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Post by Erica on Jul 2, 2014 14:30:04 GMT
I am a diabetic. I'm 44 and was diagnosed in my middle 20s. I am a type 1. I am currently taking steps to get an insulin pump.
My daughter will be turning 13 in a couple of weeks. She recently had her well child check up. She also had blood work done. Her A1C1 was elevated at 5.8. And her thyroid was elevated as well. She is being referred to a pediatric endocrinologist.
My 44 year old knows what to do. But as her mother, I am beside myself. I don't know what to do.
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whiskerfish
Junior Member
Posts: 57 
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Post by whiskerfish on Jul 2, 2014 14:36:12 GMT
I'm sorry. It's so much harder when it's our kids. I hope the new endocrinologist is a huge help.
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scrap4nick
Shy Member
Posts: 32
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Post by scrap4nick on Jul 2, 2014 14:59:53 GMT
I have Type 1, I was dx'ed when I was 14, and am now 40 with two bio kids and two adopted kids. So far the kids are all healthy and I know how fortunate we are. Have you tested her on your own at home, just to see what her fastings and post-prandials are for yourself? Also, is it possible that a higher A1c is consistent with the thyroid, not an indicator of diabetes?
I'm sorry you both are going through this. It's scary, and tough. But you also know firsthand that she is going to be ok (and you will be, too). Right now it's just the uncertainty and the unknown. Keep us posted?
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scrapngranny
Pearl Clutcher
Only slightly senile
Posts: 4,773
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Post by scrapngranny on Jul 2, 2014 15:13:05 GMT
My 16 year old was dx last week with Type 1, it has been overwhelming to my DD and in her DH. It's very hard to wrap our heads around the forever-ness of this dx. Thankfully, he's a smart kid, who has jumped in with both feet to learn what he needs to learn and take good care of himself.
I hope your endocrinolist has some better news for your daughter. You know first hand what it means for her. Keep us posted.
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thecurleyque
Junior Member
Posts: 97
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Post by thecurleyque on Jul 2, 2014 15:59:15 GMT
5.8 is still within the normal range (3.0 to 6.0) for hemoglobin A1C. The high thyroid hormones would concern me more (but that could be as simple as Grave's disease which just means a pill every day).
One random blood test does not diagnose diabetes - there has to be 2 (in a row). Does she have any symptoms? Increased thirst, increased urination, weight loss, has she been sleeping more?
I know anything medical having to do with your child is scary and it's easy to think about the worst, but you have an advantage over a lot of parents by being diabetic yourself. You already know and can help your child learn the proper diet and how important it is to test their glucose every day and take their insulin.
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smartypants71
Drama Llama
Posts: 5,739
Location: Houston, TX
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Post by smartypants71 on Jul 2, 2014 16:16:58 GMT
I totally understand. I have T1D and so does DD. So far, DS does not have it.
Look at it this way, at least it is the disease you know, and you'll be able to cope with it just fine.
Have you heard of the program Trialnet? They will do antibody testing on your children up until the point they turn 18 at no cost.
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Post by irisheyes on Jul 2, 2014 16:37:21 GMT
That is a big hard thing to deal with when it is happening to your child. Hugs.
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smartypants71
Drama Llama
Posts: 5,739
Location: Houston, TX
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Post by smartypants71 on Jul 2, 2014 16:59:49 GMT
Here's the link to the Trialnet website to get free screenings every year. I know many in the DOC that have done this. TrialNet Info |
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Post by mellyw on Jul 2, 2014 18:01:18 GMT
I also wouldn't worry about the A1C yet. The thyroid can throw off all sorts of things.
Has she had any other symptoms? Maybe focus on that, see if you can flesh it out a little more that way. Tests aren't foolproof, and can be thrown off by other things happening in the body.
Personally, I'd check her blood sugar in the morning with your meter for a couple days. Especially if you can't get into the Endo right away.
And if you can't get away from thinking she may be Type 1, try to remember how far treatment has come, & how much hope there is for the future. My daughter and niece are both Type 1's, the Insulin Pump really streamlined their lives. My Niece is a college graduate who travels to Third World Countries to teach, and my Daughter is a BioMedical Engineer going into her Junior year, contemplating Medical School. Not much holds back this generation of Diabetics.
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Post by Erica on Jul 3, 2014 1:10:32 GMT
Thank you for the advice. This was her second A1C1. Both were elevated. We'll see.
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