snyder
Pearl Clutcher
Posts: 4,493 
Location: Colorado
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Post by snyder on May 21, 2020 2:18:20 GMT
My most wonderful BIL has been fighting Myelodysplastic Syndrome, a form of blood cancer for well over a year. He is finally going to receive a bone marrow transplant. He goes into the hospital at 6:00am tomorrow. He will receive high doses of chemo for 5 days and then on the 26th, receive the actual transplant. Any prayers and positive thoughts are greatly appreciated for this man. He is the most easy going, hard worker, generous person I've seen and I so much want him to come through this with great success. Thank you!
freecharlie My sister wanted me to thank you for the suggestion of the Staybridge Suites. It is a lovely place and only 4 miles from St. Lukes. They we given a room at only $79 a day! Which insurance will pay 75%. So a huge THANK YOU!
Update 5.27.2020 BiL had his transplant today. Had a few really rough days prior while going through the large doses of chemo, but yesterday was better and today he received his cells. Said he was feeling pretty good, but tired. Now it is wait and see how this goes. They say you get to feeling 1% better each day, so it will take him close to 4 months to start feeling normal again. Said it actually could take up to a year to be 99.8%. I'm not 100% sure where in the timeline they determine if things are going to be okay. I'm sure rejection can occur at any time as with other transplants, but for today, he is good! Thank you all for your prayers and support!!!!
Update 06.03.2020 BiL is struggling a bit, going through the rough part of this process, but hospital staff all say it is normal. The meds have made blisters and sores in his mouth so bad they are bleeding and he can't eat, so they are putting in a feeding tube to keep nourishment going. It is 7 days out from the actual transplant, and they say day 14 should show huge improvement, so we are still crossing fingers that he reaches this point soon as its been heck so far. Thanks for any and all your thoughts and prayers.
Update 06.18.2020 Went to Denver yesterday to help my sister take things they will need to live in the nearby hotel for the next 2 months while BIL continues to recover. They were going to maybe release him by week's end, but they called and said to come get him, they were going to release him. Went and got him and all his baggage. 19 meds he will be taking for awhile. He is doing so much better, but still very weak, has a difficult time keeping food down, but he is out of the hospital! Since he has no immune system, he will be on IV antibiotics for awhile and they will be coming today to teach my sister how to do that. Sister said he seems a bit depressed today and figured that was very normal. Hard to be so sick for such a long time and not have some depressed emotions. Continued prayers are appreciated.
Update 7/31/2020
Thank you for your prayers for my BIL! He is coming home today. All his blood work is looking good. Now for him to stay healthy while he continues to heal and get stronger. He will travel to Denver 1-2 times a week (90 miles from home) for them to continue to monitor him, but I know being home will be so much better for him. Always better to be in your familiar surroundings.
It is amazing what they can do these days. So thankful for the BMT team he had and their knowledge to get my BIL through this.
Again, thank you from the bottom of me and my family's hearts for your prayers.
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Deleted
Posts: 0
Aug 18, 2025 21:32:06 GMT
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Post by Deleted on May 21, 2020 2:19:48 GMT
Prayers for a successful transplant.
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Post by epeanymous on May 21, 2020 2:21:14 GMT
I am thinking of you and your family. I hope he comes through this easily and successfully.
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Post by destined2bmom on May 21, 2020 2:30:20 GMT
Sending prayers and healing thoughts for a successful transplant.
Please let us know about his progress.
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Post by mnmloveli on May 21, 2020 2:33:14 GMT
Sending prayers for strength and healing to you, your BIL and all your family.
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Post by freecharlie on May 21, 2020 2:34:48 GMT
Prayers of strength and healing heading his way and prayers of strength to your sister.
Glad the hotel worked out
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Post by alexa11 on May 21, 2020 2:37:04 GMT
Sending prayers!
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Post by roberta on May 21, 2020 2:37:22 GMT
Prayers and wishes for the best possible outcome.
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Post by idahopea on May 21, 2020 3:02:18 GMT
Best wishes for your BIL!! We have a friend who went through a very similar procedure last fall (not sure which kind of blood cancer it was for) and is doing amazingly well. The 5 days of chemo before the transplant were the hardest for our friend so some encouraging messages might be nice to send to your BIL.
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snyder
Pearl Clutcher
Posts: 4,493
Location: Colorado
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Post by snyder on May 21, 2020 3:49:53 GMT
Thank you all. I will update on his progress. I can't imagine going through this, but many do with great results, so we have the same high hopes.
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Post by jenjie on May 21, 2020 3:55:41 GMT
Praying for a successful transplant and recovery 🙏
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Post by dewryce on May 21, 2020 3:56:54 GMT
Best wishes for successful treatment!
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Post by scrapmaven on May 21, 2020 4:21:53 GMT
My most wonderful BIL has been fighting Myelodysplastic Syndrome, a form of blood cancer for well over a year. He is finally going to receive a bone marrow transplant. He goes into the hospital at 6:00am tomorrow. He will receive high doses of chemo for 5 days and then on the 26th, receive the actual transplant. Any prayers and positive thoughts are greatly appreciated for this man. He is the most easy going, hard worker, generous person I've seen and I so much want him to come through this with great success. Thank you!
freecharlie My sister wanted me to thank you for the suggestion of the Staybridge Suites. It is a lovely place and only 4 miles from St. Lukes. They we given a room at only $79 a day! Which insurance will pay 75%. So a huge THANK YOU! Your bil is in my thoughts and prayers. May his transplant be successful and may he be cancer free very soon. |
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Post by crazy4scraps on May 21, 2020 4:22:54 GMT
Sending healing thoughts for your BIL! I hope his treatments are successful.
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Post by auntkelly on May 21, 2020 4:46:46 GMT
I will say prayers for your BIL.
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Post by LavenderLayoutLady on May 21, 2020 11:11:37 GMT
Many good thoughts for his recovery.
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Post by peace on May 21, 2020 11:31:34 GMT
sending excellent juju for the best possible outcome!!
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Post by mikklynn on May 21, 2020 12:38:25 GMT
I am praying for the best possible results for your BIL.
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Post by Linda on May 21, 2020 12:40:30 GMT
prayers
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Post by KikiPea on May 21, 2020 14:01:16 GMT
Covering your BIL, Dr.'s and family in prayer!
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Post by leannec on May 21, 2020 14:07:23 GMT
Positive thoughts coming your way for your BIL  |
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Post by malibou on May 21, 2020 16:31:07 GMT
Keeping him tucked up in my thoughts while he goes thru what is hopefully a life changing operation. Best wishes to his medical team. I look forward to a stellar update.
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FurryP
Prolific Pea
To pea or not to pea...
Posts: 7,797
Site Supporter
Jun 26, 2014 19:58:26 GMT
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Post by FurryP on May 21, 2020 23:28:16 GMT
Sending good thoughts to your family that the treatment is successful.
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ddly
Pearl Clutcher
Posts: 4,066
Jul 10, 2014 19:36:28 GMT
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Post by ddly on May 21, 2020 23:29:12 GMT
Sending up good thoughts!
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Post by christine58 on May 21, 2020 23:30:32 GMT
My most wonderful BIL has been fighting Myelodysplastic Syndrome, a form of blood cancer for well over a year. He is finally going to receive a bone marrow transplant. He goes into the hospital at 6:00am tomorrow. He will receive high doses of chemo for 5 days and then on the 26th, receive the actual transplant. Any prayers and positive thoughts are greatly appreciated for this man. He is the most easy going, hard worker, generous person I've seen and I so much want him to come through this with great success. Thank you!
freecharlie My sister wanted me to thank you for the suggestion of the Staybridge Suites. It is a lovely place and only 4 miles from St. Lukes. They we given a room at only $79 a day! Which insurance will pay 75%. So a huge THANK YOU! Who is his donor? My cousin had ALL (leukemia) and one of his brothers was a total match. 6 year later---still all good. Prayers and "GROW CELLS GROW" |
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snyder
Pearl Clutcher
Posts: 4,493
Location: Colorado
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Post by snyder on May 22, 2020 4:23:23 GMT
My most wonderful BIL has been fighting Myelodysplastic Syndrome, a form of blood cancer for well over a year. He is finally going to receive a bone marrow transplant. He goes into the hospital at 6:00am tomorrow. He will receive high doses of chemo for 5 days and then on the 26th, receive the actual transplant. Any prayers and positive thoughts are greatly appreciated for this man. He is the most easy going, hard worker, generous person I've seen and I so much want him to come through this with great success. Thank you!
freecharlie My sister wanted me to thank you for the suggestion of the Staybridge Suites. It is a lovely place and only 4 miles from St. Lukes. They we given a room at only $79 a day! Which insurance will pay 75%. So a huge THANK YOU! Who is his donor? My cousin had ALL (leukemia) and one of his brothers was a total match. 6 year later---still all good. Prayers and "GROW CELLS GROW" They tested his siblings, 3 brothers, but 1 has something so they wouldn't take him to begin with and 1 sister and none matched. All they know is this person is suppose to be an excellent match and they are from Canada. Glad your cousin is still doing well! They really have come a long ways in this area of treatment. My brother had a kidney transplant in the late 80s and he passed in 2015, but it wasn't from kidney failure, but overall complications from diabetes. Awesome stuff. |
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snyder
Pearl Clutcher
Posts: 4,493
Location: Colorado
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Post by snyder on Jun 3, 2020 19:52:17 GMT
Put an update in op.
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Post by mom on Jun 3, 2020 19:56:30 GMT
Update 06.03.2020 BiL is struggling a bit, going through the rough part of this process, but hospital staff all say it is normal. The meds have made blisters and sores in his mouth so bad they are bleeding and he can't eat, so they are putting in a feeding tube to keep nourishment going. It is 7 days out from the actual transplant, and they say day 14 should show huge improvement, so we are still crossing fingers that he reaches this point soon as its been heck so far. Thanks for any and all your thoughts and prayers.
I am sorry to read your update. Its funny you mention the '14 days' thing because a lady that I follow on Insta's step-father had a bone marrow transplant in mid May and I recall her saying the same thing. Thankfully, her step dad did make the corner and things start to look better at day 12 or so. I am hoping and praying for the same thing for your BIL. |
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Post by christine58 on Jun 3, 2020 19:57:19 GMT
Very soon they will start a test his cells to see if he has “engrafted” the new ones. My cousin received a bone marrow transplant for leukemia and it does take a while. He can also ask for these little sponges on a stick that he can put in his mouth that will help with the sores. My cousin liked those and chocolate milkshakes because it seem to dull the pain. But they will know probably within the next couple of weeks if he’s making new cells
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Post by cadoodlebug on Jun 3, 2020 20:02:32 GMT
Keeping him and all your family in my thoughts and prayers. Can't imagine going through all this in these trying times. Blessings to you all.
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