the fan moneywise for cancer treatment - labs, scans, specialists, surgery, radiology, chemotherapy, etc. She has been offered a little bit of money from various family members and she thinks a few thousand dollars is going to pay for her treatment plan. She doesn't know the type of breast cancer she has (maybe due to shock of news when I talked to her) or what degree/level/range. The only thing she could tell me was that her doctor said "moderate carcinoma". My thought is she would be better off trying to enroll in a healthcare on the open marketplace as part of a special enrollment versus waiting for Medicaid to kick in so she can start treatment ASAP. Can anyone with more experience with Medicaid, open marketplace, etc. chime in with your perspective? Mom and I need to guide sister on possible insurance or payment options. Thanks
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finaledition
Pearl Clutcher
Posts: 4,896
Jun 26, 2014 0:30:34 GMT
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Post by finaledition on May 15, 2020 3:35:27 GMT
I’m sorry. I don’t have any experience in that area to offer. But prayers to your sister as you help her through her treatments.
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Post by iamkristinl16 on May 15, 2020 3:45:53 GMT
I would check if Medicaid would back pay any medical costs that occur between now and the time she is approved. Often times they go back 1-3 months.
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pridemom
Pearl Clutcher
Posts: 2,843
Jul 12, 2014 21:58:10 GMT
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Post by pridemom on May 15, 2020 3:46:25 GMT
Once approved her Medicaid should be backdated to her application date. It may or may not impact her Medicaid eligibility if she gets a Marketplace policy. I would suggest she contact the federally funded community health clinic in her area for primary care as charges are based on income until her Medicaid comes through. Oncology at a good center will work with her if she is waiting on Medicaid. Their social workers will be used to policies for her state. The American Cancer Society also has programs, so check online.
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Deleted
Posts: 0
Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 3:48:06 GMT
I'm so sorry. Sending positive thoughts to you, your sister and your family.
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Deleted
Posts: 0
Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 3:57:34 GMT
Prayers to your sister. If she's going to a cancer center, she could speak to a social worker there and they'd guide her to filling out forms for coverage. If she's having a difficult time financially, they have programs that she could apply for.
Good luck.
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Post by lucyg on May 15, 2020 4:13:46 GMT
Sending wishes for a good outcome for your sister.
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tanya2
Pearl Clutcher
Refupea #1604
Posts: 4,427
Jun 27, 2014 2:27:09 GMT
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Post by tanya2 on May 15, 2020 4:56:52 GMT
I'm so sorry for your sister, for her diagnosis as well as the added stress of trying to figure out how to pay for treatment. That should never be a decision anyone should have to make
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Post by elaine on May 15, 2020 5:01:20 GMT
Good thoughts and wishes for your sister. I don’t know how to advise on the Medicaid issues. I do know that the American Cancer Society has programs to help people who can’t cover the costs of their treatment.
(((Hugs))) to you both.
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Deleted
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Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 5:35:02 GMT
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Post by nlwilkins on May 15, 2020 6:44:08 GMT
Every time hubby is prescribed something expensive for his cancer treatment, we are sent to the financial assistance office and they try to find ways to offset the price of his treatments. One shot that he has to have very six months costs over $27,000. Our share of that is around $450. Then his daily meds are pretty high too. They found a program that pays for it. It was totally unbelievable.
Your sister needs to contact her oncologist and get started on treatment. The sooner the better, as assistance may dry up the longer we go through this pandemic.
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on May 15, 2020 7:18:14 GMT
I am so sorry. What a hideous situation to be in. I would encourage her to keep pursuing treatment, if she's only had a mammogram there will need to be further tests before they can confirm what treatment plan she needs. Not everyone with breast cancer receives chemo, for example. Best wishes to her and your family.
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katybee
Drama Llama
Posts: 5,448
Jun 25, 2014 23:25:39 GMT
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Post by katybee on May 15, 2020 7:39:51 GMT
My brother was without Insurance when his cancer reoccurred several years ago. His company had let him go when his leave ran out after his first cancer surgery. They rehired him after he recovered, but it took three months for his insurance to kick back in. Unfortunately, the cancer came back within that three months, and he had to have surgery. We were terrified that he was going to be denied treatment, but he never was. It was a pain in the ass – do not get me wrong! The biggest headache was getting the needed scans. The major radiology place around here stopped giving them to him, because his balance was so high.(If you’re in Austin – it was ARA). He had to go to a different radiology place, which was inconvenient, and the doctor said the scans not nearly as detailed. But he was able to get the surgery, and his doctors never denied treatment or appointments because he did not have insurance or could not pay. Granted, he is WELL over $100,000 in debt. He’s hounded by really ASSHOLE and unscrupulous bill collectors. Several have even told him that he will go to jail if he does not pay. LOL. Caller ID is a beautiful thing. And the amount of bills he gets in the mail could wallpaper a small mansion. He is unable to pay those bills and probably never will. It killed his credit. He may file for bankruptcy someday, but that’s the last thing he’s worried about right now. It really doesn’t affect his quality of life at this point. He got the care he needed.
Recently, he switched over from his private insurance to Medicaid, and there was another gap. He was able to get all of his meds for free (including his chemo, which is something like $25,000 a month). Again – his doctors at Texas Oncology and MD Anderson never denied him an appointment or care.
My point is—it’s going to be terrifying and a pain in the ass. It’s going to put her in an unfathomable amount of debt. It’s the last thing that she should have to worry about right now. But with a lot of phone calls and explaining, she still can get the treatment she needs.
My sister-in-law, who is from New Zealand, has been horrified by this whole experience. They have universal healthcare, and none of this would ever have been an issue there.
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Post by LavenderLayoutLady on May 15, 2020 10:09:21 GMT
I'm so sorry for her diagnosis during this hectic time.
She needs to pursue cancer treatment as if money is no issue. schedule appointments with the oncologist, work with the office/hospital financial aid liaison and social worker, explain that she has applied for Medicaid.
Also, contact her local government representative for help with fast tracking Medicaid. This is something they do, and something they can feel good about because it's an issue they can fix. They want happy constituents.
Also, Medicaid will pay back payments, around 3 months worth.
((Hugs))
Just tell her to go, go, go. Debt can be addressed later. Health comes first.
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Post by christine58 on May 15, 2020 10:14:39 GMT
$27,000. Our share of that is around $450. Then his daily meds are pretty high too. They found a program that pays for it. It was totally unbelievable. This exactly happened when my dad started a chemo pill for his kidney cancer. Wilmot Cancer at Strong in Rochester found a program to pay for it...all of it. Unfortunately it did not help him but it was one expense he did not have to worry about.
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TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,831
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on May 15, 2020 10:26:00 GMT
I am so sorry. Such a scary time for your sister. I am sure she is feeling so defeated.
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Post by mikklynn on May 15, 2020 11:08:42 GMT
I am so sorry you and your family have this added stress for your sister.
Best wishes to her for a great outcome.
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Post by Spongemom Scrappants on May 15, 2020 11:14:23 GMT
I hope your sister’s treatment is very successful and she’s able to get help with covering the cost of it.
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Deleted
Posts: 0
Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 12:51:58 GMT
God I LOVE this tribe - THANK YOU to everyone who responded! Much love to you all!
Now to start making phone calls and help her navigate this maze.
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ellaknits
Full Member
Posts: 186
Mar 17, 2020 22:21:56 GMT
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Post by ellaknits on May 15, 2020 12:59:30 GMT
She should connect with the NCI closest to her - the National Cancer Institute hospital. They will have the best treatments and approaches, they will also have information about financial support and social workers who can help with paperwork, Medicaid, etc.
Our nearest NCI is the next state, they do accept Medicaid, but they also will work with people who do not have insurance. On the hospital's appt page, there is a number for a financial advocate who will help with that before setting up an appointment.
Try that maybe? We went the NCI route when my husband was diagnosed, and so I always recommend that first - they have all the resources and often are more flexible about the money part.
Please let me know if you want specific information - if you can tell us what state she lives in, I can dig and find the NCIs nearby. Or go to cancer.gov and search that way. Cancer.gov has a ton of good resources we used to set up my husband's care. Good luck!
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Post by gizzy on May 15, 2020 13:15:46 GMT
I'm thankful that others have the knowledge to help! Keeping your and your sister in my thoughts during this difficult time.
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Post by lisacharlotte on May 15, 2020 13:18:29 GMT
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Post by tiffanyr on May 15, 2020 14:24:30 GMT
I had breast cancer in 2016. My chemo treatments every 3 weeks were $60,000 each week. My first year of treatment was over $250,000. We spent $10,000 in out of pocket expenses in 2016 and again in 2017. This will most definitely have an economic impact on her and her family. I am not sure where in Texas she is or what her income is but most counties in Texas have a indigent health care program. Google Texas county indigent health care program.
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pridemom
Pearl Clutcher
Posts: 2,843
Jul 12, 2014 21:58:10 GMT
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Post by pridemom on May 15, 2020 14:27:40 GMT
Please have her apply for Social Security Disability as well. Medicare eligibility kicks in after two years. The longer you wait to apply, your benefit decreases.
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ellaknits
Full Member
Posts: 186
Mar 17, 2020 22:21:56 GMT
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Post by ellaknits on May 15, 2020 14:41:20 GMT
Oh, here's my other plug for the NCI approach - see what tiffanyr wrote - cancer care is expensive. So here's info on the range for my husband's procedure: And the invoice we saw from the hospital for surgery and 2 days in a private room was $20,000. So there was a huge difference there and we felt like he got the best care possible. For radiation, we were back in our home state and a non-NCI and that was $90,000 (you have to have a CT scan every day you are treated, at $3500 each - ugh). It would have been less than half of that at the NCI, but he needed to do it locally. So just some additional info that I hope helps your sister.
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SweetieBsMom
Pearl Clutcher
Posts: 4,741
Jun 25, 2014 19:55:12 GMT
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Post by SweetieBsMom on May 15, 2020 14:53:53 GMT
Please have her apply for Social Security Disability as well. Medicare eligibility kicks in after two years. The longer you wait to apply, your benefit decreases. I am so sorry your sister has to deal with this. This was going to be my advice as well. Don't wait on Medicare. Get going on treatment now. The hospital that provides treatment should have social workers that can help her navigate this and may have avenues that can help with her expenses. Being sick is ridiculously expense. DH had cancer for 7 years. His treatment alone, 2x a month, was $30k a pop. Thankfully I had good health insurance through work, and was working a 2nd job, but I still needed to go on a payment plan with the hospital. The beginning of the process is brutal, so many questions, so many appointments, your sister will feel better once there's a plan of action. I've heard horror stories about trying to get approved for SSDI but DH didn't have a problem. He had a letter from his doctor saying his cancer was terminal and he was approved very quickly. Sending hugs and positive thoughts.
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purplebee
Drama Llama
Posts: 6,792
Jun 27, 2014 20:37:34 GMT
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Post by purplebee on May 15, 2020 16:34:24 GMT
Sending prayers for your sister, hope she can get treatment quickly with a good outcome.
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Post by anniefb on May 15, 2020 19:18:53 GMT
My sister-in-law, who is from New Zealand, has been horrified by this whole experience. They have universal healthcare, and none of this would ever have been an issue there. No, here in NZ all cancer treatment is free. Patients who have private health insurance would only use it to avoid delays in getting tests done etc.
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Deleted
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Oct 6, 2024 23:35:09 GMT
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Post by Deleted on May 15, 2020 19:31:28 GMT
Y'all are wonderful! We are feeling more hopeful already! MWUAAHHHH!!!! 😘😘😘
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