llemarra
Shy Member
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Post by llemarra on Jul 2, 2014 14:35:10 GMT
I had my year labs done and my iron was critically low. I am scheduled to get an iron infusion next week. I also have to have endoscopy and colonoscopy. I an nervous about it and can't post on facebook cause my family would all freak out. Anyone ever had an iron infusion? One of my coworkers said it made you feel really bad for 2 days. I have no experience with this. Me being in Australia and all my family in the USA I feel pretty alone right now. Say a prayer for me please.
Thanks
Tami
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Post by peasapie on Jul 2, 2014 14:40:23 GMT
I'm sorry - I've never heard of that. I did have a blood transfusion when my iron was critically low during my fibroid days. After the transfusion, I immediately felt better.
Wishing you the very best. Sorry I can't be of more help.
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gloryjoy
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Posts: 3,332
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Post by gloryjoy on Jul 2, 2014 14:43:53 GMT
My mom had one before surgery for a tumour. I can't tell you if she felt bad for a couple of days because she was already very sick from chemo and radiation.
But even if you feel bad for a couple of days, I'm sure you will feel much better after that.
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Post by bingcherry on Jul 2, 2014 14:46:31 GMT
I had multiple iron infusions over a span of three years when I was in my late teens. I don't particularly remember them making me feel bad. The first one I had done was in the hospital (just to make sure I didn't have an allergic reaction), the remainder of my infusions were done in my hematologists office.
I will say that reactions to medications are extremely individualized. I honestly wouldn't worry about it.
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Post by peajays on Jul 2, 2014 14:49:38 GMT
My DD19's levels are extremely low,.but they have put her on Feramax 100 which is supposed to be absorbed better...she has a follow up blood test soon, after she's been on it for a few weeks to see if its improved.
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Post by straggler on Jul 2, 2014 14:52:36 GMT
Wishing you well! DH has had numerous iron infusions. He didn't feel any worse after receiving them.
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Post by Zee on Jul 2, 2014 15:01:05 GMT
Not me, but my MIL has had them multiple times. She actually felt better, not worse. They did them in the office, no big deal. I have occasionally administered then in the hospital with no difficulties or complaints from any patients. Try not to worry!
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SweetieBsMom
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Post by SweetieBsMom on Jul 2, 2014 15:05:03 GMT
Not me, but my MIL has had them multiple times. She actually felt better, not worse. They did them in the office, no big deal. I have occasionally administered then in the hospital with no difficulties or complaints from any patients. Try not to worry! I was just going to say something similar. My Aunt has to have them routinely and always feels better after she has them. |
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Post by scrapsuzy on Jul 2, 2014 15:09:06 GMT
I had one last fall when I was in the hospital for ruptured esophageal varicies. I had lost quite a bit of blood, and if the infusion hadn't worked, I would've had to have a blood transfusion. Fortunately, it worked. I don't know if I felt better afterwards, as I was feeling so bad in general already.
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Post by donna on Jul 2, 2014 15:24:18 GMT
My mom has had quite a few of them. The only complaint she ever had was that it took about 8 hours to do the infusion. She always felt better afterwards.
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theshyone
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Post by theshyone on Jul 2, 2014 15:34:56 GMT
I was too ill to know if I felt better or worse afterwards. But they didn't work and I had blood transfusions.
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calgal08
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Posts: 2,519
Jun 27, 2014 15:43:46 GMT
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Post by calgal08 on Jul 2, 2014 15:43:37 GMT
I had one many many years ago - I was 13. Mine was for heavy periods (meaning, bleeding constantly for weeks and weeks). I had a blood transfusion and a couple of weeks later an iron infusion. I honestly don't remember feeling ill from it (but I was in the hospital for a long time and couldn't move about anyway). I do remember the first thing my Mum said when she walked in my hospital room "you're bright orange" - apparently the huge dose of iron temporarily changes the color of your skin :-) You will be constipated, so stock up on dried fruit.
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caronpea
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Posts: 18
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Post by caronpea on Jul 2, 2014 15:52:02 GMT
I have had two in the past 8 years due to very low iron. The first time it was spread out over a month in weekly visits (one per week). I did great with that and noticed a huge improvement in my energy level. The last one was a year ago and was done all in one day (5 hour infusion). Again, no problems or reactions. But a word of warning....if they do the infusion all in one day, as the previous poster said, bulk up on fruits and veggies and LOTS of water, as you can get constipated easily. And that could bring on other issues.  They are very easy. It's done through an IV in your hand usually and they should do a test with a sample of the iron to make sure you do not have any allergic reactions. I went to my oncology office to have them done and if you are going to be there an hour or longer, bring something to listen to or watch. And earphones.  |
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~Tessie~
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Post by ~Tessie~ on Jul 2, 2014 15:57:41 GMT
No experience, but you will be in my thoughts and wishing you the best outcome for all your tests.
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Post by krispin41 on Jul 2, 2014 21:29:42 GMT
I am actually surprised I didn't get one. They found out about my ovarian cancer due to me being anemic. My doctor sent me to a specialist when numbers didn't improve after taking iron supplements. During chemo I was up to 4 supplements a day. Now I am only taking 2. I am so thankful my doctor sent me to a specialist. (Hematologist/oncologist.)
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Post by krispin41 on Jul 2, 2014 21:33:13 GMT
And since I can't figure out how to edit this post via the app, I wanted to echo the point about constipation. For me Miralax in my morning tea really helped. And other fiber rich foods. I also take a fiber supplement. Good luck.
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Post by happymom on Jul 2, 2014 21:39:44 GMT
I have Crohn's disease and had a couple iron infusions. It takes a long time especially the first time. They gave me a small amount. Waited for some time to see if there was an allergic reaction and then proceeded with the rest. It was done in an infusion center which is where I used to get remicaide infusions. Bring lots of reading materials and music - I used to fall asleep.
Sometimes the other patients had people with them, so you might want headphones, music and netflix.
Generally people report feeling better with more energy.
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They are very easy. It's done through an IV in your hand usually and they should do a test with a sample of the iron to make sure you do not have any allergic reactions.
Refupea #402