Olan
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Posts: 4,053
Jul 13, 2014 21:23:27 GMT
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Post by Olan on Nov 18, 2014 3:20:34 GMT
Because I'm going to die before I get the chance. HA. No seriously. Mom died before she was 45. Grandmother. Great grandmother...all dead. Aunt beat it but found out last week that after 15 years its back again.
My oldest sister says that while my mother was dying she prayed and "saw" god "bind up cancer" so we should all forget our murky ass gene pools and plan for the future. Luckily she couldnt see my face after she made that comment. I'm turning 30 in 106 days which is around the time I need to start figuring out preventative double mastectomy, hysterectomy, how to pay for it etc. And I'm soooo overwhelmed with it all.
I needed to get that off my chest. Oldest sister..well I told you how she feels about it, and my other sister is giving birth any day so Debbie Downer isn't what she needs.
Thanks for reading.
Update: My sister just recently had a baby and had an after baby gynecological exam type appointment (never had a baby so who knows what happens at this appointments hahaha) during the appointment the doctor saw a letter from the genetic testing place that was dated last year sometime...well in short the letter says that the mutation she tested positive for is linked to benign cancers. Still making my appointment but its super good news for at the very least my sister and possibly me!
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ingrid
Full Member
Posts: 490
Jun 26, 2014 0:52:41 GMT
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Post by ingrid on Nov 18, 2014 3:27:04 GMT
I have nothing helpful to add. I just wanted to let you know I read your post and I'm so sorry that you lost loved ones so early and that you have to worry about your health and the future like this. I'm glad you're thinking about preventative measures. ((hugs)), Olan.
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marimoose
Pearl Clutcher
Posts: 3,282
Jul 22, 2014 2:10:14 GMT
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Post by marimoose on Nov 18, 2014 3:46:46 GMT
I can't even say how I would be handling it all that if all of that were occurring in my life. I am so sorry for all the loss you have endured and the fear that must be heavy on your heart. I wish there were words that could be offered to comfort you. If it helps, I read it also and send you warm hugs. Hang in there. You are her enow and healthy so try to focus on that and a niece or nephew to cuddle. None of know how much time we will have so we need to make the most of each day. I am glad that you could release some of the stress here:)
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Post by NanaKate on Nov 18, 2014 4:09:22 GMT
I am sorry to hear this. And I can relate. My brother died at age 57 in March from pancreatic cancer. He was stage 4 when diagnosed and died less than two months later.
One of the things he insisted on doing, even while he was so very sick, was to get genetic testing at MD Anderson so his sisters as well as anyone else related to him by blood could find out if we have the gene and take preventive measures.
It turns out the middle sister and I have the BRCA 2 gene that he had. Only our youngest sister's test came back negative.
Middle sister had ovaries removed last Thursday and will schedule bilateral mastectomy and breast reconstruction later this week. My mastectomy and reconstruction is scheduled for December 9.
Our insurance (United Healthcare) is paying since I tested positively for the BRCA2 gene. Three oncologists have told me 87 out of 100 women with this gene will definitely get breast cancer by age 70. Therefore, I don't feel my sister and I have a choice. I watched my mom suffer so badly with breast cancer, so I want to do everything I can to avoid it.
So thankful my sweet brother loved us enough to get the genetic testing. It was truly his last gift to us.
Didn't mean to hijack your thread, but wanted you to know you are not alone. We can do this!
Please keep us posted!
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Olan
Pearl Clutcher
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Jul 13, 2014 21:23:27 GMT
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Post by Olan on Nov 18, 2014 4:10:45 GMT
Thanks guys it's been weighing heavily on me. And then when I think of it too much I feel like I'm jinxing myself. Gah!
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M in Carolina
Pearl Clutcher
Posts: 3,128
Jun 29, 2014 12:11:41 GMT
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Post by M in Carolina on Nov 18, 2014 4:13:14 GMT
I understand how you feel. I've been told for years that I will die early. I have a lot of serious chronic health problems and am in chronic pain.all day.everyday.
Dh and I started investing for retirement as soon as we got married. We planned the amounts to be witheld from our paychecks and invested assuming that there would be no social security anymore. We have quite the nest egg now, and I'm glad we have it so that my dh will be taken care of in retirement. I also have life insurance--to pay for $$$ medical treatments and debt and maybe a bit leftover so dh could take time off work.
I try not to think about my almost inevitable death all the time. Everyday I try to find the positive in the world and my life. I want to enjoy the time I have. I do have life threatening illnesses *now*. I have lived under the dangling shoe of possible uterine and ovarian cancer. That was an awful experience.
I did have a hysterectomy and have both my ovaries removed. I'm glad I did it. I would have already had a double mastectomy with reconstruction if the surgery wasn't too risky with my blood clot disorder and heart problems. I definitely need a breast reduction, but all my doctors say that the surgery is too risky.
You don't have cancer yet. You're healthy. Breast cancer treatment has come such a long way. It's no longer a death sentence. I know you're worried, and rightfully so. Being a Christian is no guarantee that you won't get cancer--I think that your sister is at a much greater risk because she won't be doing self checks and keeping up with her exams, etc. because she thinks she's invincible.
God's plan doesn't always make sense to us. He does use all our experiences for His glory. I've met people that I would have never met if I hadn't become ill. I've seen God's hand in my life. I do get tired of people that think *they* have some special power and insist that they can *heal* me or insist that if I only *believed* that God would heal me--or that God had miraculously healed them *because they were much more pious than me*. Just ignore these people. They're not spreading God's truth.
Only God knows the number of days inscribed on our feet. I'm living and planning my life as if I will live for years and years. I've also planned for my death as well. I think as stewards of all God has blessed us with that we should use our resources the best. If I were you, I'd plan for retirement. If you don't use it, then you can give that money to your family. Hope for the best, plan for the worst. --I do understand how you feel. I wish that I had more money *now* instead of it going into the bank for "retirement", but that's the prudent thing to do.
There is a hidden blessing in living like you are dying. I really enjoy the time I spend with my family. I don't leave things unsaid. I'm much more grateful and enjoy everything in my life. I hope I live a long time, but I also don't want to die without my family and friends knowing how much they meant to me.
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Olan
Pearl Clutcher
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Posts: 4,053
Jul 13, 2014 21:23:27 GMT
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Post by Olan on Nov 18, 2014 4:14:06 GMT
I am sorry to hear this. And I can relate. My brother died at age 57 in March from pancreatic cancer. He was stage 4 when diagnosed and died less than two months later. One of the things he insisted on doing, even while he was so very sick, was to get genetic testing at MD Anderson so his sisters as well as anyone else related to him by blood could find out if we have the gene and take preventive measures. It turns out the middle sister and I have the BRCA 2 gene that he had. Only our youngest sister's test came back negative. Middle sister had ovaries removed last Thursday and will schedule bilateral mastectomy and breast reconstruction later this week. My mastectomy and reconstruction is scheduled for December 9. Our insurance (United Healthcare) is paying since I tested positively for the BRCA2 gene. Three oncologists have told me 87 out of 100 women with this gene will definitely get breast cancer by age 70. Therefore, I don't feel my sister and I have a choice. I watched my mom suffer so badly with breast cancer, so I want to do everything I can to avoid it. So thankful my sweet brother loved us enough to get the genetic testing. It was truly his last gift to us. Didn't mean to hijack your thread, but wanted you to know you are not alone. We can do this! Please keep us posted! NanaKate thank you for sharing this and so sorry for your loss. I hope all the surgeries go well and everyone enjoys the holiday together. Please update.
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Deleted
Posts: 0
Nov 23, 2024 0:23:10 GMT
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Post by Deleted on Nov 18, 2014 4:18:40 GMT
Olan, I'm sorry you're even having to consider all this I just lost a close family member to cancer way too young (just turned 43), and it has rocked my world. Sending you good thoughts. I wish I had something wise and wonderful to say.
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Post by Pahina722 on Nov 18, 2014 4:22:10 GMT
My grandmother died of ovarian cancer. My mother survived it, but she's now battling breast cancer and found out that she has one of the BRAC genes that is an indicator for both. Both her sisters have had breast cancer and one died of it. As a result of the family history, I figured I was a shoe-in to win the cancer lottery.
But I lucked out. My genetic testing came back clear. On the other hand, the geneticist indicated that for people like me with such a strong family history of these specific cancers, insurance companies are beginning to see the light and approve prophylactic mastectomies and hysterectomies.
So, I understand your fear . . . But don't give up. If you have the genes, there's a good chance that you CAN get insurance to pay for the operations. Even if you can't, if you know that you're at a much higher risk, your doctors can more closely monitor you.
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Post by NanaKate on Nov 18, 2014 4:24:05 GMT
Olan, will do. (((HUGS)))
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Post by papersilly on Nov 18, 2014 4:28:43 GMT
I know how you feel. It doesn't ease my mind that no one on my mom's side of the family lives past 68. I'm 47. My dad's side seems to go unless cancer is involved. When I had all my prehysyerectomy problems, I though for sure something bad would happen in my mid 30's. But, I here I am at 47. Sorry about out your family history. But start saving for retirement. You may be blessed with all the years they were not so you will need it.
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ginger
Shy Member
Posts: 34
Sept 20, 2014 15:19:42 GMT
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Post by ginger on Nov 18, 2014 10:55:05 GMT
I can relate to your feelings. I too feel like I will die young. The women in my family do not live long lives. My maternal grandmother died in her forty's, my paternal grandmother died in her forty's, her daughter died at 45, my mother died at 54 and my sister died at 52. I am 53. They all died from different things but still young. I do worry about it sometimes more than others and sometimes just tell myself to let it go, what will happen will happen and just enjoy what I have now but that is not always easy. Sorry for what you're dealing with and hopefully you can find a way to feel better about this.
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Post by Spongemom Scrappants on Nov 18, 2014 11:55:39 GMT
Wise advice. Olan - you have reason to worry knowing your family history. You wouldn't be normal if it didn't cause you some fears or worries. But *knowing* can be empowering. "What can I do to beat the house with this hand I've been dealt?" You are a smart cookie. Use the knowledge you have about your family history. Learn more about options and prophylactic treatments open to you. Make a plan to maximize your health. Take that worry and channel it into a plan. Live long, honey. But don't live under this cloud. I've read the end of the book... we're all going die. Live big while you're living.
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Post by straggler on Nov 18, 2014 12:05:58 GMT
(((Hugs))) to all who are dealing with health issues!
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 18, 2014 12:09:04 GMT
It sounds to me that you have not thoroughly researched all your options, insurance coverage, etc. These surgeries, if indicated, are covered.
I high recommend heading over the the FORCE website for genetic cancers, esp BRCA. Has any one in your family been tested? There is far more than BRCA out there as well. Have you seen a genetic counselor? If not, or if it has been a few years, you need to do so. You need to do that before you go search out preventive surgeries,
As someone who did not do so before I had cancer, even though I knew I came from this sort of family, I cannot recommend it enough. Also, out generation in my family has turned this around. We have all been diagnosed earlier and treated more aggressively and we are all still here. I turned 59 recently, My cousin, who had her first bought of cancer at 32 is now 55. This was unheard of before our generation.
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quiltz
Drama Llama
Posts: 6,850
Location: CANADA
Jun 29, 2014 16:13:28 GMT
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Post by quiltz on Nov 18, 2014 12:11:50 GMT
None of us know how much time we have on earth.
I had a complete hysterectomy at age 33. 2 years later my mom had stage 4 ovarian cancer. There is no history of breast cancer in my family, however, there is kidney and colon cancer. I have a yearly test for kidney & bladder cancer and have a colonoscopy every 2 years. Each time I have been clear.
There are more people who are killed in vehicle accidents each year than from other sources. I should know as a family member was killed in a single vehicle accident (passenger). 3 weeks earlier my mom had died of cancer.
Sometimes life really isn't fair. Isaiah 57:1-2
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Post by christine58 on Nov 18, 2014 12:18:29 GMT
Because I'm going to die before I get the chance. HA. No seriously. Mom died before she was 45. Grandmother. Great grandmother...all dead. Aunt beat it but found out last week that after 15 years its back again. My oldest sister says that while my mother was dying she prayed and "saw" god "bind up cancer" so we should all forget our murky ass gene pools and plan for the future. Luckily she couldnt see my face after she made that comment. I'm turning 30 in 106 days which is around the time I need to start figuring out preventative double mastectomy, hysterectomy, how to pay for it etc. And I'm soooo overwhelmed with it all. I needed to get that off my chest. Oldest sister..well I told you how she feels about it, and my other sister is giving birth any day so Debbie Downer isn't what she needs. Thanks for reading. Have you been tested for the breast cancer gene???
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Post by monklady123 on Nov 18, 2014 12:31:06 GMT
It sounds to me that you have not thoroughly researched all your options, insurance coverage, etc. These surgeries, if indicated, are covered. I high recommend heading over the the FORCE website for genetic cancers, esp BRCA. Has any one in your family been tested? There is far more than BRCA out there as well. Have you seen a genetic counselor? If not, or if it has been a few years, you need to do so. You need to do that before you go search out preventive surgeries, As someone who did not do so before I had cancer, even though I knew I came from this sort of family, I cannot recommend it enough. Also, out generation in my family has turned this around. We have all been diagnosed earlier and treated more aggressively and we are all still here. I turned 59 recently, My cousin, who had her first bought of cancer at 32 is now 55. This was unheard of before our generation. Listen to Melissa. I have a friend who had the preventative surgery last month. She doesn't regret it for a minute because now it's one less thing to worry about. I felt the same way when I had my hysterectomy (precancerous tissue probably caused by the Tamoxifen I took for breast cancer, at least according to my doctor) and we discussed whether or not to take my ovaries also. I said get rid of them. One less thing to worry about. Now obviously ovaries aren't the same thing as a mastectomy because they're not visible, and so much of our culture is based on someone else's idea of sexuality. But you can have reconstruction if you want, or wear a bra that's fitted with prosthetics. Do get in touch with the genetic people, talk to your health insurance, and see if you can find some people who have had the surgery. People who are HAPPY with the surgery. There is always going to be someone who has to tell you all the horror stories and you don't need to listen to that. Prayers as you make all these decisions.
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Deleted
Posts: 0
Nov 23, 2024 0:23:10 GMT
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Post by Deleted on Nov 18, 2014 13:38:36 GMT
If I didn't plan for retirement, that would be a guarantee I'd live to be 100. That's just how things work for me.
I'm sorry that you're dealing with this kind of thing. But you've gotten some great advice here in this thread. Good luck with whatever you decide to do.
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uksue
Pearl Clutcher
Posts: 2,546
Location: London
Jun 25, 2014 22:33:20 GMT
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Post by uksue on Nov 18, 2014 14:07:04 GMT
I was diagnosed with colon cancer aged 48 , after 20 years of inflammatory bowel disease, when my children were 18,13 and 6. I was worried I would die during surgery and wished I had more to leave my kids to help them on their way into adulthood , with me not being there to help. I was very lucky they took the whole cancer out ( I lost my whole colon) and didn't need chemo.
I don't think anyone ever regrets saving! When you have had the op, the all clear etc then you will have a nest egg to look forward to, whether it be for retirement or a dream holiday, car you've always wanted or whatever! I don't think it ever hurts to save for the future .
You have a chance to avoid this horrible disease and I am so glad you are taking it! My doctors wouldn't operate on me to prevent cancer, although they are doing so now for some patients. Good luck to you and NanaKate!
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Post by mikklynn on Nov 18, 2014 14:10:58 GMT
Olan, I am so sorry you are dealing with this.
Deal with what you must, but LIVE. Do not wait to die. Even if you develop breast cancer, it's not always a death sentence.
I've posted many times that DH was given a year to live (renal cancer). That man is a FIGHTER! It's been 7 1/2 years. New drugs and new treatments are our hope. Make them yours, too.
Take time to acknowledge your very valid fears, then get back to living. Plan for that retirement.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Nov 18, 2014 14:20:34 GMT
Ohh..
and one more thing...
Latest research indicates ONLY the tubes need to be removed. It's the latest, greatest news in ovarian cancer, especially hereditary ovarian cancer! No more early menopause. Too late for people like me... who still wouldn't even be in menopause, but great news for younger women!
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~Susan~
Pearl Clutcher
You need to check your boobs, mine tried to kill me!!!
Posts: 3,259
Jul 6, 2014 17:25:32 GMT
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Post by ~Susan~ on Nov 18, 2014 15:08:57 GMT
Ohh.. and one more thing... Latest research indicates ONLY the tubes need to be removed. It's the latest, greatest news in ovarian cancer, especially hereditary ovarian cancer! No more early menopause. Too late for people like me... who still wouldn't even be in menopause, but great news for younger women! That is great news. I only have one ovary left and I often worry about it becoming cancerous. This relieves my mind. TFS
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Post by BeckyTech on Nov 18, 2014 16:26:14 GMT
Such good advice on here about genetic testing. Someone I know was recently diagnosed with breast cancer. Her cousins died very young from breast and ovarian cancers and because of that, her doctor decided to go deeper on the genetic testing than just the BRCA before deciding on treatment. The testing came back and she ended up only having a lumpectomy instead of a mastectomy. Genetic testing can be a fantastic tool. Spongemom Scrappants said it well:
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Post by scrapcat on Nov 18, 2014 16:30:32 GMT
You've suffered a significant amount of loss in your life, that is hard in and of itself, let alone facing your own health issues. You have every right to be frustrated with that and feel sort of hopeless. But I think you have the luck/blessing of living in a time where medicine is way more advanced than it was for your Grandmother and perhaps even your mother. You should def seek some support to help with the overwhelmed feeling. Don't give up, take one day at a time. Positive energy/thoughts to you++++
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Post by jeremysgirl on Nov 18, 2014 16:33:51 GMT
This post makes me sad. I am so sorry for all the loss you've had, but don't stop living. There are no guarantees in life and you still need to plan for retirement. With newer treatments there is so much hope for people with cancer.
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Post by mrsscrapdiva on Nov 18, 2014 17:29:27 GMT
I just wanted to say I am sorry this is weighing heavily on you. (((hugs))) Is there genetic testing that you can done?
I don't know the right thing to say but it is true to live everyday to it's fullest and to always be grateful. I am a hugger, so I always hug like I mean it.
I just wanted to say too I love your avatar pic. You look so sweet holding that yummy looking cake.
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Post by colleen on Nov 18, 2014 18:14:23 GMT
I completely understand where you're coming from: Grandmother, three maternal aunts, and my mother all died from breast cancer. My sister had breast cancer 8 years ago. It's scary. I had genetic testing and am positive for BRCA II. I felt doomed. I had a preventative double mastectomy in 2006 and it was a huge weight off my shoulders. Testing, screening, and surgeries have come a long way. Be vigilant -- but live! Please contact me if you have any questions.
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Post by Merge on Nov 18, 2014 18:30:20 GMT
I'm sorry for your losses. I get it, though - we've had several deaths in my family to brain cancer. Those who don't get cancer seem to get killed off early in freak accidents, like my parents. I go through very fatalistic phases where I think there's no point in planning for retirement, and then I shake it off for a while. Fortunately DH is in charge of the financial planning and he's a marathon runner who will probably live to be 100. So at least he'll be covered if I get hit by a bus at age 57.
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oh yvonne
Prolific Pea
Posts: 8,064
Jun 26, 2014 0:45:23 GMT
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Post by oh yvonne on Nov 18, 2014 19:53:31 GMT
M in Carolina, what a beautiful post. You are an amazing woman, thank you for sharing your thoughts on that.
<hugs> to Olan, there is sage advice here, I'm so sorry you are going through this.
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